July 2010 Rads
Comments
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Hi All,
I just wanted to give you some encouragement. It has been a year since my last radiation treatment and I'm doing great. It will soon be a distant memory. Thank God for aloe gel and soft bras. Hugs.
Roseann
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Hi All,
Glad I checked in. Another round of great posts.
Kim and Donna I will be very interested to see how the first T pill goes. I'm dreading it! Starting to have more hotflashes anyway, can't imagine T on top of it all.
Deb, glad you found us. This is an incredible support system.
Julie - sorry to hear about your friend. So glad you met her though. Interesting how some people can make an impact on us even if you just know them for a short while.
Sorry to hear so many of you with skin problems - that's the worst part. Sorry you are still struggling with it.
Claire thanks for your post, I enjoy hearing from someone who has pushed on through like you have and with big time physical events. I have a horse and hope to compete locally before the end of the year as a goal. I kept riding through treatments as best I could - even in the heat and humidity.
My own personal experience the last half of this week has been a return of the fatigue. It has to be the rads (last one was 8/11) - nothing else makes sense. Had been doing great - felt normal and whammo. Trying to ignore it and push on througth. I just want to know that i'm not psyching myself out - that it is not in my head. So if anyone out there still feels really tired after they finished, chime in!
That, and I found out I had a basal cell cancer on my forehead! 2010 I guess is my year for cancer. I know it is not serious per se, but my heart skipped a beat when the doctor personally called on Friday to tell me... you know how that goes! (gulp) I have a nice 1.5 inch scar on the middle of my forehead. It will fade to a thin white line in 6 months. ..sigh.... minor compared to the rest of this year!
Off my whiny soapbox now... Happy Labor Day Everyone!
Trish
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Hi, Thanks for the info on the elptical Pat. I'm going look into it for when I work from home. I have a glass wall and a table like desk at work, so that might not fly. Looks like a great piece of equip.
Kim, glad you got your fist pill in today! I'm happy fall is here too. Somehow the season changing and cooler air are making it easier to put the crazy spring and summer behind.
Spendy, my burns and peeling peaked about a week and a half after. You could see the outline of the boost area and that was especially red and dry, but for some reason it never peeled. Underarm, like Kim is experiencing now, and under the breast were the worst. It all healed quickly after.
Get some rest girls. Donna.
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HI again, I guess I missed a page of posts.
Rosann, thanks for checking in and the encouragement. Seems we're all struggling with looking to and planning for the future. Nice to hear you're doing well and are moving forward. Good for you!
Trish, dare I say 'normal' about your fatigue. It hit me only toward the very end of boosts and the two weeks after. And, it hit like an anvil out of nowhere. Get lots of rest, water and protein, to fuel the healing.
Sorry about your skin cancer, good you had it taken care of quickly. Skin check and colonoscopy are on my list of things to do. Always something.
Take care. Donna.
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Hi Everyone,
Pretty quiet around here. I've had a busy weekend with company and preparation to go back to work. For those of you who are hitting the wall with poor energy - I had a B12 shot at my naturopath a week ago and I have to say it certainly seems to have given me more energy and I haven't hit the wall as some of you have described a couple of weeks after radiation. My skin continues to be itchy and the peeling is still apparent but the skin is mostly starting to look normal.
Trish my DH has had a basal cell removed a couple of times from his nose and when they did the surgery it was a huge hole on his nose and took some time to heal but evidence is completely gone except when he gets sun on his face and the rest of his skins gets a bit tanned but his little spot stays quite white. I know it was worrisome to him and I when it happened but it really has been fine. My brother also had one and he has had no further trouble. I think the word - cancer has become so loaded with negative meaning that just hearing it feels like a death sentence. Hang in there!!
