August 2010 Rads
Comments
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Love the cow story, what did the police say? Happy to see we can all still laugh...thanks:)
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Hi, all, today is my first of seven boosts and I must admit that I am nervous. I guess it is because I don't really know what to expect and I fear that my poor underarm and scar (my scar goes to the middle of my underarm) will be even more painful (whine whine whine). I must remind myself that in the entire scheme of things, this is just a little nit, I mean really.
Doredou, on the cow story, the dispatcher acted like it was an everyday occurrence. Guess it must be a thing about living in BFE boondocks, no big deal. Still cracks me up though. Wish I was really clever so that I could make up a joke about it "Hey, heard the one about the cow crossing the road?"
Enjoy today everyone as we continue marching forward through our journey(s). Happy three day weekend for those of us in the US.
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bonniewe- Good to know this happens outside Texas (cows in the road). I lived in Houston for 15 years and around '98 I was driving down I-10 (one of the busiest interstates in the country) and there was a calf in the metro lane (rush hour traffic lane-can't remember the correct name of it). Anyway, this lane had a 4 foot cement wall on both sides of it. Besides stopping traffic for some time, it was funny to see everyone trying to catch the poor thing. Still don't know how he scaled that wall. Happy ending - they got him and he made the evening news.
I'm in double digits now - today was #10 - 20 more to go.
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Hi everyone! Today was number 17 of 33 so I'm officially in the second half of my treatments. Seems like I've been doing them forevver though. At least this is a 3 day break. A little rosiness at the end of the week but no burning. I am in the grip of horrible fatique. Dragging through the day seems like more than I can handle but I do it. I have to work all this weekend boo hoo. I am just exhausted though so I may end up leaving early or calling off one day if this keeps up. I have FMLA in place so it wouldnt count against my attendance. Maybe I'll feel better tomorrow. Just so tired tonight I want to cry but don't cause I don't want to scare people lol. So I'll just tell you guys knowing you will understand. Think I'm going to go to bed. Talk to you tomorrow - enjoy your weekends!
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Carole- Do you take something to help you sleep? I know if I didn't sleep I'd really be exhausted. I have been battling fatigue since the last third of my chemo Tx's and I finished over a month ago. I thot I'd be back to some sort of normal before now but that's not the case. I do take Ambien so I at least sleep through the night (except for bathroom breaks and an occasional hot flash). I've also discovered If I get to sleep before midnight ( best around 11) I do so much better. I've heard some people are afraid of Ambien; I have taken it for years and never increased my dose, in fact most of the time I can get by on a half to two thirds. Anyway, just some ideas from someone who knows what a good nights sleep does for her.
It's so good to hear how well your doing this far along in your tx's. Hope your weekend break is refreshing.
Carolyn
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This is my first post but I have been with you for several weeks,gaining information,inspiration and encouragement. 27 of 28 rads have been completed with 5 boosts remaining.I have no major problems except mental,emotional. I turned 70 between lumpectomy and rads,developed a severe sinus infection 3 weeks ago and have a DH with early stage Alzheimers. Today I feel great. We were able to take mini-blinds outside, wash them and the windows and get everything replaced.May eat out tonight. My new normal may not be so bleak ! Thanks for being here.
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Hi xgolfer, thanks for saying hello! Happy belated birthday... One of my newest goals is to turn 70 and I hope I can do it with your energy!
It's so tough to care for an Alzheimers spouse. My grandmother went through that with my grandfather- I can't imagine handling that AND breast cancer. You must be incredibly strong!!
I'm so glad you're feeling great today. Glad we can be here for you. Hopefully you'll get some rest after getting those things done you wanted to do (I know how that goes.) Have that dinner out- enjoy!!
Everyone, congrats on getting through treatments!! We're beating this beast!
Have a wonderful weekend!
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Hi, I'm new here, too. Some of you might know me from the April chemo group. I started rads on 8/3. I have 13 to go...I forgot how many boosts that includes.
Anyway, saw the doc on Thursday and because my skin is such a mess, he had me take Friday and Monday off, and they're going to start the boosts on Tuesday. Then when the boosts are done, I'll go back to finish up the whole breast part.
