Calling all TNs
Comments
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Cathy: OMG. What a series of unfortunate events. Hope you are doing much better now.
Melatonin/sleep: I doubled up and ended up having weird dreams. Seriously--serial murder dreams. I told my DH about one dream that included Clint Eastwood & Kevin Bacon. DH said I should use melatonin every night, to which I replied, "but it was the old Clint Eastwood!" I'm finding that sleeping with the puppy, who is very still, is helping more than any supplement. She's calming.
MBJ: tell me more. I hate my curls and want to color. Did you do all-over color? Is your hair growing so fast that you have to touch up frequently?
Love the cat pic. That's one bodacious cat.
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Cathy - so sorry you are going through so much. I hope things get better for you.
Linda - thank you so much for the information on my feet. I am very glad to hear it will go away and I will be sure to look it up.
I am pretty good today besides my feet hurting and I get tired very easy these days. I went to a bar to watch the Bears play today. They won - yeah! I am not a huge football fan (or sports fan in general), but getting together with friends to talk and watch a game once a week in fall/winter is fun.
Since my mother passed away I am trying to reunite with old friends or friends that I was not able to see very much while I was taking care of her. Before I took care of my mother I lived on my own and was very satisfied with my life. Now that she is gone (after 10 years), I find my single life pretty lonely and boring. Today I signed up on a singles on-line website. Not sure if anyone would want to meet someone going thru cancer but if they do, I think they might be a great guy. What do you think? I made sure I mentioned the cancer so they know before they contact me.
Have a good day all.
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Hey Titan! I bet we live kinda close. I live in Ashland KY saw all the Tornado damage on the news. It is really a miracle that more people didn't get killed.
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Swanny - So sorry to hear about your mom - I can only imagine how lonely it leaves you - especially after stepping out of your own life to be there for her. You are a wonderful daughter and I hope you meet someone worthy of you. Good luck, hon.
Linda
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Lynne: I should clarify: Roman Holiday with a punk twist, since I kind of spike it out everywhere! My husband loves it and I am getting used to it being super short.
Laurajane & retrievermom: Excercise aned physical excertion is the best thing for sleep, and melatonin will give you the weird dreams until your body adjusts 2-4 weeks. The beauty of it is now, if I do wake up, I can eventually get back to sleep!
Retrievermom: I bought hair dye at Whole Foods 100% Natural and went Brown/Black. Makes my skin look milky white and vampirish LOL. It's growing about 1/2" a month so I do have to do frequent touch ups now that I have all of this grey hair! I used to wait 6 weeks now you can see it in just 2!
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LMAO at all these posts! Except for yours Cathy...that must have been a sight..you bleeding all over the place...ah well..maybe they will consider you very special and keep a good eye on you..!
And thanks for the hair tip MJB...something needs to be done!
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You are so welcome. Love that stuff! It's a miracle worker on chemo curls.
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Laurajane/retrivermom - I didn't sleep well during chemo no matter what I tried (sleep medications, exercise, eating, not eating, etc). As much as I hate to say it, you may have disrupted sleep during chemo whether or not you're taking medications or trying other things. I would suggest when you have a chance to sleep, take it, even if it's in the middle of the day. At night if you can't sleep, don't lay there getting annoyed, get out of bed walk around the house, read a book or jump on this site and complain..... Good luck, I know it's frustrating, but it will get better.
Cathy - I can't imagine what you went through......Wow!
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MBJ- what product is a miracle worker on chemo curls? I want to find of it!!
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(((((Pink Hugs Cathy)))))
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Sugar: I don't know if you have a RiteAide there, just the local drug store, ya know? It's Marc Anthony Straight hair cream. When my hair is still damp I put a good dallop of it in my hands, rub my hands together, run it all through my hair and I can get away with finger styling it and using a comb for my "baby" bangs and it actually looks like a style that I asked for. My DH loves it! I have never been able to do this even with my pre chemo hair, so I'm calling it a miracle product. You can probably get it on line, since everything is on line!
