here we go again......Caution--unladylikelanguage ahead

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3monstmama
3monstmama Member Posts: 1,447

I had my 6 month post-surgical mammogram, well actually it was more like my 7.5 month because I was a coward.  And since it is nearly the joyous anniversary of the mammogram that launched a thousand doctor visits, they just did the whole thing, both boobies with extra peeks at the post-lumpectomy post zapped boobie.

As an aside, JMJ [no offense intended] but the mammogram on the zapped boobie hurt like hell.  I would not consider myself a pain wimp--I didn't even use all my drugs from my lumpectomy or my hysterectomy years before.  But the squishing on the zapped boobie made me completely nausous [sp].  I would strongly urge people to get drugs from your doctor before you do the deed.

But I digress.

You know how at your mammogram, they squash the life out of your poor boobies one at a time and then they do it again and then sometimes, they claim you wiggled [how could one not wiggle when they are trying to flatten something that is not meant to be flat]?  Well we did that and then there was the enlargement and I went to sit in a room and then I got called back in which lead to more squishing and finally an ultrasound.

On the other boobie.  Yes, thats right not on the left side that has had cancer and 2 surgeries and rads but on the other side, the right side, the side that is supposed to be getting protected by the tamoxifen, the side that started it all, the one that had the cyst.  It seems that well, the right boobie felt the left boobie got way way way too much attention this last year.   And the cyst-that-launched-1000-doctors-appointments never totally went away and theres the funny white line of calcifications in the cyst so the very cute radiologist wants to drain it and test it and see if it goes away for good and then well, there is something that looks like DCIS up towards the nipple and NORMALLY, Normally, as in for people who do not have stupidbreastcancer they would wait 6 months and see, at least on the part that looks like DCIS but I am not Normal, no taking chances, no waiting, time to get another stereo-whatever biopsy.

We shall save for another time, a rant on the lack of normalcy in my life.

I know plenty--well too many--of us have had the DCIS pop up on the other side.  Has any one had a cyst do what I've described?  Was it "okay" or was it cancer#2?

fuckfuckfuckityfuck.

Sorry for the swearing.  Its just I was worried about this test, I just had a bad feeling and damn I wish I had been wrong.  Even if its not another round of stupidbreastcancer, its another round of scariness.  And i am sick of it.

Comments

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited September 2010

    Oh sweetie. This just totally sucks. I am sending cyber (((((((HUGS)))))))) to you. My mammo is in three weeks. I just have no words. SUCKSSUCKSSUCKS.

  • mom3band1g
    mom3band1g Member Posts: 817
    edited September 2010

    That totally sucks and your language suits the situation.  So sorry you are going through this again.  Just sucks.  I'll be hoping it's b9.

  • wyldblumusic
    wyldblumusic Member Posts: 59
    edited September 2010

    Stupideffingbreastcancer!!

    I'll be taking the stupideffingbiospy ride with you.  I had an ultrasound this week, and they said that I need a biopsy.  Oddly enough, I fear the pain of the first post lump/rads mammo more that I fear the biopsy.  Weird, I know.

    Rant away, my dear.  And, could you send me the cute radiologist when you're done with him? Wink

    May we both get good news.  Quickly.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited September 2010

    Having had multiple biopsies and post-rad mammos, I can assure everyonw that the pain of the post rads mammo is FAR worse than biopsies, even those done without any numbing!

  • Beesie
    Beesie Member Posts: 12,240
    edited September 2010

    Ah, I'm so sorry that you are going through this.  I had something similar except in my case, the call-back for calcs in my other breast came just before my mastectomy surgery.  The fact is that once we are diagnosed, they are extra careful at checking our films and they react to anything they see.  So when my right breast calcs turned out to be DCIS (plus a microinvasion), they rechecked my left breast mammo films and how and behold, discovered calcs there too.  So I had another mammo, then a diagnostic mammo, then an ultrasound and then I got scheduled for a stereotactic biopsy.  The result?  Perfectly run-of-the-mill benign calcs. 