I am reading "The China Study" as I have said earlier and there is some pretty crazy stuff in there that kind of freaked me out. First - he is a huge proponent of plant based food and says cancer, even once you've had it can be managed to a large degree by diet. There are multiple studies they have conducted and replicated that associates animal protein with an increase in cancer once it has been established in the body from exposure to some type of carcinogen exposure and says "Foci growth could be reversed, up and down, by switching the amount of protein being consumed, and in all stages of development" and that cancer insults to the body in a dormant phase can be reawakened to form foci with more that 20% animal protein ingestion. Bottom line of their studies - "These studies showed that cancer development is modified by relatively modest changes in protein consumption....foci did not develop with up to about 10% protein ingestion ..beyond 10% foci development increased dramatically..." For the experiments they used casein, which is made up of 87% cow's milk protein and when they did the study with plant protein it was not implicated at all. It is the best argument I've read so far for staying away from dairy and meat. It has been fascinating so far - sorry if I am boring you all with it but I wondered if any of you have read the China Study or if you have thoughts about this material. All of this said - I am still sitting here drinking coffee with cream - so hard to give it up.
Hope you had a great weekend of healing and rest.
Sonia
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Oy - had my last boost seven days ago....today I have new blisters and weeping skin. Can someone please promise me this will get better??? I've hurt since the day I had surgery in June. Feeling a little whiney I guess....
Good night all - at least it's a four day workweek
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Hi Spendygirl, sorry to hear you are still suffering. I hope it begins to subside soon. I'm almost one month out and my skin is almost back to normal - I was surprised how well my skin recovered, once it started to recover. Here's hoping you turn the corner soon!
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Spendy girl - my skin got worse before it got better too. I didn't have any broken skin at all during rads but I had blisters about 1 weeek out. I am about 3 weeks out now and with the exception of a little peeling skin it looks almost 100% back to normal
Sonia - I think I need to read this china study! Anticancer promoted less meat and dairy as well. Dairy is the hardest thing for me to give up. If I had to swear off brie for the rest of my life I think I'd be pretty bummed.
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Hi All:
Spendy Girl-I'm so sorry you are having to deal with this, Rad was bad enough. I hope today you are doing better.
I have 5 more days of Boosts left, can't wait for this to be done and over with....
I hope everyone is doing good.
Congrats to all that are done with this part of the journey
Julie
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I have TWO!! more to go and then I will be DONE!!!!!! I can't wait. My skin is still holding in there. It looks red/brown and my nipple looks pretty funky, but the breast, collar, under arm all feel pretty good.
I have noticed more fatigue in the past week, so I'm taking it easier - coming home from work and heading straight to the couch.
I've made an appointment with my dermatologist - I figured I may as well get that over with while I'm at it. I have a couple of pre-cancerous spots that he burns off every few years, so I don't want to take any chances.
I see my oncologist at the end of the month and start the Big T process. I am more afraid of that than anything else I've been through although a friend has been on it for years and has had NO problems - so I hope to go into it with a good attitude. I will be looking for a T Board, may see some of you there - Probably October, although if you guys are going to a September Board, maybe I'll start there.
I can't wait to be done - two more days!!!!!!! The my focus is to regain health and strength and never look back. Of course it would help if I had hair.
hugs, Marilyn
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Hi all,
Spendygirl - you're entitled to a little whining if that's what you feel like! I agree with you - I felt bad from surgery on, but it DOES get better. This week I was finally able to sleep in my usual, comfortable position for the first time since April. It felt wonderful!
Julie and Marilyn - you're nearly there! Hang in there - it will be over with soon.
I hope everyone has a good week.
Karen
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Hi all,
Wow I have been busy with work and fatigue and haven't checked in, It is so nice to catch up. I also have found trouble dealing with the future, I find myself wondering if I should be thinking of retiring seriously??? I have been wondering if I am a little depressed at times, as I try to make sense of everything, I also find it hard to focus on other things.
I too have found some retail therapy helps, LOL. Time to look at B12, acupuncture etc....
