Calling all TNs

tatasista,

Welcome.

{{{{LauraJane}}}}  I'm very active at NS.  There's someone there who is a good resource regarding treatment options.  I'll post the link below.  Also, I'm med school faculty and I can do some digging for you if you want.  Just PM me your stats and I can email a friend/colleague of mine who is an onc.  XXOO

  www.nosurrenderbreastcancersurvivorforum.org

Tanista- This site has been so helpful. All of these lovely women have helped me more than I can put into words. I find myself waiting to get home just to read the posts. There isn't anyone that can understand what we are going through other than all of those who are going throught it. I am so, so, so sorry about the loss of your mom. I know what you are going through is so scary to say the least. I've now done AC and Taxol (only 7out of 12) AC is rough not to scare you but just know you can get through it. There are so many things you can take for the site effects (SE's) that are so helpful. Taxol light dose has been very tolerable to me. I have even been able to work again.

Thank-you all of you for all of the sweet messages and helpful advise, prayers, well wishes etc.For the record I am not BRCA positive. I checked out the no surrender site and am still waiting to be approved.  I found out I get to have surgery next Tuesday. I can't wait to get this cancer out of me. I still meet with my surgeon on Thursday so I will find out more then. My ONC said it would definintly be a MX due to the size of my tumor. I think they are going to schedule a MRI to see if and where my cancer has spread. My left arm is just aching it seems to get worse each day. Tuesday isn't soon enough for me. I guess I need to go with the flow. I was a zombie today and blew off starting my landscape job. I hope to get my s**t together and start it tomorrow.

The best thing that happened to me today was: My daughter stayed the night last night and we canned apples today.  I am making home-made chicken and noodles for dinner and apple crisp for dessert and yes I will be having a big scoop of vanilla ice cream with it. A sinful meal but as cozy as you can get. A meal like this to me is like a great big hug. Mmmmm!

Laurajane - hearing you've got a surgery date for next week is one of the best things I've heard all day! I've been thinking about you.

Lol...the best thing that happened to me today was I got dinner cooked and on the table in less than 15 minutes and nobody complained about anything.  Gotta love that! Sometimes it's the little things in life....

Have a nice evening ladies. I'm looking forward to Dancing with the Stars.

Well, as expected, I went for a haircut today and most of my lovely silver wound up on the salon floor. I'm bummed, as I really came to love it. Now, it's just a plain old brown wrapper again, with a few clusters of gray.

Who'd have thought the day would come when I'd miss my gray hair! I really hate the thought of going back to coloring it; it feels so much better without the color and perm. Almost feel silly talking about it, given the bigger picture.

Laurajane:  I'd like to chime in to everyone's well wishing.  I have surgery tomorrow, and will try to get back on to see how things went with you.  I've been praying for you.  Tuesday will be here before you know it!  On another note, since it appears you haven't been able to post on the No Surrender site, I wondered if one of these other ladies could post your question to Edge while you are waiting???  I would gladly do it myself if my surgery weren't tomorrow.  My suggestion would be to pm the post you'd like to place to whoever can do it, and then just have them copy/paste it.  This way, maybe you could get some advice prior to your surgery and have a little more peace of mind.  Several of us, I've noticed, have recommended Edge on No Surrender.

Laurajane  I was so pleased to read that you have a surgery date for next Tue. Get that sucker out of there!!!!  Oh and your yummy dinner is just the comfort food you need on a fall evening with your daughter ENJOY!

tatasista  glad you are feeling better after your appt.  Your chest will feel strange for a while because of the nerve endings being cut but it gets better over time. It of course will never feel the same but it gets better. My best advise to you is to do as much movement as you possible can and keep your posture straight it will prevent you from ending up in physical therapy.

Tiffany

Thanks for the posture reminder..I was just saying to my friend the other day as we were walking through the grocery store "remind me to stand up straight" I was never really a "sloucher" but I have noticed my center of gravity and the way I am walking is a bit different. I certainly did not even think of that...It is all quite a process and adjustment. Glad to hear the chest will feel better. I am moving. Today I was so sick of sitting around doing NOTHING I put on some Aretha Franklin and danced with my dogs...The dogs thought I had lost my mind. LOL

Yes Titan, I have quite a bit of hair now but I think the avatar photo is cropped so close everything looks big, i.e, my head, my face, my nose...and my hair! LOL

Jenn - yes, my hair is very thick just as it was before chemo. You should update your photo so we can see how you look now!

Heidi:  Was thinking of you (and others) as I drove north on I-95 last night, passing exit to Gettysburg.  No more runaways, I hope.  Is the Stud-man calmed down?

Best thing happened to me today was that I got to spend time with DS on campus and just be Mom a bit.  My "baby" is 21 now.

Sugar:  Adorable photo!  

Laurajane:  Thinking of you.  Sending hugs.

retrievermom,

Relax.   Have a really good time.

I had the thick hair after chemo explained to me that your hair is always growing (Falling out) and replacing, but after chemo, the hair is all growing until the cycle gets caught up with itself.  It sounded logical at the time.