CALLING ALL STAGE I SISTERS

Options
1…114115117119120…512

Comments

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited September 2010

    Happy Birthday Rae!!

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    Happy Birthday Rae. Smile

    Its September 12, 8:35PM

    We didnt miss your birthday here.

    Hugs♥

    · Share on FacebookShare on Twitter
  • don23
    don23 Member Posts: 512
    edited September 2010
    Happy Birthday Rae!
    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2010

    Happy Birthday Rae!!

    · Share on FacebookShare on Twitter
  • raeinnz
    raeinnz Member Posts: 815
    edited September 2010

    Thank You

    Another day of feeling loved - this time by my cyber sisters!  You ladies ROCK!!!!

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2010

    im a day late but HAPPY BIRTHDAY TO BOTH OF YOU.

    · Share on FacebookShare on Twitter
  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited September 2010

    Happy BDay, Rae!!!

    · Share on FacebookShare on Twitter
  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited September 2010

    Eph3_12- I have a appt with my dentist on Tuesday.

    Thanks, Charmaine

    · Share on FacebookShare on Twitter
  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited September 2010

    theresap60:

    I was on texatere, cyxotan and a third chemo drug that started with a 'c' actually, but cannot remember the name.  BUT before I started chemo, I saw the Pharmacy Oncologist and I was informed that up to several months, a year or more down the road that some people have lost teeth (cause the chemo drugs has caused bone dead), or teeth have gotten brittle and chipped.  Even my dentist has told me that chemo effects the teeth and sold me a bottle of floride and told me to do floride treatments every day that I was on chemo and I did...

    There are so many delayed side effects from chemo that can effect us down the road so I have heard..

    So it really never ends - even after finishing chemo...

    Charmaine

    · Share on FacebookShare on Twitter
  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited September 2010

    Oh ladies, as you all may know I finished chemo in February and radiation at the end of March..

    Well I had my follow-up mammogram on Friday, and copies went out to 3 of my doctors, so I will be waiting patiently for 1 of 4 doctors to contact me...

    You know, although it has been like 6.5 months since my radiation therapy, and a year since my 2 breast surgeries, my right breast is still very, very tender.  Sometimes I get this dull throbbing ache..  I hope there is an explanation for this in the mammagram.

    Charmaine

    · Share on FacebookShare on Twitter
  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited September 2010

    Here is an article I came across and thought you all might be interested in it:-

    http://www.herald.ie/national-news/tamoxifen-warning-for-cancer-patients-1869594.html

    Charmaine

    · Share on FacebookShare on Twitter
  • raeinnz
    raeinnz Member Posts: 815
    edited September 2010

    Charmaine - that's a nasty Catch 22 isn't it?  Take Tamox and you may be creating cancer but if you don't take it, it may come back.  But keep taking it anyway!!!  OMG.

    Fingers crossed you don't have to have teeth pulled out and I hope your 'wait' for results isn't too long.  I find that since dx the 'no news is good news' adage just doesn't work for me. 

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010
    · Share on FacebookShare on Twitter
  • Sydney6
    Sydney6 Member Posts: 172
    edited September 2010

    Haven't been on in awhile.  September is my month to go see every doctor I know.  Had an MRI last week and a mammo on the surgery breast and then yesterday I had an appointment with the breast surgeon.  Happy to share that so far so good.  I will be 2 yrs. post op in January.  Have a great day ladies.  Love ya!

    Sue

    · Share on FacebookShare on Twitter
  • raeinnz
    raeinnz Member Posts: 815
    edited September 2010

     zwani.com myspace graphic comments

    9.30 on Wed 15 Sept to be exact! 

    Hi Sue, good that you get it all over and done with in one month instead of having to get the stress going several times a year.  Glad to hear all is going well for you. 

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2010

    what the hell is this crap about the tamoxifen??????i swear they dont know what the hell they are doin after all these years.do this then after years they tell you OH NO NOT THAT. they did that with the PREMPRO.take it,take it...all drs said take it.now i took it..shit i wonder???????. no i dont wonder.I got bc from it.thanks for that one.like i really needed that.

    are we back in the dark ages??????

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    Sometimes i wonder how am i gonna feel emotionally after I stop Femara.

    They said 5 years and March 2011 will be five.

    Now it feels like something is working against the cell growth. how about after.

    Maybe He wants me to continue more than 5.

    Now Im confused whats better stopping or not stopping.

    I do not have SE from it.

    Thank you for reading.

    Sue...Im glad you finish everything in one month less anxiety.Wink.

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    Hi granny....When is the surgery again. I forgot the date.

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2010

    the surgery is sept 20th.everything is all set.so far im doin ok.after the first 2 surgeries i feel like a pro.i just hope everything goes as planned.im gonna be her first one at 7:30 so she should be nice and fresh.now the rest is up to GOD.

    thank  you all for putting up with me.Nov.will be a year and im really just begining.

