HELP ME PLEASE... I AM BEGGING FOR HELP...

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  • chriztene
    chriztene Member Posts: 6
    edited September 2010

    what a beautiful post...i love reading your posts as its so validating..i just realized yesterday that i do indeed have a "new" normal and my life will never be the same..thank you for posting that life, although different, can still be good!!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2010

    Life can be tremendous, because you really appreciate all the little things (lilacs blooming, crunching the leaves, your kid's track meet; even in the rain), and the big things (graduations, weddings, reunions etc.) even more, and I find I am more willing to throw caution to the wind and try new things I would have been hesitant to do before. Why Not? In a strange way, it can be quite liberating.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    How is everyone doing?

  • Nordy
    Nordy Member Posts: 2,106
    edited September 2010

    Oh Vicky. I didn't read through everyone else's posts, because I have little ones and just find it hard to delve through. But I did skim through and read all of yours. You have a lot on your plate - a large family, the loss of your mother, difficulties with your husband, feeling like cr*p with chemo and all of it's side effects and working on top of it all. Yes, surprising, but you do find out who really cares and who runs for the hills when you have cancer and need help. I know on your last post you said that you will not do the last Taxol - I think that is your choice and it is for you and your doctor to decide. If you do decide to go through with it, maybe try Neupogen shots instead of Neulasta. It will require more shots - usually 2-3 versus the one you would take of Neulasta, but it is a bit more mild. I remember the days of chemo... and yes, I did lose my toenails (just 2 of them... although my pinky toenails are so small, I think they may have come off without me noticing!) - but that was with AC not the Taxol. It did take a while for my body to feel back to normal after the chemo - body aches are common. Body image issues are common. You are SO NOT ALONE. I wish I could just reach through this keyboard and give you a nice big hug. Please try to hang in there. Positive thoughts and prayers are being sent your way.

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    Hello ladies,

    I had to get my emotions under control. I had gone into a depression... just got tired of looking like a stranger.. I don't even recognize myself anymore..

    I will be going to my last treatment tomorrow.. Mixed emotions... dreading the side effects but will be glad when this is all over.. I know I will be on steroid high and full of pain.. the benadryl does not even put me to sleep anymore.. so I am actually watching the clock..I think tomorrow I will ask for something that will make it go fast.. I will be by myself, husband has to work.. the eye brows have thinned out a whole lot and the eye lashes appear to be the same.. I thought my hair was growing back but that was wishful thinking.. the hair on my legs well I haven't had to shave all summer and still don't..on my arms it is really thin.

    I will be stopping at marc's on the way home for those 10 dexamethodone pills.. and 15 vitamin waters.

    My brain is chemoed out.. I am so clueless to half the stuff.. and I can't remember a darn thing.. I couldn't even remember how many legs a chicken had the other day.. I can't help the kids with school work because.. i just don't have a clue.. Smile

    Husband and I decided that we aren't ready to throw in the towel just yet.. Our marriage is worth fighting for. 

    since this is my last treatment

    Ladies, I hope that this doesn't mean that you will stop talking to me.. i will still need you all.

  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2010

    Vicki, we will never stop talking to you,  your life descisions are just that, yours and we will support you all the way.  There are no judgements here.  I am so glad you have made it through to your last treatment, it can only get better from here.

    Love n hugs to you.  chrissyb

  • Scooter-12
    Scooter-12 Member Posts: 33,398
    edited September 2010

    (((((((HUGS))))))

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited September 2010

    ((((HUGS)))) from the west coast of Florida. You can do this and PM me any time you need a leg up.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2010

    So happy you are at this big milestone; no matter how crappy you feel, it is the LAST TIME and you will have DONE IT. You should be so very, very proud of yourself!!!!!! Of course we will still be around, we are all in this together. Hugs from the great state of North Dakota! Ruth

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010
    Good for you.  I know you will be proud of yourself tomorrow...IT may be a hard few days, but then it will slowly get better...sending you the biggest hugs ever, and a big kissKiss.  We will be here for you, don't worry about that.  Not sisters by choice, but sisters none the less.
  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2010

    VickyThomas. we as your sistas are soooooooooooo proud of you.sending you a gentle huggggggggg.God bless.prayers going your way.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Your mother would be so proud of you for continuing the fight.

