HELP ME PLEASE... I AM BEGGING FOR HELP...

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Vickey, nice to put a face to the name.  You look nice in pink.  I agree with Theresa, the combo of Taxatere an and the neupogen/neulasta shots are killer...I dreaded those nasty shots.  Seven days of shots and seven days of bone pain...and to think, my ONC said the taxotere would be easier than the FEC.  Oh well, at least it is all over.  It is hard to believe that this time last year I had  my mastectomy and still had months of treatments ahead of me. Now it is all behind me...

  • maranatha
    maranatha Member Posts: 16
    edited August 2010

    Vicky,  Satan is your worst enemy.  He will hang around you, or send his little demons to, and put all kinds of terrible thoughts in your mind.  He wants you to be miserable.  He wants you to hate yourself and everything that is happening to you.    But......the Bible says "Therefore submit to God, resist the devil and he will flee from you."  James 4:7  You must put your self in the hands of God.  He loves you and cares what is happening to you.  He knows the very number of hairs on your head, don't you think He knows all about your cancer?  He can and will help you through this and give you the grace to face everything.  I have to be on a medicine, Femara, for the next five years and it has horrible side effects.  But I am praying over that bottle of pills and trusting God that I will have no side effects.  Satan comes to me all the time and tells me the cancer will come back.  But I catch that thought as it is happening and I tell satan, "I resist you, go away.  God is going to protect me and keep the cancer from ever coming back."  You just are going to have to learn to walk a walk of faith and get close to God.  I'm sure He has allowed this cancer in our lives to draw us closer to Him.  There is no other way to walk this journey but with God.  Find a christian friend you can talk to.  I will be praying for you.

  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    Well ladies.. the big girl panties are off.. I even tried a different brand and they didn't fit either.. I am a total mess. I cried all day yesterday, haven't slept since my last post . I wake up about 3 after going to bed around 11... I have lost another three pounds... I am dreading Thursday.. sunk into a depression so bad on Saturday night that I thought about ending it all.. @maranatha, I am upset with God.. he took my mother and then gave me this dreading disease, I need my mother to help me through this.. and I don't have her.. I miss her something terrible.. I stopped praying because I didn't even feel that God was listening.. my faith is so far out there...

    I am a mess.. tears as I type are just rolling down my face.. and I am at work.. I can barely function... Just a mess..

    thanks for the compliment on the picture, smiles on the outside and just a mess on the inside..

  • Medigal
    Medigal Member Posts: 1,412
    edited August 2010

    Vicky, beloved, it WILL get better!!!  Your mother IS going to help you.  Just because she is on the other side does not mean she can't pass on strength and courage to you.  She sees every one of your tears and I assure you, she is talking to God for you when you can't. It is so sad you can't have her physically with you now but she IS with you spiritually.  Let her see you can cope with this .  God did not take your mother.  We leave this earth because we are humans and have free will. We get horrible diseases or terrible things happen to us because we live in a world where people can do cruel things to us.  So please don't blame God for your mother's passing.  She is now in a place where she can help you even more than she could if she were here.  But then again, I believe in a spiritual life so I don't believe it ends just because my body ends.  God did not give "you" this disease no more than He gave it to me.  Try to get pass the anger and when you do, you will get to the second stage of acceptance and do everything you can to survive.  Let your mom know you will get through this.  If you can't pray to God, then just speak to your mom and ask her to give you the strength to go on.  My mom passed many years ago but she always is still here for me when I need her and so can your mom.  It's their love and it never dies!

    Keep smiling on the outside because that way you are telling your brain "you" are still in control of yourself and one day you will wake up and not have to force that smile.  You seem like a lovely young woman and I do hope you will conquer your fears and be able to go on with your life inspite of this terrible disease you have to cope with.  Stay strong!

