Does anyone else feel this way?
Hi...It has been a while since I've been here.....Life just got in the way!
Anyway, I want to know if I'm typical, or atypical....I don't seem to be interested in all of the breastcancer related events that go on......I get invited to lunches, dinners, relays, walks, etc., but just never want to participate. Am I a jerk?
I guess I just wnat to move on with my life, but I feel so ungrateful when I don't make the effort to participate in these events...I was even on the W. County Quality of Life Committee, for cancer survivors, but dropped out after a few months.....
What gives?
Sandy from Cincinnati
Comments
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Why would that make you a jerk? Everyone responds differently to difficult situations, and everyone's life is different. Some people like to move on and get back to some semblance of what they consider normal; some like to embrace new friends and activities and draw strength from that. I don't think not participating makes you an ingrate.
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Did your life revolve around bc before your diagnosis? Why should it be any different now?
I don't think you are a jerk for not wanting to particpate in all of these bc related events.
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I kind of know how you feel, Sandy. I don't wear pink ribbons and all that jazz. My feeling is that I had BC, but I am not defined by it. I may or may not choose to do BC walks, it just all depends ...
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Hey Sandy,
Congratulations on life getting in the way of other things. I can relate to your story. I often tell people that my BC was just a blip in the grand scheme of things. I guess I still come to the site because my reconstruction is not complete, and because my sister lost her long battle with Stage IV in June. I waver between wanting to just forget about it all, and wanting to drape myself in pink.
Be well,
Maria
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When I was asked why I didn't do a Race for the Cure, I was annoyed-- I've never done those kinds of things, plus I have bad knees. I made some donations and now I am bombarded by telemarketers for various bc organizations-- and they all start off lecturing me about early detection. When I told one telemarketer, "I know, I had breast cancer," he said, "Good for you!"-- excuse me? Then I discovered that most of these groups use all the donations for administrative costs, so of my measly $20, only $2 would actually go to research. Today, shopping for toilet paper at Target, I passed over the brand with the pink ribbon-- it's on everything and makes me cringe-- I hate the constant reminder but I also hate how bc is used as a marketing tool. Barbara Ehrenreich's "Bright-sided" has a great chapter on the pink ribbon industry and how we've trivialized bc in some weird way. That's my rant. When I was diagnosed, a family friend contacted me-- I never was close with her--she was my parents' friend and had bc 10 years ago-- and she sent me books and little gift cards to cheer me up-- she was the only one who knew how scared I was and didn't tell me, as everyone else did, "think positive-- or you'll make yourself sicker"-- I wore the bracelet she gave me every time I went for my office visits and post-op apptmts-- and I did the same for another woman I met on this board-- I've never been a volunteer (too shy) or a marathoner (too wimpy)-- but whatever we can do to help each other through this is what matters the most (IMHO).-- Julie
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I think it's OK for our interest in these things to fade.
We're lucky that life does continue on.
A lot of times people with friends/relatives who've had bc get a lot of out these things. For someone who has been there it can be more than they want to keep going.
Make sure your life includes some activities that help others and you'll be giving back. It doesn't have to be bc.
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It seems that the companies who take part in BCA month cause marketing initiatives benefit from the halo effect as much or more than the companies who receive the donations generated. When Campbell's soup last year changed its iconic red/white soup can labels to pink/white during October, the mom friendly product made a bold move - and albeit a relatively small contribution to the cause. Their $250,000 contribution to research is generous, but feels small compared to the amount of good will to the brand that the campaign surely generated. The Marketing to Women Online Blog suggests that the actual amount contributed works out to $.035/can. Yikes.
The ‘pinkwashing' of the disease has even generated an anti-marketing backlash and the San Francisco-based organization Breast Cancer Action makes the excellent point: 'If shopping could cure breast cancer it would be cured by now.
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Hi easyquilts, I can totally relate. Sometimes I just want to get over it & don't want to be defined by the pink ribbon; other times I feel connected to others who have gone through it & know that the more awareness out there is only positive. I don't think your a jerk at all. We all deal with this in our own way. For me, big mood swings about it. Maybe just be open to being there is someone crosses your path & needs help. You are normal in your feelings and should allow yourself the freedom to feel whatever & feel differently at different times. Best wishes.
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Ladies...Thanks to all of you who have responded to my post.....I feel a bit better about my non-involvement......I didn't think I would be this way, but....Sometimes we surprise ourselves, don't we?
I still feel a little guilty, but can't change who I am...and I don't feel that I am defined by my cancer. I am Mom, MaMa, a singer, I work, love my church...and try to live each day to its fullest. I am not Sandy, victim of cancer....I survived my bout with it, and won.....Now I want to go on with my life, understanding that it could return someday, but refusing to live under a cloud of worry or anxiety.
Thanks so much for being here for me....when I had DCIS, and now.....You guys are the best!
