very depressed
I had my surgery on 7/7 and was out exercising the following week. I built back up to running nearly every night, at least some. I started chemo on 8;16 and continued to run on the non chemo week. I felt that I desperately needed the exercise endorphins. It kept me going; kept me feeling strong.
But last thursday I had to have a port put in. Now I can't exercise. I'm still recovering from that -- it jostles when I walk too fast. Also the chemo is now wiping me out (on the third of 4 ac's then start taxol.)
I'm so depressed. I can't even think clearly. I can't even cry - I'm just totally empty. I miss running. I feel as if this port has taken more away from me than the mastectomy surgery, chemo, etc. I'm just not myself at all.
Is it safe to exercise with a port? I know no big arm movements, but maybe I can do other stuff. I walked this morning but my legs ached and I just didn't have my heart in it. I'm ashamed of myself for feeling this way - I'm usually a very up person but the truth is I'm just sick of this and I can't see my life ever being "normal" or happy again.
Comments
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Im sorry you are going thru this right now, all the feelings you are experiencing is normal, I also got very depressed during surgerys and chemo, i felt bad all thru it, i wouldnt try to push yourself to hard even as bad as you want to run.
Please dont feel ashamed, you have nothing to be ashamed about~You are not alone, I too felt like my life was never going to be the same, yes, things change but you will get better and feel better and before you know it your chemo will be over and your hair grows back and you start little by little to feel better, im almost a year out from my last chemo and honestly i feel better now than i did before this nightmare started-
On your good days i would try to walk slowly and do what you can, on the bad days i would just take it easy let yourself heal and let others comfort you- Maybe you can ask for somthing to calm you and or somthing for the depression
I will be keeping you in my thoughts and prayers- Just remember this to shall pass
Love and hugs,
Debbie
d
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Cal - as Debbie says, all this is very normal. Let the port area heal, then you can exercise with it. I did aerobics, elliptical, weight training, swimming, etc. all with my port still in. But all that came after chemo. During chemo I managed to keep exercising for the few few chemo treatments, but then gradually I was able to do less and less, and for the last two treatments it took everything I had just to go to work and come home - I had no energy for anything else, including exercise. Two weeks after chemo was over, I got on an elliptical - I lasted all of 5 minutes, but it was a start. I also enrolled in a gentle yoga class. I've built back up from there.
Debbie's advice is great - on the good days try to walk slowly and do what you can, and on the bad days be good to yourself. If you're still feeling empty, definitely let your onc know - using anti-anxiety or depression meds is perfectly appropriate during this time. As as Debbie says, it will pass and you will feel better and you will be able to exercise like your old self once again.
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What you're feeling is normal during chemo. Exercising is not as easy during this time expecially running even if your body is used to it. Give it time to get thru the chemo. When I couldn't go out walking or running during chemo, I felt like I needed to to just something to get my endorphins going so I layed on the floor and did a lot of leg execises. Do what you can and know it will pass.
Barb
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My port was a non-issue as far as exercise went (it took a couple of weeks to heal but then I was fine). As has been said, be gentle with yourself -- this is all so normal. Do what you can, listen to your body, and beyond that, don't beat yourself up for anything you're doing/not doing/feeling/not feeling. Your body, mind, spirit is going through a terrifically difficult experience. Give yourself room to feel whatever you're feeling, and to rest and heal.
Most people feel much better once they get done with AC and start on Taxol, so know you're almost done with the most horrific part.
It's also really normal to get depressed. I know I was hit with my dx, then rushed into getting a port and getting into chemo and I really didn't have time to digest what was going on with me until I was down the road a bit... and then I got slammed. A counselor was a huge help to me -- a professional counselor, a minister, etc., might help you a lot. And when I finally realized I was really deep in the trenches and crying way too much of the time, I asked for an antidepressant. It doesn't make things wonderful but it helped even things out and I could cope a lot better. I'm not someone who turns to drugs, and I'm used to being strong and dealing with things myself... but this wasn't a time for me to try to do that. I called on help because I knew I needed it. Also, support groups help a lot of people, as does bc.org and the wonderful people here.
