stupid things people say...

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laurakay
laurakay Member Posts: 109
stupid things people say...

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  • laurakay
    laurakay Member Posts: 109
    edited March 2010

    I thought we might start a funny topic...well, not that funny.  In line at Wendy's today, saw a woman I know (sort of) who had heard about my DCIS, threw her arms around me, started weeping, and said, "You'll feel better if you don't believe God sent this disease to you..."

    Um, thanks, but that hadn't really crossed my mind...yet...In fact, today was the first day I was feeling pretty good in a long time UNTIL NOW! 

  • mom3band1g
    mom3band1g Member Posts: 817
    edited March 2010

    Ha, love it!  That actually made me laugh, so thanks.

    We just moved so we don't really know anyone here....I think I'm glad!  The only thing I hate is when I hear "you don't really have cancer".  Um, really?  How about you go for the mast for me then, OK?

  • laurakay
    laurakay Member Posts: 109
    edited March 2010

    I can totally understand your feeling about not wanting people to say it's not cancer.  I feel that way about OTHER people, but to myself I keep whispering pre-cancer, pre-cancer, pre-cancer...It just sounds way better in my head:

    If you'll indulge me, after the woman at Wendy's said this about God, I said something like, "Well, you know, I'll hopefully be just fine" (keep in mind my son was about five feet away) and she said, I KID YOU NOT, "Yes, I'm sure, but I've thought that about people before, and it turned out badly..."

    I was thinking that maybe SHE'S the one who needs some serious medical intervention here--like a personality mastectomy... 

  • JAT
    JAT Member Posts: 81
    edited March 2010

    I have to add my two cents about the pre-cancer comment. I just had my regular 6 month check-up with my oncologist today. Usually she is quite good, listens to all my concerns, etc. but today her medical student came in to talk to me first-- after telling me "Well, you look good" 3x-- to which I said, "I looked good when I was diagnosed, too, but I still had cancer" -- he says, "well, you had pre-cancer" to which I replied, "Please do not call it that-- it was pre-invasive cancer but still cancer-- that's why I had a double mastectomy."  Then he told me I looked good again!  So when I apologized  for chewing him out, the oncologist says, "well, we are thinking of re-classifying DCIS because we seem to be overtreating it"-- So, I asked, at what point are we supposed to take action since you can't tell when it becomes invasive or not-- and will you only take me seriously when I get a recurrence that's invasive?"-- "Well, that won't happen to you"--  While I pray she is right, I always point point out that someone falls into that 2%, so don't tell me I was over-treated because I have to live in this body now and I didn't have a choice about the mastectomy, according to my BS and pathology report.

    Anyway, that's my rant-- when the doctors say stupid things it makes it much worse. Everyone else I can just write off as insensitive or stupid-- but clearly doctors can be both.-- JAT

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    JAT you are soooo much more patient than I am because if my doctor had said something so stupid, I'd have thrown something at him!!!!!  And honestly, how dare your oncologist tell a woman who has gone through a double mastectomy that its "overtreated"? 

    wait a minute, is that an admission on the part of the doctor?  Can you sue and get lots of money????? grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr.

    I had one person tell me ---as I was trying to deal with a recommendation of mastectomy or partial mastectomy--that DCIS wasn't even real cancer and that I didn't have to do anything.  The kicker of it was that she had had DCIS herself 10 years ago?!?!?!!?  how messed up is that?  As my husband and therapist said, maybe thats how she deals with it, by telling herself its not cancer but then if I have it and I have breast cancer, her illusion is shattered.  Suffice to say, she and I don't talk about my "cancer."

  • PB22
    PB22 Member Posts: 315
    edited March 2010

    I just had my 3 month visit and was told that I was "cured" and that the onc came back from convention where they apparently discussed the DCIS, hormonal pos., node neg. having a very good outcome etc. etc.  Even with being told that, Its the treatment that lingers over you. I am post bmx, and feeling the SE from the arimidex and its feels like everyone can move beyond this except for me who is still recuperating from the surg and dealing with SE for the next five years.  So whether its precancer or cancer thats cured, its the treatments that  make it real everyday.  My other rant is that at that visit was told that my DCIS doesn't have the mechanism to mets, and its like 2-3 mutations away from doing that, then what is that suppose to mean. It was already multi focal, so doesn't that tell you its on the move. So what you don't treat it, that it will never spread or do you wait for something to trigger the mutations.  My non cancer side did show in final path hyperplasia atypia and I look at that as something that would convert to something later and even though I was proactive, I still consider that being cancerious as well or I wouldn't be removing a breast for nothing.  

    About the original post of the lady's comment in Wendy's, must be the same ignorant nonsense that feels that God gave HIV to people.

  • iHEARTu
    iHEARTu Member Posts: 213
    edited March 2010

    Laura - Here is my 'stupid things people say...
    I was in the 'waiting' room after my 1st mammo and at that point, I wasn't told my micro-calcifications were almost 100% cancer. The older woman sitting next to me asked who my oncologist was? I said, 'Um, I don't...or I'm not sure if I need one'? Then she asked me, "Well then, who is your surgeon"? ..."Ahh, I don't have one, I think..."

    Then there is the one when you tell someone you don't need chemo or radiation, "Oh, you're so lucky!"

