Starting Chemo Aug 09
Comments
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Donna - congrats on the clean CT scan. Don't worry about the diet, we all have bad days...enjoy life. Cruise countdown is on,......
Tonight is the season opener for the Saints - Whoo Hoo!!!! They let us out of work early because the streets are filling up, they're having a parade, people are tailgating all over and it's just plain crowded, but fun.
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Great news Donna!!!!!
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Now what's Weety been up to recently?
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Oh yes - met cyber Joni in real life and we had a blast. She posted a picture of the 2 of us on the July '09 chemo thread.
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I've been busy starting out my new kindergarten class! I have barely had time to do anything this week! We just started on Wed. I forgotten how much work 5 year olds can be at the beginning! I'm absolutely exhausted. I've got some real boogers, too. Off to the lesson plans I go. . .
Glad to hear everyone else is doing well.
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Weety so glad to hear from you. 5 yr olds can be tough, but fun - rest up it sounds like a long school year. Love your new picture.
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Jen -- enjoy the Saints kickoff!!!!
Weety -- GREAT new pic!
Donna -- I agree with Jen, don't sweat it just get back to it and you will be happy -- look at how well you've done till now! Also, check out weightwatchers.com -- someone told me today that you can do weight watchers style dieting without having to actually go to a meeting
Apparently the way their diet works is that you get points for food and you can have anything you want, but in moderation (based on the points). You might find it an easier thing to do... you won't feel deprived! I'm thinking about checking it out myself but going away this weekend so won't even look till I'm back ha!
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Just wanted to check in to say hello and hope that everyone has a great weekend.
Today I have some birthday shopping, then tomorrow I have parties to attend. Other than that I don't have much planned, which is a good thing.
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great pic Weety - we are all starting to look normal!!!!
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Another Monday....I woke up so tired today, couldn't get my brain thinking until at least 9am. I was useless that first hour of work - thank goodness it wasn't busy.
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Hey ladies! I was away for the weekend (had a fun time in Atlantic City) and back home now catching up on email and BCO
Jenn -- happy birthday! Hope you had a good day.
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Lilah - thanks for the birthday wish, but I was actually shopping for nieces and nephews - seems we have a lot of Sept birthdays, my daughter included. How was Atlantic City?
I'm heading back up over the weekend with my oldest daughter to visit with my youngest daughter for her birthday. Then a two week break and she'll be home for a long weekend for fall break. Really? What is that about?
I did some really good stretches yesterday with the ball and it really felt good - I'm going to do it again tonight after my walk.
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Oh sorry jenn -- guess I spaced out
AC was a blast!
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Lilah - I love the new pic - I so need to update mine. Maybe I'll find my way to an acceptabe picture this weekend. Glad you had a good time in Atlantic City.
Today I was in line at the grocery, which was an adventure to say the least, but while I was standing there (for 20 min) to buy 1 head of cauliflower I started talking to the woman behind me. She started talking about the Komen walk coming up and told me if I hadn't signed up, it's a good idea, blah, blah, blah - I asked her if she knew someone, she said no, she her friends were just doing it. That was when I said thank you and that I was a survivor.
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233.4 pounds now very slow and steady....I'm not complaining! Seems that Gill and I have blown dried our hair this week for the first time. Now instead of being very curly and pushed back in a headband, my hair is short and really big and fluffy...but not curly. I had curly hair before chemo so I expected lots of curl afterward and it did not dissapoint.
Jenn- I am getting ready to sign up for our Komen race that takes place Oct. 2nd in St. Petersburg. I have ordered pink knee high socks for my daughter and I to wear, mine say survivor...I am very paranoid to wear anything that says survivor but I am coming to terms with the fact that right now I am a survivor.
A little background info about my mom if I haven't already told this story: In 1998 my mom was diagnosed with stage 3 breast cancer at the age of 52 no family history, she had a single mastectomy followed with stem cell rescue, massive chemo, and radiation. She did everything her doctors told her to do. I wish I could remember if my mom was TN but I'm pretty sure I remember her getting a shot for a long time because she was her2 +. She went cancer free all the way till 2004, 5 years so of course she went out and bought all the survivor garb, hats, shirts, pins, car magnets. That year she was acting odd enough that her psycologist sent her for an MRI, she had a very large (breast) tumor in her brain, she had surgery and they removed it followed with whole brain radiation, she was never quite the same after that but she was alive and functioning just forgetfull at times. Then came 2005 when her oncologist thought something not right with her labs so he did a spinal (biopsy) and found out she had developed AML Acute Myloid Leukemia which was from the original cancer treatment back in 1998, and since she had already recieved chemo back then this was a death sentence, she was given 3-16 months to live and finally went home kicking and screaming on March 10th 2006 (15 months later).
