April 2010 starting chemo

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  • JenC
    JenC Member Posts: 382
    edited August 2010

    Congratulations Sara on chemo completion and the big smiley face next to your name:)

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Emme - glad you are in a "safe" place.  You dont need that in your life and you will be ok.  Lots of (((((HHHHUUUUUUGGGGGSSSSSS)))))) your way..

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Emme - glad you are in a "safe" place.  You dont need that in your life and you will be ok.  Lots of (((((HHHHUUUUUUGGGGGSSSSSS)))))) your way..

  • susiesue
    susiesue Member Posts: 68
    edited August 2010

    did anbody have problems with mouth sores?  I was okay until about a week and a half ago. I am using the magic mouthwash and swish with a salt solution but it doesn't really get  better or worse. When it did get better, it was worse two days later, but during those two days I had another Taxol treatment. So, I'm wondering if it won't clear up until the end of chemo?  Any thoughts, suggestions? The good new is that Friday is my last treatment.

    Yesterday, my daughter and I went to Borders.  I always wear a baseball cap, when I got there, without thinking I took my hat off and set it on the table.  After walking around for about a half an hour I realized that I wasn't wearing a hat....my reaction-- Oh, well....., my daughter's reaction - so what......how far we have come.

    take care all..................

  • marcy4
    marcy4 Member Posts: 162
    edited August 2010

    Susiesue  - I agree. We have come a long way.  At first I thougt I would wear my wig most of the time, but I was totally wrong.  I am a ball cap and scarf lady.  My kids don't care either if their friends see me bald and that is so amazing since one of my biggest concerns in the beginning was would they feel embarrassed, but they are so used to it that all they see is Mom and their friends never even take a second look. 

    Emme  -  It is good to hear from you.  Remember whenever you are feeling low, that you have a lot of good friends and support here.  Best wishes.

  • shygal
    shygal Member Posts: 89
    edited August 2010

    Emme, so sorry you're going through this on top of everything else.  I'm sending ((hugs)) your way.  Hang in there.

  • shygal
    shygal Member Posts: 89
    edited August 2010

    Emme, so sorry you're going through this on top of everything else.  I'm sending ((hugs)) your way.  Hang in there.

  • JenC
    JenC Member Posts: 382
    edited August 2010

    So, just had a consult with the radiologist today and was told that after chemo I will have to have 28 rounds of rads.  I was soooo hoping that they would say I did not have to have rads.  I know that it is supposed to be way easier than any of the chemo but I was looking forward to being done by mid October now looks like mid December.  It keeps going and going and going.  Of course we had to be at the radiologist 15 minutes early to fill out paperwork and then wait 45 minutes past our appointment time to see the doctor which urked me in the first place, like we all have nothing better to do than to wait for the doctors to give us more crappy news right. 

    Sorry, just having one of those days and needed to vent a little.  Hope you all are having a good day.  (HUGS) to all that need them:)

  • Emme
    Emme Member Posts: 205
    edited August 2010

    Thank you all for the support.  Im putting one foot infront of the other...

    Em

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    Emme - Good luck and glad you are in a safe place for yourself and your children. You need to take care of you right now! We are here for you! Hugs!!

    Jen - Oh Man!! Sorry to hear about the rads but, we do what we have to in order to stop this from coming back!! You are strong and will get through it and December will be here before you know it. I am waiting for Sept. 20th and can't believe that these 6 months will have gone by soo fast overall!

    So is there anyone still on this forum that is going through chemo treatments, or am I the last? Just wondering!

    School inservices are back in full swing and next week Wed. will start the school yr off! I am ready, hear me roar!! ;-)

    Hugs to all - have a great Friday!!

    Kelli

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Kelli - Do you have to do rads after your chemo?  I think i was just in shock and then today my onc tells me 'thats what i expected"  well no jerk, you told me "probably not"  I dont get them it seems like they have no clue most of the time.  anyway.   I have 7 more Taxol to go before I start the rads so I am still in the chemo group with you:)

     Had a great dinner at the olive garden with the family, now off to bed.  Have a great night everyone.

