November 2009-Starting Chemo

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Looks pretty much like mine in the back...Looks good. Reminds me of all those years I got those Tony Perms in a box and sat for hours getting that look...

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited September 2010

    Your hair looks great Sue, so nice and thick. Mine is longer but much thinner on the top than yours and so grey!

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  • kayh
    kayh Member Posts: 37
    edited September 2010

    Hi Everyone, glad to see all the good news. I don't have any more tests until October, but I had lots of MRI's and scans in May when my neuropathy was thought to be something more sinister, and they all came back clear.

    I am still limping about with my bad feet, but getting out more now.

    My fair hair has disappeared and it has come back gray. But Hey! I'm 70 next birthday so what does it matter!

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Hi Kay!!!! Glad to hear you are feeling a bit better. Love your new pic!!!! You look SO different.

    Sue

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Welcome back Kay.  I like your hair, it looks great.

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  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2010

    Hi Everyone! I am loving the hair pictures. Here's mine. Sue, I think mine looks a lot like yours, but mine is white!!

    Well, I had my 2 month scans. STILL CANCER FREE!! I AM DANCING WITH NED!

    Alicia, I'm loving the tatt! You are so brave. I am still a whimp, even through all the needles and scars!

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  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2010

    Sorry everyone, I have no idea how to downsize a picture. It's not like I don't look big in the first place, but sheez!

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited September 2010

    Linda, your hair is beautiful. And the white looks great with your coloring. Mine is completely white in front and stands up and out like a big halo around my white face. I've tried gel but that just makes it stand up more stiffly.

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Linda you look great.  You two look happy. And Yahoo for dancing with NED. I am sure your hubby doesn't mind.

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Linda: Wow - looking good. Mine seems to be more wavy on the top - it's freaky!!! - there are really big bumps.

    The colour looks really good on you and you look so well.

    Sue

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  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited September 2010

    Good week to all Warrior women !!!!!!

    SUE, you hair looks awesome, I LOVE the waves in the back, I also wanted to mention how fantastic of a job you do at your work. You may call it nerd but I wish I had half the nerdness in me.

    Linda, I had to come back and edit cause I just noticed as big as it was your hair picture with sweet DH, and looks like NED has been quite nice I really like your lil style on top. good job.  

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Brenda: Love you sister!!!!

    Sue

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  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2010

    I have my big runway debut today (for the cancer fundraiser fashion show). They are going to do my make-up, I wish they could do something with this fuzzball sitting on my head.

    I did call Onc and asked about my genetic tests, they have the results but of course won't tell me over the phone so I asked them to stick a note on my chart or I will forget to ask them on Thursday when I go for the naked Herceptin.

    Nothing much going on, see surgeon Friday, that will be interesting as Clyde doesn't protrude as much now. So I have a feeling I am not going to get any answers.

    Lovin' the tats and the hair pics.

    Big hugs to all.

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  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2010

    I have my big runway debut today (for the cancer fundraiser fashion show). They are going to do my make-up, I wish they could do something with this fuzzball sitting on my head.

    I did call Onc and asked about my genetic tests, they have the results but of course won't tell me over the phone so I asked them to stick a note on my chart or I will forget to ask them on Thursday when I go for the naked Herceptin.

    Nothing much going on, see surgeon Friday, that will be interesting as Clyde doesn't protrude as much now. So I have a feeling I am not going to get any answers.

    Lovin' the tats and the hair pics.

    Big hugs to all.

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Melinda: We want pictures of you all dressed up. You could wear one of your dreadlocks you made :) Interesting that Clyde has calmed down. When can they cut him out? It must be soon.

    I've got my naked herceptin today - only 4 to go after this one!!! DH is away for a couple of days - I had the best sleep last night. We'd got up at 4am to take him to the airport, so I'm not surprised I slept so well.

    (((((((((((((((((((HUGS)))))))))))))))) to you all.

    Sue

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited September 2010

    Sue your hair is looking GOOD, getting long ~ and I am lovin' those waves.

    Melinda I hope you have pics of you all dolled up.  GLAD to hear Clyde has gone down.  HOPING your BRCA results are negative !!

    Hugs girls !

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    I too will be having a fashion moment.  The shop that is near where i work has a fashion show two times year.  The proceeds go to the race for the cure as well as Look good feel good.  I was asked to do the model thing....not my cup of tea normally, but what the hell I guess I can do my part.

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  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2010

    Wow ladies. Cha cha cha!

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  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2010

    Home from the fashion show, it was pretty much a waste of 6 hours of my life. But, the kids enjoyed seeing me all made up, even it it was a long day. We had to hold up signs showing how long we had been cancer free. Mine said "Hope to be soon", how depressing.

    I guess I am just in a crappy mood.

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Melinda: You are cancer free - I feel it!!! Did it feel good to get all made up? Cheer up - good luck for your H tx tomorrow.

    Only 4 more naked Herceptins to go!!! Had my first Zometa infusion today. I could get cold/flu like SEs - fingers crossed I don't.

