How I Beat Triple Negative Breast Cancer

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Anonymous
Anonymous Member Posts: 1,376

Stumbled upon this article...thought I'd share:

Cancer on the Frontlines:

http://www.foxnews.com/health/2010/09/08/jennifer-griffin/?test=faces

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Comments

  • MCTHO
    MCTHO Member Posts: 759
    edited September 2010

    The article was very interesting.  Thanks for sharing!

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2010

    I love her and follow her blog; however, I sometimes don't really know if I envy her optimism, or cringe at it, but I pray that she indeed has beat it.  I don't believe I will ever feel comfortable or trusting enough to ever say "I beat triple negative" cancer.  Being a triple negative - 1 1/2 year out from diagnose, I am just as frightened now as I was back then at my diagnose.  There just is no rhyme or reason as to how anyone's cancer journey will be, but this triple neg seems to have no rules it follows - ever! 

  • Luah
    Luah Member Posts: 1,541
    edited September 2010

    LRM216, I agree with you.  I was diagnosed just a month after her, and while I feel good and am hopeful I've beat it, I would never declare that as a fact. I know I will feel more oprtimistic after 3 years out, when I know the RoR for trip negs takes a nosedive.  But even then... who can say what the future will bring?

    I've also been eating a low-fat diet, and exercising well.  But I refuse to give up all of life's little pleasures - like sharing my son's birthday cake or having a glass of wine. 

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited September 2010

    I'm happy for her.  But I eat whatever I want & there was no way I could exercise during treatment.  I don't have that for an excuse anymore, I just plain don't have the energy to exercise.

  • Titan
    Titan Member Posts: 2,956
    edited September 2010

    That was a great article..and like you guys..I certainly have my reservations!  I dearly hope that she has beat tn...I hope we all have!  Yes..she has beat it..for now..I hope it stays that way...

    Honestly...I still don't think that having cake and drinking wine cause breast cancer...if that were so...well..everyone would have it..don't you think???

    Ah well..this is a positive article for us TN's....it is good to hear.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2010

    IMHO, she's jumping to the conclusion too fast. I wouldn't declare "I beat it" till the 3 year mark at least.

  • Cydz
    Cydz Member Posts: 157
    edited September 2010

    I couldn't click on that article fast enough, because I wanted to know how I could beat triple negative breast cancer too!!!! And then I read it. Oh. Diet and exercise, ok. I guess 90% of us on these boards can say we beat it too. I don't mean to be cynical, but I kind of feel like she is not understanding something. I truly hope she has beaten it!! She is doing all the right things, that's for sure. Maybe I am too superstitious...

  • cuteNsmartNfunny
    cuteNsmartNfunny Member Posts: 1
    edited September 2010

    Jennifer Griffin's my hero.  After my recent diagnosis, and while surfing the web for every speck of information I could find about TNBC, I ran across her blog.  I couldn't stop reading it and have read it from beginning to now. She's given me information, good advice and most of all, hope. 

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    I have mixed emotions as well.  I read her article, and only wish her the very best. 

    LRM216, I too have to take a look at the source of my feelings.  Maybe I just don't understand optimists?  I appreciate people who are very positive, but I guess I have just seen too many people berate themselves if it comes back. They start to question what they did wrong, that they weren't worthy of being cancer free. The list goes on.  (I used to work Oncology, so this doesn't come out of the blue.)  I am an avid swimmer, and I got breast cancer.  I just look at cancer as a bunch of cells that "went rogue" during cell division.  I didn't want to go through any part of this, but I did.  We are in a large company of people who have cancer. 

    The most I would say is that I am cautiously optimistic.  I've just been knocked down too many times to think I am immune to the variances of life. I do the best I can, and can always strive for better.  So I guess my beef with the I've beaten cancer set, or any claims that cancer can be cured is the fallout if there is a recurrence. Or maybe I'm just trying to protect myself? and that's alright too.

  • hrf
    hrf Member Posts: 3,225
    edited September 2010

    I was dx with TN almost 6 years ago. Had lumpectomy, chemo, rads. Three and half years later I had a second primary but this one was ES+/PR+

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2010

    Squidwatch - I agree totally.  I just wish I had the ability to say to myself and make myself really, really believe it - that I have beat this beast and am done with it!  I was diagnosed "early" so they tell me, and yet I still feel this way because I have seen too many other women with the same diagnose as mine and the same treatment recur or progress sometimes within weeks of their chemo end, or a year or so later - so much for the stats they try to give us.  I don't think I will EVER be able to believe I have beat triple neg.  As long as I can remain "cautiously optimistic" - I guess that's as good as it gets for me!  (and believe me, even to be cautiously optimistic is a real achievment for me to reach - I working it hard!).