Parts of my skin look sunburnt, but other parts (especially by my lymph node scar) look black and blue. And then, my boobs are all spotted, with dark red spots everywhere...the nurse said something about bursting capillaries? Does anyone else have that?
Anyway, I've been pretty uncomfortable but trying not to take too much, though I did resort to an ativan last night to help me sleep!
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Xgolfer - Glad to have you here with us and so happy that you are 27 of 28 w/ 5 Bts to go!!! It'll only be gaining from now on. I think we can relate to the mental and emotional difficulties, though our circumstances may vary a bit. But you seem to have a heavier load with your DH's Alz's. I took care of my Mother when she had dementia and it wears on you. Having to deal with it with your spouse, I'm sure is more emotional. I couldn't say it better than Lady M and I agree you have to be a strong person to tackle both BC and caring for your loved one.
Thinking of you and praying for grace to see you through.
Carolyn
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JennyB- red dots? I have lots of black dots. I look like a Sharpie fine point went crazy! lol
To the group: How do your husbands/boyfriends/partners (react? unsure of right word) to your radiation treatments. Do they go with you? ask questions? support and help out around the home? etc.
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Hi, everyone! Cannot believe it is the official end of summer. I dub this "the summer that never was" since I have been so down in the muck and mire of BC. I certainly miss my life and also traveling! This may turn out to be my first year in 30 years without at least one trip to my beloved England, yes I am whining once again.
againmine41, relative to how my husband is handling this, he's been supportive and there for me the entire journey, or as much as he can be. He's not physically able to be there all the time, but he is emotionally. (he has battled two primary cancers, kidney in 2005 and pancreatic Dec 2006 and is very lucky to be here) He's struggling with severe pain left over from his prior cancers and had his right hip replaced July 12, 2010, so still dealing with it. He cannot do much around the house, but after over 5 years of dealing with his cancers, I'm used to it. He's a lovely man, funny and smiling in spite of everything. I am the chief cook and bottle washer (as the saying goes), but that's okay, at least for me it is. I'm thankful that I still have him with me, even if he's not much physical help. I think the fact that I've been his caregiver (plus worked fulltime) for over 5 years has "forced" me to physically deal with my BC and care. I must add, though, that it has not allowed me to emotionally deal/work through my BC.
To all, I'm excited that this is day 28 of 33 and my concern for starting Arimidex on Sept 18/19 is growing. Sleeping less and less these days regardless of my fatigue level. My doctor is "weird" about giving me something for sleeping so I'm muttling through on the few Ambien she allowed me to have (30 per year). I'm off now to push myself to at least walk (maybe a little light jog if my body will cooperate) hopefully 5 miles this morning. I don't feel like it BUT I tell myself "one foot in front of the other. rinse and repeat"
Have a wonderful day, ladies, one day closer to the end of this part of our BC journey.
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Xgolfer, I meant to mention that I am so sorry to hear your DH and your struggle. I am currently watching and trying to help my father-in-law as he is trying to manage my mother-in-law as she loses a little more of herself each day. It is heartbreaking. I'm happy for you that you are still able to do "normal" things together. They are great memories.
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Day # 16 of 33:) Half way done!
I am feeling like S**t today, but still happy about it being almost over.
Anyone else have both dizziness with nausea?
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Day 20 of 35. Quite a bit of red, irritated skin now and fairly consistent pain in the breast tissue.
Doredou - I haven't noticed dizziness but do have nausea with anything but bland foods. Also with cough medicine. Caught a cold and have bad cough which has been interfering with sleep.
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thank you so much for asking about the dizziness. I've been having a "fuzzy head" light headedness and could not put my finger on it. Yes, a bit of dizziness. I've had the nausea as well, but never enough to keep me from eating. good luck everyone.
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Doredou, Yes...definitely had dizziness with nausea at about the half way point. It didn't last long and I haven't had it for a while (I finished 26/28 regular today, then have 8 boosts at the end.)
Hope you feel better.
Bonniewe, still think you're doing great with the exercise. I'm going to have to get my butt moving!
Chabba, I'm a bit irritated too. And my breast is red. Haha! No, but seriously, my boob is pretty pink and it hurts mostly underneath and at the site of my node biopsy. But I'm close to done- so glad!!!