  • mamaof3bugs
    mamaof3bugs Member Posts: 198
    edited August 2010

    Hi Vicky just jumping in to give you more support.  I am a TN too and treatment does suck but you can do it!!  I just finished up 4 DD AC and 12 weekly taxols on Aug. 11.  Look at it this way, while you are sitting in that chemo bay every drip of that toxic med is killing any remaining cancer cells, and as a trip neg it is one of our only options.  I have lost two fingernails and two toenails, my hair started growing back about taxol #5, I have gained 20 pounds and my neuropathy is starting to disapate.  I know you feel helpless right now but you are not, you are kicking the cancers ass and it's running scared!  Hang in there Vicky, our cancer is aggressive and we HAVE to have all the chemo our bodies can handle.  I start rads at the end of Sept and I cannot wait to get started so I can be done!!   PM me if you need to chat, I know how dark the chemo tunnel can be.  Take care, Angi

  • mamaof3bugs
    mamaof3bugs Member Posts: 198
    edited August 2010

    Also Vicky I was able to do my last 9 taxols without any steroids at all!  My onc explained to me that it was given only to avoid water retention in my legs and feet...I opted to go without the 'roids and deal with any swelling that occured but guess what??  I never had any!!  My RBC count got very low half way through treatment but I was able to continue once I started taking a multi-vit.  I understand your anger at God, there are days I am angry too.  Get mad, get angry and when you are ready He will be there to guide you.  I hope your day gets better.  Angi

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited August 2010

    Vicky - it is so important to think 'long term' when going through treatment. But our feelings are so strong and we are so impaired by them that it is almost impossible to do so.  I finished chemo a year ago this week (!!) and looking back, I can see that it actually passed pretty quickly, but at the time it felt like FOREVER. 

    A few quick suggestions - get an IPOD and load it with some peaceful music and/or some podcasts of encouraging topics  (ask someone to help you do this if you don't know how - my kids helped me!). Keep it by your bed and put it on when you can't sleep.  Also consider getting a relaxation CD or guided prayer/imagery and load it on to the IPOD as well. That will help relax you and get you back to sleep.  When our sleep is disturbed, it weakens us the next day even if we don't realize it, and you NEED your rest to be strong and fight.

    If you can't get to a more stable place, PLEASE ask the doc for some meds to help you.  I hate drugs but I did take some xanax briefly for a few weeks when I was falling apart. It helped me to eat and sleep, both of which I wasn't able to do beforehand.

    I wish you peace. You WILL make it. One day/one step at a time. And you will use your strength & experience to help encourage others, just like I am doing now. (Which I never would have believed was possible)

    Amy

  • maranatha
    maranatha Member Posts: 16
    edited August 2010

    Vicky,  I am so sorry.  I come across like such a bully.  It is just that I believe this all so much.  But my heart is with you.  I understand.  The loss of your mom has to be so hard.  But you know what, it is good you are mad at God.  He doesn't mind.  Because it means you believe in Him.  You can't be mad at someone you don't think exists.  So you have a relationship with God.  David had a powerful relationship with God but he was mad at Him at times too.  "My God, My God, why have you forsaken me?  Why are You so far from helping me, and from the words of my groaning.  Oh my God I cry in the daytime but You do not hear."  Psa 22:1,2  Sound familiar?  "I am troubled, I am bowed down greatly.  I go mourning all day long for my loins are full of inlamation.  And there is no soundness in my flesh.  I am feeble and severly broken.  I groan because of the turmoil in my heart."  Psa 38:6-8  But David always found his peace with God again.  Read the Psalms.  There is comfort for you there.  The Lord is going to help you and me through this terrible cancer journey and bring us out on the other side, better people.   I believe that.  Don't give up on prayer.  Go to God and tell Him how angry you are, let it all pour out.  And He will speak to you and help ;you understand.  He loves you and is in pain for you.   Jesus took cancer into His body as He died on the cross for us.  He understands.  You desperately need peace right now and God is where you will find it.  "You will show me the path of life.  In Your presence is fulness of joy.  At You right hand are pleasuires forevermore."  Psa 16:11