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    OMG LAURA, I CRACKED UP WHEN I READ YOUR POST. THOUGH NOT FUNNY-MAYBE ONLY TO THOSE OF US WHO ARE STUCK WITH THIS GOWDAWFUL DISEASE AND ARE A BIT TWISTED TO BOOT. i got news today too-like both the girls likely have to go if i want a long life and/or (PERHAPS) you will probably die of something else before the cancer gets you. This is from my new onc-i have run thru a few of them. what i am hearing from old friends "you'll make the right decision.' WTF-if I could do that I would need a gazillion specialists who try to treat BC. my head is still spinng from the stats thrown at me and then there was something about "do I want a good running mercedes or a ferrari?" from my onc-huh? I want the f-ing ferrari!! is anyone confused about this. but apparently that is the wrong choice-i need to change parts and stick with the mercedes-sort of what i got out of a three hour onc visit. WTF? I don't drink, I don't smoke, i don't do drugs (anymore-like in 21 years) what is left? ((HUGS TO ALL)) SV

  • hollyann
    hollyann Member Posts: 2,992
    edited March 2010

    Sv, if your tumor was 1 cm then why stage 2A?.....Mine was 1.6 cm no nodes out of 6......Just curious.....

  • mocame
    mocame Member Posts: 669
    edited March 2010

    Someone I know was just diagnosed with colon cancer.  She told a friend that she wished she would've got breast cancer instead because at least she would've got great boobs! 

    I didn't find it too funny.  I went through a lot of tests, operations, procedures, and a lot of pain.  Yes they look pretty good with clothes on, but I would take my old droopy originals any day!

  • iHEARTu
    iHEARTu Member Posts: 213
    edited April 2010

    I just had a friend of mine ask me if I had a bra on...she said how lucky I was to not have to wear one anymore.......

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    I had a good friend tell me that she couldn't wait to get to heaven!  How exciting it was going to be. 

    Hmm...wait till a Dr tells you that you have stage IV cancer and THEN say how exciting it will be!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    I can totally relate to all these stories and more!  I swear cancer brings out the moron in people.  My story is when I told my friend (who I thought was my BFF) that I had DCIS and was trying to decide between lumpectomy with radiation or mastectomy and how upset I was she said, and I quote, "I don't know why you're so upset.  It's not like this is going to kill you or anything."  The best part?  This is a friend that I have had to baby and support for six months because she had some filler put in her lips and had a bad reaction to it.  Her other comment was that I should look on the bright side.  I was getting a free boob job.  Unfrickin' believable.  The icing on the cake is she has only come to see me once since my mastectomy and stayed only 5 minutes.  

    My husband and I now use her insensitivity when times are tough, bad pain days, etc.  We look at each other and smile and say, "Well, it's not like it's going to kill you or anything!" 

  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited April 2010

    I dropped a friend of 35 years when she told me that my doctors were all wrong and that DCIS would metasticise to my brain and colon and lungs.  When I told her how highly recommended my medical, and radiation oncologists and my breast surgeon are and that I am seeing each one every six months for 10 years she assured me that even good doctors mistreat and misdiagnose patients.  Thanks!  So I'm supposed to drive myself nuts with worrying and that will prevent reoccurance. I think not.

    Actually I told her that since I have sex 5 to 7 times a week that it prevents reoccurance per my physicians. .  Since I am 67 and my husband is 73 this is LOL.   You should have seen her jaw drop!  At least I had the last word before I dropped her.  But I am still seething from her insensativity.

  • anghub
    anghub Member Posts: 45
    edited April 2010

    Kate33- I would SO LOVE to reference your post on my facebook page as to the "stupid things people say" but I wouldn't do it without your permission.

  • hymil
    hymil Member Posts: 826
    edited April 2010
    Flying Dutchess that is a superb comeback, i must get using it... i'm single and some of my so-called friends would explode at the thought!  Laughing
  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited April 2010
    Flyingdutchess: You I like. What an awesome, awesome response - if it comes up, I'll use it myself.
  • mom3band1g
    mom3band1g Member Posts: 817
    edited April 2010

    flyingdutchess- you are my new idol!  That is awesome!

  • anghub
    anghub Member Posts: 45
    edited April 2010
    Flyingdutchess - I have to agree with mom3bad1g. You are my new idol too!  Smile
  • sweatyspice
    sweatyspice Member Posts: 922
    edited April 2010

    I wonder if I could use a variation of that line to pick up guys....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    anghub-

    You definitely have my permission to post on Facebook!  My ex-bff (and I) are also on Facebook.  If only there was some way for her to see her insensitivity printed for all to see.  She's so clueless she probably wouldn't even recognize her own words! :)

    Feels good to vent sometimes, though!  

  • AmyD
    AmyD Member Posts: 75
    edited April 2010

    Hasn't anyone ever taken an etiquette class??  That's what I want to say to people who say dumb things.  

    I used to work with someone (a physician), a long time ago, and in looking at recent pictures, she has apparently "grown" a couple of sizes in the chest, and I suspect she has had a breast augmentation for cosmetic reasons.  When she found out I had had a mastectomy, she said, "well, at least you can get that 'new pair' you've always wanted."  Funny thing is I never said I wanted a 'new pair" to begin with!   

  • Anne068
    Anne068 Member Posts: 176
    edited August 2010

    People say that to me all the time .. "now you can get the size you want!"

    Ummm...was there something wrong with my "old" size? I know I never complained, I was quite content with them!

  • NSWTD
    NSWTD Member Posts: 210
    edited September 2010

    All of these posts confirms for me my decision to only tell a few close friends.  No one at work knows and not even some of my family.  I told my sisters who may be at risk, everyone else is not a close enough relative to make any difference. My mother was an only child, so not too much family around at all.  

    The reason I chose not to tell many people is that I did not want anyone's pity and I did not want to hear the endless stories my SIL tells me she gets about every Tom/Dick/Harry/mother/father/sister/brother/aunt/uncle/neighbor/etc.etc.etc of "anyone" she might run into.  I could never hear it all again and again and again.  

    I have come here instead and have found a wonderful group of women to share with.  

    Thank you all

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