Trish, I too am finding I am not myself, I had to come home and have a nap nearly every day my first week back even though I am only working part time, Sometimes I can push through other times, my tail is really dragging, My surgeon said it could last a year, I hope not. or is this normal?? LOL
Roseanne and Claire, thanks for the encouragement.
My "dh" had a melanoma biopsy and surgery while I was undergoing my first biopsies. I have asked him to not be so romantic, with the his and hers biopsies and than on our holiday his and hers Jellyfish stings. LOL.
Seriously though, is there a correlation in basal cell? I have had one already and don't like the way under my breast looks, though my surgeon says it is NORMAL!!!
Sonia, the China Study sounds interesting, I am going to check out some of the book recommendations.
Hang in there, hope everyone heals well
Brenda
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Hey everyone.
My skin feels like a mess with all of the lotions and gels that they gave to me, but hopefully it will help. Looking forward to Friday as my last day of rads....just a few more days.
Hope everyone is doing better and healing
Patty
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Ladies:
We are almost done....Time to celebrate big time...Ok if we have the energy that is...LOL
Patty-Can't agree more, lotion, lotion, lotion, I do like lotion but not this much...
Brenda-How is working going??? Try and stay awake if you can...:)
Marylin-Good for you, almost done and over with, I bet you are so excited you could scream...
Well after today 4 more to go, I wish it was today....
Having mom home this weekend for my Birthday, she is in a nusring home, it will be nice to have her here for a few hours, I really miss her even tho I see her 3 times per week, still miss having her here but just can't care for her like she needs. Jim is making us Fish Tacos love them.
Monday is my birthday, I will be in radiation...LOL
Hey, my Onco said I don't need a bone scan, but every other dr. said I should, what do you think??? I see him today and will question him again on this, if he still says NO, I will speak to my family Dr. regrarding this.
Ok, time to clean b-4 the Spa and work, have a great day ladies
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Does anyone ever wonder what radiation does to us? I can't find a clear answer to that question. Why would it make us tired for a year? Is it more than just trying to cook/kill our breast? Is it just the body struggling with trying to rebuild all those overheated almost dead cells? Is it worse than being in an accident that would have wounded us there? Or is it something else - like a poisoning? I know this might sound crazy, but does anybody know?
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Dear Kick.....
Not just radiation, but the whole healing process as your body has been hammered. As a point of reference, I pulled my right shoulder skiing 18 months ago. It took about 7 months to heal, just in time for BC surgery.
Brenda....wouldn't make a decision yet. Because too soon to review everything with a clear head. I took a good look at everything about three weeks ago, and need to plan out the next phase of my career, ideally doing something FT. This is because I like things like travel, good wine, gourmet food, and nice clothes.
(To say nothing about cycling and skiing costing money even when you go camping.)
Once your energy comes back up, you will be able to think more clearly.
I would wait at least two months post radiation before making any major life decisions. That was about the time I woke up one day and realized "it's over".
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One other piece of counsel I would give to anyone just finishing radiation is to EAT ENOUGH PROTEIN. You still need more than normal to rebuild.
My understanding is that radiation causes major trauma to the breast (it would need to in order to kill off any cancerous cells) so takes some time to recover. Three months after finishing, I am still swollen, but not in any pain.
I find I need less protein than a couple of months ago, but still more than I did prior to diagnosis. Really helps with energy levels.
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Thanks everyone for the good wishes. Guess what? I think the skin healing fairy visited me during the night. My skin is 80% better today! Just overnight - I'm not questioning it, I'm just thankful!
I wonder also about radiation. For what we KNOW what it does to us, I wonder what we don't know.
I'm planning to get some sort of celebratory tattoo, Anyone else?
I'm so excited for those of you who are almost done. That last day I was like a little kid with excitement!. It's so great to be done.
Ok, confession time - I am in awe of all of you who eat well. I am a terrible eater. Never learned good eating habits. I've been better since dx, but not good enough.
