Losing Weight While on Tamoxifin

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  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited July 2010

    Well I am definitely really working it!  Strength training MWF, cardio T,TH,Sa, well earned rest on Sun! No sugar, low fat, hardly any carbs, just lean protein and LOTS of vegetables.  It is about a month. My clothes feel a bit looser.

    My trainer says NO WEIGHING myself, only once/month. My month will be next week. But now I am really scared to do it - if the scale shows no progress after all this work, and NO CHEATING, I will feel totally demoralized. He said that if I can't handle it and it will discourage me, not to do it.

    I THINK I have lost a few pounds. But I know that the Tamox weight can be stubborn. Now I feel like the whole weighing thing is even a bigger deal since I haven't done it in so long.

    What do you think????????????????

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited July 2010

    Amy I felt the same way and will admit that after a month of being diligent with exercise and diet I had found that I had GAINED 5 lbs...It is demoralizing and I am now in complete pity party mode... 

    I have made so many positive changes over the last 6 months in diet and increased exercise and I have done nothing but gain weight (maybe only a few pound a month but it has added up to 35 lbs).   I have been told that majority of the weight is because of chemopause and hormonal imbalance but I cannot afford a Nautropath or Nutritionist (not covered by insurance) and I obviously am unable to figure out what will work for me on my own. 

    I just want to get on with my life and stop obsessing...first it was BC, now it is my weight...uuuugggghhhhhhh! I want to enjoy my life and after a month of following a low carb, no sugar, high protein diet and gaining weight, I am just not willing to go to those extremes again.  I will eat sensibly and in moderation, continue to exercise regularly and pray that my weight will level out.

    I really hope that you do see progress, just your clothes fitting better is AWESOME!!!! You had mentioned weight training, remember muscle does weigh more so don't be discourage if you don't see a lot of weight loss. 

    I was told to take measurement and use those as a gage...still expanding to now I hate both my measuring tape and my scale!  

  • Marion
    Marion Member Posts: 207
    edited September 2010

    Hello Amylsstrong,

    Don't be discouraged! I have been training like crazy since the beginning of April and only now do I see a weight loss. I have lost 2 kilos (4 pounds?) and it took me nearly 4 months !! I used to weight myself at the beginning but could not see any difference so I stopped. I thought that it did not matter because even though the scale showed no change, exercising made me feel stronger and that motivated me.

    I recently weighted myself but only after my husband told me that he could SEE I had lost some weight. That's when I realized I had lost 4 pounds. Follow your trainer's advice: if it is going to discourage you, don't do it. As long as you FEEL stronger and better, that's all that matters.

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited July 2010

    Thanks for the feedback. I think I am going to avoid the scale for the time being.

    Had another session with the trainer last night. He kicked my A$$!  I found myself anxious ahead of time - dreamt I called him and cancelled the night before, then woke up with butterflies and was a little on edge all day. The session wasn't as bad as my anticipation of it was! (Isn't that typical of so many things?)

    He gave me a new workout to do on M/W/F the next 2 weeks. I do cardio on the alternating days.  It had lunges and squats and other stuff that I hate. But once I master the moves, I will blast my IPOD with my 'workout mix' and it will get me through it somehow.  He had me do a few types of pushups on the mat - girl pushups from the knees -and my knees were so sweaty, they kept slipping out from under me. Very glamorous! Kiss

    I came home tired and sore but felt good (and relieved).  When I look at myself in the morning, I feel like I can see a definite difference in my body. Then at night when I look, it seems so much lumpier. Is that an optical illusion or reality?   TRYING to be objective, I do think I am making progress - slow, but steady. I will get there.

    Forge ahead, sisters!

    Amy

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited July 2010

    OH - one more thing. We had a friend over for dinner the other night. He brought some orange sherbet for dessert. I have not had sugar in AGES.  I felt I had to have a small bowl to be polite.  It was good - very cooling and delicious - but I kind of felt like "What's the big deal?" - I have really gotten used to having no sweets, which have ALWAYS been my downfall.

