taxol and neuropathy

Almost 3 years from finishing Taxol and I STILL have some numbness in my fingertips (but much improved !) and my feet are still numb, especially around the toes.  Nothing I can't live with, however.  For most people, it DOES go away, but I may have had a genetic predisposition -- my sister, who was treated for ILC a few years ahead of me, also has some residual numbness. 

My last taxol was 1/19/09 and I still have foot pain/neuropathy, most likely permanent.  So much so that my Dr. has given me a disabled parking permit. The Lyrica did help some, but the Lyrica caused weight gain, fluid retention and sore hands.

I did taxol and had to quit after 9 because the neuropathy had gotten so bad, ( my Dad has severe neuropathy permanently in his legs so we were being careful) but it cleared up after about 3 months.  I still have occasional tingling in toes but nothing worth worrying about.  If you are at 11 already you have got it made. Good luck  Annette

My last Taxol was in March or April of this year. I still have painful feet, mostly in the upper part of the foot just under the toes. It feels like this area is swollen but it never goes away. My fingers are no longer tingling or numb so that is good. I too am worried that my feet will never be the same again. Trying to buy shoes with feet like this is next to impossible! My oncology nurse said that if this were to go away that it most likely would take place 6-16 months after the chemo. Looks like I still have a ways to go. At first I missed the subtle signs of the problem and then after the sixth infusion of Taxol it became clear what the problem was. I was then switched to Taxotere but don't know if that helped or not.

I was using vitamins B6 & B12.  They seemed to help a lot with neuropathy.

Terri