  • psavast
    psavast Member Posts: 14
    edited September 2010

    Hi Vickie,

    I stop by here checking on your posts...and I am thinking of you at this very moment. I see you are facing the last one.....Great!!  I remember my last treatment ...almost thinking I would quit before I kept going....but I didn't!  It sucked....I felt the usual feelings of side effects...BUT....look....this is what helped me.....I looked at this as if I were running a race....( no I don't run....) but I looked at it as a contest with myself. I decided I was running.....I had the surgery, and with the chemo I knew I had a race to win. Why, I thought would I stop just short of that finnish line. I knew I had 30 radiation treatments to look toward....and I really didn't know how awful it was going to be.....I had terrible terrible burns that almost broke my spirit....BUT...it didn't happen either.  I was burned.....hairless.....and yes....t..less.....and I found myself looking at myself in the mirror from the shower wondering who the hell that was looking at me.........that was then......about 5 months ago.....and if you look at my silly picture that I had taken at work last week...........my hair IS back....and so is my smile. You  my love will smile again......I promise....because there is so much to smile about.  You are here and will continue to be. We have had to detour through a firey swamp....but there is a clearing ahead.  Celebrate life. .....With hugs and prayers...

    Pat

    ps.....I am facing one more bump..............I have my expanders removed and have my implants in Oct 6th.......yep...I am scared but I know it will never measure up to the stuff I have been through.....so reconstruction....here I come!!  Wink

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Pat, good luck getting yor new tatas..

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    I did it ladies.. I did it.. I am done with the nasty chemo.. now I just have to get through the side effects and then start my new life.. I am so grateful that I had and still have each and everyone of you to help me through this.. You are all truely a blessing..

    Everything that you have ever posted motivated me to finish this race and not give up.. You will always hold a special place in my heart. I wish I could meet each and everyone of you with hugs and just tears of joy...  

  • gingersfavorite1
    gingersfavorite1 Member Posts: 273
    edited September 2010

    {{ clapping }}   yaaaay Vicky!!

  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2010

    YAY VICKI !!!!   WELL DONE!!!!!!  So nice to know that the last has come and gone........now is the time for you to break out of the crysalis and become the beautiful butterfly with a new life.

    Peace, strength, love n hugs.  chrissy

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited September 2010

    Vicky....Congrats...you made it!  Your energy levels will return pretty quickly...I didn't lose all my hair through it so I don't have anything to tell you about that...the 'chemo fog' does take a bit of time but with the energy levels back, you will at least feel like doing things...keep lists handy or get one of those quick recorders so when you think of something, record it so you don't have to drive yourself nuts trying to remember.  I don't know what the treatment is from here but trust, se's can be handled...hug your family lots and thank them for sticking it out...go out, get a massage, facial, manicure...treat yourself!  You earned it!  Life will never be exactly what it was but you toughed it out and now ease into the new normal...this was my post chemo regime and my life did get to be much better within a few short months.  Although, after 11 years - I can still taste it...yuck - at least I have not been subjected to it again yet now with mets but I am still in the same treatment room and OMG...I can't believe I still get that taste!  Oh well...we are all so proud of you!  Big Hugs....LowRider

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2010
  • happymom8285
    happymom8285 Member Posts: 205
    edited September 2010

    Have been reading your journey.  So glad for the women on here.  So glad you're done!!

    Keep on keeping on.....

    Many hugs and prayers for you!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2010

    YAY VICKY.YOU DID IT.DOIN THE HAPPY DANCE FOR YOU.IM HAVIN A PIECE OF DARK CHOCOLATE THAT HAS YOUR NAME ON IT...

