Anyone from Mississauga???

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  • rackie
    rackie Member Posts: 192
    edited September 2010

    thanks rachel.  i heard tht about taxotere as well.  i will be asking them if i can ice them while beijng infused.  my onc nurse also said not to listen to all the horror stories.  one girl did tell me to drink lots of water, take clairitin for a week starting the day before and take lots of ibuprofen, even when you have no pain.  also was told to walk around as much as possible.  i am worried about all the water retention it causes.  the pharmacist told me i will start taking my steroids the day before chemo starts.

    i will definitely keep you posted rachel.

    jackie

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited September 2010

    Hi, I had Taxotere/Cytoxan (TC) regimen and Taxotere was my main drug.  I had no problems with it...I iced my finget and toe nails and none of them discoloured or fell out and all of my hair grew back as thick as before, except now it's curly.  I gained about eight pounds but lost it pretty much right after.  I didn't experience a lot of water retention but do think part of my weight gain was related to water.  I took the Neulasta shot after each round and took Claritin to help eliminate bone pain. It was no picnic but it was definately doable. Be sure to take the steroids as prescribed.

  • rackie
    rackie Member Posts: 192
    edited September 2010

    thanks sugar!

    jackie

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited September 2010

    Hi, haven't heard from anyone lately...how are you all doing? Just wanted to check in....

  • rachel5738
    rachel5738 Member Posts: 920
    edited September 2010

    Hi Sugar--FEC kicked me down a little--not sure why--more headachy, sleepy and a touch of nausea. Not looking forward to Taxotere-Oncologist said Taxotere by itself (which is what I am having) can be hard. Just get through it. Staying close to home this week as we have that Run this weekend--well, I am WALKING (LOL)....have 43 family and friends joining me so hoping to be on a upswing by then!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2010

    Rachel, it was good to meet you in person at the Run for the Cure on Sunday and congratulations on your team award.  

    The following link from Mississauga News was sent to me earlier today about the run.  My family and my co-workers (and my little dog) participated and we all have a great time.

    http://www.mississauga.com/news/article/882262--over-600-000-raised-for-cancer-research

  • rachel5738
    rachel5738 Member Posts: 920
    edited October 2010

    Hi Sugar--Nice to meet you aswell. I was forwarded another link--and my two kids were front and centre at the start line! It was a great day. We won $350 at East Side Marios so will use it as a team celebration! I have a little chest cold now--not sure because it was so freezing or not--anyway, hoping it won't interfere with chemo next week.

    Congrats to you and your team! Next year--I will be done chemo and treatment so plan to RUN that race!!!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2010

    Hi, how's everyone doing these days?

  • rachel5738
    rachel5738 Member Posts: 920
    edited November 2010

    Hi Cheryl--Heading into Taxotere #2 tomorrow--delayed one day as I still have my cough. The last Taxotere knocked me back a bit...then my cough got much worse....just won't go away. They have done all the tests (chest xray, blood culture) but no infection--just a cold that is causing my body trouble. Hopefully it doesn't get worse with the next chemo.

  • pasmithx2
    pasmithx2 Member Posts: 227
    edited February 2011

    I will call myself Mississauga even though I live in Georgetown. I'll be meeting Dr Myers at Credit Valley on Friday.

    I have been nearly two months working on just surgery--a lumpectomy on Dec 6, 2010, a re-lumpectomy on Dec 23, 2010, and finally a radical mastectomy on Jan 19, 2010. FINALLY, we have clean margins and the surgeon will let me go. 

    My husband and I have been reading, reading, reading, and the volume of information is overwhelming. I just want to get an informed opinion of what are the best next steps to take. I've already accepted that it probably includes chemo. I will have lots of questions on Fri.

  • sheuber
    sheuber Member Posts: 36
    edited February 2011

    I'm a Mississauga girl as well! I'm glad I found this thread... it's nice to hear other people's experiences in my neck of the woods. I finished chemo in Dec (FEC-D) and have 1 more week to go of radiation and 11 more months of herceptin. I have been going to St. Joes in Etobicoke (for chemo and herceptin) and am having radiation at Princess Margaret.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited February 2011

    Hi pasmithx2 and sheuber - welcome to the Mississauga thread!

    Pasmith - which Dr. Myers did you see?  The son, Jeffrey Myers, is my oncologist.  He's great!

