This makes me feel terrible...anyone else?

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shockedat39
shockedat39 Member Posts: 252

I almost posted this in the "You know you have cancer when..." string but then I realized it's not funny. 

In the almost two years since I've been diagnosed and treated for breast cancer about 6 or 7 of my friends have found scary lumps and bumps (including one of my friend's husband!).  In every case, because of my situation, these friends have confided in me, asked my advice, etc.  I'm always happy to hear it and give it.  In each case, thank goodness, it turned out to not be cancer.  In each case I have had to force myself to be cheerful and celebrate with these friends.  Don't get me wrong, I DO NOT wish this on anyone else and would be absolutely devastated for anyone with a positive result.  It's just that it makes me feel so alone.  Does that make sense?

I'm hoping there is someone out there who feels the same way and this is not some awful dark side coming out of me.

Comments

  • Twylight
    Twylight Member Posts: 60
    edited September 2010

    Whew!  I thought I was the only one experiencing this.  I've had to deal with these feeling for a long time, and feel so very bad about it.  Sometimes I wonder if the person can sense my underlying emotion, even though I'm overjoyed at their good news.  I think we need a psychiatrist to help us figure this one out ... LOL

  • eileen1955
    eileen1955 Member Posts: 365
    edited September 2010

    I understand.   too many people rely on our experience as bc "survivors" when we are  not quite sure we are survivors yet.        I could have opened a "pink ribbon hotline" with all the referrals that were coming my way.  When I was still somewhat in despair myself; I should not have expected myself to be there for others.           Live and learn.  At least I can pass it onto you. Put yourself first.  I know that is not our first inclination. We'd like to use our bc experience to help others. . .  but you need all your energies for you right now.

    Find the name of a "bc nurse navigator" for these people (who cannot be blamed for wanting to ask us for help.)   better yet, TELL them to call the bc nurse navigator at their breast center.

    I'm out seven years now so I am ready to offer aid to others.  But sometimes I get overwhelmed and I can't be there for everyone's friend or co-worker.         Refer them to this site for info-gathering and support.       You should be too busy taking time to smell the flowers.    eileen

  • AgentMo
    AgentMo Member Posts: 72
    edited September 2010

    I can totally relate to your feelings. When others tell me that because of me they take more precautions or that they have had a lump and it has turned out o.k., I just feel even more unfairely treated. I also don't wish my friends any bad news, but at the same time I cannot help but feel totally envious and jealous that they have drawn the good cards and I have drawn the death one.

  • ck55
    ck55 Member Posts: 346
    edited September 2010

    Shocked at 39,

    Thanks for having the courage to post this! Yes I have felt the same way. Of course I don't want friends or family (or even strangers) to experience what we have, but sometimes it just makes it seem more unfair.

    As an example, I have an older sister (by 9 years) who takes terrible care of herself. She smokes like a chimney, has diabetes that I believe is totally the cause of her terrible eating habits and absolutely no exercise. When I was diagnosed, she had not had a mammogram for 10 years, even though our mother had breast cancer!!!! 

    I was the responsible one and started having mammograms in my 30's and never missed a year. Because mine was lobular, it was not discovered until I had a small area of DCIS show up. Of course I thought my diligence had paid off and it had been caught very early. HA! The biopsy also showed ILC (never showed up on mammogram) that turned out to be 9 CM and had traveled to 2 nodes. (Yes, I guess I am still a bit *&# off about it Yell)

    Well I finally convinced her to have a mammogram this year and, you guessed it, all was clear. I love my sister very much and of course was very happy she was OK and would be absolutely devastated if she were to turn up with breast cancer. But there was a twinge of "why me".

    But, as I have learned, the answer to that question is "why not me"?

    Thanks for letting me vent Embarassed

    Cyndi

  • caaclark
    caaclark Member Posts: 936
    edited September 2010

    OMG!!!  All this time I thought I was the ONLY person who felt that way.  THANK YOU SO MUCH FOR POSTING THIS!!!

    I don't want anyone else to have to deal with bc but when I get people calling to say, "Thank God it's not breast cancer" it makes me feel annoyed and alone.  I always act happy for them, and I am in a way, but I feel cheated that it did not work out that way for me.  It feels unfair that I am the one who has had to deal with breast cancer and everything that comes along with it. 

    There is not one other person who I have discussed this with because it makes me seem like a horrible person.  That's the thing.  I'm actually a very nice person. I just can't seem to understand why it was ME of all the people I know.  I mean, I play by the rules, I am a good friend, a good mom and wife, etc. 

    So, there you have it.  My confession along with the rest of you.  Not sure what to do with it but there it is. 

  • changes
    changes Member Posts: 622
    edited September 2010

    Hi,

    Oh yea - I've had the same feeling! I'm only a few months out from diagnosis, and I admit that I resent healthy people. It isn't that I want everyone else to get sick, it just doesn't seem fair that I am sick. And it is lonely - unless someone has had cancer, they just don't understand what it is like to have it hanging over your head. I had a friend try to assure me that I am well now. The trouble is, I will never be sure that I am well, and I will just have to learn to live with that uncertainty. I think no one really gets that ( I did not understand it either until I was diagnosed, so I don't really fault them).

