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  • MonikaV
    MonikaV Member Posts: 201
    edited October 2010

    Kad22 : I do not understand either.

    Jenn3 thanks for the info.

    Titan: I agree with you.

    Navy mom : Thanks for the info. I will pass it on to her.

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  • Titan
    Titan Member Posts: 2,956
    edited October 2010

    I didn't have a masectomy but my SIL did (guess we like to keep the BC in the family)..we were diagnosed one year apart...freaky...she did very well with it..hated those drains though..was glad to get them out..She is now over two years out and doing well..reconstruction and every thing. She didn't have to have chemo or rads though..she is  er &pr positive..lucky girl..I guess...She really hated the drugs they gave her.  She was in pain...constantly...so..I don't know..even though I'm tn..I would have to say that my recovery from everything was much quicker than hers...We both have/had breast cancer but our paths were totally different with different se's.

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  • Swanny
    Swanny Member Posts: 147
    edited October 2010

    The best thing that happened to me today.  I went to a reunion for my grammer school.  I graduated from 8th grade in 1971.  I knew a few of the people and believe it or not a couple of the men knew me and were disappointed that I did not remember them.  I had a good time and connected with some old friends.

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  • Titan
    Titan Member Posts: 2,956
    edited October 2010

    Swanny..that's probably because they looked OLD and you do not..ha ha.

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  • Swanny
    Swanny Member Posts: 147
    edited October 2010

    Funny - actually everyone (even the guys) looked pretty good.  I am hoping one of them might ask me out.  Now I have to get back on facebook for the reunion site (i dont like facebook) so I can keep in contact and maybe get that date.

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  • Titan
    Titan Member Posts: 2,956
    edited October 2010

    My best thing today was having a hot dog roast with my DD and her fiance.  They are so sweet together..does anyone remember that engagement period?  When you couldn't keep your hands off each other and had to be together all the time?

    Plus..my DH and I are going to the ocean for a few days on Monday..I'm so excited..we did that last year right after treatments...I remember walking out to the ocean and just bursting into tears...I never thought I would see it again when I was diagnosed.

    Life IS good..though we BC patients just have to work for a little harder though..don't we?

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  • tatasista
    tatasista Member Posts: 7
    edited October 2010

    LJ I had a Bilateral Mastectomy on Sept. 24, 2010...I had virtually no pain. Took Tylenol the first 3 days. I did find sleeping in the lazy boy was much more comfortable than the bed. I slept in the chair the first 3 days. I also had pillows under each arm. The only inconvenience is the drains. Also do exactly what the Dr. says.... Good luck. You are in my prayers.

    Has anyone ever heard of wound revision?

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2010

    The best thing about today was spending it shopping with my DD. It helped keep today positive because it was three years ago today that my dad passed away (his nickname was Sugar)...and exactly one year ago today that the sale of my mother's house closed and she wound up in the hospital with congestive heart failure and COPD on a respirator for seven days (she flatlined twice during her stay in ICU). So I've just about gotten through Oct. 9th on a very positive note this year. I was dreading this day but it wasn't so bad because this year is better.

    Have a nice evening ladies and LauraJane I'm going to include you again in my prayers tonight. 

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2013

    What is everyone doing to prevent a return besides working out and diet? I am taking Vit D & C, iodine, flaxseed oil capsules, and aspirin 3 times a week. I haven't started chemo yet and I plan on stopping this while on chemo. Anyone taking supplement while rec'ing chemo?

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  • LRM216
    LRM216 Member Posts: 2,115
    edited October 2010

    I take my two calcium pills each morning - a 2000 unit Vit D3 and one 81 mg. baby aspirin - each day - every day.  All agreed to by my onc. I have changed some of my eating patterns, but have to admit, not nearly as much as I should have.  Exercise really amounts to just my normal running around each day, with working, raising my 15 yr. old granddaughter and her heavy schedule and remaining active with life, not any programmed "exercise" as such.  I do have to add something that I personally feel, and this is just MY feelings, I do not wish to impose them on anyone else; however, I am on a few other boards as well and I must honestly say that I have seen other triple neg gals (as well as hormone positive) go on massive documented CAM therapies, taking as many as 20 different pills a day, all having scientific basis, only to recur or progress anyway.  My onc is not a believer of those types of pill taking, yet there are onc out there that do recommend this.  So, since I feel, again my personal feelings only, that this disease is merely a freaking roll of the dice anyway, I can live with taking only what I presently am taking.  I do wish that they could make the calcium horsepills a bit smaller - geez, I dread getting those things down each morning!