    GENTLE HUGGGGGGGGGGGGGGGGGGGGGS FROM GRANNYDUKES

    LUV MY SISTAS

    K

  • Mariposa109
    Mariposa109 Member Posts: 61
    edited September 2010

    Hi Vicky,

    I was catching up on your story.. and CONGRATULATIONS!!!! You made it thru! I hope you see how strong you really are.. and I am so glad that you did not give in a, hard as it was. I had the same treatment you had, and I did loose all my hair, eyebrows and eyelashes! I laugh now, but it wasn't exactly funny then! I finished my chemo the middle of July, and it took about 2 or three weeks before I started feeling the peach fuzz on my head. I was able to feel it before I could actually see it. I am still taking anti-depressants, and I actually fell more down and like I couldn't control my feelings MORE after treatment than during. At first I didnt talk to anyone about it, because I felt like I am done with chemo, I should be happy, what's wrong with me? But it got to the point where it was really affecting me and I didnt even want to get out of bed, so I talked to my onco and she assured me that the feelings were normal after being thru such a difficult time, and she gave me anti depressants. They have helped me a lot! although I still dont feel 100% (I still get tired quicker than I used too, and I have chemo brain as well) I have learned to stop pushing myself so hard. I realize now that it is ok to feel different than what others (who have NOT been through this) think you should feel, and that just because I was done with treatment doesn't mean that everything jumps right back to the way it was. It takes TIME to heal and get back to feeling like a normal life.. so please keep that in mind if you ever start to feel the way that I did. Now am getting ready to have a double mastectomy with reconstruction and after that I still have to do radiation, so my journey is not over.. but I've come this far, so there is no looking back now, only ahead.. and I always look to these forums to hear from all the wonderful ladies on here!! they are all truly amazing!!!! God bless you and your famile..and go celebrate!!!!  =)

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010
    Vickey, I am so proud of you.  I hoped that you would be able to complete your treatment.  Now you know that you have done everything you can to fight this evil cancer.  No regrets.  Your mother would be so proud of you.  I am proud of you, and I know you must feel so proud.  A job well done.  ((((HUGS))))  & Kiss
  • dmorgan2
    dmorgan2 Member Posts: 241
    edited September 2010

    Congratulations, Vicky!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    Hi all, okay, i must be crazy.. I thought that when the last chemo was over life would start to get back to the new normal, like the hair would grow back just as fast as it fell out... the energy level would come back up, the weight would start to come back..NOPE not happening.. I lost another two pounds, hair is not falling out anymore but it definetly isn't growing either on my head.. my eyelashes, I probably have like 10 left in my left eye and 13 in the right eye... Still haven't done anything to celebrate yet.. just still feeling gloomy..

  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2010

    Hey Vicki, Rome wasn't built in a day and your recovery is definately going to take longer than a day.  Be patient as your body has taken a real beating, just think about how you have felt through treatment ( I know you don't really want to go there but) now  relax a little give your self time. Every day the cells are repairing and renewing but there are millions of the little devils....give them time.  While you wait, rest relax, read a book or ten just take it easy.....you will feel better I guarantee.

    Peace, strength, love n hugs.  chrissyb

  • GoogsMN
    GoogsMN Member Posts: 15
    edited September 2010

    I am almost five months out (last chemo was May 21, then some rads in August).  My hair is almost grown back in, my energy levels are coming back to what they were before.  You WILL absolutely look and feel better, but it does take a while.  

    That reminds me when I had a "sub" radiologist one time when my regular one was out.  The nurse and I were talking about my hair growth, which wasn't happening as fast as I wanted, and he actually had the nerve to say "well, you just have to be patient".  I came quite close to decking him, but kept it under control...I have to say of all the docs and nurses I have encountered this last year, he is my very least favorite.  

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Vickey it does take time...but you slowly will start to feel better.  Are rads in your future?  If so, they are a lot easier than chemo...big hugs for you

  • mcjonsie
    mcjonsie Member Posts: 6
    edited September 2010

    Hello Ladies! I was in such pain for 5 days after Chemo #1/the neup shot that I tried the Claritin after chemo/neup shot #2, and it worked so well that now I am psyched out that it blocked the chemo from working! I feel totally normal, and I even think the hair that is left is growing. I am scared though, I found a lump on the extreme upper part of my neck, went for a ct scan and ther eis an "area of concern" that at chemo #3 next monady they will revaluate and decide if they want to biopsy it.

    Anyhow, I took 5mg of the dissolvable Claritin the day of chemo, the next day (day of "the shot") and then the following day. I am still shocked that I had no pain. (Also note though that 1st shot was in upper arm, chemo #2 in the upper thigh, and I have also heard the worst place pain-wise to take it is in the arm -- generally where medical staff will give it, so maybe ask them for another area?)

    Anyhow, lets all hang in there and beat this beast in our breasts!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    I got all my neupogen shots in my stomach.  About two inches around my belly button.  It never hurt.  I also did the clairitin and it helped, I think.

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