  • pasmithx2
    pasmithx2 Member Posts: 227
    edited February 2011

    Hi Sugar77. I have dad--Dr Robert Myers. I feel pretty good about him. He listened and didn't make me feel my questions or comments were wasting his time. So far, so good.

  • ktym
    ktym Member Posts: 2,637
    edited February 2011

    Just had to stop in and say hi.  Just hearing Mississauga brought back memories.  Some of the best parts of my life were spent in Muskoka.

  • mk999
    mk999 Member Posts: 1
    edited March 2011

    Hello, I'm from Mississauga. Had my surgery 3 weeks ago at CVH and waiting for my pathology reports which still have not been signed out. This waiting is worrisome and tough. Do have an appointment with the oncologists this week but with no reports that would have to be postponed. Have been trying to stay positive and know that there is a long road ahead and it's going to be a rollercoaster ride (never liked them). Unknown journey...scary new language...no plannned treatment at the moment. It's great to see from this thread that there are so many helpful, caring, supportive,  encouraging, wonderful special ladies.

  • rachel5738
    rachel5738 Member Posts: 920
    edited March 2011

    Hi mk999----Once you get all the reports--things will make much more sense--like everything, waiting is the worst. I had my chemo at Trillium and my radiation at CVH---everyone at both hospitals was amazing and they really help you get through this whole journey. This site was so helpful in answering questions and meeting others with similar experience. Take it one day at a time and there are a lot of resources out there to help you and get you meeting others in similar situations (Wellspring in Oakville is amazing). Take care--Rachel

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2011

    mk999 - hi and welcome to the Mississauga thread.  You'll get a lot of support here on this site so please lean on us and let us know how things are going.

    Hi Rachel...how's it going? 

  • rachel5738
    rachel5738 Member Posts: 920
    edited March 2011

    Hi Sugar---I am doing well--finished rads almost two weeks ago--have a little bit of peeling but other than that--rads were pretty easy compared to chemo. I started back at the gym to try and lose the weight I gained through the last year. Not sure when I will be back at work..in a couple of months perhaps? Hope everything is good with you. I am suitably jealous about your hair--my hair has grown in (now 13 weeks PFC) but still feel a little uncomfortable going "topless". I'm not wearing a wig at all--haven't for months---but wearing scarves or hats.

  • kyroheal
    kyroheal Member Posts: 48
    edited May 2011

    Hi everyone,

    I'm from Mississauga and I'm a 27 year old and supposed to get married this year. I just got diagnosed after a core needle biopsy that I have breast cancer. This was after one doctor told me I had a 100% normal breast exam after noticing a lump in March. I was persistant, got a second opinon, got an ultrasound and mammogram and finally saw Dr. Moffatt. My surgery and sentinal node biopsy is this Monday with Dr Moffatt and I'm looking forward to removing the lump which is about 2cm. I have no idea about anything else right now and I'm pretty scared. I'm worried because I am young and I heard it is usually more aggressive. Are there any symptoms or signs that it has spread to lymph or chest wall? I'm just so panicked and Monday cannot come soon enough. Any advice, support, or hope would be appreciated.

    Thank You

  • sheuber
    sheuber Member Posts: 36
    edited May 2011

    Hi Kyroheal - I'm sorry to hear about your diagnosis and am sending you a virtual hug. I'm also from Mississauga and was diagnosed last year at age 31. I had my surgery and chemo at St. Joes (on the Queensway) and my radiation at PM.

    My cancer had spread to 1 lymph node and they knew it had spred before I had surgery. This is because the lymph node was swollen and you could see/feel it (I had it biopsied the same time as the lump in my breast). Stay strong through out your treatments - it's a rough road but you can do it!  If there's any questions you have, I'd be happy to help. Good luck on Monday and I`ll be thinking about you. 

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited May 2011

    kyroheal - sorry to hear about your diagnosis. Dr. Moffat was my surgeon and he's very very good and highly respected  You're in good hands! Please keep us posted and feel free to ask any questions or here or by Private Message.

    Rachel - I missed your post from March 2nd or I would have responded.  I hope you're doing well.

    sheuber - how are you doing these days?

  • sheuber
    sheuber Member Posts: 36
    edited May 2011

    I'm doing much better - thanks for asking Sugar77!  I'm all done chemo and radiation and working my way through the year of herceptin (which is a breeze). I'm returning to work next month and am really looking forward to it.