I have some kind of flu virus, but as soon as my nose is no longer huge, stuffy, runny and red, I will post my new hair!
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PS: *It's the only product I have found tht says it instantly straightens hair without a blowdryer, which just gi ves me a frizz ball fluff cotton head!
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MBJ - we don't have RiteAide here but our Shoppers Drug Mart does sell Marc Anthony so I'll check it out. Funny..I've been doing the opposite as i've put a serum/balm on my hair that's for curls. I figured I'd go with the flow, so to speak. I've never had curls before so I must say I am enjoying them. That said, I'm going to give the straight cream a try, too, for a different look. My bangs are now past my eye brows but they curl up and look much shorter. My new avatar photo was taken in August so they are a bit longer now. Thanks for the information about the product.
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MBJ - If you don't dry the curly hair and/or use the diffuser just to take the dampness out it helps with the frizzies or as I like to call them the fluff. My avatar is outdated, but I have lots of curls now, probably about where Sugar's is in her avatar. We tried to straighten it, but it doesn't like the straight look - I may try the "miracle" cream you mentioned to see what happens.
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I love hearing about what to do with hair when it starts to grow back. Gives me something to look forward to. I think the Taxol is working for the first time since I was diagnosed in May I can actually feel my tumor is much smaller. It makes me so happy since nothing really changed much after the AC. I get my 6th taxol on Thursday 1/2 way there. I remember reading other people on here being at the 1/2 way point of Taxol and now I am actually here. Yeah!!! No major SE's either. I have been having unusual food cravings though. Scary non healthy ones that I can't resist. Tonight I am having a cheeseburger with grilled onions, smothered in swiss cheese and shitaki mushrooms, baked potato with creme top organic yogurt and a big salad with blue cheese crumbles, olive oil and balsamic vinegar. Weird, I typically don't even like burger. I hope it taste as good as I have been fantasizing about for two days. If I have the energy I might just bake myself a chocolate cake. I've never been a chocolate fan but Taxol has turned me into one big time. I've been trying to eat so healthy tonight will be a fun relapse.
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How can you eat while on chemo lol
everything tasted like metal to me
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Laurajane: That's so funny! Once I had that couple days of metal mouth, I would crave all things protein to the point where I am no longer a vegetarian--I now eat grass fed organic meat, chicken, turkey, turkey bacon. All things protein. What I've noticed after all the chemo, surgeries, etc, is that I seem to have great bone/muscle loss! I just finished the book Forever Young, which is a great resource for diet and maintaining health, especially for women with BC or Chemo/menopause! I just bought the Chia seeds which are supposed to be all the good of flax without the bad (good if you are dieting, too) and Green Magma which is chock full of good stuff and if you are trying to grow hair, this stuff should help cause it helps build bone & muscle! I want my health baaaaaaack!
Jenn3: Blow drying my hair with tons of products was the only way I could control my wavy/cowlicked hair and bangs-until chemo gave me kinky frizz galore LOL! So I would have to agree with you, in that, with the chemo hair, forget the blowdryer!!! I miss my bangs and they are now about a 1/2 inch over my eyebrow which is huge!
For those of you dealing with SE's from chemo, the Forever Young book, although very technical, is so informative as to how you can continue to live a long, healthy life. It made me realize that chemo caused vitamin and mineral deficiencies are largely to blame for some of these SE's and using something as simple as adding Green Magma to a protein drink can give you extra magnesium and calcium and also upping your Vit D3/K1 can also help with those SE's! I refuse to succumb to BC again and I just wanted to share all this great stuff I am learning that we can do. Oh, yeah: Green Magma: Good for hair, nails and skin!!!
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Hi Everyone!!
I am DONE!!!!! Finished my last Taxol today! No more for me. My onc said I am in remission and to come back to see him in 3 months! YEAH!!!!