    Like Cyndi, I know people who do everything WRONG and are just as healthy as can be. It's learning to live with unfairness that is difficult. There's no REASON we got cancer - it was just the luck of the draw and we drew a bad hand.

    Karen

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2010

    I guess it's our dirty little secret.  I had two friends in the last 3 months have suspicious mammograms, that were followed with biopsies.  They both turned to me for advice and support, which I gave and when they got the "all clear" and said thank goodness it's not cancer I was hurt. 

  • wenweb
    wenweb Member Posts: 1,107
    edited September 2010

    Lets face it, it's human nature...misery loves company and there is no two ways about it, no matter what anyone says.  Not one of us was supposed to get cancer, but we did.  I agree with CK55.  I have been doing EVERYTHING right and I still got BC.  I am tired of reading/hearing " do or don't do this to prevent BC.  There was nothing else I could have done not to get BC.  It's kind of tough in that situation not to be curious why it was you and not someone else.  I know this sounds cruel, but I like caaclark am a very nice person, it's just been a tough year :=)

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2010

    Sure, who but all of us could help but understand.  I wouldn't wish this beast on my worst enemy; however, it does sting when everyone else immediately goes back to the lives they know with good news.  Such is life.

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited September 2010

    I understand your feelings and think it's part of human nature.

    That said, I've never felt it myself.  Sometimes I think there is something wrong with me.  I never question why I got cancer and others didn't, and am just purely glad they ended up with a negative result.  I know it's all a crapshoot and act accordingly.

    On the other hand, if somebody should win the lottery and I didn't....there might be a twinge of jealousy there!  :-)

    I will confess to my own dirty little secret.  I get a little upset at people who had maybe DCIS and a lumpectomy and think we went through the same thing.    I understand that they were nervous and frightened as was I at the beginning.  But, it's a bit different than mastectomy, chemo and reconstruction.   I had one woman telling me how hard her lumpectomy had been on her 13 years ago, but it left no scar - and she said she knew how I felt.  I'm standing there bald and boobless - I don't think she really did know how I felt.  :)  .   At that moment, she didn't feel quite like a sister - more like a cousin.  :)

    It was probably just the timing.  :)

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited September 2010

    DITTO to all these posts!  I was at the cancer center with my DH yesterday, and met a lady there who was going through treatment for Stage 1 BC.  When I told here I had been Stage III, she replied, "Oh, you bad girl." and went on imply that I was stage III because I didn't act on it or something.  I used to be very annoyed by that, but yesterday I just responded, "Actually, it wasn't anything I did.  The lump showed up before my 40th Bday and before my first mammo." 

    I get annoyed at anyone that implies you must have done something wrong to be diagnosed at a later stage.  I realize that just shows people's ignorance, but it really annoys me to have to explain how BC is a crapshoot, and that early detection doesn't catch them all!

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited September 2010

    OMG I totally get it!  It makes you feel less a freak when you hear someone else has it, like you are more normal.  And you wonder when you see obviously unhealthy people walking around, and say to yourself, damn how did she not get it and I did????  Obviously not the right thing to think, but there it is. DEFINITELY not wishing this shit on ANYONE!!!!!  It's just crazy how random it is.

    Take care,

    Sharon

  • chillipadi
    chillipadi Member Posts: 151
    edited September 2010

    I've been battling with several bouts of skin mets. It was so bad that they were all over my right breast and as large as lemons. My breast was mutilated. The pain, bleeding and foul odor was so horrifying and depressing that, after almost two years of this crap, I gave up being Pollyanna. I started questioning God's goodness and power, and wondered whether there was even a God. I asked my church leaders some taboo questions. I stopped trying to put on a happy facade and praise God everytime I went to church or cell group gatherings. It was just too hard. One day, my cell group leader asked me to lead the group in prayer and I just couldn't do it. You should have seen the shock on his face.

    My church believes in Jesus' healing  and is convinced that the reason healing has not manifested in my body is because I lack faith. They also think that I'm disobedient and a bad influence on everyone because I ask difficult questions. Interestingly, some cell group members actually thanked me for my honesty during sharing time because I spoke about things they were afraid to mention themselves. My cell group leader didn't appreciate my candour though. He dropped me from the cell group like I was a hot potato. I was completely cut off - no emails, no inclusion in cell group activities etc.

    A couple of ladies from the church occasionally contact me, but that's it. Everyone else avoids me like the plague. When I needed my church the most, they failed me, all because I couldn't keep up playing Pollyanna. I don't attend church anymore, and I'm really mad at God. Dare I say it? I've even been doubting whether he exists. There, I've said it!

    What really hurts is that I used to be active in church, serving in several ministries, and tithing regularly. Even today, I willingly do whatever I can for anyone who needs help. But now that I'm no longer a poster girl, I've become a pariah. Isn't it unfair to expect people like us to be perky and postive all the time?