    But the weird thing was - after eating it, I had the WORST cravings for more sweets the rest of the night. It was very hard to stay away from grabbing something/anything sweet to satisfy myself.  Whereas when I avoid it completely, I don't crave it at all.  Why is that? Do you all feel that way?   That is why having a small treat (one cookie, small chocolate, etc.) never works for me. It just makes it worse.

    Curious how you handle that.......

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited July 2010

    Great news!

    As you ladies know, I have been too scared to get on the scale yet. But today we were going out with friends and I decided to try on 2 pairs of capris I have. They used to be too big, then when I tried them on earlier this spring, they were WAY TOO TIGHT. I was devestated.

    So I took a shower and worked up my nerve to try them on. The first pair was slightly larger so I tried that first. They slipped right on! Not tight around the waist or anything. Then I tried the 2nd pair which was a little smaller. They slid right on also. VERY NOTICEABLE change in my body based on these clothes. I wore the smaller pair to lunch and felt on top of the world!

    I am so relieved that all this hard work is paying off. Maybe in a few more weeks I'll weigh in. But for now, this is good enough for me!

    Keep pressing on ladies. We can do this.

    A.

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited July 2010

    Great News Amy!!! Congrat's!

  • Marion
    Marion Member Posts: 207
    edited August 2010

    great news Amy on fitting into those capris!

    So, how long did it take you to lose weight you think?  

  • koshka1
    koshka1 Member Posts: 678
    edited August 2010

    Hi Ladies!!!  Just an update as I see this thread is still thriving!

    I too have had my measurements and I have lost inches! 

    I am too scared to stand on the scale as always but who the heck cares!! My arms look nicer,,I have a lift in my butt!! and I am sure those tamoxifen fat cells on my belly are shrinking too as my clothes are fitting better.

    Also, I had my mammo on Friday and although it damn near killed me the radiologist said all was good.

    Keep it up!!!

    Hugs...Kosh

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2010

    Weighed in again this morning, lost another 2 lbs.  That is 12 since July 1.  I am pretty encouraged. BUT I have to say this is the hardest I have EVER worked out and the most strict I have ever been with what I eat.  I am getting results, both in lbs and inches. But it is slow going and a lot of hard work.  I am convinced the Tamox makes it slower and makes the fat around the middle area more stubborn. I am keeping giong, though. The trainer says he is going to work me harder & harder until I fit into my skinny jeans again and then we are going to get our picture taken together.  I think that is a funny goal, but I'll take it!

    Keep pressing on ladies. I am convinced I am doing something really good for my health! That makes it easier.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited September 2010

    hey all.  Well I started tamoxifen last week and if anything my appetitite is suppressed.  All I really want is coffee. . . not sure if that is good or bad. . . .short run, pretty good, I am thinking. . .

    Glad to hear so many people are doing so well at their weight loss.  I think the idea of judging how you are doing based on how one fits into certain clothes is a good one.  If people are exercising a lot, the actual weight may not change but how you fit in things will.

    On the weight thing, I was not able to exercise in June and much of July due to stupid radiation pneumonitis.  I now weigh more than I ever have in my life.  I am thinking I will drop some amount of money in a jar everything time I don't get a snack at work and then I can use that money for something just for me.  I am also thinking it would be good to have a rule about stopping eatting after a certain time of day so I am not eatting alot of calories at night. 

    Sigh.  Cancer--the gift that keeps on giving. . .

  • koshka1
    koshka1 Member Posts: 678
    edited September 2010

    Amy, do tell....what is it that you are eating.....what did you cut out of your diet....did you cut carbs or calories...

    I am interested...any help to keep me going is greatly appreciated.

    Hugs and love to all...I am off to walk my puppies and then to the gym.

    PS....3monstamama...dont worry about the coffee...lol

  • GoogsMN
    GoogsMN Member Posts: 15
    edited September 2010

    I have been kicking the exercise up a notch since finishing my rads in late August and finally am seeing some results.  Been on Tamox since June, started rads right about the same time, so it's hard to know if my extra weight is Tamox or low energy from rads. 

