Chemo June 2010
Comments
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YAY JFV!!! I can't wait for my last chemo! Good for you!
vickythomas - I am SO GLAD you are going to your last chemo treatment!!!
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Toni - congrats!
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JFV and Toni congrats on getting to the end. I am just beginning my journey on October 6th and I already can;t wait for it to be over.
I am getting 4 treatments of TC 3 weeks apart.
Just got back from my another chemo opinion. This place was good too. Doctor was very nice and reassuring. They both say since I am healthy I should do well. The difference between the two is this:
Place A automatically gives you the neulasta shot the day after chemo and they have kind of dividers between the chemo chairs with a curtain if you want privacy. But I am also checking into another one of their locations that the same doctor goes to.
Place B only gives neulasta if you need, they have you come in once a week to monitor blood counts. They have an open room for treatment but they also have a few private rooms you could use, and they have wifi which would really make the time fly and I could get work done.
Any opinions? -
Whooo hooo to everyone finishing chemo! You DID it!
Carol2- I think you will find the chemo treatments go very quickly. I can't speak to the Neulasta injection, perhaps some of the other ladies will chime in on that. As it sounds like both facilities are similar, I would say the MOST important thing are the chemo nurses. It is ALL about the nurses, you never even see the Onc in the chemo suites. If you had an opportunity to observe or meet the nurses, go with your gut feeling. You will see that things really go quickly once yolu get started. We will be here for you too!
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JFV and Toni----WOOO_HOOOOO!!!!!!!!! I am doing the CHEMO FINISHED JOY DANCE for both of you. Last chemo tx's. Now onto the next phase of this jouney. Happy for you!!!!!! LOL, Ginny
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Carol 2----I had the neulasta after each treatment and did not have any problems with the Neulasta. I never had the bone or joint aches that so many complained about. My SE's were all caused by the chemo. I did take Claritin D during those times because I take it for chronic sinus anyway so maybe that was the difference. Hope this helps. I never had to delay treatment because of blood counts as some have had to do that did not get Neulasta so that is something to consider also. Go with your gut instinct. Ginny
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Ginny thanks for the insight. My instinct is very confused right now. A part of me would rally like to skip the neulasta and another part of me thins it would be safer to get it. Good point I really don;t want any delays. I just don't know what to do. There are pros and cons to both doctors and methods. I am soooooo confused right now.
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Carrol2- Do you know which kind of chemo you are getting? Some seem to need the Neulasta more. I almost had my chemo delayed last time as my white count was below the cut off. My Onc offered me the Neulasta, but I declined. After reading about several of the ladies being hospitalized due to low white counts I called, thinking I should have it. My Onc explained It could only be given within two days after chemo, so I couldn't. You will always have your counts checked prior to getting your chemo. Perhaps you could decide each time based on your counts?
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Carol - I got the Neulasta after each AC (25 hours after). I had no side effects, and it kept my blood counts up which is important.
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CONGRATS Toni!!!!!!! You did it!!!
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Desingermom I am geting four treatments of TC 3 weeks apart. all three doctors agree with that. One doctor I eliminated because the nurses all had such heavy accents I could not understand them and that made me really nervous. So now trying to chose between two. Nuelasta as I need it with wifi in the chemo room, or nuelasta after every session no wifi but divider wall between the chairs.
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Vicky, JFV and toni, yea!!!! im so thrilled for all of you!!!! your done with chemo!!!!
wow i cant wait, 8 more once a week for me...
Carrol2, Dmom is right, its all about the nurses!!!!! talk to them... I had 4 neulasta shots after each AC and never had a problem, it kept me super charged. I think the TC is a bit easier on your blood so if you need it they will give it to you, if not they wont. my friend was on TC and never needed the shot. if it were me id take the shot rather then take a chance on getting sick and you will b doing chemo during flu season.
How is Sherry doing?
love, hugs and no SE's
Chey
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Chey that's just it. One doctor just automatically gives the shot and the other waits to see if you need it. I am not sure which is better. I am leaning toward the latter. Id rather not get it if I might not need it but, will I need it anyway? I dunno with TC.
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Congratulations and one big HAPPY DANCE for everyone who has finished or is about to finish chemo! HOORAY for you.....it wasn't fun but you made it! Yippee...and a BRAVO, too!
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Vicky--> Looks like your last tx was today? WOO-HOO! You made it!! Please keep us posted on how you're doing!
