My story

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Maestra12482
Maestra12482 Member Posts: 5
Greetings, gentle reader:

Breast cancer is my fourth cancer in twenty years. In 1985, when I was 21, I was diagnosed with Hodgkins Disease. After several surgeries and a spleenectomy, I had 48 radiation treatments. The cancer came back in 1986, paralyzing me from the chest down. After spinal surgery, I began nine months of chemo (MOPP and ABVD) while learning to walk again. I also finished up my college degree at home during the treatments. I was done with my treatments in March of 1986, and finished my B.A. degree in May.

I went back to work as a teacher's aide, and decided to go back to school to become a teacher. I went to night school, did my student teaching, and was hired in 1993 as a full-time English and speech teacher. I went back and earned my master's degree in 1996.

I had been in remission since March of 1986...and then in November of 2004, my partner found a spot on my back. The dermatologist determined it was skin cancer, and I had it removed. Right about the same time, my partner also found a lump in my right breast. I had a mammogram, ultrasound, and a needle biopsy in January of 2005, and learned I had invasive ductal breast cancer. After meeting with the surgeon, I decided to have a double mastectomy, a sentinel node biopsy, and reconstruction. I didn't want to worry about the cancer migrating from the right breast to the left one.

I had my surgery on March 2, 2005. Luckily, the tumor was self-contained in the right breast. My onco and I decided to do a course of taxol as a preventative measure. I began that on March 29th, and finished my twelfth and final treatment on June 28th.

I had many problems with the taxol, side effects the doctors had never seen before. Also, three days after I finished my treatments, I was in the emergency room with high fevers, a racking dry cough, and an infected finger. I was hospitalized for twenty days. I had blood transfusions, cultures for fungi, bacterias, and viruses, CT scans, a bronchoscopy, an echocardiogram, an ultrasound, and finally, a VATS procedure where my right lung was collapsed in order to obtain tissue samples. Finally, it was determined that the taxol caused me to develop BOOP, a bronchial pneumonia. I'm on steroids now, and will be on them through Halloween.

I will have my reconstructive surgery done later this year. First and foremost, I need to heal up from the BOOP. I'm heading back to work soon, after being off from school since the end of February. I'm nervous about it, but looking forward to being with the kids again. I teach high school, and I love it.

Even though I've had some bad experiences, I wouldn't trade my life for someone else's. I have a loving partner, a great family, and supportive church and colleagues, and a wonderful job. These are the things that keep me going when I get in a funk about my illnesses. And I always remember that there are people out there who are dealing with far worse than what I'M dealing with.

Should you wish to contact me, please email me at: maestraprice@yahoo.com

Thanks a bunch for taking the time to read my li'l missive.

Adios! Stay positive, and remember cancer is TREATABLE. It's not a death sentence; in many ways, it's a LIFE sentence, causing you to reassess your life and your priorities.

Maestra
:-)

Comments

  • Silkyboots
    Silkyboots Member Posts: 4
    edited August 2005
    Hi Maestra
    You really have been through the mill !
    I found your story an inspiration..
    Good luck for your future and hope you enjoy getting back to teaching

    Love and prayers Sue
    xxxxxxxxxxxxxxxxxxxxxxx

    Wall_666@hotmail.co.uk
  • Maestra12482
    Maestra12482 Member Posts: 5
    edited August 2005
    Thanks, Silky...I re-enter the classroom tomorrow for the first time in five months. I'm nervous, excited, scared, thrilled, terrified, and IT FEELS GREAT! Can't wait to get back in the saddle.

    Maestra
    :-)
  • jamiru
    jamiru Member Posts: 11
    edited August 2005

    Next time I feel sorry for myself, I shall think of you! What a #@!?+ of a run you have had. I hope all goes well from now on and you enjoy getting back to work.

  • Maestra12482
    Maestra12482 Member Posts: 5
    edited August 2005
    Thank you! So far, so good, and I've been enjoying my time back in the classroom.

    Take care!

    Maestra
    :-)
  • Silkyboots
    Silkyboots Member Posts: 4
    edited September 2005
    Hi again
    read through your story again today and still find you an amazing person,and such an inspiration !
    I hope the children are being kind to you in the classroom
    Prayers are with you for your future to be bright and lucky

    Hugs Sue
    xxxxxxxxx
  • linsu107
    linsu107 Member Posts: 1
    edited September 2005
    You have certainly been given a full plate of affliction. I wonder why some of us are given this? We have similar plights ; I had a bad mammo in March 05, put off surg until August26,05. bilat radical on right, simple on left. I havent done chemo yet. still have a drain tube in. I don't know what to expect and I am SCARED!not of the treatment even though it has been unorganized. the recurrence...waiting for that.like you had it over your shoulder all those years, I only pray I have your courage ,,you are an inspiration. Thanks for sharing.
    Sincerely,
    Susan
  • betty113
    betty113 Member Posts: 1
    edited September 2005
    I just read your story and wow is all that I could say. You are amazing and I cannot say enough about your strength. This is my first time here. I have been doing alot of reading - my moms breast cancer has spread and she is on her second chemo navelbine w/ herceptin and I am really scared and do not know how to deal with the fact that she is in such pain and she is a new grandma too.
    Can anyone tell me how to cope
  • rsinkey2005
    rsinkey2005 Member Posts: 6
    edited October 2005

    Hi Susan, I had my bilat. mastectomies 4 weeks ago, dx'd with IDC stage I er+, pr+,her2-; nodes neg. Are you having to start chemo soon? I will need tamoxifen only, thank God. Are you having any difficulty with healing;arm pain etc? What was your full diagnosis? I'm fairly new to this site and I find it to be a wonderful source of information, love and support. I pray for Gods blessings on you , that you may be strengthened through Him.

