Chemo June 2010
Comments
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Tina - congrats on finishing chemo - WOO HOO!!!
Sherry - I hope your pain subsides. I get pain in my hips, too (my sister did on chemo, as well).
tomorrow is Taxol #9. Only 4 more to go. Yeah!!!
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Hi All- Your driving stories are great! My husband took my daughter out to a large local parking lot last night. Now she wants me to come along and watch. She is a persistent cuss. I tried to teach my son to drive and practically killed the kid in the process. He has been driving three years and I have only been in the car with him driving once when I was able to not scream at him. That was a post chemo day and the whole family decided chemo had done something to me.
Dmom- what age will your son be able to drive? My kids started at 16 but they can't drive in the city, over any bridges or up the NY Throughway. I am wondering how city kids deal with those restrictions.
Bon- can you make your convertible a really one with lots of seats? We can help you buy it and take turns coming to Fla for rides when our hair gets down below our ears. It could be our earsiversary!
My Mother in law is in the hospital with heart trouble. What started out as a virus is now fluid around the heart. She has suffered a couple of mild heart attacks also. She needs bypass surgery and is terrified. She is a diabetic who has had multiple heart procedures already and is severely over weight. She will have an angiogram tomorrow. We are of course all concerned. Prayers for Betty are appreciated.
TMARINA- WOOT WOOT WOOT ON YOUR LAST LAST LAST CHEMO. So glad you can close that chapter of your life.
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JFV...I'd love a convertible with loads of seats. But unless I get a convertible stretch limo I think most have only 2 or 4 seats at most. We'll all just have to take turns having the wind blow our newly grown hair. I don't know if wigs will stand up to a convertible breeze! And Joan...prayers for your DMI, Betty. I'm sure she is frightened and I hope that her anxiety is eased soon, since that alone can cause elevations in blood pressure and glucose.
Sherry...hope the pain subsides soon. But yes, I do think that SEs from chemo last for a long time, even past three weeks. My RO told me to take Advil for pain. I need to ask MO is he agrees. I would rather take plain old aspirin but they seem to think that interferes with blood clotting more than the rest. My arthritis pain is back. Could be the chemo drugs leaving my body and allowing old aches and pains to crop up again or it could be the cooler weather and lack of humidity making my joints more painful. I don't think I'll ever know the answer to that one. How long can I blame chemo for everything? Well, I still use the excuse of 'chemo brain' when I forget a name or a word or a million other things. Sounds good to me for now...Any excuse except for old age!
Oops...gotta go now to get 12th rads and then to get Herceptin IV. Busy day. And I have clients, too. Trying to keep all the plates spinning. Hope none of yours hit the ground, either!
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Bon--> Chemo brain is not just an excuse, it's real and unfortunately can last a long time after chemo is done
And I'm sure no one looking at you would think it's old age!
I am starting to get my aches and pains back too. Wrist and ankles are really starting to hurt (except for these few days I'm on steroids!). Last Feb., a few weeks after finishing FOLFOX chemo, I hurt so bad; Esp. after going back to work and being on my feet most of the day. By the time I got home I could hardly walk. Hips, shoulders, ankles, wrists, elbows, it all hurt. I think maybe after being suppressed so long by steroids it all just came back worse than ever. Onc. made a bunch of excuses--lack of excercise for so long, etc., but didn't have a real reason. After rads I will start seeing a rheumatologist again.
Thanks Kittycat and JFV! I will pray for your MIL!
Cheyenne? How are you doing these days??
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Has anyone been having feet cramps with the Taxol? When I go to bed or put my feet up, they cramp up and are very painful. I have to get up and push the foot flat on the ground to get relief.
Bon - I watched that movie with my DH about a month ago. We are very lucky that the doctor refused to give up and we have Herceptin today.
Bucket List - Ireland, Paris - I've been to both but want to bring my husband. Also getting old with my DH and 3 sisters and holding my great grandchildren!
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Lizzyanne, I get serious foot and calf cramps at night ever since the Dosetaxol started. My leg muscles scream in pain. The foot cramps are always at night in bed and are very painful. Like you I have to pull my foot up to stop it. My DH was massaging my foot at 3am last night so I wouldn't keep him awake any more.
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Hi girls, im doing great!! 5 Taxols left, so far no se's, ive been off the board for awhile, i went back to work, can you believe it? im outa the house! lol I seem to sleep a lot more then normal, but i have been getting to the soccer games and shopping by myself, the mornings are kinda hard for me cause i dont know what to do with myself but i think im doing soooo much better!!!I have 5 taxols left.. YAY!!!
Tmarina, wow, you did it!!! i cant wait till im done!!! im excited for you!!!! im doing good, thank you for thinking of me, im just sooo ready to be done with chemo!!
sherry, you poor thing, and your still hanging in there, my heart goes out to you!! you are a true inspiration!!!