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Vickey, keep on fighting...Soon before you know it you will begin to feel both physically and mentally better...You can do it.  Why don't you talk to your doctor and let her know of your feelings.  Remember we are here for you too.  We have been through this and we know there is light at the end of the road...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    Vicky - Call your Dr today or first thing tomorrow and insist you have the meds you need to get you past these weeks of treatment.  You DON'T have to do this without any help and should not be expected to.  There are meds to get you past the panic, the pain, the sorrow, and anything else the chemo throws at you.  Once you get the meds you need, take time for youself and keep reminding yourself that although times seems to be standing still, it isn't and this will soon be over and you will have conquered the enemy, the cancer.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

    I second AND third the suggestions to call your doctor and TELL him/her (not ask) that you need more help to get through this. Whether is be a sleeping pill (which I took every night during chemo, I don't think I could have made it mentally without them) or an anti-depressant; get the help you need so that you can get through this to the OTHER SIDE (where you will look back and say, "I can't believe I got through that!") About God; when I was where you are, I recalled a sermon where a minister said that the Holy Spirit prays for you when you can't pray for yourself, so I just gave it all over to the Holy Spirit and didn't even try to pray or think about any of the deeper meaning of what I was going through (that can come later) but I just tried to get through one day at a time. This too shall pass, think about how far you've already come!! A big hug from here. Hang in there. Ruth

  • gutsy
    gutsy Member Posts: 391
    edited August 2010

    Vicky, it is good to cry, let it all out. You don't have to be the big girl, your feelings are real and normal. I honestly belief that feeling the grief and sorrow,will help you make it through the next step. One step at a time. I am crying as I read your post. I am so sorry that you are feeling so low and miss your mom so much. Your mom is with you, holding on to you and comforting you in a different way.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

    My mom died a few years before my diagnosis. She was the most wonderful mother, grandmother, friend, guide, companion.....a blessing to our whole family. I miss her so much, and wish I could sit down and talk to her, tell her my stories, brag up the grandchildren, share recipes, and get her advice just about every day. That being said, I was glad that she didn't have to live to see me go through BC; as it would have really broken her heart, as it does the heart of any mother whose child (whatever age) is seriously ill. I don't know if this is a thought that is helpful at all or not, but it's how I feel.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    Your Mom doesn't have to be deceased to be gone.  Mine is in the mid stages of Alzheimer's and she is there in person but not in mind.  Most of the time she has no clue but there have been 3 different occasions when she, totally out of the blue, asked very seriously how was I feeling.  So I know somehow, with her mother's instinct perhaps, she knows I need her.  Vicky, your Mom knows too & is there for you in spirit, just as mine is and basically in spirit as well. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

    Vicky, I thought about you all night. I am sure that your children love, cherish and need you as dearly and much as you loved, cherished, and depended on your mother. So when things get so bad that you can't fight for yourself; fight to stay alive FOR THEM!!! Hope you have a better day. Ruth

  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    I slept last night. I think my body was just exhausted.... My kids and husband are the only thing that I have that keeps me fighting.. The support comes from here.. All of you are awesome..

    I have been told by another person that my mother probably wouldn't be able to handle me going through this.. Me getting cancer has always been a fear and she would assure me that I had nothing to worry about...and everytime I found a cyst I would call her in a panic and she would calm me down. I just miss her so much.. her advice, her voice, her laugh.. the times that she would tell me, okay you cry for five minutes and then you fight, if there is a solution you figure it out...Somehow when she said that the tears would start to fade and my mind would refocus.. now the tears won't stop.  My mom loved to read so she would stay up all night reading(she was retired) and no matter what time it was if I couldn't sleep I would call her and she would talk to me til I got sleepy.

    I have xanax, anti depressants and everything, I just don't take them because they all make me sleepy, so when I don't have chemo, I try to enjoy my family.. maybe I am pushing to hard.. I only allow myself 3-4 days of rest after chemo and even then I am not resting totally, if my family needs me for something I am there.. I take the teenagers around, play with the little ones.. and hang out with the husband, sometimes in so much pain that I just want to scream. Why do I do it? Well because I feel like I am the one sick not them so I shouldn't put my burdens on them.. Only when I can't take it do I just drop..

