dr Cristofanelli

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meena1
meena1 Member Posts: 16
edited June 2014 in IBC (Inflammatory Breast Cancer)

I was diagnosed with IBC on July 7, 2008 and i have had a reoccurance.   I have an appointment today with Dr Massimo Crisofanelli who was at MD Anderson in Houston.  He is a specialist in IBC.  Just wondering if anyone has seen him or heard of him.  I have a large tumor in my liver and bone mets.  i have been in treatment since june 10 with Taxol and Herceptin, i have been responding well, but just going to him for a second opionion.   

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  • meena1
    meena1 Member Posts: 16
    edited August 2010

    any input on him would be very helpful.  I just got back from seeing him and i like him, he is very aggressive and i would like to know everyone did under his care.  Please, Please post if you know him

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  • germangal
    germangal Member Posts: 97
    edited August 2010

    See my post on your other list, Meena .

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  • lorieg
    lorieg Member Posts: 802
    edited August 2010

    Yes, we all "know" Dr. C.  He is the leading expert on IBC.  You are in good hands!  Best of luck to you!  Hugs.

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  • jcjablon
    jcjablon Member Posts: 1
    edited August 2010

    Hi Meena,

     I saw Dr. C for a consultation back in June and I liked him very much. If my insurance covered it, I would probably go out to see him more often! I'm currently following a plan set up by him that involved Xeloda during radiation, Zometa and I'll be continuing on the Xeloda after I heal from radiation.

     I went to see him after thinking my local onc was not being aggressive enough and am content with my new plan of action, and I'm doing well.

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  • meena1
    meena1 Member Posts: 16
    edited August 2010

    Thank you ladies!  I will be seeing Dr C again on September.  Pet scan tomorrow and MRIs on Monday.  

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  • VTmomofsurvivor
    VTmomofsurvivor Member Posts: 8
    edited December 2011

    My 34 yr old daughter with stage iv IBC just came back from a second opinion with Dr. C. Her assessment is that he is wonderful and that if fox chase would accept her state insurance, she would drive the  6 hrs for treatment with him without a second thought. He stated she needed much more aggressive treatment than what she is receiving at dana farber. We are currently trying to set up a new oncologist closer to home that will work in consult with Dr. C.  You are very fortunate to be able to have him treat you.

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  • Nel138281
    Nel138281 Member Posts: 2,124
    edited December 2011

    VTmomofsurvivior

    I too am being seen at Dana Farber/Faulkner.  I am in my first round of  chemo with surgery scheduled for Feb. I have stage 3  B IBC.  I am alwyas thinking that I should get a second opinion, but I am at Dana Farbeer and don't they know everything?  Perhaps not. If yiu don't mind what treatment has your daughter had and what are they recommending.

     I wish your daughter the best on her journey.

    Thanks

    Nel

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited December 2011

    I've heard that Dr. C is the best with ibc.  I'm on the west coast and found a wonderful onc here.  You are in good hands.

    Terri

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