JVC, your done too!! yay!!! wow i cant believe how many of us are done!! i knew i would be one of the last to be done, but the more of my sisters that finish the closer i am, 5 more for me.. Betty will be in my prayers and thoughts!!!!
kittycat, im right behind you, we are almost there!!!! im so ready to be done,im worried about the se's that might start kicking in though.
Dmom, im gonna start my bucket list today!! my chemo brain is so bad my lil guy tells me he should drive cause he can remember where he is going and i forget, lol i found my keys for the 10 time this past two weeks, i wish i could forget to eat!! ive gained 10 lbs,lol
lizzyann, ive had no pain yet with the Taxol,but i know getting a cramp is the worst!! im sorry..
bon,hello you,it seems the rads go so fast, how is your mom doing? i was thinking about her, i pray all is well!!!
i love this time of year, the breeze is coming in and its starting to feel like fall, i love it!!!
love to all, Chey
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Chey--> you sound wonderful! I'm so glad you are able to get back into "life". And glad the Taxol is going easy on you. Make sure you take breaks and naps when you need them!
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Hi All,
I am so glad for those of you who have finished. Chemo just is not fun. I had my last Docetaxol yesterday and I am now done with this chemo crap too
Now all I have to do is weather the SE and let us hope they are minimal. I look forward to my hair growing back along with my eyelashes and eyebrows. Now it is on to deciding upon unilateral or bilateral mastectomy and then radiation. The journey continues as it will for all of us. I felt so good walking out of chemo. I do not want to do that again!
Take care,
Trusting
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Congrats Trusting!!! Finishing chemo is one of the best feelings! Hoping for few se's!!
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congrats to everyone who is finishing chemo! I have 2 taxols to go, and today had an ultrasound where they can't see the breast lump at all, and there is one lymph node that is 1.5cm (don't know if this is good, but it was 3cm before chemo started).
lizzyanne and mimi - my dr told me that leg cramps can be caused by a lack of magnesium. next time you have a blood test, you should ask to get magnesium levels checked, because it is easy enough to fix if it is too low.
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Chemo- check, radiation - check, I am done!! Yippee! What to do with this new found freedom :-) Those of you having leg cramps, try drinking tonic water, it's supposed to help. I drink tons of the stuff 'cos I like it, so I can't say if it helps or not, but I didn't have leg cramps during chemo :-)
Julia
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latte, thats is great news!!!!!!!! plus you only have 2 left, ill be thinking of you on Monday!! i have 5 left.
julie yay!!!! your DONE!!!!
trusting, make that a double YAY!!!! it seems everyone is almost there, its been a long road,im so glad its coming to an end!!!
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Good news Latte!!
Congrats Julia!!! I won't start rads for 3 weeks yet--seems like its going to be forever before I can say I'm all done!
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Lizzyanne: Yes, my right foot is cramped - the three middle toes - at night is the worst. I went to an accupuncturist and I can't say that it's way better but it may have helped a little. It's SE from the Taxol. Congrats to all the ladies who are done with chemo- WOO-HOO!
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Done with chemo!
It's weird, it wasn't a happy day. I cried a lot. Totally relieved and I feel like a huge load has been lifted off of my shoulders. I am proud to have survived this hurdle. Still have to finish out a year of herceptin, but no more chemo.
Congrats to the others who have finished. We are rock stars!
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Congrats Jenmarie!!!! I know the feeling of the weight being lifted off. Won't it be great when we are all done with Herceptin too?!
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Hi
Havent posted in awhile read on here every day several times a day
I finished my last chemo i went ahead and did 6.I meet the radation dr in 2 weeks
See the chemo treatrment dr again in 6 weeks
Then Armidex for 5 years
TMarina- I see ww have close to the same diagnosis
I truly pray for all of you every day.My Home life is changing though i have maintained being the same person i fill like my only support is tired of all this it hurts i have know choice but to stay focused on getting better.It just changed so abrubtly and stay out of nthe way.But i guess folks dont understand .I wish i could talk to some of you more i just dont know how to jump in.I am trying to learn to face the things that scare me most about this entire ordeal so maybe i can live in peace each day more does that make sense.
Thank you for being here .
Renee
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WOW! So many of you wrapping up the chemo train. I can't remember all of you (chemo brain you know) but I am very happy for each one of you! I hope this doesn't mean our online friendship is coming to an end. That would make me very sad.
I did get to have my first chemo tx today. I had mixed feelings, but wanted to get it started. I couldn't look at the Epirubicin vials when they did the push because it reminded me of Adrimiacin. It was red and it seemed like she had 50 vials of the stuff! The nurse did tell me that my onc decreased all my chemo meds by 25% in the hopes of minimizing the SE's. I was light headed and felt weak by the time we left today and I came home and slept HARD for 5 hours in spite of having decadron in my pre tx bag!