    God bless my sistas..I would still be with the stupid dr#1 if i didnt have you girls pushing me away from that jerk.I love you.

    hugggggggggggggggs

    K

    good nite

    · Share on FacebookShare on Twitter
  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited September 2010

    Went to the dentist today and she told me that the bone of the tooth is showing more, because my gum tissue has thinned some as a result of chemo...   BUT luckily over time gums should thicken up some.  So thank goodness it was not worse than that.

    Charmaine

    · Share on FacebookShare on Twitter
  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2010

    Charmaine, what a relief for you!

    · Share on FacebookShare on Twitter
  • Meece
    Meece Member Posts: 19,483
    edited September 2010

    That is good news, Charmaine.

    · Share on FacebookShare on Twitter
  • raeinnz
    raeinnz Member Posts: 815
    edited September 2010

    Yay, Charmaine, I'm with Joni - what a relief.

    · Share on FacebookShare on Twitter
  • Sydney6
    Sydney6 Member Posts: 172
    edited September 2010

    Thanks for the support raelnnz & seyla888.  Technically I don't just go one a year.  I go every 3 months to have blood drawn & then off to see the onc., every 6 months to have an MRI & mammo or one or both breasts and then see the breast surgeon, every 6 months I see the radiation oncologist and once a year (in September) I see my OB for a checkup and the ultrasound (to make sure the Tamoxifen isn't causing more problems).  I was talking to my bosses wife who was diagnosed a few months before I was and went to Sloan.  She seemed surprised I have had so much follow up, but quite honestly I'd rather have it that way.

    Sue

    · Share on FacebookShare on Twitter
  • Meece
    Meece Member Posts: 19,483
    edited September 2010

    Seven years out I still go every six months, and like Sue, I am comfrtable with that.

    · Share on FacebookShare on Twitter
  • deborye
    deborye Member Posts: 7,002
    edited September 2010

    Wonderful news Charmaine.

    Sydney6, you are having alot of F/U's.  For a few years it was every 6 months and that was a mam and onc visits.  Now I'm back to yearly mams and onc 6 months.  November will be my 2nd MRI since dx and my onc order blood work for about 4 tumor marker tests. Just rountine she says.  I am on Arimidex with normal SE.

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    Charmaine its good news♥

    Sue...The only DR I didn't see was the radiation Oncologist. Sometimes i feel so many unnecessary appointments but on the other hand I feel if something is wrong they will know since oncologist does a complete blood work including Cancer Tumor Markers every 4 months.

    good Morning AllSmile

    · Share on FacebookShare on Twitter
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2010

    Is there some kind of criteria as to who gets monitored for tumor markers, or is it just a personal preferenceof the doctor?  My doctor only does CBC and a Chem Panel (without Lipid Profile or the fasting glucose,) but my Dx is almost identical to yours.  I am on a different hormonal than the two of you (Tamox.) if that makes a difference.

    · Share on FacebookShare on Twitter
  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    elimar...i think its a preference of the Oncologist. Until i came to these boards I thought it was routine. He was also doing lipid panels but my GP does that every 3 months as a maintenance because of the simvastatin, so I told him.

    I really don't think its related to Hormonal because he was doing it even before I started Femara.

    · Share on FacebookShare on Twitter
  • happymom8285
    happymom8285 Member Posts: 205
    edited September 2010

    Hi sistas,

    Been off this site for awhile.  I've missed it.  But when I'm on, I do nothing else!  And when I've been off for awhile, it takes forever to catch up!  haha

    o2bhealthy--I went to that website.  Are all those tats he does 3D?  They were fantastic! He really should teach other tat artists his talent and knowledge.  I'm sure it would be put to good use.  So sorry you're having such a hard time. :(

    I've been reading here about a lot of depression and uncertainty even after a few years of good results.  I think what my onc told me has changed my perception.  He said that more and more doctors are looking at BC as a chronic disease that needs to be managed just like diabetes.  There's not a "cure" per se, but just like with diabetes, you learn to live with it and take advantage of the breakthru's in medicine to help it be managed.  We all know that diabetes is a killer, just like BC.  But with diet, exercise, meds and being proactive in our health will go a long way to longevity. 

    Our drs. are supposed to be working for US.  We're paying them boat loads of money (or at least ins., is, but I've got ridiculous premiums!) to make sure we stay on top of things.  And if we feel that we need a scan after several years of non-recurrence, then we should get it.  After all, doesn't it take BC years to form before it's even detected?  After several years, I think a scan is warranted.

    I really pray for you sisters in the doldrums!  This is such a great place to vent and get support.

    I hope I haven't ranted too much! ;)  {{{{{{{HUGS}}}}}}} to all. 

    · Share on FacebookShare on Twitter

Categories