One of my clearest memories of my mom and her journey through cancer is when she found out that she had gotten Acute Myloid Leukemia from her breast cancer treatment she went out to the parking lot at H Lee Moffitt Cancer Center in Tampa, FL (one of the best) walked over to the car grabbed the "survivor" magnet off and threw it in the bushes along with her "survivor" hat and said "I am not a survivor"! She was more than pissed off that the fight had ended. Looking back, I realize my mom did survive 8 years after her original diagnosis, that was time to see me graduate from college finally, several gradchildren born and growing up, along with many family milestones. She was not happy when she found out it would end and rightfully so, she missed my daughters graduation, her first adult apartment, her wedding day, her first great grandchild and my cancer journey, how I really needed my mom through all of this, I guess she was my angel.
So really long story short, I will be proudly wearing my survivor socks and t-shirt at the Komen race this year along with a picture of my mom. Because right now we are all survivors! {{{HUGS}}} Donna
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Donna, I really liked your story about your mom. She sounds like she was a real tough girl with a big heart.
I also want to say to those that are preparing for their first BC fundraiser event, be ready for an emotional rollercoaster ride. I just did my first one this past Sunday. I had my family and 5 of my very closest gal pals with me. Everything went fine, we had beatiful weather too. I had a few minutes of silent anger. I am pissed that the BC numbers are growing and that the research just isn't even keeping up. Yes, I kept a smile of appreciation for those with me and even cried when the speaker that day said things that I could relate to. But there is no denying that this is hard. I am so grateful for all that donate their time and money to have these fundraisers. They are so very important. But survivors beware.....It is a very emotional day and even took a bit out of me for a day or two after. Maybe reality sets in once again. Chemo was done in Dec 09 and reconstruction finished in March 10. I am feeling good for the most part......And here comes October. The month of pink. Hang on and hang in there.
Navy
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Donna - Thanks for your story about your mom. She was a fighter to the end. And I'm sure she was watching and cheering you on in your own fight against BC. Good for you for walking and honoring her. My mother has also battled BC twice ... original DX in the late 1980's, mets to the liver in 2001. The second time they gave her 6-24 months. But here she is almost 10 years later, going strong, completely healthy and turning 88 next month. Good job on the weight!
Navy - Thanks for your thoughtful comments on the emotional content of "pink October". Last year I just wanted to run for the hills. This year I feel like a survivor. We're all Rocky at the top of those steps!
Lilah - Love the hat!
Patty
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Aw thanks ladies re: my new pic
Jenn -- I love your supermarket story. What did the woman say when you told her you were a survivor?
Donna -- your mom's story made me sad. I'm sorry she passed though I do agree it's wonderful she got those 8 years. I am her2+ and having my last Herceptin next Monday (it's not a shot but an infusion, so not sure what the shot was that your mom was getting). It's scary to be done with treatment because I worry about recurrence. When my ONC told me I would need chemo she did say there was a 1% chance of getting that leukemia your mom had; I'm truly sorry she was one of that small number who get sick from the treatment.
And btw Woooo hooooooooooooooo on the new low! Keep it up Donna!
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Donna - hugs!! I'm sorry you don't have your mom with you.
Lilah - I love your new picture! Very cute!
I hope you are all doing well! I think of you all often although I don't get on here as much as I would like anymore.
I thought I would share some links of my story with my Luke and how he got me through my BC. There will be more to come. He touched my heart and helped me through the last year so much...
http://pets.savvy-cafe.com/cats-comfort-breast-cancer-patients-2010-09-07/
http://www.emcorleans.ca/20100916/Lifestyle/Cats+comfort+breast+cancer+patients
I wish they would have included a picture of Luke. He's just beautiful!
Have a good weekend ladies!
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Aw great story Karen -- I agree they should have included a picture!
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Karen - love the story - sometimes I think the animals we find/rescue are actually there to help us....
Lilah - the woman at the grocery really didn't know what to say, it was a bit awkward for a moment, she asked about all of my curls and we talked about that and then we changed subjects. I guess she didn't know what to say and I caught her off guard. I usually don't say anything in public to strangers, not sure why I did, but I did.
Donna - congrats on the weight loss. Even though it's slow remember the numbers are still going down, not up. Your Mom's story really touched me (I cried). It's a story of courage and strength and a beautiful story to share.
Navy - so glad you had beautiful weather for your walk.
Patty - I didn't know your Mom had BC - I guess your Mom showed "them" and beat the odds. How wonderful!!!
I am putting this out there - I know we're coming into the month of October and I'm suppose to feel full of support and be out there raising awareness, but I don't feel it. I don't want to wear the survivor shirt and say here I am. I think I said best the other day for the first time since diagnosis when I was talking to my dr about my ongoing pain issues. I said now that I've had the Big C, every ache and pain get extra scrutiny (which I know is good), but I HATE THAT I HAD THE BIG C. I couldn't believe it when I said it, but the whole way home I said it over and over to myself. I think it was me admiting to myself I had cancer! Maybe that is the problem I'm having with October, I have to admit it to myself, accept it and move on, but I'm not quite there yet. Oh.....the joys of this disease.