    Best wishes to all,

    Linda

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  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    I take vitamin D-3 10,000 IU daily which is supposed to be good for preventing breast and lung cancer.   No harm.   Medical oncologist said OK.

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  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2010

    My best thing today......spending the morning with DH having a good breakfast, a trip to Lowes, worked in the garden, talked to DD at college, she's doing well, catching up on work and now we are getting ready to sit down and watch the Saints play - whoo hoo..... 

    Fighter34 - I am of the belief that getting cancer is a crap shoot and having a recurrance falls in that category for me.  With that said - I have been taking 1500 units (500 3x day) of calcium and 2000 units of Vit D3.  I also follow up with the oncologist and pay more attention to what my body is telling me.  I do find that I don't eat a lot of processed foods and am walking regularly. 

    Hope everyone is having a great weekend.

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  • Jwatrlily
    Jwatrlily Member Posts: 211
    edited October 2010

    Hee, hee.  I updated my picture.  At the beginning of all this I said if I lost my hair (which I have after Hubby and I shaved it down to bare scalp yesterday) that I hoped my hair would come back in, Hot Pink.  My friend bought and sent me this wig.  I like it and I may just wear it.  Really!

    Juanita

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  • kad22
    kad22 Member Posts: 191
    edited October 2010

    Jwaterlily - too cute!! Love it!

    Best thing today was the weather although it was a little too warm for Wisconsin! I did finsih my two large comprehensive paper/exams for my Masters - so that is good!

    Laurajane - still in my thoughts and prayers!

    Have a great week everyone!

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  • Swanny
    Swanny Member Posts: 147
    edited October 2010

    Had a good weekend so I am grateful.  Thinking of you Laurjane.  Hope you are doing OK.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    jwatrlily- one of the first things my son did when he learned I was going to have chemo was to buy me a hat. It was a Patriots ball-cap but the top was one of those flame-head type deals; you know... red fuzz going all over the place. I wore it proudly, and it gave me the first big laugh after diagnosis.

    Diet: yep, I was scared into all the low-fat, no sugar, exercise, take supplements scenario also at first. Now, after the "Oh crap I'm going to die" phase has passed I have pretty much resumed my pre-diagnosis lifestyle: everything in moderation, with a bit more emphasis on low-fat. I no longer keep it to 20% low-fat, as I initially did. I will say that concentrating on fat content, like concentrating on calories, was a real eye opener.

    Just back from a gorgeous six hour sail with hubby and my crazy cousin. It was a beautiful day here. Tomorrow I have to finish the Insects  section of my Naturalist Journal. Over 2000 raptors flew over Cape Henlopen hawk watch yesterday; I think it was a record day.

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  • Titan
    Titan Member Posts: 2,956
    edited August 2013

    I take vit d3, folic acid, biotin, asprin, milk thistle, flaxseed, multi vit.,  COQU10,  calcium..don't know if it will do any good..but I feel good taking it..the onc knows I take all this stuff...says, the D3 and calcium and folic acid are the best. plus the aspirin..when you hear on the news that 70% of all breast cancer patients are low in vitamin d..well..that is good enough for me..hoping to be in the 60's or 70's next time it is checked.

     Oh and about the lifestyle..I do jog 2 miles per day..eat apples bananas...I like doing that..but I also enjoy having my wine and eating well..avoiding processed foods and alot of red meat and dairy..but didn't do much of that before anyway...sooo..like they say its a crapshoot..not going to avoid everything fun and going out with my friends...and trying to just live normal! heard too many stories of people going crazy with the vitamins and exercise and dropping dead a young age..not for me.

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  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    I've found I'm a bit of a fatalist, too.  I think talking in terms of prevention indicates a desire to have control over this blasted disease, which is understandable, but I don't think possible.  I take vit D3 because I was found to be low, and walk to build energy and feel better.  I don't eat much red meat, but haven't in years anyway.

    Best thing today.  Drove from my mom's in Va to my brother's place in Alexandria and got to visit with him and my nieces.  When I got out here last week and was driving across Pa, I ended up in tears, because not so long ago I didn't think I'd be doing this again.  Whipping around Jersey in my rental Beetle made me feel normal :)

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2010

    The best thing I did today was spend Thanksgiving dinner at my in-law's house.  We had a wonderful turkey dinner with all the fixings and pumpkin pie. 

