Calling all ladies in their 20's

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  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    anyone get some chestpain?  can't tell if its heart burn, muscle pain from lying down, or sensitive to steroids.  would love to hear this is normal before i give myself a panic attack.  other than that, i've been fine.  maybe eating too much...

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    Yeah I got heartburn afterwords... i hear its normal

    re: nuelastsa and pain- i actually dont experince any chest pain, but my hip burns, and achy all over.

    Nausea usually has to do with being hungry for me too. When i am not able to actually eat i drink a boost or other meal replacement shake. After about 4 days my appetite returns and the nausea goes away...

    Good luck! (btw i am on taxotere, zometa and herceptin)

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    my appetite is great but the heartburn gives me pain and nausea. any advice?  i'm done with the emmend and i so do not want to get hooked on pot...

  • MrsNice
    MrsNice Member Posts: 258
    edited October 2010
    I'm not in my 20's, but I noticed your post about marijuana to treat side effects.  Did your doc prescribe it?  I've been curious about trying it, but don't really want to smoke it (kids at home and all that).  I know there are pill-form rx's for it, but wondering about your experience.  i don't think it's addictive - based on ancient previous personal experience Cool.   thanks.
  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    i'm in ny so it can't be perscribed by my oncologist/docs anecdotally suggested it.  i won't lie - it is a TREMENDOUS help.  i'm eating lots and not in pain.  i'm in a generally good mood. 

    MRS. Nice - private mrssage me. my best friend in SF works at "legal pharmacies". i can offer you more advice.

  • Jamesgurlx3
    Jamesgurlx3 Member Posts: 4
    edited October 2010

    My name is Ashley and Im 22. I havent been diagnosed, I just found a lump in my right breast and kinda let it go for a few months. I had no idea this many women had BC in ur 20s'. I told my gyno at my yearly appt and she didnt feel anything...I had to point out where it was and she told me its in kinda a weird spot....not sure what she means? But then she sent me to a specialist I guess to get a ultrasound and see what is gong on.....I asked her what she thought it was and she said a fatty tumor or something but shes not sure, then she looked up my family history, that made me kinda nerves. My great aunt on my moms side passed away from BC. Im waiting to go to my ultra sound appt. I kinda was putting it off.....i know thats dumb. Im such a baby :( Im really scared it will come back something bad and I think about it alot...mostly around my kids, just seeing them makes me sad :( like maybe eI wont always be here when they need me.....p.s I think all of you women are the most brave ppl I have ever known, I read every post and I take comfort in your storys. You guys really are my heroes.

  • DancerMel28
    DancerMel28 Member Posts: 122
    edited October 2010

    Hi Ashley,

    The most important thing is not to panic (easier said than done I know).  It's good that you are aware of things and are taking steps to get answers and make sure you are ok.  Once you go thorugh the process and get these answers you will know where you stand - the not knowing is the worst part. Once you know which way - you can take the steps to fix it if there is something wrong.

    Good Luck, we're here to chat anytime you need.

    Mel

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    how do i combat feeling "out of it"? i was fine until this morning.

  • MelBell07
    MelBell07 Member Posts: 106
    edited October 2010

    Shira, I had really bad heartburn after my surgery. My med onc told me to take a double dose of Prilosec, and it definitely helped.

    MrsNice, yes, pot definitely helps. It helped with my appetite, mood, pain, and just relaxed me. I'm in MA, so it's not "legal" here...but I would suggest it to anyone who's having difficulties and their meds aren't doing the trick.

    Ashley, try not to freak out until you have all the answers. Like Mel said, not knowing is the worst part, so yes, it's very hard. Don't let any doctors tell you not to worry or put any tests off...it's important to check out this stuff as soon as you can. We're all here if you need us! 

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    Shira- I somtimes feel "out of it" too and usually that feeling only lasts a few days. I try to listen to music, play with my kids and try to resume somewhat a normal lifestyle!

    MrsNice- so many ppl have suggested pot for my SE but really i dont feel they are that bad. Maybe if I were more towards the end i'd try it. (i've smoke MORE than my fair share of Pot in middle and high schools so not really rushing back to it yet)

    Ashley- Agree with MelBell- DONT let any dr put you off because of your age (look where its got me stage IV now) Statistics are on your side though MOST lumps are benign, but everything is worth looking into!

  • NannaBaby
    NannaBaby Member Posts: 510
    edited October 2010

    Hello Ladies!

     I have been warding off aches and pains pretty well! Just some minor back and knee pains, but Dilaudid helps (1mg).  And I do take Marinol (pot in pill form) to help with my pain and sleep.  I don't find it has the same affect as smoking pot.  Smoking pot makes me feel stupid and VERY tired and lazy! I couldn't handle getting throught the day baked.  I find the Marinol is helping my restlessness and irritabilty from the Steroids! The steroids will drive my poor hubby away!

     I'm trying to start a new leaf.  Now that my family visits are done, I can focus.  I am off work, and need to start a routine again! I will wake up with my hubby in the morning (6am) and have coffee or breakfast with him, do some stuff around the house, nap, eat a balanced lunch (high fibre, whole foods) and take a 30-45 minute walk every day and do some meditating and stretching.  I feel so much better if I've accomplished something in the day.  I should get my paper work piles and closets organized! 