    I'm attending a workshop through Wellsprings called "Breast Cancer & Healthy Eating".  Have any of you attended one of their workshops before? 

  • rachel5738
    rachel5738 Member Posts: 920
    edited May 2011

    Kyro...I am also from Mississauga. Had my surgery and chemo at Trillium and rads at CVH. I was diagnosed at 39 and it had spread to 1 lymph node. They had an idea prior to surgery as node was swollen but it wasn't confirmed till afterwards--otherwise I had no symptoms. Take it one day at a time. Once you get biopsy done and pathology in hand -- treatment plan will come-- then, it sounds strange, but gets a little easier. Feel free to ask any questions!



    I am doing a few classes at wellspring in OAkville but didn't see the BC and eating one! Have to check it out. I will be heading back to work in next couple of months so won't be able to take as much through wellspring-- it is a great place!



    Hi Sherri... I am doing well. I am getting ready for back to work plan to start.

  • kyroheal
    kyroheal Member Posts: 48
    edited May 2011

    Hi Ladies,

     Thank you all for your words of encouragement, they have helped more that you know. Yes Dr. Moffatt is great, just had my surgery on Monday and I feel great. Waiting is the tough part for me as I am back at school and trying to concentrate as much as I can. I have been trying to eat as healthy as possible in the meantime in terms of antioxidants or foods that slow/reverse progression (does that actually help?). It is about 3 weeks before I hear anything, but I heard I will most likely be offered chemo as I am young and can handle it. I'm just worried about not being able to have children later because I heard that it can effect fertility - is this true?

    On another note, all you ladies seem to be doing great and it gives me alot of hope that I can one day feel the same and help others through my experiences as you have with mine. I'm not sure about any religious statuses here but I found alot of comfort by turning to God and found a really nice verse that reminds me of you ladies with your comforting words:

    Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. 2 Corinthians 1:3-5

    Goodluck with everything

  • sheuber
    sheuber Member Posts: 36
    edited May 2011
    Hi Kyroheal - my fertility doctor told me that chemo for breast cancer is the hardest on the reproductive system. Being 31, she gave me a 60% chance that my period would return after chemo. Also, she said that my eggs would be functioning like the eggs of an older wormen. I`ve been done chemo for 5 months and haven`t gotten my period back yet. When I got my FHS levels checked, they showed I was in menapause. That being said, I may still come out of it and be able to get pregnant but the fertility doc said it`s pretty unlikly. If you can, see about getting some eggs frozen before starting chemo.
  • Cate2011
    Cate2011 Member Posts: 3
    edited June 2011
    Hi i saw your post and would like to know if you were able to form a local support group in Mississauga. I am looking for a support group right now and I appreciate any information. Thanks.Smile
  • Cate2011
    Cate2011 Member Posts: 3
    edited June 2011

    Hi sugar77

    i live in Mississauga too and recently diagnosed. I am thinking of treatment options but not sure what I'll do. Do you go to any support groups?

  • rachel5738
    rachel5738 Member Posts: 920
    edited June 2011

    Cate2011--I am in Mississauga. Had my chemo at Trillium and radiation at CVH. I was stage 2--as the cancer had got one lymph node...lucky me! I (by recommendation of Sugar!!) went to Wellspring (it is in Oakville). I joined their BC support group--met lots of wonderful people who I still talk to. They have a bunch of other programs too--I have used them a lot since my diagnosis. Would be a great place to try. I met Sugar on this thread and she was a great help for when I was first diagnosed (and your mind is racing). Please feel free to ask me anything--I can try to answer--or at least give you my experience. The one thing is that BC experience is so different for everyone. Take care, Rachel

  • maria58
    maria58 Member Posts: 39
    edited June 2011

    There is also a Wellspring in Brampton. Torbram and Sandlewood Parkway.  I used both facilities Brampton and Oakville.  Awesome programs, people and support

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2011

    Hi Cate - sorry I haven't posted sooner...I didn't realize this thread had any updates recently. I would highly recommend Wellspring to connect with other breast cancer ladies.  There is another resource called Willow.  I didn't use them but I've heard good things about it.  I think you could find by "Googling"  Willow Breast Cancer support.  There's another really good organizationg that helped me and it's called Rethink Breast Cancer. Rethink supports young women in their 20s, 30s and early to mid-forties. Please feel free to send me a PM any time and I can provide further informaiton.

    Take care, Sherri 

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