I also have to have Nuelasta the day after each tx and I wasn't aware of that. My onc didn't mention that at my last visit. That scares me as much or more that the tx itself. After all, it was the Nuelasta shot that put me over the edge I think when I started out and I ended up in the hosptial. But I will take it and just have to hope for the best. I am slightly nauseated tonight but I have taken Phenergan for tonight and tomorrow morning will take my Emend, Zofran and Decadron regardless of how I'm feeling. One question: do you guys take the Claritin before or after the Neulasta?
I'm sorry my last few posts have been more complaining that being uplifting. I'm finding it hard some days to stay positive. I'll just have to work harder on that!
Chey: glad to hear you're well enough to go back to work. I think it helps mentally and physically. I feel stronger after going back to work. Now at the end of the day I don't feel stronger, LOL, but I do think it has helped.
Love you guys. Phenergan is beginning to kick in. Hope I have a good sleep tonight.
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Renee - sent you a PM
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HiHI All,I am sorry to hear about some of you having so many difficult side effects (and very happy for those of you who are done!) I don't post here often because I started chemo on Sept 10th, but I have read through everybody's journey and learned so much from you. I also gathered a lot of courage.I am posting today because I have a question about reactions to decadron and how to manage them. My second TC chemo got delayed this week because I had high liver enzyme counts, but before I learned that, I had already taken the premeds (4 pills the day before, 2 the morning of).I just had the hardest 24 hours of my life! Even without the chemo in my body, the decadron caused not only the usual fluid retention, red face, swelling, etc, but I also had an intense headache, nausea, muscle weekness and, worst of all, a sort of "brain brakedown", where I really felt paranoid, scared and unhinged. I took some ativan, which helped some, but the headaches and wierd fears kept welling up uncontrollably. Has anyone else had this problem? Is this what they call the steroid crash? I am wondering how to handle it going forward as it really scared me.I hope that you all have a s/e free day tomorrow! Best, Beau
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JVW - I am sorry to hear about your MIL. I hope things get better for her. My MIL was dx with diabetes this past year. She is also severely overweight (so is my FIL). She started having issues with her eyes and had sore on her legs. HOW SCARY, huh??? She also was a heavy smoker. She stopped smoking in January because it was bad for her eyes. However, she just started smoking again! My FIL also has health issues (and is also obese) He had a heart attack, had his heart shocked into rhythm and had BC a couple years ago, too. I really wish they'd see a nutritionist. Anyway, sorry to talk so much about my inlaws, but I can sort of empathize. I will keep your MIL in my thoughts and prayers.
Sherry - sorry to hear about your SE's and having to take the Neulasta shot. I really hated that shot. I was glad I didn't have to take it with the weekly Taxols. 3 more left! Woo Hoo!!!
Beau - welcome to the world of chemo. I'm glad you are posting here! Sorry to hear about your reaction to decadron. Are they nurses putting Ativan in your premeds? Mine did with my first Taxol and have offered since. Today was my 1st trip to chemo alone, so I didn't take the Ativan in my premeds, but wanted to. The decadron makes it so hard for me to sleep (thus the post at 11:15 at night). Ughhh...
I hope some of the ladies that have finished chemo don't leave us!!! I start rads in November. I'm really not excited about that... every day for 6.5 weeks! Yuck! And I don't want them to mess with my recon surgery. I worked hard for those implants, during the tissue expander phase! I've made this very clear to my rads onco. She must think I'm nuts (well, I am and now I have chemo brain)! LOL!
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Kitty- thanks for sharing about your MIL and FIL. I can relate. It is so so hard to watch them live in denial. My MIL is her own worst enemy and I get angry at her and feel very guilty for my anger. Her angiogram has been delayed for 5 days because she has a skin infection. None of it sounds good.
beau- I know the worst of the SEs are done for you now. But, maybe you should call your Onc or a chemo nurse and relate your symptoms. That way if there is another chemo cancellation you could have a plan to fight the side effects. Cancer is hard enough without all that extar stuff.
renee- Welcome and feel free to vent. I think this is the only safe place to let it all hang out for many of us. Only another woman in the middle of the BC fight can really relate to your struggles. Share with us what you want whenever you want to. We are here.
Sherry- Don;t worry about sharing your bad feelings with us. Chemo world truly s*cks. We are hear to cheer you through. We all have bad days. In fact I had a really bad day yesterday for no apparent reason and already yelled at my husband today.
Gonna' try to keep busy today to keep my mind off my problems. Praying for all of you!
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Renee-->Congrats on being finished with chemo!! Sounds like we might be starting rads about the same time--I'll get my sim in 2 weeks, and start the week after that. Sorry to hear things aren't going so well in your personal life. I can't imagine having to go through that now. I will pray for you this morning! We are truly here for you--please continue to come on and let us know how you are doing. We can get through this together!