    So just know that lots of us have been through this, and most of the time, it turns out to be nothing.  And, if they said that normally they'd wait 6 months for something like this, it means that they really don't think it's DCIS.  When they think there's a good chance that it's DCIS, they don't wait - not for anybody.  They only do the 6 month wait when they are pretty certain that it's not DCIS; if nothing has changed in 6 months, then they can be almost completely certain that it's not DCIS (because cancerous calcs would continue to multiply).  So if they told you that the average women would get the 6 month call-back, that's a good sign.  I know that doesn't really help you now, since having already had BC, you are not the average woman so instead you get the pleasure of a stereotactic biopsy.  But there is every reason to hope - and believe - that these calcs won't be cancer.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited September 2010

    If I remember correctly from back before anyone stuck sharp metal objects into my breasts, the discussion after the first suspicious mammo was something like they only let you (meaning a woman who is NOT at high risk) wait 6 months if they think the probability of it being cancer is 2% or less.  (I hope I'm remembering that properly!)

    As to your current situation 3monst, as we said in high school, THAT SUCKS BIG MOOSE C***K ... or ... NICE, LIKE A DEAD FEESH

    Ah, high school, when my breasts were happy and perky....

    I'll be thinking of you and wishing you well.

    IT JUST TOTALLY SUCKS.

  • Laurie_R
    Laurie_R Member Posts: 262
    edited September 2010

    3monstmama, I was first dx'd  with metoplastic carsonoma, stage III, in Nov. 09, I finished tx in May10, and my first mamo is going to be in just about a month.  I'm not looking forward to getting my remaining boob turned into a pancake. On the same day I'm having my port removed, a bone scan, and seeing my ocn. I to am from the Seattle area, I live in Marysville now and did all my treatment at Sweedish.  I wish I was brave enough to postpone it but those days are gone since BC raised it's ugly head. I know what you mean about fear, you get a twinge in your bones, or a bad headache and my mind goes to mets.  oh well, I got to learn to live with it.  Good luck with your test results.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited August 2013

    3monstmama - I'm sending you cyberhugs.  As you know from the March Rads thread, I got called back for a diagnostic mammo on my good boob (not the cancer boob) the next day on Tuesday of this week.  There are calcifications that the radiologist favours as benign but given my history they are rechecking in six months.  I can totally relate to how you feel because when it's the other boob, it surely catches you off guard.  Just know they are taking good care of you and try to think of any tests being done as extra insurance to "prove" all is fine.

    Beesie, your post above has also helped ease some of my own concerns that still linger a bit from earlier this week. 

  • changes
    changes Member Posts: 622
    edited September 2010

    Swear all you want - You have a right to! Hope your biopsy turns out benign.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    It is our right to swear- loudly and often!  We have earned it!  Because we have-

    Fear and

    Uncertainty that we will ever be

    Cured and that we truly have

    Kicked cancer's ass! 

  • lollyo
    lollyo Member Posts: 85
    edited September 2010

    Hey Mamma,

       Your language made me laugh because I have shared so many of the same thoughts! The extra vigilance is a good thing even if it seems like they are a bunch of sadists. I am having a final plastic surgery in December and I asked to move up my mammo on the "healthy" left breast so that I can know for sure everything is ok before we worry about reconstructive finishing touches. I had to advocate for this, everyone seemed to think it was a fine idea, but no one advised me. Hang in there...sending lots of hugs and good luck with the stereo biopsy.

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited September 2010

    the best  part, the part i'm totally stealing is fuck,fuck,fuckity fuck fuck.. we'll be driving the moderators nuts by now.  i know you did NOT need this now, with everything ELSE going on re: his highness.. am keeping candles lit for you, girlfriend. if you'd like pm me anytime. you've been a good friend since we met at the other site...light and love, 3jays

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited September 2010

    hey universe!

    Sitting in an airport bar tossing back a VERY large beer before boarding the plane for home. [sing tralala for free airport wifi!]   After two weeks of crazy stupid travel--coast to coast and up and down and a stint in a hotel with No room service and NO BAR [did anyone think such things really exist????]  I am soooo glad to get home tonight even though once I get home, I have to stop ducking reality and schedule a few more appointments.

    As for the fuckityfuck, I cannot tell a lie.  I stole it from Hugh Grant in "Four Weddings and a Funeral."  Neat movie, I must say.

    Anyrate, I actually think that ignoring it for a while was good.  I am feeling pretty calm and level and mellow.

    then again, perhaps its the 20oz beer........

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2010

    3monstmama- Hey, whatever works!  :)

  • AndreaS97057
    AndreaS97057 Member Posts: 46
    edited September 2010

    I love the airport beer -- it's big, you don't have to worry about driving, and as a single woman you can sit in peace in an airport bar without some creepy guy thinking he has to hit on you, and nobody knows your issues! 