  • Maestra12482
    Maestra12482 Member Posts: 5
    edited October 2005
    Hey, Sue:

    Just remember...one day at a time, one hour at a time, one minute at a time, and one second at a time. We CAN get through this...

    Maestra
    :-)
  • Maestra12482
    Maestra12482 Member Posts: 5
    edited October 2005
    Hey, gal...

    Sorry for the silence. I've been off-line a bit as of late. Sounds like you have your hands full, too. Remember, ask many questions, and never give up. Attitude is everything. Believe it.

    Take care.

    Maestra
    :-)
  • sheetal
    sheetal Member Posts: 3
    edited November 2005
    Maestra:
    Thank you for your incredible generosity in sharing your story. I will think of you and your story often. Thank you for this incredible source of strength and perspective.
  • J2U
    J2U Member Posts: 1
    edited November 2005
    Maestra,
    Thank you for sharing your brave journey. I will have a Mastectomy on 11/l6 for IDC and will think of you and your "spunk and attitude" when ever I am feeling down. You are an inspiration. Many blessings, J2U
  • Students
    Students Member Posts: 3
    edited November 2005

    Maestra, we were wondering if we could use your story in our project. We don't know if you have read our post "please share your story with us?" But it would greatly help our community. Thank you again and God Bless.

  • beav
    beav Member Posts: 2
    edited November 2005
    Hi gals! I have just found this board. I am feeling fairly selfish as I am now cancer free and don't need chemo or radiation or tamoxifin. But my reconstruction wen't horribly. My right breast is 1/3 of what it used to be. I'll have to have the left down in Feb. I have a hard time looking in the mirror. Any help with that? The scars are horrible and so is the lack of sensation.

    To the rest of you, god bless!

    Beav
  • jetj
    jetj Member Posts: 43
    edited December 2005
    Good on you Maestra, I believe you grow as a person through the bad things that happen in your life. You show clear evidence of that. Thanks for sharing your story.
    All the best,
    Janette
  • cindanbob
    cindanbob Member Posts: 16
    edited December 2005

    maestro, thank you for sharing your story with us. I found it when I was feeling particularly down. You are an inspiration to us all, and I will think of your strength and courage whenever I am struck by the "Woe is me" bug. Best of luck to you.

  • benhoole
    benhoole Member Posts: 7
    edited May 2006
    Can I add your stories to the collection at
    http://why-cancer.com It's about inspritional stories.

    Thanks
  • celia088
    celia088 Member Posts: 2,570
    edited May 2006
    BenHoole---

    Who are you? Why do you keep trying to get info and people from BCO to put in your website? You have posted several times trying to get the chat people to come to your web chat, and now you want these stories for your website.

    Have I missed something or have you posted any information about your website and about your purpose in coming here? You are making me uncomfortable suggesting that we donate our words to your site without any information about you or your site. Have you asked the administration here if you can do this kind of posting and requests for publishing our words?

    Would you please explain who you are and what is your purpose? Thank you.

    celia
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2006
    Oh Celia: Thanks for posting this. I thought the same thing. I didnt know about coming on the chat too.

    Nickii
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2006
    Celia

    Nickii

    I too am very suspicious of ben. Had he wished to be respectful of Maestra he would have sent a PM asking for this.

    I dont value such disregard of people.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2006
    13moons,

    I certainly agree with you. IMHO he demonstrated much disregard for Mae. I agree also a PM was the correct proceedure.

    Like the others, I dont trust him now either.
  • benhoole
    benhoole Member Posts: 7
    edited June 2006
    OK!!.. Thanks Celia, Nikki, 13moons, Rhymee

    Firstly, I didn't add Mae's story on my website because I haven't had her permission and I did ask here (maybe next time I should PM her). I don't think I show any disregards to Mae as you said.

    The collection is simply where I put all inspirational stories. If you don't want your story appear in the website (for others) or you feel uncomfortable just say no and I will never put it in.
  • celia088
    celia088 Member Posts: 2,570
    edited June 2006
    benhoole---

    I still don't understand.....

    (1.) When you say, "I did ask here" what do you mean? Did you get permission from Melissa or the Admin of this site to ask people here at BCO to contribute what they have written on this site to be added to your website? Or did you mean that you asked individual people in your post in this thread to contribute their story to your site?

    (2.) When you say, "The collection is simply where I put all inspirational stories," what collection do you mean? Is that your website that you are talking about?

    (3.) Would you please tell us what your website is about, and what the purpose of your site is, since you keep asking people here to participate in it.

    I think that it is a bit of a strange thing to do to ask people to contribute to your website without explaining what your intention and purpose is for your website. Just posting the address of the site, does not insure that we have the time or interest to go there and explore your site. I think it would be better if you would explain here what you are doing before you ask people to contribute.

    If you have already done this explanation here, I have not come across it, so can you direct me to it? If you haven't done an explanation, would you please do it?

    Thanks.
    celia
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2006
    I too saw ben trying to get chatters to go to his chat room and just a word of caution is due on chat rooms.

    Whoever sets up a chat room is almost always able to read each and every transcript and PM sent on that site. In other words, if you have typed it, they have seen what you wrote and just because they are not logged in does not mean they don't have access to it.

    That adressed, I am even more suspicious of the underlying issues as he keeps trying to get women into his chat room and also is trying to get their storys which were clearly meant for other "women with BC" and like Celia would like to hear some "reasonable" explanation.
  • atlantagirl
    atlantagirl Member Posts: 6
    edited September 2007

    YOU ARE AMAZING!!!!!! I LOVE YOUR ATTITUDE GIRL!!!!

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