Everyone hang in there!!!
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Today was number 18 of 33 for me. I've worked the last 6 days in a row and had today off. I went to my treatment and then forced myself to go to the gym - got in a light workout tho my body was protesting or was it my mind? I really can't describe the fatigue I'm having to anyone else. It's like being in a fog or something. After my workout I came home and napped. I have never before taken naps. Oh well it worked for me. I got up and made supper. As for my husband he has been a great strength and emotional support for me. It hit us both so hard when I got my diagnosis - he said well I was hoping for 10 or 15 more good years and then I would fall apart first. I am several years older than him so I found that amusing. It was hard to get him to talk with me about it at first - it was painful but I just said look I need to talk about it and you are the one I want to talk to so he listened. Now he worries a lot and is a little over protective. He's afraid I over do things but it seems I do nothing compared to what I've always done. He has only gone to one treatment with me because of his work schedule but he took off time to be with me after my surgery and I call him after each treatment to let him know how I'm feeling. He's not much of a cook but tries to help out. My brother and Mom recently moved here and are staying with us temporarily. It wasn't a good time to have company but this was all in the works before I found I had BC. It has worked out well though. My brother does a lot of the cooking and shopping. He also works out with me and is a great encouragement too. I didn't get my flower beds in this year because of knee problems and then the BC so he dug up my flower beds and put in beautiful fall mums for me last weekend with my husbands help. One of the best gifts I've ever had. I have had two or three episodes of nausea in the last week - hope it doesn't get worse. Will be thinking about you all and keeping you in my prayers!
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againmine - Interesting question: How does your significant other help out?
I'd have to say my husband has been really supportive and caring through out our BC ordeal. Though I sometimes complain he's out playing to much. He's a real people person and a very caring one at that. He likes to be around others. I'm not much fun these days and I've spoiled him over the years as I've been a stay at home mom for most of our married life. But he has risen to the task and can now wash dishes, vacuum, run errands, rub my feet and shoulders etc . He'll do anything I ask and doesn't complain, he's been with me to all the first and major appointments. I'd like him to read my mind and do things w/o being asked but that'll never happen - he's a man. They're a different breed altogether in my book. Lately, I've been really irritable and he has taken the brunt of that. The Dr says it's the hormonal changes and it'll subside in a few weeks. He sure hopes so! I'm really becoming a b#%&h even to myself.
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Crying one minute and yelling the next. These crazy emotions.......
Going for #12 today - still , so far so good. Hope everyone has a good "blast" today! :- ] Bad joke.
Blessings,
Carolyn
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Carole - I forgot to add - great brother you have there!! Sweet of him to do your flower garden.
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I've been avoiding the "how does your SO help out?" question. The truth is, my hubby isn't much help at all. And the really ironic thing is that he's a Dr. It's almost as though he's seem so many women with BC he's just immune to it. Plus he's so busy taking care of his own patients he doesn't have a whole lot of time for me. He hasn't made it to my appointments, other than very early on when I was initially diagnosed. And of course my surgery.
I was late for rads this morning because I had to get all three boys up, make breakfast, make lunches, feed the dogs, put out the trash, get myself ready, and get everybody to school on time. And I am just feeling soooo tired these days. My 15 year old starts school at 7 am!! That's my daily schedule (except for the trash) but I guess I'm just feeling the fatigue now. Today I need to get groceries, which I absolutely dread (it's usually two carts for a family of 6) and figure out what we'll have for dinner before I start errands and afternoon school pick-ups. Some days I'm pretty sure the stress of this life is what set me up for being vulnerable to breast cancer in the first place and I wonder how on earth I'll ever recover from it like this?!?
Then I read about many women who have problems much worse than mine and I tell myself to quit complaining and snap out of it...
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Day #17 of 33
Thank you all for the response on the nausea and dizziness. I'm feeling a bit better today. Chubba I think you are right about the bland food, because today I kept it bland and I feel much better then yesterday but still a bit nauseous.
I didn't take the med for the nausea hoping that it was the cause of my dizziness, I'm going to have a cup of ginger tea to see if that helps with the nausea.