Final thing, I know what it is to feel like you'll never feel normal or happy again. I was there most of last summer and longer. I remember sitting in my office and hearing people laugh and wondering if I'd ever feel like laughing again. You will, I promise you... you will get better, you will feel human and happy again. Although I'm still getting strength and energy back, my joy is back, and sometimes I just want to dance on the rooftops to share it... "normal" may be different that it used to be but it's good. It's wonderful. You'll get there. Hang in there. Be gentle with yourself. Sending a big hug.
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I know at this point it is like one thing after another but it does indeed pass.
I was running during chemo but then had my exchange and hyst and had to stop again. It felt like every time I got two steps forward I was yanked 10 back!
I did run with my port, after awhile. It just takes some time for it to settle in I think. In fact I ran a 5k the week after chemo ended and a half marathon less than a year later and now I am marathon training and life is good.
I remember thinking that I would never get my life back but I did and so will you.
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I know at this point it is like one thing after another but it does indeed pass.
I was running during chemo but then had my exchange and hyst and had to stop again. It felt like every time I got two steps forward I was yanked 10 back!
I did run with my port, after awhile. It just takes some time for it to settle in I think. In fact I ran a 5k the week after chemo ended and a half marathon less than a year later and now I am marathon training and life is good.
I remember thinking that I would never get my life back but I did and so will you.
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thank you! Now I AM crying, but it is more like a relief crying than a sad crying - from reading these posts. I'm so glad I'm not alone. It's so hard to see past this right now - my body seems to be not my own anymore. Our finances are a mess and I just am having trouble wondering if the rest of my life will be obsessed with mets or long term SE's from the chemo.
I do see a nutritionist and have always been very consciencous in that way. I'm eating well, sleeping okay (with the help of ativan) now that the port is healing, but I just keep searching myself - like what happened between a couple of weeks ago and now? The port surgery and third chemo right on top of it I guess, just set me back emotionally, mentally and physically.
And I'm bored with feeling like crap also, so I'm sure that doesn't help. A friend stopped by yesterday with a pretty bracelet and some goodies, our associate pastor stopped by and spent some time with me, and then another friend of mine brought dinner; all in one day. Really, these things do my heart good, but sometimes you just want to scream that you don't want people doing stuff for you and taking care of you - you just wanna be normal again!
Anyway, I appreciate so much what all of you have said. I will definitely keep the antidepressents in mind - I hate taking any kind of medications but I think the mind is very much connected to the body and to healing and going around being down all the time isn't good either!
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I did weights/crunches and cycled all through chemo, and yes, I had a port.
I found that even with AC, cycling oxygenated my blood, so I would temporarily feel "normal" once I pushed through the lack of lung capacity.
Since my port was in my chest, I didn't think twice about lifting free weights once my drain was out.
I cycled the 200 mile Seattle-to-Portland within six weeks of finishing radiation (over 2 days) and did LIVESTRONG (45 mile course in the pouring rain) just 12 days after finishing radiation.
I did the short course of the Chilly Hilly just 6 days after 3 of 6 Taxol infusions. True, it was the short course and I walked a lot of hills, but I did it!!!
One of my cycling buddies mentions that I dragged HIM out in the rain to go cycling last winter, and that I kept him fit.
You will get there.....and you will feel better if you are able to move. Good luck.
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AC didn't catch up with me until the third infusion either. Then boom.
As for accepting help, just take this as an experience in learning to say "yes".
Actually, I was better off that way than my friend who had a horse trip and fall on her leg. Talk about being out of action. She is recovered now, and so am I.
One other thing.....during chemo, I made a point of getting out and walking daily. That way, I felt I was part of the world.
My thing that went wrong around #3 was being the first person ever in my Dentist's practice to have an implant crown unscrew. So pain at the oral surgeon, and more pain from a tongue sore on the healing cap.
Looking at your post once again, one of the things that really helped me with the journey was having a vision of myself at the end of everything cycling down the same country lane as a year ago being no worse off than being missing a couple of chunks of flesh and having much shorter hair.
I got there.