    Everyone take care! And stay STRONG!! We are beating this!

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    nanna, glad you are getting back into routine.  i was finally feeling better myself until i woke myself up CRYING last night.  i guess the neulasta took a while to hit but it hit hard.  i have never experienes so much pain in my entire life.  i couln't sleep nor find any position that was acceptable.  i finally switched from tylelon to advil and ativan which made a difference.  i have literally been screaming in agony.  my neighbors prob think i was murdered last night, it was awful.  on top of that, out of nowhere, i got my period!  does anyone have a remedy besides advil?  i was ready to go back to work. now i'm in so much pain.

  • MelBell07
    MelBell07 Member Posts: 106
    edited October 2010
    Shira - try asking for some Rx pain killers. That's what got me through Taxol/Neulasta. Call your doc or RN. Always let them know if you're having a hard time.
  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    Nana- a routine helps me too...  make me feel like i didnt just waste the day

    Shira- i have a script for vicodin which i take when my pain is at its worse (i have small children so i cant be foggy all day and it does that to me) motrin pm i was told was one of the stronger OTC and i take those when the nuelasta shot is sworking its magic

    Anything new with anyone? I go to the dr thur for my follow up after chemo and i am hoping they'll schedule the scans to check on my mets...

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    the nurse was so werd about giving me narcotics.  she said try 3 advil and next time we won't give you the full neulasta.  i know its not relative to the patients size - whether your 300 lbs or 100 lbs, its the same shot.  my oncologist is okay with not giving me the full shot.

     if the pain gets worse i will ask for an rx.  i found that a heating pad helps.  

    when do you all feel the neulasta pain?  it took me til the end of day 5.

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    i feel the nuelasta pain around day 3 or 4, mostly only in my hip

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    do they give you the full shot?

  • Alicia-Rae
    Alicia-Rae Member Posts: 31
    edited October 2010

    I was not on Nuelasta but was on Neupogen for the blood cells and it did the exact same thing. bone pain was awful! i had to get the doctor to prescribe me oxycodon. But I also found that drinking an insane amount of water helped because it passed the medication through my body faster. As well moving around as much as I could with my daughter and the dog helped. If I was stationary for too long it got worse.

    I just got back from my final doctors appointment until January! YAY. but i found that the doctor was very off putting. He asked me how I was feeling emotionally and I told him I was a bit depressed about my hair not really growing in as fast as it should and not having ANY eyelashes yet or my period. I guess since my treatment is over I just feel like I want to be normal again. He said my hair wasn't growing back as fast as usual chemo patients but then basically told me that it was stupid to waste my time being upset about my hair and such things. I realize these are small issues when facing an illness like this and its consequences however I am a woman and these things still bother me. Ugh. His bedside manner just sucked. and all he did was prescribe me anti-depressants but I am not taking them since I don't feel I am that bad.

    Ashley - I know this can be very scary. I am close to you in age, i was diagnosed at 23 and although you are not diagnosed I urge you to try and not put off your tests. it is best not to let these things go. I pray for the best for you. and MelBel is right we are all here for you no matter why you need us. even if it is to tell us there is nothing to worry about!

     This past weekend my whole family participated in the CIBC run for the cure in Mississauga. My mother and I (and my daughter!) were part of the opening ceremonies to kick off the first run in Mississauga! it was awesome and after it was over the Mississauga News interviewed us and my mother and I were in the newspaper! I am very glad we could share our stories with everyone and let people know that early detection is very important. All my friends were there and we all cried haha. it was great. here is the article http://www.mississauga.com/community/article/881833--cancer-survivors-walk-on

     now i am just trying to figure out if i will ever feel normal again. i guess now that everything is "over" all the emotions that i never let get past the barrier are rushing out and i don't know how to deal with them :(

  • Jamesgurlx3
    Jamesgurlx3 Member Posts: 4
    edited October 2010

    Thank you for all your comments......I know I have been putting it off but im not going to anymore. I had the ultrasound and now im waiting to hear back from my dr.....I asked the lady doing the ultrasound but she said she was just there to take the pictures. So I have to wait but i am one step closer to knowing, I guess. I just hope I dont have to get a biopsy.....I dont want to wait any longer. And now Im like obsessed with the lump Im almost scared to touch it like its going to be super big next time I check or something....Im so happy that I found you guys to talk to.....I dont really have anyone that will take me seriously. My husband thinks im crazy and tells me theres no way it could be cancer im to young even after I told him about you guys.shows how much he knows lol 

     I feel like if it comes back bad....at least Im not alone......

    By the way thats such a pretty picture melbell07  you look great I love it! :)

  • MelBell07
    MelBell07 Member Posts: 106
    edited October 2010
    Thanks Ashley! :) Good luck, I'll be thinking about you. Keep us informed...You are NOT alone.
  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    has anyone gotten thrush?  i think i have it now.  gross. i was going to go back to work today...