  • carol1949
    carol1949 Member Posts: 562
    edited September 2010

    Wow!  What an inspirational article!  Anything is possible!  We had miracles in the times of the Bible using healing oils, etc.  So, why wouldn't we have healings today from things other than traditional medicine?    Keep the faith and hope alive!

  • Luah
    Luah Member Posts: 1,541
    edited September 2010

    Well, I guess it depends on how you define "healings" or "cure" or "beating cancer."  Did I get through treatment? Yes. Am I well right now? Yes.  Is that a miracle? Not to me. Is it a cure? Time will tell. I certainly hope so, but with all due respect to the celebrity set, I wouldn't advertise myself as beating it after just one year.  That's me, also cautiously optimistic.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    carol1949,

    and I think that's wonderful that you have that faith and optimism. 

    I have a question, and I hope you take this in the spirit intended..because I do know people who are absolute firm believers in miracles, healing etc...my concern is that on the flip side, a person who is praying for a miracle or healing doesn't feel they are being punished or unworthy of healing if they have a recurrence.  That's really hard for me to witness, because it goes against my beliefs (a punitive God.)  so when I say cautiously optimistic, it's also about my spiritual beliefs, and my knowledge of medicine and science.

    trust me, I love a good story with a miracle...remember the mother and baby that were declared legally dead that came back to life?  medicine and science would have argued against this possibility, so that's what brings it to miracle status for me.

    it is interesting how we all deal differently with cancer...that's why we have so many categories to choose from on the boards :)

  • carol1949
    carol1949 Member Posts: 562
    edited September 2010

    Squidwitch,  Certainly, I understand your feelings and you are right, we all do deal differently with life in general. 

     If you have seen some of my other comments you will see that I have a dear friend who is now actually  a 14 year bc survivor who did it totally holistically/ post surgery. Having lost a sister to bc years prior and witnessing what she went through, she said if it happened to her, she would find another way.  And she did!  She has been inspirational to me in this journey.  If I didn't read some of the books and listen to some of the recordings she suggested, I do think I wouldn't be here today!  I believe it is body, mind and spirit to get through or cured from  bc.  (My friend went through the CCTA in IL.

      It also helps that my oncologist is a personal friend and for "me" she said she thought the least medical intervention, the better I would be.  She is very open minded to complimentary therapies.  It also happens that the oncology group she is with uses the "cure" word.

    No, I don't think God punishes, yet ,I do think we are  on this place called earth for a reason..... and I do believe in something beyond this earth and this life.  To me healing is also internal  (spiritual )as well as physical, but I do think if one is internally in conflict it is very hard to heal anything physical.  Does that make sense to you?  Healing is that special place where inner peace prevails! 

    p.s.  my friend is standing next to me in this photo!  I am on the far right w/ the dark hair!

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    Carol,

    Thank you for your wonderful post.  I will definitely read some of your other posts to learn more about your journey.  Sometimes (alright, a lot of times :) there is a quiet storm within me.  It's getting better in there though...more peaceful.  Your friend being cancer free for 14 years is just incredible.  I'm not incredulous, just happy for her.  I also am so sorry that you lost your sister to this, and it sounds as if it was very difficult.  My mother died from pancreatic cancer.  I still mourn her, but would never want her to have stayed one more minute on this earth with her cancer.

    I really agree in God as a loving God, for all people.  I grew up Presbyterian, which I always describe as having a great sermon about Do the Right Thing, and Do Unto Others..followed by a strawberry social on the lawn.  What's not to love?  My mothers two fathers were ministers in the deep South.  Very fire and brimstone....and so some of those messages carried over into my upbringing.  Frankly, scared me to death.  I felt unworthy of God's love, fearful of reprisal and have fear of rejection after passing.  So as you can see, my conflict is great. 

    On a clear day, I really do get it.  I see God's mercy for others all the time, and need to give it to myself. I think Jesus brought so much to the forefront regarding tolerance, love and he too suffered greatly.  I am glad I don't think for one second that cancer is a punishment or the result of bad living.  It is a way for me to learn what others go through, and to reconnect with spirit.  I am learning how to pray, and seeing the magic within those who are fighting and eradicating their disease.  So I too see purpose with our travels here, and honestly believe I had a hand in choosing my challenges for my life.  Even if it helps me to cope, or give me a sense of control, it works for me :)

    I also really appreciate the ability to dialogue here as religion, spirituality, medical choices, not choosing traditional routes of treatment.  Well, they are sticky topics. 

    I'll end this one with the fact that I am triple negative.  It put this fear into me, and I have gone with the chemo, radiation and chose a double mastectomy.  Each choice has been met with complications...but there is comfort in knowing I have done what I can do with the knowledge I had at the time of diagnosis. 