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that's amazing, Claire. I know what you feel, being part of the normal world. I went out tonight and walked for a good long time with my Ipod and I'm feeling better now. It's not running, but it's okay, it was enough. It really does clear the head.
I'm still kind of in limbo but feeling better especially after seeing these posts and knowing that these are normal feelings. My associate pastor said yesterday that one of the hardest things about this is that it's so looooong, and that's true. I think we all have enough endurance and faith to carry us for a little while, and we chug along with the BC thing and then we sort of falter - at least that's how I feel. Begin to focus on the disease and the drugs instead of the strength of our bodies. With me, the port surgery took me down. I had this sudden sort of out of body thing while I was lying on the pre-op table, bald, covered in a white blanket, with three needles sticking out of my arm as they tried to get an IV going and my veins weren't cooperating. I thought "Who IS this person? She is not me - I don't know her....."
I want to find "me" again. Thanks for letting me know this is not forever.............
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cal- After reading your second post about your finaces being in a mess, i wanted to add that my hubby was laid off the same week i was dx with bc he applied to all kinds of places but couldnt get a job as soon as my chemo was over and i felt better he got a job in another state in fact an area where we wanted to go in the first place, and he was able to be there for me at the time, things will get better
Im in awe of all you woman who do go running and still working i was a wimp during my chemo i hardley wanted to get out of bed you rock!!!!
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I know how you feel,before all this happened, I was exercising every morning for a hour, lost 14lbs, and really started feeling good, especially for 62 years old. Now I am facing my 4th and last chemo, then on to 9mos of herceptin. I feel I am getting weaker and weaker, can barely climb a flight of stairs without my leg muscles burning and hurting, I feel like just sitting on the last step and resting. And yes, I have gained the 14lbs and another 7lbs, I hope I will start feeling better soon, because I am feeling very depressed, I don't even want to sew, which used to be my favorite thing to do.I guess I need some words of encouragement too.
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Hi ladies- I just want to let you know that mid chemo I totally fell to pieces. I wasn't in such good shape mentally or emotionally to begin with. Halfway just felt like too much. Also I hit chemo pause at the same time. I got myself some anti depressants and sleep meds. Once I finished chemo I was flying high with happiness.
This has been a tough week for me as my Mother in law is in the hospital, we have hit financial bottom and I start rads on Monday. All of a sudden all the fear of dying and my sadness has returned. But, as i have been checking in with myself I realize that i don't feel as awful as I did when first diagnosed or as awful as the midpoint in chemo. I realized I can still have bad days. But, they don;t last as long.
One of the things that cheered me up is remembering with a friensd who is also on the BC journey emptying the stupid surgical drains! We made it through that and can laugh a little about standing in the bathroom fumbling with the stupid drains, taking measurement,trying to get the cap back on etc....
I am trying to remmeber that BC is a tough journey and my fears are very valid. But, there is more to life than my fears.
As far as the exercise goes. I never did much but forced myself most days to just ride the stationery bike for 10 minutes. Carol and calmytykel- I am the biggest baby there is. If I can do it you can too!
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Carol, hang in there. Chemo really pounds you, on multiple levels. I had the same experience you're having with energy and strength. It was discouraging and depressing. Don't hesitate to talk to your dr./nurses about how you're feeling (physically and otherwise). Many of us opt for antidepressants of some kind to get us through the worst of it. They won't make you happy, but they even you out, and also helped me sleep some, which helped a lot.
And, the joy comes back, and so will your desire to exercise again, and your strength.
I'm repeating some of what I said above, just wanted you to know we're listening and empathize!
Remember your body, mind, and soul are going through a terribly hard journey. Be patient, and most of all, be gentle with yourself.
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Thankyou NatureGrrl, sorry I havn't gotten back to you sooner, but my mom came down with pneumonia and was very sick for awhile. It is really hard when I am the only kid she has, she is in a nursing home that isn't very great with the care given and with my BC I can't go to see her for long periods of time, because I was told that a nursing home has more germs then any hospital.So i am glad that I can pour my heart out to all of you.Thank you again, will get back to you soon
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