Stage III Chemo questions

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  • grneyd5600
    grneyd5600 Member Posts: 420
    edited September 2010

    Joan way cool you are onto rads.  I did get the rad onc referral today.  Of course, I had to stop the BS and remind him of what my final pathology report actually said because he initially told me "you don't need radiation if you don't want to - you only had 3 malignant lymph nodes".  Luckily I took a copy of the final path report with me and it clearly indicates 4.  Anyway, the rad onc office already called me and scheduled the consult.  Told me not panic that I would more than likely need radiation based on their review of the path report.    Tomorrow is my annual GYN appointment.  I am going to be doctor poor this week.  LOL

    Anyway, have a good week my sisters and keep fighting!

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  • JFV
    JFV Member Posts: 795
    edited September 2010

    grney5600

     I am not suprised you had trouble with your surgeon. I am soo glad you stood up for yourself!  It seems like cancer would be bad enough without having to get people to remember you!

     I had similar trouble with a doc.  Have decided to change all my treatments over to where I am getting rads.  It was interesting that they took picture of my face during rads which they will use to identify me before treatment and gave me a sort of blue plastic key I am to hand in at the desk when I come in and take home when I leave.  I have no idea if this is the norm but I wish my old place had something like this.  Maybe that Onc would have remembered me.

    Hang in there we seem to be heading into the final stretch!

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  • mcsushi
    mcsushi Member Posts: 174
    edited September 2010

    Glad to hear everyone seems to being doing well and moving right along in there treatments!!! :D Keep it up!!! Had my 2nd opinion appts today. Ugh. Now I have more ?'s rather than answers. Been having a bit of a rough time lately. Got shingles over the weekend (NO FUN) and found out my grandmother has just been diagnosed with breast cancer. Seriously. I hate the f#$%ing disease. I hate what it's done to my family. I hate what it's done to myself. 

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  • grneyd5600
    grneyd5600 Member Posts: 420
    edited September 2010

    Oh Mcshushi - I am so sorry about your Grandmother.  We will keep her in our prayers.  As for yu and the shingles - that SUCKS!  Hang in there!  Sending good thoughts, love and prayers.

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  • JFV
    JFV Member Posts: 795
    edited September 2010

    mcsushi- I am sorry.  The whole thing is awful. Winston Churchill said " When you're going through Hell.  Keep going!"  I too send you my love and prayers. 

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited September 2010

    Hi everyone!  I'm new to this thread but noticed that many of you are discussing doing rads now.  I will be doing them in Nov and have lots of questions.  So dont mind me jumping in here please?   mcsushi- Sorry to hear about ur grandmother.  I noticed you are in Philly.  Where r u getting your treatment?  I'm in Langhorne just north of philly. 

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited September 2010

    Hi everyone!  I'm new to this thread but noticed that many of you are discussing doing rads now.  I will be doing them in Nov and have lots of questions.  So dont mind me jumping in here please?   mcsushi- Sorry to hear about ur grandmother.  I noticed you are in Philly.  Where r u getting your treatment?  I'm in Langhorne just north of philly. 

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  • grneyd5600
    grneyd5600 Member Posts: 420
    edited September 2010

    Welcome to our party Tammy.  The more the merrier! 

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  • mcsushi
    mcsushi Member Posts: 174
    edited September 2010

    hey tammy, welcome!! i'm getting my treatment at jefferson. i got a second opinion at upenn but was unimpressed and decided to stay where i am. where are you going for treatment?

    jackie & joan, as always thanks for the support! my grandmom is handling it all like a champ. she's 88. she lost her only daughter (my mom) to breast cancer, she's taken care of me (her only granddaughter) through my treatment and now this. honestly, you think she could have gotten a pass. one day at a time...

    ~colleen 

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  • JFV
    JFV Member Posts: 795
    edited September 2010

    Welcome Tammy-  Glad you are here.  Welcome!

    I saw alot of people from work on Friday.  I am aiming to return to work mid October.  But, rads people reserve the right to make me stop working if my blood counts get too low.  I am an assistant at an elementary school.  I will be working in a first grade classroom which will be a germ zoo!

    Colleen-  Not only is your Grandma a strong woman.  But you are too!  What you ladies are going through seems deeply unfair.  I am sending you love and prayers.

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  • sandiddstn
    sandiddstn Member Posts: 88
    edited September 2010

    Hello girls!!  TAMMY-welcome to our club, the no one wants to in, but here anyway...You will find this a place to be while going thur this.

    MCSUSHI- Sooo sorry to hear about your grandmother... Prayers going your way... JFV is right you both are strong women..

    I will be starting my RED DEVIL Monday and still scared out of my witts.... I know I will only have 4 treatments every 2 weeks but man I want all this over with.. I am not sure how my body will take it... JUST scared.... the 12 tx's of taxol was very doable for me.. As was said before me this 'c' word SUCKS...

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  • sandiddstn
    sandiddstn Member Posts: 88
    edited September 2010

    Oh forgot to mention that I took my 1st ativean tonight... My brain will not shut off... Am I going to make it through all this...  :(  Just not myself this weekend.. Did I mention I was SCARED!!!  I think I have handled it real good up till now, why can't I get this one out of my head...  not looking for answers just putting my thoughts down...

    Been Praying for you all... ((( HUGS))) to all

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  • grneyd5600
    grneyd5600 Member Posts: 420
    edited September 2010

    McSuschi - well I have to tell you your Grandmother sounds like an amazaing woman!  What a woman of strength!  I agree she deserved a pass on this one.  We will keep you both in our pryaers.

    Sandiddstn - you can do do it.  Hang in there!  Take that ativan as you need it and keep remembering one step in front of the other.  You are going to be on the other side of this in no time.

     Hugs!

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  • JFV
    JFV Member Posts: 795
    edited July 2011

    Hi all ! I chat with some of you on other threads but I wanted to stop in here to say Hi. 

    Two weeks out from my last Taxol and feeling much much better.  Still have neuropathy in fingers and feet and noticed my feet burning today as I took a 30 minute walk for the first time in ages.  My mouth is still odd.  A littel sore and things don't always taste right but much better. 

    Doing some house cleaning since I have neglected it for 6 months and expect won't do much once I am back to work and doing rads.  Now think I will return to work mid October.  Would like to get a flu shot first. 

    Daughter turns 16 next week and gets her learners permit.  ACK!

    Hope everyone is well.  Haven't heard from mcsushi in awhile.  Hope you are OK!

    Joan

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  • sandiddstn
    sandiddstn Member Posts: 88
    edited October 2010

    Hello girls.... not been on here in a while.  I know why they call AC the Red Devil now... man have I been sick and so tired.... no energy... Getting ready to go have my blood work done, hope it is good.

    GRNEYD5600- Thanks so much.... I do keep telling myself that I only have 2 more treatments and then it rads... but sometimes it tough...

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