    Jen

  • marcy4
    marcy4 Member Posts: 162
    edited August 2010

    Kelli and Jen -  I am still in Chemo too. 4 more Taxols to go and then 6 weeks of RADS.  I guess someone has to be the last for the group.  Don't think my RADS will start until end of Oct.  Looking forward to being done by Christmas.

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Maryc4 - me to.  At least we can look forward to Christmas my favorite time of year:)

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    JenC - No rads for me at least thats what my onc says now! Will see at the end of chemo - Sept. 20th!! I can't wait!! Yes we are pulling up the rear!!

    Christmas will be a good time for us all! Except thats when I plan to have my exchange surgery so I don't have to take off too many days from work!! But that should be a nice present!!

    Kelli

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    Kelli- I have one more chemo session on Sept 15th. Then rads for I think five weeks.

    Lee

  • susiesue
    susiesue Member Posts: 68
    edited August 2010
    I just got home from my last Taxol (#12).  Yeah! I'm done with chemo, could I have a smiley face please..........I hugged all of the oncology nurses , told them how much they helped me and then (of course) cried.
  • marcy4
    marcy4 Member Posts: 162
    edited August 2010

    Susiesue - Congratulations on being done Chemo!  I know just thinking about the end makes me want to cry tears of joy too. 

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Susiesue - Congratulations on your finish.  You must feel like a million bucks.  I am the same as Susiesue thinking about the end makes me want to cry to.  Just knowing that it will be done bring joy. 

    Jen

  • Char2010
    Char2010 Member Posts: 532
    edited August 2010

    Hello Ladies - I finished chemo June 18th and started rads July 14th.  Today was my final, 33rd, rad treatment.  I know this is the chemo site but since so many of you have been writing about the saddness you feel I thought I would add that I have been "marching" throught all of this like a "trooper" - or at least that is what everyone tells me.  Well, today after my last treatment I was in the changing room putting my clothes on and crying - I think it was all that pent-up stress.  I am tired, scared, and want my hair back.  Thank you for letting me vent a bit.

  • caltex_catlady
    caltex_catlady Member Posts: 136
    edited August 2010

    Char2010: Congrats on finishing your rads. It seems like every time we finish a stage, there's some emotional stress. I look forward to finishing my rads on Sept. 30, but I bet I'll have a similar reaction to yours.

    I think if my hair would magically come back right after treatment is over, I'd feel a lot better.

    Karen

  • saralmom
    saralmom Member Posts: 329
    edited August 2010

    Gosh, I was so excited to finish chemo - and now I'm so envious of those of you who are finishing rads!  I go for my simulation Monday am and will start rads on 9/14.  So, done by the end of October.  Seems so close and so far away.  I'm with Karen - I would feel alot better if I could just have my hair back.  And my nails back to normal (am now on an antiobiotic b/c of the many nails that infected and oozing - soooooo gross).

    Sara 

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Hi everyone.  Hope you are all having a good weekend.  I just had to say that I had a great day at Canobie lake with my mother's work, my husband, son and one of my sons friends (both 5 yrs old) it was so great to be outside, feeling good and doing something.  I am sure I will pay for it in the next few days with the soreness after the taxol but no pain today was a good day.  Thinking of you all and wishing SE free weekend and congratulations to all that are finishing chemo.  it has been a year for all of us.  Thank you to all of you for your support, encouragement and thoughts.  ((((HHHHHUUUUUGGGGSSSS)))))))  to all.

    Jen

  • shygal
    shygal Member Posts: 89
    edited August 2010

    Hi everyone.  Just thought I'd let you know that I went and coloured my very short hair.  I couldn't take the salt and pepper gray and put in a dark blond no-ammonia colour.  It actually looks a lot better and people are telling me to start going without the wig.  Not sure I'm ready yet but I'm definitely getting closer.  I'm 11 weeks PFC now and think that maybe in another week or 2, I'll go ditch the wig.  Finally something positive to celebrate about.

    My hot flashes have been getting worse since it's gotten quite warm again and I've decided to try acupuncture to see if that helps at all.  Some women have reported great success with it, so I'm hoping that I see an improvement.  They are ruining my sleep.  I'll report back after I've had a few sessions.  I start my Rads this coming Thursday.