  • mamaof3bugs
    mamaof3bugs Member Posts: 198
    edited September 2010
    THANK YOU shockedat39 for having the courage to post this!!  You are not alone. 
  • eileen1955
    eileen1955 Member Posts: 365
    edited September 2010

    chillipad; I am so sorry for your situation!  Jesus reached out to the sick; he never treated them as pariahs.      He cured a few people; but wasn't able to cure every leper!       sorry if I sound cavalier but that's the kind of relationship I have with Jesus.        He carries me thru the dark hours; but He also gets my jokes.  No, I am not psychotic.     I just have a very different interpretation of Jesus (compared to your church)      

    Two points b/f they are out of my head.  #1 I have to admit that when I hear someone has died, I immediately think "were they a smoker?" (or whatever)   It's a way to defend myself against the possibility that it could happen to me.  Deep down, I still want to believe that there is some way I can ward off death from any illness.  I have control issues.        So I look to blame the deceased.  so there is my confession.    #2      I'm 7 yrs out so I have a different perspective.   I hang around b/c I want you ladies to hear from those of us who have made it.  there are many of us; but we don't have the need to go online.     I am handicapped (born with huge varicosities) so I have some time on my hands.           anyway,  for the first few yrs I kept asking "Why me?' until that changed to "why not me?"              there is so much sufferering in this world.   Innocent little children born into a life of poverty or abuse.     Why not me?                            

     I have walked in your shoes-still do when I have a scare of recurrence- so I understand all your thoughts and feelings.          A kind neighbor helped me so much when I went thru chemo.  took over my car-pooling assignment etc.   since then, she has died.          I spent two yrs time worrying that I would die.  Who knew?          

  • eileen1955
    eileen1955 Member Posts: 365
    edited September 2010

    Whoa!  Just realized that this is a stage 3 forum and I did not mean to diminish your worries.  I did have triple negative with lymph/vascular involvement. so I was very worried for 3 yrs.    But I haven't really walked in your shoes and I apologize.       

    I went off on a religious tangent.  It really had to do with suffering in general.  For years I wondered what I did to cause my daughter to be mentally ill.  so I learned "radical acceptance" and my life has improved tremendously.       So that is my take-away message, okay?  

  • shockedat39
    shockedat39 Member Posts: 252
    edited September 2010

    Wow, am I glad I posted this.  It seems to be a very natural reaction for a lot of us.  Thanks so much to everyone for their responses to this.

    SpunkyGirl, I am absolutely appalled that another BC patient would say something like that to you.  I would give a pass to someone from the general public who might not have the education we have...but a sister?  Well, that just pisses me off.  She should know better. Yeesh!

  • lauri
    lauri Member Posts: 267
    edited September 2010

    Has anybody had this thought -- "at least I ONLY had breast cancer" ??  Yes, it was scary and had the possibility (still does!) of killing me, BUT as somebody else said about losing a breast "you don't breathe with it, eat with it, pee with it, poop with it -- it just sits there." 

  • lauri
    lauri Member Posts: 267
    edited September 2010

    Has anybody had this thought -- "at least I ONLY had breast cancer" ??  Yes, it was scary and had the possibility (still does!) of killing me, BUT as somebody else said about losing a breast "you don't breathe with it, eat with it, pee with it, poop with it -- it just sits there." 

  • lisa-e
    lisa-e Member Posts: 819
    edited September 2010

    Well, I may not have eaten with my breasts, let alone peed with them, pooped with them, breathed with them, but I still miss them, greatly,  after two years.    What makes it worse is that I never felt (and still don't feel) like I have a potentially fatal disease.  I can't tell myself that I am better off without my breasts, that they tried to kill me, because I don't really believe it.  

  • Firni
    Firni Member Posts: 1,519
    edited September 2010

    lauri, for me it isn't losing my breasts.  Yes, I would rather have the originals than the implants but that is not the source of my angst with only having breast cancer.  It's the fear of recurrence, the fear of mets.  It's the Lymphedema.  It's heart damage and kidney damage.  It's the permanent loss of most of my hair.  It's the fear of other cancers as a result of the treatments I had and still have.  It's the permanent muscle fatigue, thyroid damage, skin sensitivities.  The list goes on.  If I only had to deal with losing my breasts, I would say, at least I ONLY had breast cancer.

  • Moissy
    Moissy Member Posts: 550
    edited September 2010

    It feels "safer" to people when they can assign a blame factor to cancer.....e.g., smoked, overweight, didn't get mammos, etc. It can be too terrifying to people to realize that there is so much randomness to this disease. No one wants to believe that it could still strike them if they don't have risk factors and if they follow the rules. It's not that people want to blame us in any way.....but they do want to believe that this randomness won't hit them next.

  • chrishat
    chrishat Member Posts: 89
    edited September 2010

    lauri, i do understand what you mean. i have often thought, at least i got cancer in a part of my body that i can live without. i miss my breasts too but i have sortof adopted the motto, sometimes you have to cut off some branches to save the tree. (hopefully it worked). there was never any doubt for me that i could die of this and that i was doing my best to save my life by having my mastectomies. it would be alot harder, i think, like lisa says, if i hadn't had that conviction. i do feel terrible for all of us and also SO terrible for people with pancreatic cancer, or lung cancer, etc. it's all awful really.

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