Rads - What to expect?

Options
Rads - What to expect?

Comments

  • brat352
    brat352 Member Posts: 41
    edited August 2010

    Just finished Chemo (YEAH!), but will start rads in about one month (daily for 6 - 7 weeks).  Can anyone give me an idea of what to expect? 

    What are side effects?
    Are they better/worse than chemo?

    I got so tired from the chemo and want to know if this is also going to affect my ability to work, get things done at home (I live alone), etc.

    Any advice is GREATLY appreciated!

    Deb

  • jsmiley60
    jsmiley60 Member Posts: 204
    edited August 2010

    Brat: I'll be starting rads the end of this month or early September.......I got on the August rads thread to get info there. Maybe oneof us can start a September rads thread soon.

  • jsmiley60
    jsmiley60 Member Posts: 204
    edited August 2010

    Brat: I'll be starting rads the end of this month or early September.......I got on the August rads thread to get info there. Maybe oneof us can start a September rads thread soon.

  • j414
    j414 Member Posts: 321
    edited August 2010

    Deb,

    Compared to chemo, rads will be a breeze. The two major side effects are feeling tired and skin irritation. Feeling tired usally kicks in toward the end (after 4-5 weeks) and will last for a couple of weeks after you complete therapy. However, a little extra sleep will do the trick because it's not a persistent fatigue, but rather like you just didn't get enough sleep the night before.  I worked every day and could have taken off time if I needed to, but I always felt fine.  I was also working fairly late almost every night, but just got some extra sleep on the weekend and that worked. The skin irritation is similar to a sunburn.  I am very fair skinned, so I was very red and swollen by the third week, but I moisturized multiple times throughout the day and used an ice pack (not directly on my skin, but over my clothes) througout the day and both symptoms were very manageable. The redness and swelling completely subsided within two weeks of my last rads appointment.

    Re: what you should expect - rads is basically a twenty to thirty second x-ray. I had two x-rays and was in-and-out of my appointment within 15 minutes.  The most time consuming aspect of rads was the techinician getting me into position - that took ten minutes.

    There are a couple of threads on bc.org discussing different moisturizers to use during rads - check them out because it's really important that your skin stays lubricated and healthy. 

    You or Jeanne should start a september rads thread - it will be very helpful to compare notes with others for the 6-7 weeks that you're both going through this. Best of luck to both of you - you're in the home stretch and it will all be cover in a couple of weeks.  

    J

  • jancie
    jancie Member Posts: 2,631
    edited August 2010

    I suffered major fatigue on rads.  It was cummulative.  The further into treatment the more I was sleeping.  By week #3 I was sleeping 14 hours a day.  Not everyone responds like this but if you do, don't be worried.  Get sleep while you can.

    I used aquaphor at night time and used aloe vera gel during the day - I would put it on right after rad treatment.  I am fair skinned.  I burned but never got so bad to where I peeled or blistered.  The important thing about aloe vera gel is to get the natural stuff that actually looks brown.  Most of the ones you find at Target, etc. have drying agents in them and what you need more than anything is moisterizing the skin.

    Compared to the SE's of chemo - much easier for me.  I did get tired of having my daily life planned out for 6 weeks even though the facility was only 10 minutes away - I was ready to stop at week #5 just because it got so old going day after day after day and you end up scheduling your days around your rad treatment.

    What is nice is that at our facility, once you set a certain appt time during the day, you kept the same time throughout the course of treatment.  I met with my radiologist 1x per week.  Other than that, it took me no more than 10 minutes to get in and out - most of the time was spent changing my clothes.

  • bubbalu
    bubbalu Member Posts: 177
    edited August 2010

    Hi Ladies:  New to this post but I've been reading.  I have a frustrating situation and wondered if any of you have experienced this.  I was supposed to start rads the day after my simulation but I woke with a rash on my neck and was put on hold for rads and given prednisone for 9 days.  After the 4 day waiting period and the rash had cleared up I started rads.  I got 4 done and woke with a terrible burn/rash just below my chin down to just above my breast area.  Went early, showed it to the rad onc and he has no idea what it is or what's causing it.  That was 3 days ago and it's still flaming red and burning and has spread to the other side of my neck/chest area.  They are not radiating the area where the rash is, so he says.  The nurse says this is radiation dermatitis and they expect this to happen about halfway through txs and gave me XClair (script) creme.

    He wants to see me on the table to double check everything they are doing on Wed.  I had chemo from Jan to June, followed by a modified radical mx on the left side on July 8 and was to start radiation on mid August.  I was slathering with Eucerin 3-4 times a day before all this. 

    I need this radiation as I am triple negative and it's my insurance policy!!!  Anyone have or hear of similar experiences?

     Isn't this supposed to happen in the area that's radiated?  and later in the txs?

  • doggylover
    doggylover Member Posts: 17
    edited September 2010

    Deb,

    Thank you so much.  I just had my last infusion Monday and I'm starting rad soon.  I'm hoping my experience is as breezy as you described it.  And Jancie, I'm going to use aquafor and aloe vera. Thanks.

    Lisa

Categories