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Lady M - I love your post, had a good chuckle when you said your DH was a Dr. I totally understood. I grew up with one (my father) and when my mother had BC he had the same response. She was raising 5 kids (only 6 1/2 years apart) and working in the community like she was being paid for it. So, I look to her and think how can I complain? My hats off to you too (or should I say wig?) I know it's much harder on you raising children who are in the of middle school/high school (whatever ages they are). That's a really difficult time. You seem to have the right attitude though and one day your kids will look back and say "Way to go Mom - your the best!"
Thx for the chuckle!
Carolyn
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Carolyn, Thanks for sharing that with me! I feel better knowing it's not just my DH, but Dr.'s in general. Most people think you're so lucky if you're married to a Dr., but honestly it's not a glamorous life. I feel like I need a "Dr's wife" support group almost as much as a breast cancer one!
How's your mom? Is she still with us? God Bless her!!
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Update: I had my second opinion today on the 'out of the radiated area' bad bad burn that I got after my 4th tx. The onc said that I am one of those rare people who are sensitive to radiation and it's either a chemical imbalance in my body or coming from the neoadjuvunt chemo that I had. (4 AC - 4 taxotere). At any rate if it occurs again (and it likely will) they will have to treat it with steroids, antibiotics and hope that I can tolerate the pain/discomfort. If nothing works I will have to forego the rad tx and hope for the best. In my case (I'm TN) that's all I have and now I have a 30% chance of reoccurence in the breast area which would be lowered to 10% if I can tolerate the rads. This is NOT the normal radiation dermatitis that we all get as treatments progress, it is much like a bad sunburn and very painful and anywhere on your body.
I'm going forward with is because I feel I have invested 9 months in this BC now and I'm on the home stretch. If it doesn't work out at least I know I tried. 4 down - hopefully 29 more to go and 3 boosts. After all............I survived CHEMO!
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Bubbalu - That's tough news. I'm so sorry. I do hope they can find treatments that will allow you to tolerate the therapy. My prayers are with you.
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Hi JennyB (I was in the April Chemo group too.) Yes!!! I have red dots all over my breast. I've been comparing it to the appearance of a strawberry! Also, my lymph node removal site is very black and blue and VERY sore. I used a small stuffed animal "sheepie" after the surgery under my armpit to comfort that area and "sheepie" is making a comeback! For the last few days I have been holding him secure under my arm and it feels a lot better.
Againmine - in answer to the hubby question... My husband has been amazing through all of this. He cooks, he cleans, he listens to me complain, cry and get angry. He went to all my dr.'s appts and chemo treatments but with so many rad appts he has not been going to them. I was just telling my sister in Ohio yesterday that even though radiation has been physically easier, I think it has been emotionally harder. I feel so alone. Also, I have been working alot more so my hubby has been acting like everything is "back to normal" and yet, I don't feel like that at all.
I have finished 22 of 36... not sure how many or when my "boosts" start. I see the dr. tomorrow so I am sure I will know more then.
Hang in there, you beautiful ladies! ((big HUGS to all))
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Hi ladies, Been away a few days. and not doing so good right now. Over the three day weekend my burn progressed really fast just overnight and Monday I was in a lot of pain Tues when I went for my rad. the tech wanted the Dr. to look at it before treatment. My Dr in meeting so his PA cancelled for Tues and had me come in today to see Dr. Dr cancelled rest of week to give burn a rest. no bra, very little clothes, slather with burn cream and rest it. I go back in on Mon to see how things are. I only have total of 8 including boosts left and really want to get it over with so dont know how much diff. letting it rest now will make.
Have also developed cough, allergies or cold?? scratchie throat and low grade fever. so they also put me on antibiotics. Ok enough whining !!!!1
Arubajan05 - did you get a chance to try the bras yet? hope they work for you.
bubbalu - hope you can continue your treatments and also handle the burn.
As far as DH reaction, He does his own laundry, most meals anyway so I dont have to deal with that. he went to all early appts and surgery with me but has not gone to rads. I usually go to work right after so no need for him to go and sit and then have to take him home before I can go to work. He will usually go to grocery store for me but i usually get my own meals. My mom lives 5 houses away and is cooking for me a lot so my meals usually are warming in microwave and I can deal with that. He is willing to listen and that is a big help.