    Glad to hear you've got a good attitude going into this next step - I have used "denial" and it works for me.  I can only deal with one little piece of accepting all this crap at a time, and the denial lets me do that.

  • wyldblumusic
    wyldblumusic Member Posts: 59
    edited September 2010

    3monstmama:

    A few weeks ago, I did a loop around the country.  For your ears only (*winks*), before my final flight home I knocked backed....a Jameson's.  D'oh!!  Embarassed

    Yes, schedule those appointments.

    Andrea:

    I soooo get what you're saying about the single woman thing.

    Anyhow, if you gals ever travel to a DC area airport, look me up.  K?

  • raeinnz
    raeinnz Member Posts: 815
    edited September 2010

    3monstmama - actually your warning of unladylike language enticed me to click on your topic and I was not disappointed.  I could feel the stress flowing out of you as you typed that out!!  So sorry you have this to worry about again.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited August 2013

    Finally scheduled my biopsies---aspiration tomorrow morning and stereotactic next monday....alas, they have too many appointments scheduled so I will have to go in twice.  Did the MRI last Thursday?  Friday?  Clearly we are back to appointment blur.  But anyrate, I could still see the stupid cyst on the liver but they told me there is nothing particularly bad in the boobies so at least THATs encouraging.  On the cyst thing well that remains to be seen.  The nurse is supposed to call to tell me if its okay in comparasion to last fall OR if I need to go get a CAT scan.  Funny how 10 months ago the idea of liver thing and CAT scan had me blubbering in my office.  Now I'm educated enough not to panic. . . or just numb after a year of chasing doctors.

    I am "wait listed" for an earlier appointment on the stereotactic.  In the meanwhile, I am holding my breathe, consuiming ample medicinal red wine and dark chocolate and trying to focus on work and having fun with the monsters. 

    wyldblumusic, NOW you tell me!  I was at National just two weeks ago!  Then again my flight pulled out around 7:30 am so maybe not the best time to grab a drink. . . .

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited October 2010

    waiting waiting waiting.  Today --any minute this morning I would think--is the day for the results of Monday's biopsy.  It was VERY very small--he could hardly find it.  So I am optimistic that it is nothing--no news is good news right?

    On the aspiration/cyst thing I am not so happy.  First off the doctor who did it was Mr. Personality NOT.  Why such a person was removed from his darkened lab to deal with live human beings who are only in the place because they are dealing with the spector of breast cancer escapes me.  But the even bigger problem is there was no analysis/pathology of the substance that came out of the cyst.  And frankly it was icky looking---exactly like what you think of when you get told your cancer cells are comodo with necrosis. . . .  Now I have had numerous aspirations of my thyroid for cysts and its always nothing and the doctor always says its nothing but that is ALWAYS followed by "but to be on the safe side, lets send it to the lab."

    To be on the safe side.

    With Dr.Personality NOT, there is no safe side because he tossed the fluid into the trash.  No path, no nothing, just a medieval-ish examination by eye and proclaimation that it was fine.

    In as much as the only reason that it was getting aspirated in the first place was to make sure it was nothing because I have already been treated for stupidbreastcancer I am not so happy right now.

    I kvetched to my surgeon's office and to my oncologist but what can you do after the stuff is in the trash?

    No problem really, I was looking for something to keep worrying about between now and my next mammogram and thanks to Dr. Personality NOT, even if the biopsy is fine, I'll still have something to justify the continual consumption of extra dark chocolate. . . .

    waiting waiting waiting. 

  • otter
    otter Member Posts: 6,099
    edited August 2013

    <sigh>

    You are so right.  A sample in the trash is not diagnostic.  But, there's this possibility:  Sometimes a doc will aspirate a cyst and wait to see if it comes back (or  not).  For those of us who've already been down this path, the "wait and see" approach is a sorry way to make a diagnosis. It does work, though, as you've noted for your thyroid cysts.

    I've had fibrocystic breast tissue for decades.  My GYN aspirated a couple of the cysts, hoping they would not come back; and they didn't.  One day, though, he aspirated yet another lump, thinking it was "just" a cyst ... and got nothing.  A "dry" aspirate.  "Oh,... no problem!" he said.  "There's nothing there!".  And he tossed the syringe and needle in the sharps box.