My onc also said no scans. Why is that? Isn't it naive to think that every cancer cell is contained within the breast (stage 1)? I often think about that.
Wow - sorry for the rambling. Since my skin is so much better today I can hardly contain myself!
Healing wishes to everyone. And thanks so much for being there throughout this journey.
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Hi all,
Kickon2it - I have wondered the same thing, and have never got a completely satisfactory answer. I've heard what others have already mentioned, but that does not completely explain why you can not have radiation to the same area ever again. It does not explain why my radiation oncologist plans on following me for FIVE YEARS.
Karen
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Hi Ladies:
Like the rest of you, NO SCANS, hummmmmmmmm....The ER dr. told me I should have a bone scan as BC likes to hit the bones. But the Onco said I don't need one, will question this again.
But today the Medical Onco I see did order a chest x-ray as I developed this cough 3 weeks after starting Radiation. I will be done next TUESDAY, can't come fast enough.
Also did anyone get nausatued (can't spell it) durning the Boosts???? Everyday I feel sick to my stomach. Plus my arm hurts like mad. Anyone else with these problems. And tired, my god I'm tired but can't sleep.
He also said I will not start any form of PILL for 4 weeks, he said to let the body rest and heal for 4 weeks before we start...THANK YOU I told him.
Ok, time to eat some toast and rest.
Sleep well everyone.
Julie
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SpendyGirl - I asked my husband if my "ink" from my radiation tatoo was enough for "street cred". He didn't think so.
I was saying on the Sept. "T" thread that he and I are thinking of going sky diving or bungee jumping in a few months to celebrate. I think am so excited to be kind of done that I feel sort of invincible.
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Hi everyone - I have ONE more in the morningand I can hardly contain myself!!! I can't wait to stop poisoning and start healing.
As for scans - I think it all depends on the lymph node involvement. If you had no lymph nodes involved, there is a fair certainty that the cancer was contained in the breast. If you had lymph node involvement, that's when you need chemo and scans. I had 3 positive nodes out of the 18 removed, so I had bone, liver, lung scans. No need for brain scans as the symptoms of brain mets would be apparent. It was a very good day when my scans were negative. Although, I think now that I'm done with surgery, chemo, and radiation, can't we do another round of scans just to be on the safe side - I will ask my onc. I'm sure it's a matter of insurance coverage. I think they were several thousands.
OK - I'm going for a walk. I'm tired as hell, but if I fall off the exercise wagon I find it harder to do the next day.
Next time I talk to you I will be DONE!!!!!!!
xo Marilyn
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Julie.....I didn't feel at all nauseated, but I did want tea with a bit of something each day. Suspectt because my energy levels were low. I was particularly fond of Walker's lemon shortbreads. I went for it.
If you can get out and do a bit of walking, you will most likely sleep better.
As for being closely monitored for 5 years, my medical oncologist is the one who will be doing that one. As my radiation oncologist is part of the same system, they monitor via my primary person. Really all about ensuring I continue to be healthy and recurrence free.
Scans are not done unless other symptoms. Most very small tumors won't show up anyway, at least not when at the microscopic level.
Again, most of you will feel much better about EVERYTHING 4-8 weeks from now. The next major hurdle is the let-down that comes after finishing active treatment. I gave myself fitness goals, so was training.
Now, I am getting the rest of my life back on track. This will happen to you too!
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Hi Everyone!
Wow! I've been reading over the posts and feel like I have been gone forever! It has been crazy here getting ready for back to school and then actually going back to school and all the running around with the kid's activities that have also started. You know, through radiation I felt pretty good, no major fatigue and I thought maybe I had avoided that SE but what I am realizing is that I don't have my usual stamina. My life has been so crazy since last Thursday and I am really struggling to physically cope! It has been very frustrating because I naively thought with the start of school, etc. I was going to magically go back to "normal" and put all of this behind me. Guess not! I usually make my kids a special back to school breakfast and had hoped to do something fun after school and I couldn't do any of it. I didn't even get "first day of school" pictures and my oldest started high school! I took one kid"s picture today and will take the other kid's pic tomorrow but it isn't quite the same.