On a brighter note, I went up to visit my daughter for her birthday and had the best time I've had in a long time. My oldest came along (DH had to work) and we must have spent the entire time laughing and goofing off. It was great!!!
Hope everyone is having a great weekend and if you're a football fan, hope your team is doing well, unless we (the Saints) have to play them this week.
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Jenn -- I know how you feel. It's not a club I ever wanted to be in either. I'm grateful that the worst is behind me even as I worry that it could return (which is the razor's edge of it all). I try to be in the moment and feel happy for being healthy now. I personally hate the Awareness Month. I was going through chemo last October (the end of it too so it was the worst of it) and was all too aware of BC then. I think this year when the ads and reminders start I will just be glad I am not on chemo.
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I am so thankful for the awareness brought to breast cancer and I do hope to help others, I guess I still need some time before I'm ready to jump into pink month.
I forgot to share a funny movie story. While I was visiting my daughter we decided to go to the show. We went in the afternoon to see Easy A - the cinema was much smaller than what I'm used to but nice. Anyway, we were getting ready to purchase maintinee tickets when I said to my daughter, get your student i.d. out so that we can get a discount. The young cashier says to me, oh we don't give discounts here. I replied with do you know of another theater that does? She says, yes AMC. I said oh.....you have an AMC here? She says, no there is one in New Orleans. Keep in mind I am 300 miles from New Orleans when she says this, with a straight face. My oldest daughter almost busted a gut. When we walked away from the counter, my oldest daughter said she almost asked if we had time to make the movie, but was afraid the young girl wouldn't "get it".
We saw Easy A - it was cute and what I expected from the previews. Then that night we saw Town, with Ben Affleck. Not my kind of movie, but the girls wanted to see it. In all honesty, I like Ben Affleck, but I don't think he's a great actor. With that said, I thought his acting in Town was the best I've seen - I was impressed. Blake Lively stepped out of her pretty girl role and did a great job too.
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Lilah - You said it....no matter how we feel about Pink October we can all be happy we're not going through this one on chemo. YEAH!
Patty
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LOL Patty!
Jenn -- I was interested in both of those movies but haven't seen them yet. My BF took me to see Resident Evil 3 LOL I like Milla Jovovich a lot but it was a bit violent and silly.
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Did you movie officianados see Inception? I went a couple weeks ago and while I think I got it, it was a bit of a brain twister!
Patty
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Patty - I didn't see Inception, but my daughters did. My oldest gave great reviews, my youngest liked it, but said she really needed to see it again to see if she "got it". Do you want me to ask my oldest what she thought?
Last night I came home changed clothes and while I was getting ready for my walk I peeked out of my door and two dogs that have "found me" in the past were in my driveway. Ugh!!! I can't just let these dogs walk off, they're friendly, well behaved, clean teeth and ears (yes I looked) and their fur was soft, they were well kept. Meanwhile my 4 dogs are not happy to see me putting leashes on these guys and walk off. The last time they "found me" I walked for about 10 minutes and the owner drove up and took them back. That was what I hoped for again. Nope, I walked for 2 hours, knocking on doors (meeting a lot of people along the way), but couldn't find the owners. Came home ate a late dinner, DH was home by then so we took off together and walked for 2 more hours - still nothing. So........ they had a sleep over with us, we gave them water, food and a place to rest. This morning I called the pound and had them run the rabies tag numbers on the dogs and whoo hoo..... we found their home. DH came home during lunch and got them back to their owners, who were very happy. I just don't know why, but somehow if there is a stray dog we find each other and I just can't take in anymore so I have to find their owners.
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You've got a GIANT heart Jenn!!! Good for you! Those pups are lucky they found you.
I thought INCEPTION was entertaining but a great big Mind F-ck! (Sorry but that's what it was) LOL
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Lilah - I do have to admit, I'm really not into movies that mess with your mind or use a lot of brain cells. I tend to lean towards romantic comedies, dramadies and some drama withoutout too much violence. I use enough brain cells at work and in life and like to relax during a movie. But.....to each his own, my oldest and I never agree on movies, she seems to like indie films and movies like Inception.
I do love animals, but I think for me it is the fact that I hate to see anyone (animals included) struggle. Much to the dismay of my husband at times, he keeps telling me we'll be be needing help at the rate I'm going. But....it is who I am - a rescuer. Not sure if its good or bad.
Tomorrow is Saints v Falcons - Big game!!!! Falcons had a big win last week and they're our rival, I know they're out for blood. We're having family over and serving "dirty bird" (seasoned chicken).
Have a great weekend.
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"dirty bird" -- I love it! Great name for seasoned chicken.
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