    So nice to share some Sunday musings with you Carol.  I hope you have a great day!  I look forwards to more sharing.

    traci

  • carol1949
    carol1949 Member Posts: 562
    edited September 2010

    Traci, just to clarify... it is my friend who lost her sister to breast cancer... not me.

    I did, however lose 2 brothers to cancer 6 months a part. 

    I know also that our God is a loving God... and it is unfortunate for so many who were raised on the hellfire and brimstone theory... I have met many people who turned away from our Lord because of that.

    May I suggest a few books that I found helpful?  One is Conversations With God by Neale David Walsh and another is You Can Heal Your Life by Louise Hay.  I also have found interesting while challenging.. books by Caroline Myss.  Really, whatever speaks to your heart and uplifts you.  I also kept a journal of even my darkest thoughts and then trashed the journal to rid my spirit of any bad energy. 

    Feel free to pm me any time.  God does still perform miracles!  We are all going to die some day, but from what I have learned through my tx, I may die of heart problems from the "red devil" before I die of cancer! 

    God Bless you...  Everything is as it should be! Smile

    Carol

    (edited for spelling)

  • kittycat
    kittycat Member Posts: 2,144
    edited September 2010

    I hope the writer of the article continues to stay NED.  I am also cautiously optimistic.  I thought I had beat BC last year when I had DCIS (ER-/PR-) and had a BMX.  I felt so lucky to have beat this disease and never thought it would come back.  I was on my way to having my ovaries removed.  Then, 8 months after my BMX, I found out I had BC again.  It was a new primary and was triple negative.  I'm going through chemo and will go through rads.  I'm still getting my ovaries removed, but after I deal with BC.  In my opinion, I've dealt with this the best I can.  I try to stay as positive as possible.  I try to find humor and the bright side of things.  I look at this as a journey and to embrace each day.  I've made some friends locally that are survivors.  My sister is also a survivor (she is ER+, but has the BRCA1 mutation like me).  I just take this one day at a time.  One of my local friends is also TN (stage 4).  She's adopted a very healthy diet and I find her an inspiration.  I can't imagine exercising while on chemo like the writer of this article.  I can barely walk through the mall!!!   :)

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    kittycat,

    I have been reading your posts and thinking about you.  It's wonderful that you have the support locally, as well as your family and of course, here :) Sometimes you just gotta laugh.  I couldn't exercise either, and do the best I can now 6 months out. It was strangly comforting to think that the chemo was going to be effective, as it kicked my butt all over the place. Not too many cells wanted to hang out, much less the defective ones. Hang in there Kitty! Let us know what you need and how we can support you :)

    (waving fist in air, knock it out!)

    Traci

  • Lynn18
    Lynn18 Member Posts: 416
    edited September 2010

    I agree with you that suggest it is better to be cautiously optimistic about this, rather than assuming that you " beat triple negative breast cancer."  

    I have been following Jennifer's blog and I appreciate her being open and willing to talk about her experience with Triple Negative.  It seems like a lot of people don't want to mention those words.  Even some of the doctors and nurses that I talk to.  

    One thing I don't think she mentioned in the article, was that she had very aggressive chemotherapy and I believe that led to a complete response at time of surgery for her.  That does improve your prognosis, and I think that was probably more important than the exercise and diet, even though those are very helpful, I'm sure.  Even if you have a complete pathological response like she did, there is always a small risk of relapse.  

    But I guess she is assuming she beat it for now, and I hope she has.  I am happy for her and hope she continues to share her story and make people aware of this kind of cancer, so we can hopefully get treatments discovered ASAP. 

    Kittycat, I  am like you, I can't do too much exercise during chemo.  I hope to do more when chemo is done. 

     Thank you Laura for sharing this article.  

  • barbachat
    barbachat Member Posts: 1
    edited September 2010

    First time posting a reply.  Hi everyone. 

    I am familiar with Jennifer's progress and having TNBC myself, I hope she has beat it.  I was diagnosed 6 years ago with TNBC, had a mastectomy but no chemo or radiation.  Unfortunately it recurred 7 months ago in lymph nodes under my arm.  This time I had very heavy chemo called TAC, surgery to remove the nodes and I am now finishing 6 weeks of radiation. Of course, I am extremely hopeful that this will be it, but there still seems to be so little known about TNBC, I am not as optimistic as I would like to be. 

    I also don't think that diet and exercise, or lack thereof, has anything to do with it.  My annual check-ups were always perfect, I exercised and did Pilates twice a week. I ate healthily, was on no medication whatsoever, and then I get breast cancer!.  No one in my family had ever had breast cancer before, and I even had the BRAC test done at my oncologists urging which thankfully was negative. 