The burning that started under may arm last week is better and I am now peeling. I am still red, swollen and sore beneath the skin but definitely it is getting better! I am even able to start thinking about putting a bra and prosthesis on (although I will probably still wait a few days).
Trish - sorry to hear that you had to deal with more cancer but glad you were able to get it taken care of. How is you fatigue?
Somnething I want to share with you all concerning skin cancer..... I went for my yearly skin check today (I had bad burns as I kid and my parents have both had pre-melanomas and basal cell carcinomas removed so I get checked every couple of years). My dermatologist said that the radiated areas of our chests are now at a greater risk of developing squamous cell carcinoma. Not necessarily soon but possibly years from now. So, make sure you regularly check that area, especially years from now. She also now wants to see me every year instead of every couple of years. Another skin cancer item I want to share (this wasn't confirmed with my dermatologist so yo may want to check with your own docs)....in my newspaper about a month ago there was an article by a dermatologist that indicated that women with BC have a 1.4 to 2.7 times increased risk of developing melonoma and if you have had a melanoma you have a 1.4 times increased risk of developing BC. Apparently there has been some research indicating a genetic link between the two. The author of the paper didn't cite her sources so I don't know if the research is sound but thought I'd pass it on since the topic has come up.
Julie - my surgeon had me get a bone scan before my surgery. While I am sure they were looking for mets, they also wanted a baseline so that they would have something to compare possible future scans to. The only follow up test that I will be getting are of course mammos on the good breast, blood tests for tumor markers and I will get another chest xray in Novemeber. They won't be doing other scans unless my blood work or some other symptom pops up. Ask whether you should have a bone scan so that you have a baseline in the event, God forbid, that you start having bone pain down the road. As for the nausea - I had a little bit during the last 5 tx's. It stopped when the treatment stopped.
Sonia - the China Study sounds interesting. I guess I will have to add that to my reading list. It seems most of the anti-cancer diet info I read promotes less meat and more veggies so they all have that in common. That is a good thing since it means they must be "on to something".
Have a good night! Kim
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Hi Everyone,
Marilyn - so excited for you!!! Congrats on being DONE tomorrow - Snoopy dance to you.
Claire - thanks for all of your advice - so thankful you stopped by our group. So good to hear from someone almost a year out.
Spendy - I'm a bad eater too - I need to work on that and more exercise. I thought the tattoo idea was a hoot! What will you get?
Karenlen and Spendy, nice to you know feel the same way about wondering what this has truly done to us. Its like no one will give you a truly straight answer on it. Online either.
Kim - sorry you are feeling the fatigue now. Mine is better, but still up and down. I almost have euphoric days and then a slow day or two - but its getting better overall for sure. Plus I am trying to ignore it. But it is just like you said, you know you don't have your usual stamina. Some evenings, I just hit a wall, know I'm done for the day and go to bed.
Thanks also for the comment about skin cancer. I think you are right. When I went for a second opinion at Duke, they mentioned it. One of my sisters had both BC and melanoma (caught early) so I'm seriously on the lookout.
Trish
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Hi everyone, nice to 'see' you all and catch up on your posts. Good to hear most of you are only a few days away from finishing up rads yippy! Hope you're last tx goes like clockwork tomorrow, Marilyn! It's such a good feeling.
I have to say, I'm spending less time everyday thinking about BC. That could be fewer people are asking how you are and checking in, etc. I guess that's a good thing.
Spendy, go for it! I wish I had the guts to get a real tattoo. Or to go skydiving like you, Chicago.