    Stupid me.  In a previous life, I was actually taught how to perform tissue aspirates.  I was also taught that a dry aspirate of a palpable lump is as non-diagnostic as one that's been thrown in the trash, or accidentally spewed all over a paper towel or gauze sponge (oops!).  So, I should have known something was not right.  But I believed him, and the rest is history.  (Okay, I cannot prove that the failure-to-aspirate was performed on the same lump that turned out to be my IDC, but I'll always suspect as much.)

    Sorry.  I'm in a story-telling mood right now.  Back to your situation.  Cyst fluid can be "icky looking."  And, just because you've had DCIS doesn't mean you won't be susceptible to formation of plain old cysts.  But, you knew all that.

    I know I'm not helping.  It's just that your posts on this thread have touched me deeply.  I'm normally not a big fan of unladylikelanguage, but your language seems perfectly reasonable, considering the circumstances. Sometimes, people have no clue how their actions will affect us (re: tossing fluid aspirated from a cyst in a woman who's fearing a recurrence of BC); and we all can attest that waiting is the worst.  The situation sucks, big time.

    Hugs to you....

    otter

    (P.S.:  You write very well.  I enjoy reading your posts, because of your writing style ... even as I cringe and empathize with you because of what you're saying.)

  • Jelson
    Jelson Member Posts: 1,535
    edited October 2010

    ditto  Otter on your literary style, 3monstmama, and you have a great way about you too, Otter.

    when I had my needle/core biopsy, the doctor withdrew something whitish, I asked what that was and she said, the medical term is smuts. It looked to me like (beware - gross - the stuff you would squeeze out from a pimple). I went on to be diagnosed with grade 3 DCIS and I think that her "smuts" was my comedo necrosis, wiped off on a paper towel. Anyway, it was whitish and infact was described as ... rubbery!!!  Without any special knowledge, but just my desire to join the conversation and help with your waiting,  I would think something icky would be greenish and that is the color sour milk turns. So I think you have clogged milk duct cysty thing.

    Julie E

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited October 2010

    Thanks Jelson and Otter.

    But see your description is exactly what the smuts looked like that came from the cyst.  And I already have been diagonised with Grade 3 DCIS. With all my thyroid biopsies, there has been bloody fluid but nothing like that that was wiped on a towel and tossed.  And the thyroid stuff was all biopsied just to be sure that there were no cancer cells.

    Odds are it is nothing but his behavior sure didn't boost my confidence.  I look forward to seeing my surgeon this afternoon and finding out more.

  • beckward
    beckward Member Posts: 59
    edited October 2010

    Monstmama,  I, too, enjoy your posts, and am waiting, waiting, waiting as well for a needle biopsy done on Tues (by Ms. Personality PLUS!).   Hope you had good news.  As for me, I freak a little bit every time the phone rings!  Beth 

  • Suzybelle
    Suzybelle Member Posts: 920
    edited August 2013

    Monstmama - I am so, so sorry you are dealing with this.  That sucks so bad...and I would be swearing (and I do that even when I'm not scared to death Tongue out)and freaking out, too.

    Otter, I always love everything you write --you just have a way of describing things that I love, so please feel free to tell stories!!!!

    S.

  • Laurie_R
    Laurie_R Member Posts: 262
    edited October 2010

    monstmama, I see that you are in Seattle.  I was wondering where you get your treatment.  I go to Swedish and if you could please pm me the name of the questionable Dr. if he/she is at Swedish so I can avoid him/her I would appreciate it immensely.  TY

  • schipmom
    schipmom Member Posts: 119
    edited October 2010

    3monstmama,

    I feel for you.  I go on the 29th for the MRI of right boobie, due to pain I've been having.  My right one is the non-radiated one...the one that was supposedly "healthy" when all this garbage began.  Like you, it seems the right one felt the left one got way to much attention all these months!  This does s*** Frown 

    And I agree...when they did the 6-month mammogram on left boobie, it hurt like hell.  The tech kept asking me if I was OK. I felt like saying "I will be, if you'd stop wasting time asking if I'm OK and just hurry up and get me out of this vice!!" 

    And don't even get me started on these danged doctors who have the personality of a sponge!

    Just want to let you know I'm thinking of you.  Please let us know when you get the results of the biopsy.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited October 2010

    and the results are in:   Atypical Lobular Hyperplasia. . . .aka pre-DCIS.  Which means a surgical biopsy this Thursday to make sure there isn't any DCIS hiding in there as well.  And DON'T get confused:  Its just a surgical biopsy, not a a lumpectomy.....even though I can't eat after midnight and have a new prescription for percocet and will be sedated and  there's a lump of me being ectomyed away.  N-O-T a L-U-M-P-E-C-T-O-M-Y  says my surgeon.  Lumpectomies can be disfiguring.....this is just a little tiny bit going away. . . 

    okay then I feel fine. . .