     We don't have a scale (I can get a little obsessive at times) so I have to rely only on how (or if) my clothes fit.  If I can suck in my gut and it actually goes flatter I feel I'm doing pretty well.  Or wear a fitted shirt without a big ole' muffin top showing through.  My tummy has always been the one and only place I put on weight. 

    For exercise it's mostly been walking, both at lunch with a friend and with my dog and hubby after work and weekends.  I can feel the difference in my energy level now, so I can do closer to a power walk than just a stroll. 

    I'd like to start using my kickboxing/punching dummy again but I'm a little nervous how my chest muscles might react. I might try it anyway, either that or lifting weights in front of the tv.  

    Oh, and we do eat out 1-2 times a week, but not fast food.  I usually bring my somewhat healthy lunch to work, and if I don't, I grab a healthy salad at the deli.  Haven't had white bread since I don't know when, and trying to convince my hubby that whole wheat pasta is good (can't quite seem to talk him into that one!)    

    Oh, and drinking your calories - (cappucinos, pop, sweet tea, etc.) is one of those things that they say people overlook, but can tack on a few hundred calories a day.  

    Like 3monstmama, 'm trying to think of a reward for when my 10 pounds are gone.  

    Wow, sorry if this is too much info, I'm just rambling away...

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2010

    Sorry to take so long to answer this.  My approach is to cut calories pretty far down, but really pull back on carbs ESPECIALLY white flour, sugar and alcohol. Yeah, all the good stuff!

    I eat cottage cheese & flaxseed meal for b'fst, a garden veggie burger for lunch (no soy) and some sort of lean protein and vegetables for dinner. LIke chicken caesar, or grilled london broil over a salad.  I do have some raw unsalted almonds for a snack sometimes.  I really don't eat much - no snacking, no desserts. I have changed my approach to food to being one of fueling-up rather than eating for enjoyment.  It isn't so hard once you get used to it.  

    Now that it's been 3 months, I can REALLY tell the differences in my body. I am a lot stronger, leaner, trimmer.  STILL have more to lose based on the scale (boo!) but my clothes are fitting better and the jeans I couldn't wear last winter slid right on.

    I would say I eat 'whatever I want' (within reason) maybe one meal a week - like if we tailgate at football, or I go to an event. But I try to compensate for it the rest of that day and the next day, and I really don't do it often.

    Sometimes I get discouraged and it gets boring, but I am trying to do other non-food-related things in my life to make it interesting and exciting, and it works most of the time. My trainer is really pleased and I am, too.

    So there you go. Hope it helps!

    Amy

  • koshka1
    koshka1 Member Posts: 678
    edited September 2010

    Hi!  This is great - thank you!

    Are you allowed to eat flax?  It was suggested to me not to eat flax as it is a phyto estrogen.

    Let me know.

    Hugs

    Kosh

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited September 2010

    I was told that it is a weak phytoestrogen and there is controversy about it. Some scientists think it is beneficial as it bonds instead of stronger estrogens to cells or something (I dont really understand it) and others think not.  It helps me poop (sorry TMI) so I keep taking it. I don't eat any soy though.

  • koshka1
    koshka1 Member Posts: 678
    edited October 2010

    Hi Amy,

    If you want a great fibre...take Psyllium Husks.  You can buy them at the health food store.  I put a tablespoon in my yogurt or applesauce daily and it really helps.  Plus it is all natural.

    Recovery, yes Weightwatchers is good too and so is watching what our intake is.  What I have heard from all and even my oncologist is that he see's more success when we really watch our carb intake...for those that are on tamoxifen.

    The journey continues huh!!!

    Hugs,,,Kosh

  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited October 2010
    My onc. said the same thing koshka, to really watch those carbs and red meats.  She said fruits and veggies are good.  But, watch things like pasta, breads, baking of any kind, and rice.  I am now finished with rads in the city, and will be incorporating this into my diet. 
  • koshka1
    koshka1 Member Posts: 678
    edited October 2010

    Hi Isthis!