Carrol--> That is a tough decision. Most of us that had AC had to have the shot the day after. With the chemo I had last year (a combo called FOLFOX) the onc waited to see if the wbc dropped before giving me a shot. I did have chemo delayed several times due to low wbc counts, (and once due to low platelets, but that's different). I just learned to roll with it, and not plan anything!
Keep in mind that even with the neulasta, your wbc can drop very low, but it comes back up quicker, so if you do get some bad germs, your body will be able to fight it--but it might be a few days later. Mine once dropped to almost nothing, but a week later they were back up higher than normal (because of the shot). I only had them checked that one time in between because I had a fever and chest congestion. I'm assuming mine drop low every time--about a week after chemo, so I'm always more careful at that time. The weird part is you never know for sure how low they get, unless the onc has a reason to check.
How are you doing Bon?
And, yes, where is Sherry?
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Carrol,
I had TC x 4 and Neulasta every time. I found getting the shot very reassuring, I was terrified of getting an infection and ending up in the hospital. I had no problems with the Neulasta, took Claritin, had mild bone aches for about 24 hours with each shot (low back pain mostly). Agree that nurses are most important. I switched oncs mid-stream due to the nurses. I recommend you interview whoever is in charge of the infusion center regarding the protocol they use in administering TC. I thought my first set of nurses were going to kill me with the Taxotere, I nearly quit chemo I was so scared. The second set were all wonderful and I think more qualified, all RNs, and managed by a nurse who seemed extremely skilled and knowledgeable.
Julia
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I did my final infusion of Docetaxel (Taxotere) today....!
I found I was in a more positive place than previous infusions, knowing this is the last time I should go through this... though i am not looking forward to the next 8 to 10 days of weird side effects. It's almost done! I will be getting just Herceptin every 3 weeks for a year.
Thanks Tmarina, LizzyAnne and Carol for the info about recovery time following mastectomy. Ideally I want to have reconstruction in the same surgery, but the oncologist does not like the delay in seeing the plastic surgeon (late November consultation with surgery scheduled some months after that). He wants the surgery to be done before the end of the year. I was so hoping to have the surgery in the new year because I wanted to be mobile and well for Christmas ( I broke 2 ribs right before Christmas last year, and could barely participate in things) There are no plastic surgeons in my town, so everything would be done in Toronto. How long were you girls in hospital for surgery/reconstruction?
Hang in there Vicky. This is tough but the end is in sight.
Thanks to the steroids, it's going to be a long night. It's 4am and I am wide awake. Thank goodness for late night tv and my crochet project.
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Heading off to the rads simulation right now but wanted to make sure DesignerMom and her family are OK after that terrible storm in NYC. DMom....please let us know that you're safe and sound.
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I did it... I am done.. I am done.. I did it... now just waiting on the side effect to come and go.. I am so happy to be done.. I am just waiting on the healing process now.. so far no real side effects, I had diarhea yesterday that was different..
To all that have finished or will be finished.. this is a milestone that we have crossed.. and I hope that we all can heal and have a normal life or shall I say a better life..
funny I still have anxiety... I had them drug me way to much by accident so that I could sleep through it..
The last treatment with benadryl didn't put me to sleep... so this time i wanted to sleep and I asked if I could take a xanax with the benadryl (thinking the benadryl wouldn't work) well it did and I was out of it to the point that they didn't want me to drive home.. I convinced them that I was good I only live 7 minutes away.. So when I got home I called.. and then could you believe that I couldn't sleep once I got home..
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Northerngirl--> YAY FOR LAST CHEMO!!! I hope this last one won't hit you as hard, but at least you know you won't EVER have to go through this again!
Do you have any se's that you think are from Herceptin? I have a constantly drippy nose, and I read on a thread about Herceptin that is a se. Other than that, I haven't noticed anything. I've also heard that some women think the Herceptin makes their hair grow back slower--I am SO hoping that is not the case!
Hope you can get some rest today!
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Vicky you were so funny all drugged up, i was laughing at your texts..then i knew you had fallen asleep, hehe, im so glad your done...
Carrol, its so hard to say what will happen, everyone is different,my girlfriend was on TC and never needed the shot, but it is really scary if u get sick cause u have to go to the hospital, but if they ck you and u dont need it all is well, its hard i know, let us know what you decide,
sherry we hope you are well, we miss you!!!
Northerngirl, yay!!!!! hehe, we are all getting there..