    I remind myself that if its anything at this point, it is precancer.  We shall hope for the best on Thursday.  This time, I am NOT going back to work the next day which brings me to the REAL stress in my life--work and my insane hoarding 81 year old mother but mostly work.

    I have a supervisor who doesn't like me--lets call him Lord Vader.  Now Lord Vader never did like me --even thought I shouldn't be hired [thought we should have a more diverse office and I'm just another middle aged white broad and I know this because he told me to my face] but that was when he wasn't a supervisor so who cared.  But now Lord Vader is a supervisor and, because the actual head of the office [Obi Wan] is out being treated for throat cancer, Lord Vader is the only supervisor.  And he really really really doesn't like me.

    At mid-yr review time right before I had my surgery but after I said the situation to my office, he gave me a list of complaints about my performance.  The next review was in July and while my review grade was good--even got a bonus--, the words were awful.  Indeed if you read the words, you would never understand the review--heck, you'd wonder how I was keeping my job.  In as much as a big hunk of the complaint had to do with my slowness at completing projects [during the time I was having rads], and my work on the project prior to surgery [which got compliments from other offices] was ignored, I went to my Obi Wan and Lord Vader  to ask to include a letter from my doctor with dates re my diagnois, surgeries, radiation, radiation pneumonitis etc.  They proposed making changes to the wording. We met 1st week Sept--both supervisors and me-- they made the firsts proclaimation that I had always been an awful employee [now that was a blindside] but agreed to some sort of re-write. 

    Post meeting,  I worked very hard on the issues which were complained about.  I started coming in at 7:45am, working to 5:30 [no overtime] and did absolutely everything that was asked of me. The colleague that I was working with thanked me for all my help in the last month etc.

    So on Friday right after I scheduled the surgery, Lord Vader comes into my office and lays into me about project, accuses me of not making changes to a document that he had told me to do, claims I didn't do anything on it [including the last month] complains that I never got back to him on rewrite and tells me "everyone in the office thinks its punishment to have to work with you."  I specifically ask if "everyone" includes the woman who thanked me and get told "Yes."  And he goes on to say how I was awful, always was awful etc.  He could not point out the email in which he ordered me to make the changes but insists that I didn't do it.

    In as much as I am fairly confident this one woman [of all the people in the world] is not the type who would say one thing to my face and another to him, I am realizing that this problem is personality between Lord Vader and I as much as anything else. I am considering that maybe Lord Vader doesn't really think I had breast cancer or that he considers breast cancer not to be "real" cancer---I soldiered through a lot of it, didn't complain, didn't flash my top to show off my zapped boobie or my scars, was always up-beat etc.  It was only these last two weeks--when I had to have the next biopsy--that I just drew a line and said I can't do a stereotactic biopsy in the am and fly out that afternoon for a business trip. Lord Vader was the one who ended up covering the trip for me. When Lord Vader talks about ObiWan with throat cancer,Lord Vader is always talking about how dreadful radiation is and how tired it makes people and I say "yes, I know."  I mean I get that throat cancer is worse than my breast cancer but rads is rads and it sucks.

    I haven't a clue how to deal with it. I can't put in the hours I did in my youth, the kind of endless days that always endear one to a boss. For one thing, I'm just plain tired.  For another I have three kids and I like them and like spending time with them not to mention my husband.  We won't even start on what those hours would do to my already rough-at-times marriage.  In this job market another job is really not likely especially when you factor my age into it.  And I'm the sole breadwinner in the family so I need this job.

    Sigh.  I don't expect any answers.  I guess I needed to vent more than I thought.  The first clue was probably being able to wake up this morning at 6:30 in the dark without an alarm. hmmm, I am thinking that my therapist might uping my dose of anti-depressants at our next meeting.

  • Mollydog
    Mollydog Member Posts: 93
    edited October 2010

    Your very sad and very scary work situation makes me think of a couple of things.  1)  I wonder if they're trying to get rid of you so they can stop paying for your medical coverage, and 2) Do you have a HR department that you can report this abuse and harassment (because that's what it sounds like to me) to?  And if not an HR dept, what about an outside agency that deals with workplace harassment?  Your supervisors have absolutely no management skills at all.  I am very sorry you're having to go thru this.  Wow. 

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