Before BC diag. I had started having my house cleaned as I can not do floors, tile, bathrooms, etc because of back so I am keeping that up now which takes off a lot of stress.
Ok enough for tonight. Hope next week is a better week and the resting helps my burn.
good night to all and one step at a time.
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Hello ladies,
16 down now - over the half way mark now! Skin really noticeably different now - am slathering on the cream a lot more and seems to be keeping things at bay. Have started gettign a bit itchy at times but not bothering me too much. The problem I've started having is a tightness just above the chest area going across to my shoulder. It's a tight muscle I think. The rads techs got me to see nurse yesterday but she just fobbed me off and said there's nothing that could be done (first person I've encountered that wasn't helpful at this centre). So I emailed the Occupational therapist I saw in Melbourne when I had tightness in my arm and she said that it's not uncommon for rads to cause muscle soreness and that it would be good to see a physiotherapist to get some massage and stretches. Said better to see to it sooner rather than later. Funnily enough I have been seeing my physio about my lower back (sore due to the driving I'm doing!!!!) so I will ask him at my appointment next week.
Question about husbands - we've had our ups and downs but honestly could not have gotten thorugh all this without mine. My biggest issue with him as that he bottles things up and doens't talk about things then it all gets too much and he 'explodes' as such. But he's handy around the house - irons his own shirts for work, does the cooking when I can't .... generally cna't complain too much :-)
Hope everyone's well, one step at a time I say!
xx
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The rads are taking a big toll on me this week. went Wednesday and just broke down. My skin is raw and pealing, blisters between my breast hurt and itch at the same time. So tired but sleep not easily come by (mix of skin pain and Tamox effects I am sure). The rad tech had me take off till Monday so my skin could heal and give me some rest.
Husband issue...so up and down. Did not go to any of my appointments. Went to my lumpectomy(I was not to drive after surgery) but when I was done...the surgeon couldn't find him to talk to him.(I think he was napping or some where with his lap top looking for a way to jump online).so I was told after I recovered (I have no idea what he said but that he talked to me). He has gone to one rad treatment since he was home that day and I was so worn out and I asked him. He still has not asked how my last path report was on my polyp removal over a week ago. He gets after the 12 year old to help and the 20 year has helped some...but he doesn't do much...in fact got mad at me when I didn't clean up the water that flooded in the wash room when he was working on putting in a new washer. (I was sewing and had no idea) He gets off work at 2pm and naps. He does not sleep with me, will not touch me or look at me unclothed (except after I had surgery and I needed his help) Sorry to vent but feel so alone with all of this..think that may be why i also broke down in rads yesterday. Just couldn't stop crying. Plus I had to stop doing our church food bank ( just me to do all paperwork, hand out food, take calls etc.very rare did I have help weekly and a driver to do once a month pick up and he is 70+) told the company we get our foods from that i was not re upping contract and he said he would be out today to get all left over foods and and last 3 years of paper work. Less then 24 hours! And I feel like total crap! So when my H called at break..I asked him to meet him at church and handle the pick up. I, thank heavens, was able to gather the last 3 years paperwork and put in envelopes. These last few months I have not been very organized so more crying went on. I feel like the flood gates have opened!
Asked my Onc. if I could have something to help me rest since I am on Tamoxifin and no Benadrl. The nurse said I would need a psy work up to get sleeping pills. ? I have never asked before and I just wanted a night's complete sleep. He said take Benadrl once in awhile would be fine.
Sorry to ramble and whine.
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Lady M, you maybe on to something -- a support group for Dr's wives. ;-) esp those who have been dx with BC.
Thx for asking but no, my mother's no longer here. She died last year, ten days before I recieved my dx of BC. She was a 34 year survivor and had been really active in the ACS. She was amazing and I'm thankful I didn't have to tell her about my cancer. My husband and I put all our things in storage and moved back to our hometown to take care of her. I didn't expect her to live but a year. She lasted three years and 4 months; she must have learned something about survival -- as I'm sure we will. Just doesn't seem like it at the time.
Blessings, Carolyn
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