    Hey go figure! It is the good stuff that we have to cut out!!!

    I did not do so good this weekend...had friends over for dinner and ate a load of East Indian Food,,,lots of butter, rice, and breads..oh was it good.

    Then I broke down and made a Key Lime Pie for desert!  (I know it doesn't go with Indian but it was a fave for a friends birthdate!

    Soooo today...it is chicken and salad day!!

    Hugs

  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited August 2013

    I know it's tough!  My stepson had a friend over for the weekend, so of course I just 'had to' make them snacks. Muffins, cookies, pizza....  :-)  But today is Monday and the beginning of a new week - we can do it!  ((hugs))

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Thank you so much for sharing your experiences, ladies!!!  I am newly diagnosed, have surgery scheduled 11/30 (NSM BMX) , don't have the definitive word on chemo but know I will definitely have to do hormone therapy.. most likely Tamoxifin since I am pre-menopausal (I'm 43).

    I'm a lifetime Weight Watchers member, but had been "on probation" for awhile since I gained weight.  I recently lost 20+ lbs and am now only 3 lbs away from my lifetime goal again.  I am determined to make it there before my surgery 11/30!!!  (Sounds kinda surreal talking about getting back to "lifetime" when you have cancer!)

    Hearing about the probability of weight gain from the Tamoxifin is very discouraging...but after reading your posts...I am also more determined to keep up with the healthy eating /exercising/no carbs,sugars,alcohol (okay maybe a glass of wine here and there) so that it continues to be a "habitual" way of eating/exercising instead of a chore. 

    I'll check back with you guys in a couple months and see if my positive outlook has helped me or if I threw in the towel the second I take the pill!!! Wink 

  • koshka1
    koshka1 Member Posts: 678
    edited October 2010

    Susan....

    Regarding "Sounds kinda surreal getting back to Lifetime"

    I know right now you are in the middle of all of this.  And before you know it....you will be working on getting back to a new normal in your life.

    There is lots of living to be done after the treatment!  So hang in there!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010
    Thank you Koshka :) .... this site has really helped me keep a positive perspective while embarking on this journey I've suddenly found myself forced into taking.  I am SO grateful you ladies are here sharing your experiences so that the journey is not a lonely ride! Smile
  • koshka1
    koshka1 Member Posts: 678
    edited October 2010

    Hi Susan,

    A big hug to you.

    I was diagnosed with Stage 1A breast cancer at the age of 39.  It was due to having my first ever mammogram.  That was sooo much Fun. (NOT).

    And I can honestly say I could not have survived it without the strong women (and a couple of men) on this site and within the chat room.  I have learned a lot about this disease and wish this upon no one.  On the flip side...the one positive is that I have made some really good friends.

    It is now 3 years later for me and I can honestly say that although the road back to some kind of normal is tough,,,I am really enjoying my life and trying to move on.

    If you ever need to chat or talk for that matter.  Send me a private message and we can link up somehow.

    Hugs...Kosh

  • ktym
    ktym Member Posts: 2,637
    edited October 2010

    I think some of what I was blaming on the tamoxifen was the gabapentin that I was taking for neuropathy and hotflashes.  Fining out the chemo burned out my thyroid and treating that has helped, however, weaning down off of the neurontin (gabapentin) has made such a difference it has amazed me.  My appetite is way down and the scale is doing a slow but steady decline since starting to wean the gabapentin.  Sure wish I'd never started that stupid drug

  • thesuiteshoppe
    thesuiteshoppe Member Posts: 72
    edited January 2011

    Not sure where else to post this.. but if you're having to pay for Tamoxifin out of pocket and/or it's a hardship for you, please send me a private message.  Thanks!

     Miya

  • koshka1
    koshka1 Member Posts: 678
    edited January 2011

    Hi,

    Tamoxifen is free for me as I am in Canada and it is covered..yeh!