  • NannaBaby
    NannaBaby Member Posts: 510
    edited October 2010

    Hi Shira - I get Oral thrush almost every chemo! It is gross.  I use Nystatin. It's an antifungal mouth swish.  If the thrush gets bad, or you get a yeast infection to, you can take the oral pill Diflucan.  You can either get a prescription for it, or it may be available OTC.  It also helps to gargle with club soda.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited October 2010

    Oh YEAH!

    My oncologist is sending me for another MRI this Friday! It will be my 3rd one.  I'm hoping that the tumour is all gone!  I will let y'all know :)  I should have the results for my next appointment on Oct.20.  Or maybe I'll try and get them sooner!  I wanna know! I wanna know!

    Keep kickin ass ladies!

  • NannaBaby
    NannaBaby Member Posts: 510
    edited October 2010

    Oh YEAH!

    My oncologist is sending me for another MRI this Friday! It will be my 3rd one.  I'm hoping that the tumour is all gone!  I will let y'all know :)  I should have the results for my next appointment on Oct.20.  Or maybe I'll try and get them sooner!  I wanna know! I wanna know!

    Keep kickin ass ladies!

  • shiramg
    shiramg Member Posts: 186
    edited October 2010

    NannaBaby, i'm praying for good mri results for you!

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    Wow Alicia- i would assume that your dr would point you in the right direction as far as support groups, or professional help if you're saying you are depressed... Thank you for sharing the article- Love your mom's words "you dont count the days, its the days that count!"

    Ashley- In my case after they did the ultra sound the Radiologist asked to speak with me in his office (def not a good sign) I could tell by his face he KNEW it was cancer, but i had to get the biopsy to confirm, and they scheduled the biopsy that day, for the next week. He teared up a little when I decribed the treatment from my past dr, who kept insisting that it wasnt BC and just a simple nursing issue... So when do they give you results for an ultra sound? I think if it were as serious as my case they'd tell ya! ANd I agree with Mel you're not alone!

    Shira- I get some funky issues with my mouth, not sure if its thrush or not, but i brush after every thing i eat, drink lots of water and also dont use metal tableware- I get a funky taste and sometimes sores in my mouth... Usually goes away a week before chemo...

    Nana- I am praying for you! I am supposed to be getting my first recheck soon- see my dr tomorrow i also WANT TO KNOW!

  • Alicia-Rae
    Alicia-Rae Member Posts: 31
    edited October 2010

    Texasrose- you would think he would do that but he didn't. I don;t think i am depressed i think i just didn't know how to deal with things at the time but now that my daughter is running! i am kept busy (she turned 13 months yesterday! ah!!) yeah my mom made a lot of people cry that day! especially me! haha

    Ashley - i was in the same boat as Texasrose my technician kept going over and over the same spot and then the dr asked me to come into his office afterwards as well they rushed the results to my other dr not a good sign! As well my previous doctor thought mine was a blocked milk duct from nursing since my daughter was only 4 months old and I was still nursing her.

    Shira-  i had thursh a couple of times and the doctors prescribed me a mouth wash that really worked, also salt and water to rise with. it prevented mouth sores too.

    Nana- I am really praying for good news for you!! <3

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited October 2010

    Alicia- just to compare notes, how long did your dr keep thinking it was a clogged milk duct before suggesting the ultra sound? (mine took a year, plus me switching Drs cuz she was just so ahhh i dont know what to say! she actually didnt even do breast exam on my last visit, just told me "i told you it is a nursing problem go home!" anyhow i am not sure if her waiting and putting it off is why i have stage IV now, but i am takin her @$$ to court. (she wrote in my chart future dx to BC- she she effin suspected but didnt tell me!!!) Sorry just a little anger slipping out!

  • Alicia-Rae
    Alicia-Rae Member Posts: 31
    edited October 2010

    Texasrose- I think you have every right to be angry! My doctor to be honest was quite good and acted quickly after the ultra sound. He did a breast exam and scheduled me for a ultrasound about two weeks after my appointment. He said it was just to confirm that it was a blocked milk duct. But my mother was diagnosed seven years ago so because of the family history and my mom being fairly young as well i think he acted quickly. After the technician suspected something worse everything moved quite quickly.

    But this sounds like my moms road to diagnosis. My mom was diagnosed with Paget's disease form of breast cancer so it is all in the milk ducts and she was 43. Anyway her nipple was bleeding and i guess thats how it starts but she went to her dr three times and she just kept telling her it was dry skin, when only ONE nipple was affected and it was clearly getting worse. Anyways she went to another dr and finally got a biopsy and a dianosis and by that time it had gotten so far she has a total mastectomy and we werent sure what was going to happen!

     I can't believe she said dismissed it as a nursing problem, suspected breast cancer and didn;t tell you anything!! i would be absolutely livid!!! I hope your case goes well. We need to get the word out to not just dismiss things as nursing problems.

  • shiramg
    shiramg Member Posts: 186
    edited October 2010
    Nana, do you swollow the Nystatin or just swish?  i'm getting so paranoid about a fungal infection in my throat.  my tongue is white.  i'm such a hypocondriac so i can't tell if i'm over reacting.

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