    I showed big onc the waves at the back of my hair and he actually felt them :) He's such a darling. I was talking to a lady having chemo for bowel cancer when he came to see her. I was telling her how DH has reached the 4 year mark since his secondary (from bowel cancer) in the lung and how wonderful big onc was.  He thought I was telling her stories to scare her. I protested and said I was singing his praises. This whole treatment thing has been so much easier having him as my onc seeing we have known him for 8 years now. It's good to be able to put your trust in someone who cares so much.

    Sue

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Sue, I agree, you have to like and trust your onc.  I like mine a lot.  I go for a check up next week then  I have  a break for 6 months.  yah me.

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  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited September 2010

    ((((Melinda)))),

    Sorry for the crappy mood, we all get our days...and you have been through a lot....I find you a very strong women and I know you will feel better in a day or so... you'll be happy when your negative results for the BRCA are in ~~ 

    Sue, Ya-Whoooo - only 4 to go! When is your last one scheduled?What is the Zometa for, your bones?  How did you feel afterward, where you OK? 

    (((((((Hugs to all Ladies)))))))) 

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Brenda: My last naked H is on Dec 8th so I can have my port out before Xmas. The Zometa is the bone thing - 6 months until the next one. I'm Ok this morning - so far. They did give me a pre med - can't remember what it was. I think big onc is giving it to me more for preventing bc recurrence than for the bones.

    I asked him what tests would be done to check for mets in the future and he said only blood tests. I still think they should do bone scans regularly. They do CT scans on Steve every year.

    Got to get ready for work - hugs to everyone!!!

    Sue

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  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2010

    Sue, luckily I only had side effects the first time I took Zometa. Sounds like you did pretty good! You only take it every 6 months? Lucky! I take it every 6 WEEKS. Oh well, life is good! I'm glad you like your big onc...I love mine too!

    Melinda, (((HUGS))) I do know how you feel. I talk about being cancer free, but being stage IV, those little buggers are swimming all over waiting to hatch. I'll be damned if I let it though. Hold your head up high. You will be cancer free!!

    OK, so here's my newest battle (Don't we all have them?) Rads onc doesn't think it's brachial plexopathy that is causing my twitching and numbness, which is getting worse. She said it's too soon and there's no way it's radiation induced. Big onc says it is. If it's not from rads, then what in the hell fried my nerves??? So I take a weeks worth of steroids (ugh!) and physical therapy. FUN TIMES AHEAD!!!

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Linda: I spoke too soon - I had to come home early from work. Chest pains, burping, farting etc. I don't feel sick and my heart is not racing and I can breathe ok, I think it's a bad case of indigestion - CRAP!!!! Took some antacids and panadol. Not sure if I want this stuff again!!!!

    Sue

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  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2010

    Linda: Don't you hate it when docs don't agree, who the hell is running this show?? Ugh... But speaking as someone who works in physical therapy, worse things could happen besides having to do a little therapy. Maybe they can work out the nerve impingement.

    I went to the state fair with the kiddos tonight. A shot of adrenalin is just what I needed. I need one of those MegaDrop things in my backyard, that'll wake you up in the morning!

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  • doronet
    doronet Member Posts: 342
    edited September 2010

    I think some of us are living vicariously through the actions of others...Melinda and the Megadrop, Alicia and her tattoo...no way I'd do either of those, but it's exciting reading about them!!!

     Linda:  so sorry to hear about the battle between the docs.  I've been wondering what I would do in Melinda's situation and the battle there with Clyde, and now there are two of you with a battle.  Which doc do you listen to, especially if you trust both of them??!!! 

    Sue:  hope you are much better today.  I'm doing the bone scan in Feb. to keep tabs on the osteopenia I had prior to the bc and the Arimidex.  Hopefully it is staying level, if not improving.  That Zometa sounds like it can be rough, not to mention another needle.  :P

    Had my first sub job on Tuesday.  Was good to get back in the classroom.  Got lots of hugs from teachers I haven't seen all summer and got lots of compliments on the short, gray hair, though what are they going to say?  "Whoa, your hair looks terrible!"  :)   (I had worn my wig at the end of the school year until the summer.)  I'm working again today, tomorrow and Monday.  Have several other days lined up already and into next month, too.

    You are, all, still in my prayers until everyone is through with Herceptin and all the bumps, twitches, and other problems have ceased to exist!!!!!!   Nette  :)

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2010

    Nette: A needle is better than taking a pill each month. At least I've had one tx while I still have my port. Still burping like mad - pain still there but no worse. I can't go to the hospital as DH is arriving home in an hour or so and he would freak out if I wasn't here. Not sure what to do. Don't think it's my heart as I would have keeled over by now:) Started to get pains in the butt too. I've taken panadol and a somac to settle my stomach. Hopefully it won't be like this next time.

    Sue

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  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2010

    Yeah!!! Genetic tests negative!!! I am so happy for my sisters and daughters!! Plus, I don't have to have more parts whacked off.

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  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited September 2010

    (((((((((Melinda)))))))))) Ya-Whooooooooo

    Sue, Hope you get to feeling better, my Dr. has so far only suggested I take 2000 btu Vitamin D,

    ((healing hugs)) 

    Linda, don't the Onc. opinions sometimes get aggravating

    Tomorrow is my DEXA Scan so I'll see ya all on Monday  

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