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Bon-Thanks for thinking of us in NYC. "Auntie Emm, Auntie Emmm!" Lordy, those were some serious winds, they think it might have been a tornado, even clocked hurricane level winds on one pier! Brooklyn and Queens got the worst of it, we watched it all live. Astonishing nature. I was quite scared. My son, on the other hand, was thrilled reporting he saw lightening strike a pole etc.... I'm off to my rads simulation too! They are still trying to decide whether I will be sunny side up or sunny side down. How about you?
Later ladies, gotta go seem my RO!
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CONGRATS TO ALL WHO HAVE CROSSED THE CHEMO FINISH LINE!!!
Today is my tired day. I have a sort of silly question. How does everyone deal with those little cuts on their fingers. Between low WBC and trying to avoid lymphedema I try to bandage and antibiotic the cuts. But, the bandages get wet and fall off etc.... Small problem but annoying!
Have a good day.
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NorthernGirl CONGRATS!!!! your last chemo that must feel fantastic. I am just beginning but already can't wait for it to be over.
Thanks to everyone for sharing your experiences. It means so much to hear people go through it and get through the other side.
I went to 2nd location of one of my doctors today and liked it the best I think. It's very small just 5 rooms no big open room, very private. They have two nurses that work there. This is the doctor that does give the neulasta shot routinely with TC. I spoke to the nurse about it and she said it really is important to the effectiveness of treatment because it prevents any delays. I had not thought of that. If you have to delay a treatment it does affect if how well the chemo works. Plus they have wifi. So I am just going to let this sink in and make sure this is what I want then cancel the other appointment on monday.
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Sorry to intrude but I just came across this thread and what a wonderful group. The support is so important.
I just wanted to say congratulations to those who have finished and to those of you who haven't - it will soon come.
It's nearly 2 years since I finished 8 rounds of chemo and I have just one bit of advice-
Give yourself time to recover! It can take a while but we're all different. I too was on a high when I finished chemo but it took a while for the energey levels to recover, and I was still depressed looking in the mirror. My hair looked like a 60's perm for over 12months!
Nearly 2 years on and I'm virtually back to normal. My hair is past shoulder length with just the remnants of curl at the ends.
Don't expect to be back-to-normal immediately. You will be disappointed, but celebrate the end of treatment.
Mal
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JFV, a nurse suggested Bacitracin (sp) to me for the nicks and cuts - saying it was a bit stronger / better than Neosporin. I just dab a bit on and use a band-aid for awhile. Many times I'll leave it uncovered at night, thinking I won't bump or reopen it while I'm sleeping. So far I've had no trouble, everything has healed nicely.
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Stephanie- Thanks for the advice. I'll pick some up.
Mal-Thanks also for the advice. Isn't this a great group? Intrude whenever you want. This is day 2 post chemo and I spent it on the sofa. It may be my last chemo. But, it's still chemo and it's letting me know it.
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Northern Girl, I am happy for you to finnish! I did my second to last Docetaxol at reduced dosage today. Hope you are S/E free. I will be three weeks behind you.
Carol, I have had 2 delays in chemo due to infection, 0 white cell count and a hospitalization. they are just now starting to do the neupogen shots. It is better to be safe then all these dangerous delays.
JFV Try GEL BANDAIDE brand bandaids. They heal well, keep infection away, and stay on through water and showers. Expensive but very worth it. You can leave them in place for 3 days. I always use them for cuts on fingers.
Vicky, I am proud of you for finnishing. I was up all night on steroids. Luckily my daughter works midnight shifts in home care so she keeps my occupied by texting all night when I cant sleep.
Love and Hugs to all, Mimi
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mimi9186 thanks for that justification. Sorry you had delays in your treatment. I hope you are doing better with the shots now. It took a bit of asking around to figure it out but I am glad to hear I made the right decision.
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Back from my radiology simulation, what a trip! Good thing I'm not shy as two technicians plus my RO were busy marking dots all over my back, around my breasts with a Sharpie. Fairly uneventful Holding totally still in a quite uncomfortable position (face down, arms extended, head to the side) was the hardest, but doable. Like many of you, I am paranoid about cuts infections, lymphedema as my white counts are very low. They usually mark the places where they are going to tatoo with a Sharpie then go ahead with the tatoo. He said it was a sterile needle, but I made him wipe me down with alcohol before he marked me. There are just too many germs on surfaces in hospitals, can't be too careful. Another thing I do if I cut myself. I make it bleed a lot to make sure no germs get inside. This is especially important with puncture wounds, as the needle or whatever punctures can be dirty. Then I wash, put antibiotic ointment and a bandaid on it. More later from this tattoed lady. I still haven't looked as most are on my back.
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