Sherry-->glad you were able to get tx, but I certainly understand the mixed feelings! I hope the shot doesn't give you too much trouble. I only get a little pain in my spine about a week after getting the shot. I think you start the claritan the morning of, and take it for a couple of days. I've also heard that taking Aleve with it works best. Last year I had to get nuepogen shots, and they caused me a lot of pain. I alternated ibuprofen and tylenol throughout the day and that helped me. Your nurses might have some good ideas too. We are all here cheering you on as you go through this chemo. Soon you will be done too!
Beau--> Tell your onc and nurses about your reaction to the Decadron. I can only imagine how awful that felt without having the chemo to balance it out! Hopefully that won't happen again, but if it does, maybe your doc can tell you what to do. Maybe they can give you an infusion of Ativan or something. The "crash" usually happens when the steroid is out of your body and you feel very fatigued and sleep alot. That is my day today! Last 2 days had the "buzz" and today is the "crash"! At least its only one day for me with the Taxol.
JFV--> Hope your day gets better
I know I won't be leaving this thread! Many of us have a lot to go through still--I have 6 weeks of rads, Herceptin until next Aug., and maybe recon next summer. Besides, the "after tx" time can be difficult too, and we'll need each other to get through that. And hopefully there will be more good times in our futures that we can share too!!
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I won't be going anywhere either. I have Herceptin through June of next year. I'm here to stay.
Also, my exchange surgery is scheduled for December 1st. Trying to think of an appropriate take on "All I Want for Christmas is my Two Front ______"
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lizzyanne, mimi, toni : try electrolytes for the foot cramps. This was suggested by my oncologist and it worked for me! You can buy them at Whole fFoods, or health food stores, and some drugstores etc. I have bought powdered electryolytes, and pills and taken them before bedtime (and sometimes during the day) and they ended my foot cramps. I think sports drinks would work also.
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Beau, I had almost a "steroid rage" when taking the steroids as a pre med. I just completely lost it on my family one morning over some really trivial matter. Steroids can actually cause pychosis is some people. After that, my onc cut my steroid dose in half and it made it much better. Also liberal use of ativan at those times is helpful
Trusting, WAY TO GO! I was so happy to see the last of the Docetaxol too.
Thanks for all the suggestions on foot cramps. I will try them all. I certainly won't be going off this board. I need all of my new friends to get through not only active treatment, but the support for after treatment as well. I am here as long as you are. We still need to plan a get together at some central point when we are all through treatment and recovered.
Love and Hugs, Mimi
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Beau, I had almost a "steroid rage" when taking the steroids as a pre med. I just completely lost it on my family one morning over some really trivial matter. Steroids can actually cause pychosis is some people. After that, my onc cut my steroid dose in half and it made it much better. Also liberal use of ativan at those times is helpful
Trusting, WAY TO GO! I was so happy to see the last of the Docetaxol too.
Thanks for all the suggestions on foot cramps. I will try them all. I certainly won't be going off this board. I need all of my new friends to get through not only active treatment, but the support for after treatment as well. I am here as long as you are. We still need to plan a get together at some central point when we are all through treatment and recovered.
Love and Hugs, Mimi
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HOORAY and a big fat HAPPY DANCEfor all who have finished chemo! Yippee for you! And for those of you still plugging along with the infusions, we are all still here for you, cheering you on, drip by drip. I think that when the last of our wonderful sisterhood on this board finishes with chemo we all have to make a pact to go outside that night and let out a big loud howl at the moon! A collective "YAOOOOO"...we're done with chemo! I was happy when I finished mine but will be thrilled when we are all through with chemo and moving on to the next phase. So, what do you say? Are you with me on the howl? Whomever is the last to finish here has to keep us posted on the date when we'll be letting that old man-in-the-moon hear us roar.
I try to read your posts but am so tired lately that I can hardly keep up with them, let alone reply in any intelligent way. The rads tx (13 done, 20 to go) have finally kicked my butt and I'm just exhausted. I'm still trying to keep all the plates spinning and have my days filled from before dawn until dark, but I just collapse when I get home and haven't any energy to do much but feed the animals and crawl in bed. This week the RO told me to cut my schedule and rest more. So as of next week I'll try to work smarter, not harder. Plus, my dear friend from the Keys is coming tomorrow for a week to help out. I am so blessed to have some really wonderful friends, near and far, who have helped me in so many ways. My song for today is "I get by with a little help from my friends...a little help from my friends."
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I am trying to read all the psots too this is my first chemo week day 3 actually. I am so tired I can barely type. But too antsy to rest. trying to figure out the right routine for me. I think i took too much atavan and comapzine combined. going to alternate then now. cmpazine is next. then gonna try to cook a meatloaf ha! back to trying to rest
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