  • theresap60
    theresap60 Member Posts: 947
    edited September 2010

    Vicky - please hang in there, I know your pain on all levels because I was there too.  I was missing my Mom big time when I was first diagnosed and going through cancer treatment h e l l.  Thank God I had my sisters and I'd either call them or they'd call me.  This forum does the same thing ... talking to your sisters.  My Mom was diagnosed with breast cancer the same age I was diagnosed - 49 - but had a double mastectomy and reconstruction - no radiation or chemo back then.  But I would "talk" to her and beg her for help ... I'm sure she was praying for me!!  Big time.  I was angry with God and the world.  My priest told me to just pray... even if I didn't feel like it, even if it was "God have mercy on me a sinner!", even if it was an angry prayer.  God knows our pain and didn't cause it. Things happen to us - good and bad.  My brother died of cancer when he was in his 40s.  It just happened - God didn't make it happen.  But God was there to welcome him home.  We're survivors and even though we have to walk through the dark valley, we come out on the other side stronger and lovelier... we're all holding your hands!  You're going through the worst of it.  PLEASE take the xanax if the doctor gave it to you.  I took mine at night and it helped me sleep, but took the edge of my day.  I had a wonderful family support network and my work friends were great.  I was living in NJ at the time and we were blessed to have a Gilda's Club.  Grab what support you can find, but I know, you have to walk your own walk the way the rest of us did.  This journey is similar for all of us, but never exactly the same. Warm hugs and many prayers for you tonight. -Theresa

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    I had treatment on this past Thursday and it is not getting any easier..My body aches.. I am vomitting, I am dizzy, I have headaches.. I haven't slept, I cry... i look like something out of a frankstein movie.. I am crabby all the time.. I snap at the kids, my husband.. sometimes I would rather die then deal with this.. I admire all you ladies.. I don't know how you made it through.. I called and told the doctor that I am not doing number 4.. that is it I am done...

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited September 2010

    Vicky, your posts tug at my heart.  Just wanted to send support and love your way.

    Please do not give up; the drugs are there for a reason.  If they make you sleepy, take 1/2 of a one.

    Your children and husband need you.  Talk to your mom, ask her to send you a sign that she hears you.  She does hear you, honey.  Have a good old heart to heart with her.  After all, it was always your hearts that spoke to each other, and love CANNOT die.  Can we see it?  No. does that mean it is not here?  of course not.

    You go in my prayers as of now, as i adore my daughter.  I am more sure than I can tell you,that your mom adores you and would want her daughter to fight.  You can do it, honey.

    Take a break from the chemo if you need one, but come back with a fighting spirit and kick it's ass.  It has the wrong girl.  Be your mothers' daughter, and be strong for both of you, your kids and husband.  And take some time for you!!!

    love

    annie

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    @anniealso.. it is so hard.. so hard.. just hard.. I try and try.. I use to have fight in me but over the last 4 days.. I just feel exhausted.. no where to turn for comfort..