    And I don't personally know anoone who has TNBC but me.  When I got it 6 years ago, so little was known about the treatment for it, I almost got the impression that it was better than other types of breast cancer because follow up treatment was even dicussed.  Now I realize it was because they didn't know what to do!!   

    And by the way, EXCERCISING ON CHEMO???  I was down for the count for at least 2 days after chemo. 

    So, it's comforting to be able to discuss this be able to keep up to date on any new developments. 

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited September 2010

    barbachat,

    I wanted to send a warm hello and sorry you have had to gear up again against this buggar.  I too went down for the count during my chemo..and I was missing the A from the equation.  I am not the same as before, and am six months out of chemo, 4 1/2 out of Rads.  This stuff is no joke!  So anyway, I am glad you found the boards, and there is something for everyone.  Even games when that's where you want to make your presence known.  Please do keep us up to date on your progress.

    traci :)

  • Luah
    Luah Member Posts: 1,541
    edited September 2010

    I'm a big advocate of exercising while on chemo... even just to walk a few blocks on days you are feeling well.

    I participated in a clinical study looking at the emotional and physical benefits (if any) of a prescribed exercise program for women undergoing chemo for BC. While the study is just wrapping up now and is yet to be published, I can tell you that we women who were part of the experiment group did noticeably better -- in weight management, SE management, psychologically, etc. 

    While on chemo, I walked 2 miles 5 days a week, skiied every weekend, and did weight training.  I realize I was very fortunate not to have debilitating SEs, but I honestly believe the exercise also helped.      

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited September 2010

    Luah - I concur about exercse.  I exercised all through chemo and I do think it really helped with side effects. I listened to my body and adjusted accordingly. I excercised through rads, too.

  • Meggy
    Meggy Member Posts: 530
    edited September 2010

    In the article, she says she took 17 rounds of chemo prior to surgery.  I wish she had spelled that out....what the heck did she take 17 rounds of?  She must have had a really aggressive oncologist...I actually took 14 rounds ...but wish I had done them all in a row.  I wonder if stopping after the standard 8 rounds for surgery gave the cancer a chance to mutate and resist.  Anyone know what she took or whether she got pathological complete response upon surgery?  Maybe that's why she feels cured....but even with that....it's not 100%.  I hope she is cured.  I hope we all are.  Maybe they just kept giving her chemo till it appeared that her tumor was gone.  Anyone know her chemo specifically?  I tried to read her blog but couldn't find it.

  • Lynn18
    Lynn18 Member Posts: 416
    edited September 2010

    Hi Meggy,

    I read Jennifer's blog also and I thought, but not positive because it's been a while, that she did 4 AC then 12 Taxol but along with the Taxol, Carboplatin every 2 or 3 weeks.  I talked to my oncologist and asked if I should also do the Carboplatin.  I did 4 AC and am finishing 12 Taxols, my onc thought the Carbo would be too much.  Her onc may have been more aggressive with the chemo because of her large tumor size.

    Luah and Sugar77:  It is good to hear you were able to exercise thru chemo.  I was anemic after doing AC and could hardly walk up the stairs.  However, I am feeling much better with Taxol and am trying to walk each day.

  • Lynn18
    Lynn18 Member Posts: 416
    edited September 2010

    barbachat:  Welcome, I am glad you posted for the first time.  It is hard not knowing anyone else with TNBC, that is why I really like this board.  You might also check out the "Calling all TNs" thread as there are a lot of people that post there.  It is comforting knowing others are going through this with us, although I wish none of us were going through this.  Good luck to you!

  • Luah
    Luah Member Posts: 1,541
    edited September 2010

    Lynn18:  Glad you're feeling better on the taxol.  I found the 12 week regimen quite tolerable, almost felt normal most of the time. My hair started growing back too - a bonus!

  • Lynn18
    Lynn18 Member Posts: 416
    edited September 2010

    Luah:  Thanks, I am relieved to be feeling more normal on Taxol.  I am no longer anemic!  I am impressed that you were able to ski and lift weights on chemo.  Was that after you had surgery?  I will have surgery next month and I would love to ski this winter. 

  • Luah
    Luah Member Posts: 1,541
    edited September 2010

    Lynn18:  I did surgery first: lumpectomy in October 09 and ALND in Nov 09.  It was a couple of weeks after that that I joined the clinical study and exercised regularly through chemo and rads and still today (it's year-long study). I was skiing pretty much every weekend December to March through chemo.  I don't know how extensive your surgery is, but I would think you'll be feeling well and strong by the time the prime ski season hits.  Where do you ski? 

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