PTSD
Comments
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Good Morning,
Is there anyone else out there diagnosed with post traumatic stress disorder due to breast cancer? I have had lots of anxiety about my cancer and to make matters worse my best friend of 20 years passed away two months ago to ACC. Is PTSD normal for these problems? This just gets crazier all the time. Can breast cancer patients get PTSD? My doctor (psychologist) says this can happen.
Agada
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If you look a little further down the page, we have a whole forum called Depression, Anxiety and Post Traumatic Stress Disorder.
So, yeah, it's common. Sometimes I thought of it as the last stage of breast cancer treatment - surgery, chemo, rads, nervous breakdown.
But it gets better, at least it has for me.
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I'm there right now. Started seeing a shrink Tuesday. Can't sleep. That really sucks.
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I don't think you have to do it in the order ICanDoThis says. Myself I did it diagnosis, surgery, nervous breakdown, rads. . . .
Its normal, so normal that some surgeons who specialize in cancer even affiliate with therapists who specialize in treating cancer patients.
I got drugs and started seeing a therapist right after my surgery. Its been very helpful.
so no, you are NOT alone.
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Absolutely, it's quite possible. Although I didn't have it after my DCIS diagnosis, about 6 months before, I had a devastating personal event (our fourth miscarriage - this baby had been growing perfectly and we were so sure this would be our take-home baby) that caused me not only horrible depression, but anxiety and panic attacks. It never occurred to me it could be PSTD until my doctor pointed it out.
It's definitely worth meeting with a therapist to talk through what you're going through. Like 3monstmama said, it would be well worth it to find a therapist who specializes in cancer patients or even various forms of PSTD.
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I'm right there with you and the PTSD. I see a therapist every 2 weeks and am on medication, I can sleep, eat and keep track of my life. I just celebrated my 1st year anniversary, when I told my therapist I'd certainly been on a rocky road this year, he replied, "you were on a superhighway". I think we minimize what we are going through, the PTSD is not a single event but a series of mindblowing experiences, the first time you hear you have cancer, the numerous tests and doctors, the new language we have to learn, fighting with insurance carriers... It,s a wonder we don't fall down, I didn't find this forum until I was through with radiation and it has been a weath of knowledge and support. You've come to the right place. Karen
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Agada,
As you can see you are not alone. I guess that I never put the acronym PTSD to what I have been going through, but regardless of a diagnosis, I am suffering from it.
I just passed my one year diagnosis date, today is the one year date of my lumpectomy. I finished radiation on Dec 24,2009 and by the time I realized that I hadn't dealt with what had happened to me, my husband had an emergency triple bypass, and my coworker was diagnosed with stage 4 uterine cancer with mets to her lungs and bones. That left me with ALL of the responsibilities at home and at work. Before I realized what was happening to me, I was a goner.
Currently, I am in therapy, have just started an antidepressant, am having marital problems and cry lots. You are not alone.
Lots of love
P.S. I agree with Karen333 that we minimize what we are going through. It's what women who are multi-taskers do.
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Hi....I just had my 6 mos. mammogram and got an all clear for another 6 months. After going through this for the past year with all the tests, lumpectomy and rads, I can honestly say I'm completely numb mentally. DCIS has been so downplayed since the first time I'd ever heard of it, I think the guilt of having the least amount of anxiety over it makes us feel even worse. To this day, everyone and I mean everyone, thinks what I had and went through was nothing. "It's not really cancer"...."no side effects from treatment".... and the list goes on and on. I don't think that I will ever be able to look at my family and friends again in the same way. Yes, as a woman, I can multi task like crazy, and I continue to do so to keep myself busy enough so that I don't have much time to think. This is the only place I can come to and know what I feel will not be minimized and looked upon as if I'm looking for sympathy. I do know this much, I am stronger than I ever thought I was....I went alone to every appointment except for the lumpectomy and that was only because I wasn't allowed to drive home afterwards. Would I do it all again alone? You bet I would!! All I kept hearing was "don't worry....it's not really cancer"....so for me, it was best to be alone and let my thoughts take me where they wanted. I began to keep a journal and that is very helpful...you would be surprised how satisfying that can be.
I hope you find peace within your heart and will feel better with time. We all go through our own personal hell and thank goodness you recognized you needed help. The gals on this forum are wonderful....it's the one place you can come and truly be yourself.
God bless,
Cherylmare
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I asked my therapist about PTSD and the one criteria I guess that I don't meet is the fact that I don't "live in that moment" over and over again. I guess that would be akin to having flash backs? I seriously think I have a form of PTSD. I had a total mental breakdown just 2 months ago that I ended up in a psychiatrict hospital for 5 days. I am on valium for anxiety attacks and ambien to sleep at night. I rarely have to take the valium but I am glad that I have it on hand for when I absolutely do need it.
I saw myself spiraling downwards back in February and immediately started weekly therapy. My therapist is a 15 year DCIS cancer survivor herself so she "gets it" even though we didn't have the same treatments. I did chemo, rads, lumpectomy - she had bilateral masectomy. But she does understand the mental part of having cancer and that helps me so much.
It is easy to get overwhelmed and I have major sensory overload issues.
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Hi Agada-cancer and depressionj/PTSD can go hand in hand, as I found out. For me it was: diagnosis, surgery, start of a nervous breakdown, chemo, and complete nervous breakdown. My regular doc was flummoxed by my sleeplessness, inability to eat, and agitation. But I FINALLY got a referral (had to call myself) to a psychiatrist and started seeing a counselor who was also a cancer survivor.
2 days before I was diagnosed, my dear aunt died from cancer. I was there to say goodbye to her. It scared the daylights out of me, though, because I thought, "That might be me in a short while."
Diagnosis and treatment are huge life challenges. My counselor did say that feeling your feelings and thoughts about it upfront usually make for a good adjustment and acceptance later. Indeed, I am able to talk about my experiences with little emotional upset or feeling, but I've met other women years out where it seems sort of taboo to talk about.
Wishing you peace and comfort! PM if you ever need to, I've been there.
Catherine
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What a relief to find this thread and know that I am not alone in my feelings. Seriously thought I was going off the deep end. Like many of you I knew what I was feeling but never associated it with PTSD. I "breezed" through multiple tests, DX, 4 surgeries and then when I was done I just crashed into a wall I call PED (post exchange depression). I think I finally had a chance to catch my breath and when I did I started mentally hyperventilating! I, too, have decided to seek out some counseling because I feel like I'm stuck to that wall I crashed into 3 months ago.
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Here is a short interesting article from medicineworld.org on the "Psychological Needs of Breast Cancer Patients"-
http://medicineworld.org/cancer/lead/11-2006/psychological-needs-of-breast-cancer-patients.html
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Hello,
Its nice to know I am not alone altho I am feeling awful for everyone that has written to me. PTSD is a real pain in the butt. I have started seeing a therapist, have meds, and am keeping a journal now. The journal, I think, is the best part of the treatment. I can vent and say what i want and dump all of my feelings in a place that is private. Thank you for the links.
Agada
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Kate33:
Thanks for posting the article about the psychological needs of breast cancer patients. What stood out to me was the mention that despite treatment many continued with their symptoms.
Although I have only recently started an antidepressant, I have been seeing a therapist for a few months and have identified the main issues that are troubling to me. What I have been wondering about is do women who are taking AI's have more failures in their treatments simply due to the fact that their estrogen levels are so low?
Any thoughts out there?
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