    Susiesue so happy that you're now finished chemo as well.  For those of you who are finishing up chemo over the next few months...we'll still be here cheering you on until all of us are done.

    Hang in there.  

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    susiesue - Congratulations on finishing Chemo! Yeah!

    Char2010 - Congrats to you also for getting everything done and over with!

    I think we will all feel emotional after we are done with this whole time of our life!!

    saralmom - Hang in there - you are getting it all done! Hope those nails recover fast for you!

    shygal - so I have got to ask you are 11 wks PFC but how long is the hair that you were able to color it?? I am sooo jealous!!

    Yes I too wish that my hair would just magically return. It is soo hard going out - just tired of wearing the wig or a scarf/hat.

    LeeInVegas - You are getting there too - almost done!

    Tomorrow is #9 Taxol for me and my first full week back to work/school - not including tomorrow afternoon for the treatment! After tomorrow only 3 left! Yeah!

    Take care,

    Kelli

  • shygal
    shygal Member Posts: 89
    edited August 2010
    Kad22....well I guess my hair is about an 1/2 inch long but it's not sticky up straight as I had expected.  It is laying down flat which is annoying.  I'd like it to be at least an inch long and perferrably an 1-1/2" long before I go without my wig, but I'm getting impatient.  I was at a baby shower yesterday with just family and I yanked the wig off after I was having another hot flash.  There are some pictures of me without my wig (which I didn't approve) so maybe if I get brave, I'll post one. 
  • Char2010
    Char2010 Member Posts: 532
    edited August 2010

    Shygirl - I would love to see a picture.  My last chemo treatment was on 6/18 - so about ten weeks out now and hair is very, very short - probably .5 inch long in the back and on the sides but not on top.

  • arubajan05
    arubajan05 Member Posts: 140
    edited August 2010

    Shygal,  Let me know if you go see an acupuncturist (sp?)... My onc recommended it too because I am having terrrible hotflashes. Like clockwork, every 2 hours at night.  At rads this week they asked if I was experiencing fatigue from the rads. I said, "I am exhausted, but not sure it's the rads, could be the HOTFLASHES!"...arghhhh.... 

    Well, hope everyone has a great week.  This week I will mark halfway through rads. 

    Oh, and does anyone get itchiness and hives from chemo still... now that I am on tamoxifen I can't take benedryl and it is getting annoying....

    Kad22, Don't overdue it this week at school.  But enjoy getting back to something "normal"!  :)

    (((Hugs to all!)))

  • Emme
    Emme Member Posts: 205
    edited August 2010

    I'm in the hospital...I woke up this morning with a fever. 101.9.  I have leisions on my legs...they think perhaps this might be a staph infection.  My chest is bright red.  I am so worried they will hav to take the TE out. I am praying the antibiotics work.  Tomorrow the surgeon will some in and I will see what he thinks.  All this and I was suppposed to get my last fill tomorrow.  Hummm....

  • shells43
    shells43 Member Posts: 1,022
    edited August 2010

    Hi All,

    I'm back from NC, looks like I've missed a lot of good news and some bad news. Sorry Emme for things going from bad to worse. Blessings on you.

    Congrats to everyone who has finished and hugs to those seeing the light at the end of the tunnel. It is NOT a train! :) It's been 2 1/2 weeks since my last chemo and I feel pretty good. Still a little tired, but otherwise feeling good and optimistic. Hoping my hair will start coming in soon.

    Have to tell a quick story about taking my daughter to college. Met another BC woman in line at the college bookstore. We saw each other immediately and had a 10 minute chat while we were checking out. I know people must have thought we were crazy discussing our mastectomies and hair, being complete strangers.  She finished chemo in may and had about 3/4 of an inch of cute reddish hair. She finished radiation last month and said Mepilex pads saved her from severe pain after blistering. Just thought I'd share this since many of us are headed that way. She said they stick to your blisters and make a layer between the blister and your clothes so you can get dressed and function easily. The Rad Onc can write a prescription for these.

    Hope everyone has a great week!

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Emme.  Sorry to hear about your infection.  Hope all goes well tomorrow and they dont have to take the TE out.  Thinking of you.  (HUGS)

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