  • CT124
    CT124 Member Posts: 85
    edited September 2010

    Vicki and all,

    I can't add much to the thoughts the others have shared witth you but I can tell you I too have been there. My Mom was in end stage heart disease and died a few monthe before my diagnosis. I also got my diagnosis the same week my husband decided he wanted a divorce. Apparently when I was caring for Mom and the kids, he spent his time with an old girlfriend who was getting a divorce and now they want to be together.There were days when I felt like I didn't want to get out of bed.  I did not want to do chemo-it scared me to death. I will have my last round of TC this week and while I know that for 2 weeks after chemo, the side effects will knock me out, I am determined to get through this for my children, family and friends who do want to be part of my life.I don't think I missed too many SE from chemo-nausea, awful bone, muscle and nerve pain, orthosatic, awful perineal rash, wound up in hosp. for a week after round one because all wbc were wiped out and had 103 temp, infected port which needed to be removed, abdominal pain and either diarrhea or constipation, no sleep, anxiety, and just feeling like I would not get through this process. My hair started to fall out but then that stopped and I have a really thin short cut. I have been using teat tree oil on cuticles (found that on another board) and my nails are better than they ever were. Like you, I told my onc. I wasn't coming back, but I did. I'm sorry to hear someone was not supportive on another board. I have found more support from the women on these postings than anywhere else. I too have felt like I have been on a treadmill since this started but finally feel as though I am getting back in control. On one of the other boards, when we were talking ab being scared and whether we could get through this, one person said something that has stuck with me "You don't have to be brave, you just need to show up" for treatment. In the beginning, I was not brave, but i showed up. As I listened to other peoples stories and worked with the nurses, docs and moved further into the process, I am regaining control and feeling more positive(except for 2 weeks after chemo-am too sick). I will begin radiation in a few weeks-this also felt like I got punched in my stomach because initially was told would prob. not need it, and it terrifies me, but I plan to show up and see how it goes and have found wonderful support on that discussion board. I had a bilat mastect w reconstruction and still am being expanded which I need to finish before radiation, then final surg. after rad. I found a terrific support group, and our hospital has a terrific nurse specialist who is available to talk and help anytime, as well as a nurse who specializes in holistic aproaches to cancer.Hang on to hope-don't let anybody or any SE take that away from you. While my life has been on hold for a few months, I will get through this, divorce my husband, be happy and get on with my life. Yes, it will never be the same again, it will be better. I will beat this disease and I know I am doing everything I can to make sure it doesn't come back.

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited September 2010

    Praying for you Vicki--it is so hard. . .xoxox

  • megala
    megala Member Posts: 14
    edited September 2010

    CT124-

    I must tell you that your story is the only thing today that has lifted my spirits up. You are amazing and strong and I am hoping that I will be as strong as you are during my chemo process. I start tomorrow. It always seems that when things are hard....it just gets harder. I am so afraid of the side effects and I have a cold right now too, so yay. :-) You are amazing and I am really going to try to remember that saying your friend said. "You don't need to be brave, you just need to show up." I am going to hold onto that. Thank you.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010

    Vickey, keep fighting.  Your kids need you.  You don't want your kids to feel the grief you feel for your mother.  I promise it will get better.  Ask your doc for better meds.  My onc told me that the meds are there for a reason and i only need to tell her how i felt, and she would give me the meds I needed.  Just talk to her.  Sending you big hugs. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2010

    As Michele says, you mean as much to your kids as your dear mother meant to you. Keep fighting, you are almost there. Ruth

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2010
    Just think you are almost there...only one more Taxol to go, right?  Please don't give up...fight like hell.  Don't let cancer win.Kiss
  • kat101
    kat101 Member Posts: 1
    edited September 2010

    Hi Vicky,

    Try to stay strong, try and think of chemo as part of the recovery process. A friend of mine said she used a natural therapy called Avemar during the chemo process which apparantly reduces the side effects of chemo and can even be used during the sugery. It's a natural product so it can be used pre, during and post surgery! Chemo is an extremely painful and draining process so i guess any form of relief is a blessing! 

    All the best and stay strong!

  • VickyThomas
    VickyThomas Member Posts: 54
    edited September 2010

    CT 124

    thank you, I too think I will be facing a divorce.. I don't even understand how or why we got where we are but it isn't pretty.. sometimes I feel like I am just running into a brick wall...and somehow I still manage to hear, "you are so brave, you look good, I will pray for you, if you need anything call. I just want to scream at these people.. SHUT UP... I AM NOT BRAVE, I DON'T LOOK GOOD AND I HAVE CALLED AND YOU REJECTED ME.. OHHHH I AM JUST SO TIRED.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited September 2010

    Hey Vicky,

    first time on the thread, saw your post and had to reply.  Nothing but hugs here.  You are in the right place---we know what you are going through, even the stupid husband part.

    Hang in there!

  • msphil
    msphil Member Posts: 1,536
    edited September 2010

    Hello sweetie, we do know how you feel, we have been where you are right now, but things will get better, no your life will never be the same but you will get through it, I will pray for you and I hope this will encourage you, I am 16 yrs cancer free thank(God) so we must go through but we are not alone, come here where we know exactly how you feel.  msphil

    ,

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