Sandy from Cincinnati
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easyquits, I wouldn't feel guilty. From my perspective, I dislike the very conservative politics of breast cancer that emphasizes a particularly sick hue of pink, corporate donations, uber-treatment with inneffective poison, the false smiles of hope, and anger and intolerance at anybody or thing that questions the status quo in treatment or who questions the God of mammography or the God of "early detection", in selling pink guns and pink-basketed, cholesterol-laden chicken to raise money for God knows what calibre of research. I could really do without the breast cancer movement almost as much as I could do without the disease. Too bad, because it is an awful illness to die from. If we could strip the cheerleader, retrograde toothy smile from it I would love to help....
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Hi Sandy! I love that you define yourself in a full way that involves many areas of your life. You have a great spirit & encourage others to remember that the cloud of worry and anxiety doesn't have to control your life. Good for you! Have a great day.
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I waver between wanting to just forget about it all, and wanting to drape myself in pink.
I'm with Maria on that sentiment. It took a huge opening in my mind to accept the fact of the marketing schemes and pink overload. I wanted to believe it was all for the greater good. I'm a bit of a crafty dork, so I tend to get sucked into "themes" and matchy-matchy stuff. I did buy a tote bag and a pair of flip-flops from thebreastcancersite.com, more because I liked the pink sparkly sequins on the flips, and the bag helps to identify where my BC *stuff* is for my color-blind husband. If I said "look in the red bag" he wouldn't know whether I meant the crimson red, bright cherry red, or brownish-red backpack.
But no one should feel obligated in any way to participate in something that does not feel genuine to them. If anything, right now I feel like blowing the lid off the whole damn thing and telling people how it REALLY is.
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I just had a conversation with my DH this evening about the women across the street who just lost her husband to cancer.. When he was first dx'ed she would faithfully send out a standard request form to the neighbors asking us to donate to the ACS.. She's in awful shape now and I want to help her (and am) but I just realized the minute we (all of us) are dx'ed with cancer (and I'm sure this goes for other diseases too) we become a canvaser for the (in this case) the ACS to get more money for their organization... We have spoken and none of the organizations have helped her and I had the same reaction (and all I wanted was information!). I'm a bit angry that we become and new source of money when we are dx'ed even if there is no help for us (her) from that organization. It's like the minute they recognize you as diseased they want you to represent all the other individuals that are diseased too and contact them on behalf of the organization to collect money. There's a problem here, many of these organization don't seem to be getting the individuals to HELP them with their plight - they just seem to be set up to collect money.. Just venting it makes me angry! I and my family no longer give to any of the "pink" organizations and are very careful about giving or having any involvement with cancer related organizations. I think it is just fine to walk away from an organization.. We've all been through a great deal - we don't need to become "employeed" by this great marketing endeavor too! IMO it's fine to do nothing if that is what you want..
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Hummingbird.....Thaks so much....Your comments have made my day.....
SAndy from Cincinnati
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So happy that I can uplift you somehow. How are you doing? Give me an update if you can. Sending hugs and best wishes....
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I just started my battle but I totally understand where you are coming from. You had interests and a life before cancer that you enjoyed. You are not expected now to add cancer events to your life just because of this experience. I'm sure you are sick of all this cancer talk and want to move on. That sounds normal. Granted there are those who want to remain connected with others that have gone through this. That's normal too.
I have always sponsored friends in breast cancer walks/runs before my diagnosis. Will continue to do so… not so sure I will be joining in the walks and most definitely not running for any cause ;D
Nothing wrong with wanting to remain who you are and get back to your life as usual that didn't include breast cancer activist.
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lago, I totally agree with your wisdom. Best wishes.
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Hummingbird......Everything seems to be OK, as far as the cancer is concerned....Saw my BS a month or so ago, and had my yearly mammogram. All was well.....Having that mammogram is always a little stressful, now that I know bad things can actually show up.....The longer they make you wait for the results, the more nervous you get.....Thank goodness they tell me right then and there. I think I"d refuse to leave unless they did!
Sandy from Cincinnati
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Iago...Thank you for understanding.....This is the only place I feel free to say exactly what I'm thinking.....Thank God for this foruom!
Sandy from Cincinnati
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Iago....Thank you.
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Hi easyquilts, So happy to hear all is OK and doing well. Best wishes, Hummingb1rd
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Easyquilts,
I can so relate to your not wanting to do the pink ribbons, races, etc. I, too, feel that way. A colleague at work kept on emailing me, asking for a contributiion to support her in a walk for BC. I felt so guilty about it all and I know she thought what on earth must be wrong with me. Another co-worker who had had BC also, told me she felt the same way that I did--so sick of the pink ribbons. I'm not sick of them....I just don't want to have anything to do with them. Maybe they are a reminder of what I've had and had to go through???
Anyway, I guess we're typical or normal. ;-)
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