My onc said no scans. I was relieved when I was there but since I've wished I'd pushed it more to get a baseline as Kim suggests. I'm going to add that for next time. My docs want to see me every 3 months rotating between the surgeon, rad onc and med onc. I was thinking of not going to the rad onc, but likely should given the unseen damage the radiation may have done.
Keep getting your rest everyone. The skin and fatigue get better everyday, but don't push it we need the rest/sleep to rebuild.
Take care. Donna.
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Marylin-Contrats on being done, let this part of the journey be behind you...:) I'm right behind you, next TUESDAY....:)
I agree I think we all need the bone scan and I will address this again when I see him in 4 weeks when I have to start the PILL...:(
I also don't understand why I need to see the Rad Onco once done, I can see one or twice but that is about it, he really did nothing for me, each time I said "something was wrong like my cough" he said "NORMAL"....I finally asked him yesterday if that is the only word he knew...LOL Thank god my Med. Onco said "NOT NORMAL" chest x-ray....
I hope everyone has a good breast day, I know my little puppie is not happy at the moment...
Enjoy the cool weather if living in Chicago, Fall is upon us
Julie
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Hi all!
Spendygirl - I'm glad to hear your skin is improving. What kind of tattoo are you getting? I agree completely with you about feeling like it's naive to assume that the cancer cells all stayed put just because we're stage 1. I found a copy of Dr. Susan Love's Breast Book, but had to put it away because it made me so anxious. She talked about how many billions of cells were in a 1-cm tumor - it's hard to believe that at least a few of them did not escape. I now worry every time I have any ache or pain. There are several other things in the book that were less than comforting.
Chicago - Maybe we should just tell people we have several tattoos in hidden places - if they don't know they are just dots, we should get some street cred!
Marilyn - by now you should be finished - Congratulations!!!
Kim - thanks for the info on skin cancer - I too had lots of bad burns as a kid.
Julie - How funny that you asked your rad onc if "normal" was the only word he knew!
I just got home from my 2-week follow-up visit. I'm healing nicely. It was kind of weird to go two weeks without showing anyone my breast!!
Take care,
Karen
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Chicago - you made me laugh out loud when I read your street cred comment!! I could NEVER jump out of a plane, (ok, I can't get ON a plane) or bungee jump. Please let us know if you do!
Trish - I'm sure it will be some sort of pink ribbon, but not the standard. I have some ideas. If I get it, I'll post a picture. My mom died at 42 from lung cancer, I was 14. I grew up believing that I would die also at 42. So the minute I turned 43, I got a heart tattoo. It was very spontaneous, but I'm so glad I did it, just for what it means to me. So I'm pretty sure I'll do it, although my DH won't talk to me for a couple of days (he hates them), but I think I've earned it and he'll get over it, right
Karen - I asked my onc about escaped cells. He explained to me that not every escaped cell has the ability to land somewhere else and "set up house" and create another tumor. I guess that would make me feel better if I had an idea of how many might have gotten out. I think the further we get away from treatment, the less it will dominate our thoughts. That's what I'm hoping anyway. I do get a little frustrated with people who think now that I'm done with rads, I should be back to normal. Obviously rads can't compare to chemo, but it's no walk in the park. It was much tougher than I thought it would be.
I'm still basking in the joy of being done and skin healing! Can't wait till all of you are enjoying the same. Thanks everyone.
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Congratulations Marilyn - I'm so glad you're done!!! Julie, I am really glad to hear your end date is next - it is so nice to move on from the daily regime. I've been back at work and although the thoughts creep in like the ones many of you are having - I've been able to focus on other things other than cancer this week thank-fully. I found out one of my colleagues just had a tongue tumor re-occurance today and I have to say that made me feel a bit of panic - cancer is scary - I just don't want it back ever. Spendy - I have quite a few tattoos and have decided that I am going to get one to commemorate this time in my life. I wanted to get it over the scar but I've read that you are to wait 5 years before you can do that - so I'm rethinking where I may get it. Hope you are all resting and healing.
Sonia
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