    I have blamed lots on Tamoxifen too but most of my problems are due to the stress and the bad eating habits due to the stress.

    This is really what I need to get under better control.

    Hugs and Happy New Year

  • catbert4209
    catbert4209 Member Posts: 347
    edited February 2011

    Hey there, Kosh!  I've had the same problem with Tamoxifen as everyone else on this thread--gained almost 35 lbs in the past three years.  My onc finally gave me some good advice, which is that tamoxifen is basically throwing our bodies into menopause, and we have to eat like we're in menopause. 

     I did some research and found information that tells me I should not eat more than 1100-1200 calories per day.  I've cut back on breads, pastas and sugars, and am becoming a rabbit because I eat so many veggie!  For the first time since my surgery, I'm finally losing weight!

    Hang in there!!  We'll all do this together!

    Catbert

  • peggy_j
    peggy_j Member Posts: 1,700
    edited May 2011

    Bump. I'm 2 weeks out of rads and met with my MO today to discuss my taking Tamox.  During our convo I asked general BC questions and what I could do to reduce my risk of recurrence. And one answer was (drumroll please....) maintain a lower weight. (ug. we all know this). FWIW, I'm in the "normal" range of BMI but at the high end, so I yes, I could stand to move to the middle.  And now there's the issue of losing weight on Tamoxifen. I know losing weight makes sense and I love the idea of fixing something without drugs (etc). But this feels so daunting. Pre-BC I ate a mostly vegetarian diet, exercised 4 times a week, etc.  I've fine-tuned some of my eating since my Dx. But dammit, of all the "lifestyle" changes I've made related to BC, this one seems the most daunting, in part because I know it's something I'll have to work on (maintain) for, er, forever.  Anyone have advice (or peptalks) for gearing up for this next "fight of my life?" ha.

  • hhzach
    hhzach Member Posts: 7
    edited June 2011

    Thanks for starting this topic, it is very relevant for me.  I was diagnosed in September 2010 and have had chemotherapy and BMX with TE's.  My exchange surgery is in 2 weeks or so.  I have been on Tamoxifen since February and have only gained weight.  Before I was diagnosed I was working out a ton and had lost 15lbs through working out and Weight Watchers.  I was so close to my goal weight and then I found a lump.  Like others here, people have told me that I probably found the lump thanks to my weight loss.  I gained about 4-5lbs during chemotherapy but was pretty sure I would lose it once I was done and felt that I was on my way until I started Tamoxifen.  I even went back on Weight Watchers thinking the 5lbs would come right off and I could hit goal.  Well, nothing went as planned.  I was working out a ton and watching my food intake but the scale just wouldn't budge.  Not shortly after the weight creep began and now I am up to about 9lbs over my starting point.  Needless to say I am pretty frustrated.  I found myself weighing myself obsessively and decided to go off Weight Watchers since I was more worried about the scale than how I felt.  Until recently I still felt good and have maintained my workout schedule.  I run more miles than I ever have but you would never know it based on my weight!  It does make me upset.  My husband keeps telling me not to worry about it that it is more important for me to be well than skinny.  It is just sad to see all my hard work go down the drain!  I am trying not to feel sorry for myself but honestly I feel like many of you.  There are so many people who do nothing to promote their health and yet I am the one who got cancer.  I have decided to try not to be obsessed with my weight and just try to be thankful every day for what I have.  I am a half full kind of person so that helps.  To go back to the weight gain though, I agree it is all belly fat and definitely feels like water retention/hormonal weight gain.  I plan to work out as much as possible and be somewhat conscious of my diet.  I won't give up the things I love though because life is too short to deprive myself.  Thanks to all of you for sharing your stories.  My hope is that I can at least maintain my weight if nothing else and count the years till I am done with Tamoxifen!  I don't understand how my oncologist can say that Tamoxifen does not cause weight gain.  These doctors need to read these forums!  Good luck to all of you.  Be well!

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