    I take a very cheap drugstore multivitamin, curcumin, vitamin D3, calcium/magnesium, Omega 3 and green tea extract. I took most of this stuff before breast cancer but curcumin and green tea extract are what I've added new.  Also, before bc I took a really good multi from Whole Foods but now I just take a cheap one. I try to get 45 minutes of exercise 4-5 times a week and that's usually a walk with my dog or on the treadmill or a workout at the gym.  I did this before breast cancer so that hasn't changed either. 

    Retrievemom - glad to hear you feelt like yourself again in Jersey!

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  • 5andcounting
    5andcounting Member Posts: 232
    edited October 2010

    Just visiting again, so glad we are out of the chemo phase.....I ran in the Komen 5K yesterday and was surprised at all the emotions it brought.  I kept thinking, will I be here next year? So far, everything is fantastic, I feel great, I am dating a wonderful man, it is all so perfect that it scares me.  Other than exercise, diet, etc., is there anything you girls are doing to stop thinking about recurrence? I have twinges in my rib bones (had x-ray films, all normal) and I think its coming back.  I've thought about asking my doc for a pet scan but I'm afraid of what it may show.  Its ridiculous really, I am almost afraid to be happy. Anyone relate?

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  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    retrievermom,

    I so look forward to feeling somewhat normal.   Radiation is still better then chemo.

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  • TiffanyF4
    TiffanyF4 Member Posts: 171
    edited October 2010

    Titan:  I did the same thing I was diagnosed just after we returned from a family beach trip with my family and my Parents.  We went back to the same beach  over the summer a year out from diagnosis and it was very emotional for me I too wasn't sure if I would see the ocean again. The ocean is my favorite place to be.  My Dad past away the month before we went and My Mom just wasn't ready to travel yet. So it was bitter sweet.

    Crs319: I feel exactly the same as you about every other week! It drives me nuts! One minute I am like hey I'm 35 cancer free have great Husband and 2 great kids to enjoy I have it all. The next minute I'm saying well my hips hurt hmmmmmm could it beeee ......ggggrrrrr it makes me mad at CANCER!

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  • Swanny
    Swanny Member Posts: 147
    edited October 2010

    Happy Thanksgiving to all those in Canada.  Hope your holiday is special.

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2010

    Thanks, Swanny!

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  • Claire82
    Claire82 Member Posts: 684
    edited October 2010

    I am sooooo happy! I had a colonoscopy today and all is clear. I had convinced myself otherwise. Now I can breathe again!

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  • MicheleS
    MicheleS Member Posts: 937
    edited August 2013

    having a brain MRI tomorrow.  Ugh... I hate scanxiety. Bleck.

    yay Claire!! whoo-hoo!!

    I hope everyone is doing well.  LauraJane- How are you? What's your plan for this week?

    xxoo to everyone!!

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  • Luah
    Luah Member Posts: 1,541
    edited October 2010

    Hi everyone - have been off the boards for a few days over Thanksgiving weekend. I've been following a low-fat diet (20-25% calories), but certainly cave into treats now and again (like pumpkin pie this weekend!).  Have reduced my alcohol consumption, but still enjoy a glass of wine with dinner 3 or 4 nights a week.  I try to eat more whole grains and fruits'/veggies, and less sugar.  In supplements, I take a multivitamin, bone supplement (calcium, D3, K) and curcumin. My Vit D levels tested at 79 during chemo, so I'm not too concerned. I walk/jog 3 miles 4-5 times a week and lift weights.  All these things I consider good for health generally. I know there are lots of other things I could be taking that supposedly fight cancer, but honestly I feel like it was a crap shoot getting cancer in the first place and I prefer not to let it run my life.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Well, just did my first day back in the classroom substitute teaching. (After Dx I took last year off entirely) Everyone was happy to see me and said I looked *fantastic.*

    Why do I feel so tired and unsettled?

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2010

    crs..........I hear ya.  Battle those feelings everyday.

    Navy

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  • Claire82
    Claire82 Member Posts: 684
    edited October 2010

    unsettled

    like kind of living someone else's life and wondering what you are doing in it?

    i got the same feeling when i went back to work

    it was almost like a get me out of here, anxious feeling

    i stayed and eventually the feeling went away

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