Now on to the reconstruction! Can't wait. Need to reschedule the appt. to see the PS to schedule the surgery!
Today my big toes are numb, side of face hurts, etc etc etc.... but I don't care because I AM DONE!!!!
As you can tell I am little hopped up on steriods right now but o-well b-cuz I am done!! He He LOL
Can't wait to do some of the things to my hair mentioned here! It will start to happen now that I AM DONE!!!
Can't tell that I am happy at all! Thanks to you all for the encouraging words to get me through this journey and I know that there is still many months ahead to go through but no more going back and being stuck 5 x's (yes today I was stuck that many times once again) to the chemo center!
You are all the best C sisters in the world! Thanks
Kelli
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Kad22- Yeahh!!!!! So happy for you. You are Done!!! Done!! Done!!! I love that word "Remission"
Claire and MBJ- For some reason the metallic taste hasn't been that bad on Taxol. I lost over 20lbs on AC. I kind of liked loosing that wieght I have to be careful to not gain it all back. I've ben told the steroids used with Taxol can make me gain wieght? I think I am making up for not eating anything but soup for two months. I only eat organic grass fed also and mainly beans, chicken and fish as protein. I usually gag at the idea of eating a burger. LOL and loving it as we speak. I'll check out that book and the green good for you stuff. Thanks for recommending it. Have a great evening.
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Kad22: YAY FOR YOU!!!! WAHOOOOEEEE!!!! Time for Celebrating!
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Kad22, go all out and celebrate. You got through it! Congratulations!
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laurajane: I lost alot of weight on chemo, too, although I didn't do AC+T, Then I recently got a virus, and lost an extra 10 pounds so now I have to gain at least 5 of it back because my clothes are falling off-not attractive!
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Ok, you ladies quit losing weight............I am finding every pound! And it seems each pound is bring friends!! Chemo/menopause stinks. I am back to my exercise routine but my metabolism hasn't figured it out yet.
Kad22....congrats on finishing chemo. Yay for you.
Navy -
MBJ- Hope you are over the flu and feeling healthy again. I bet you look great. For the record, made the dinner I have been craving but it tasted so much better in my dreams. I guess I do still have the metallic taste in my mouth. Oh well it was fun thinking about it and making it. My son loved it.
navymom- Congrats on your exercise routine, I need to start doing that myself. I feel like I have all of this energy but then I fade pretty quickly. I think chemo has made me lazy.
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laurajane: I ws so inspired by your meal idea that I cooked tonight but my husband had steak and I had salmon! I didn't know you had a son! How old is he?
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I've been taking the L Glutamine (about 10-20 grams a day). It seems to be working, but I don't want to jinx myself. Are you ladies taking it daily while on Taxol or the 4 days after chemo (starting 24 hours after chemo)? Just wondering.
I am halfway through weekly Taxol and I'm starting to see some hair growth on my head (like peach fuzz). Did you gals that took Taxol start getting your hair back on it? Did it fall out again? Just wondering what to expect.
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Kelli - Congratulations that you are done! I have one more to go on Sept 30th and then I will be done too!. Together we will all get there.
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Kad22: Congratulations on finishing treatment. You did it!!!!
Laurajane: I never had any metallic taste and put on about 6-8 pounds while on chemo (which I've since lost). I do recall my guilty pleasure was MacD's Angus burgers - I'd get one practically every week after my taxol treatment! My younger son teased me about the junk food, as I hadn't stepped foot in a MacD's since he was a kid (he's 18 now), but I just had a craving for hamburgers and chocolate milk!
Kittycat: Yes, the best thing about weekly taxol is that you'll start to see some hair regrowth - many ladies have commented on that. Mine came in as whitish fuzz, starting around week 6. It never fell out again, just gradually got stronger, and darker (well, now I'm dying it anyway).
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Since we have been talking about hair recently, I thought I would post this stylish picture that appears to address both problems...
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