help with vit D levels

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  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited August 2010

    I got mine at Whole Foods. It's Carlsons brand, and mine has 2,000 IU per drop. So, some days I get 4,000, some 6,000, depending on how quickly I can untip the bottle!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2010

    Thanks!  The nearest Whole Foods is 96 miles away,  I'll have to see if the local health food store will get some for me. 

  • Nan56143
    Nan56143 Member Posts: 349
    edited August 2010
  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Calcium, Vitamin D3 and Magnesium should all be taken in the proper amounts.  I agree this study is flawed because many doctors only recommend calcium.  They have not been trained in nutrition and may not realize that calcium alone is not a solution.

    I just looked up calcium, magnesium, vitamin d3 on PubMed and found this abstract.  For years I have been taking calcium suplements without knowing the importance of magnesium.  I wish I had known this.

    Does a higher ratio of serum calcium to magnesium increase the risk for postmenopausal breast cancer?

    http://www.ncbi.nlm.nih.gov/pubmed/20371155

    Department of Internal Medicine, University of North Dakota School of Medicine and Health Sciences, Fargo, ND 58102, USA.

    Abstract

    Breast cancer is the most commonly diagnosed cancer among United States (US) women. Established risk factors explain only about 13% of breast cancer incidence among women in the US. Thus, the cause of most cases of breast cancer remains unknown. In postmenopausal women, serum calcium (Ca) and serum magnesium (Mg) play an important role in skeletal health, cell proliferation and cancer. Mg is essential for DNA duplication and repair and Mg deficiency favors DNA mutations leading to carcinogenesis...  Thus a high serum Ca/Mg ratio is more appropriate and alterations in this ratio could lead to increased development of new and recurrent breast cancer.

  • Makratz
    Makratz Member Posts: 12,678
    edited August 2010

    Hi JO,

    I did the D2 for 8 weeks and my level went from 19 to 37.  Dr. was happy with that and told me to take 1000 IU's a day.  I took 5,000 IU's daily because I was not happy with the 37.  I was tested 2 months later and my level was 35!! You need to play around and find out what works best for you.  For me, I stopped taking the D3 for June, July and Aug, (Excpet whats in my multivitamin) because I am in the sun all day with the kids.  I don't burn so I seldom use sun block.  I did buy the 50,000 IU's of D3 OTC for the winter and will continue on them when summer fades (so sad!).  Best of luck to you.  I'm curious to see what your numbers will be!

    Linda

  • juli0212
    juli0212 Member Posts: 1,415
    edited August 2010

    JO--when does your doctor want you to be retested for your vitamin d level?  I finished my 12 weeks of the 50,000ius of D2 last Wed., and my endocrinologist wants me tested Sept. 8th.

    I don't have high hopes that the D2 will have increased my vitamin d levels, and will have a very long frank discussion with him when levels come back.  It also affects my calcium/parathyroid levels as I have primary hyperparathyroidism as well.  Can't take calcium supplements.  I had taken 1000ius of vitamin d3 daily and became quite deficient.

    I also would be interested in the liquid form of vitamin d3...will look for that, thanks all!   ~juli

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    That was you??? Surprised

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited August 2010

    Jo-5

    Just wanted to tell you that I have been the one INSIDE,with a fan and cold drink for a long time! I live in Texas, and you normally would not find me outside during the daylight hours in the summer months EVER.

    HOWEVER, since starting Vitamin D supplementation, I can *strangely* bear the heat now.  I first mentioned it to my husband when we were out gardening at around 10:00am in June. Now that we're in full-fleged summer heat (well over 100 degrees!), I still routinely stay outside until around 10:30am. Strange how that has happened, since it literally used to make me feel ill.

    Just another good SE, I suppose. Cool 

    p.s. Have I told you lately how much I love Vitamin D???

  • coonie
    coonie Member Posts: 7,618
    edited August 2010

    Hi Jo and everyone else!

    Assome of you know, my bone density test showed I had quite a bit of bone loss. And....my calcium is down to 24 (whatever that means) My onc prescribed 50,000 IU 1x weekly, and 2,000 per day. then the secon month he told me to take the 50,000 for one month and 2,000 daily.

    So.....here's my question. My feet feel broken----especially when I get out of the bed in the mornings, or sitting too long. Also, my hands and knees do the same thing. Terrible pain......"like something might be broke kinda pain".

    So, could it be the Arimidex causing these horrible SE's or do you think it could be my vitamin D is still low. I go to see the onc on the 20, so I'm anxious to hear what he says.

    I 'm just so ready to start feeling like my old bubbly self....lots of energy.....always doing something.

    cancer sure is a BOOTFACE!.......Sorry who I stole that from, but I thought it's a perfect description of what he's done to us!

    (((((((((((hugs ladies)))))))))))) thank you for reading this lengthy post.

  • Makratz
    Makratz Member Posts: 12,678
    edited August 2010

    (((Coonie)))

    I'm curious to hear what your levels are as well.  Best of luck to you.  Please let us know and hopefully with adequate vitamin D levels, you will start to feel better. 

    I'm sure a lot of your pain can be from Armidex, so many people have that side effect.  I'm on Tamox and I know I feel old!!!

    Hang in there!

  • coonie
    coonie Member Posts: 7,618
    edited August 2010

    also, I was wondering if getting out in the sun when your vitd deficient could cause stomach problems.........getting too hot, too much sun...etc.

    I've had so many tummy probems a never thought it could be from getting too hot.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2010

    coonie--tummy troubles can come from the heat, and from the arimidex.  Stomach problems aren't one of the most common side effects, but it can and does happen.  Try one of the over the counter stomach medicines like Prilosec and see if it makes a difference.  Just don't stay on it longer than the recommended time because those medications cause bone loss, too.  Gotta love chemically induced menopause!

  • coonie
    coonie Member Posts: 7,618
    edited August 2010

    Thanks Mak, Jo and Native

    I'm kinda thinking Arimidex is causing most of my ailments. I've still got a long way to go though. I sure hope I can hold out that long......hehe.........May, 2013!!!! Whew!!

    Native - does Prilosec help with nausea and vomiting? I've taken it occasionally for heartburn/indegestion, but I really don't suffer from that too much. It's mostly just all of a sudden I get nauseated, throw up....then feel better. Or...........I've had 2 episodes where the vomiting lasted a week....ended up in the hospital one of those weeks because I was dehydrated.

    Jo----I hate to say this, but I probably DO need to quit coffee and chocolate and spicy foods. In other words.........eat lettuce!!!!! LOLOL

    I'm only 47 years old and I get around like my grandmother used to. I promise!!! When I first wake up in the mornings, I have to hold on to something for my first 10 steps or so.

    uuughghhhhhh just gotta love all the gifts BC keeps giving!

    So glad I have you sistahs who understand and know what it feels like! REALLY feels like!!!

    ((((((((((((((((((big hugs to ya all)))))))))))))))))

  • weety
    weety Member Posts: 1,163
    edited August 2010

    I was at 34 back in March.  Took 5,000 D3 daily and just got my updated results.  After 4 months on the D3, I'm up to 57.  Should I continue with the 5000mg/day or cut that in half or do every other day???

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2010

    Prilosec can help with nausea and vomiting, but Reglan (metoclopramide) is better for that. I'm pretty sure that is available OTC, too.  

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    I have just been retested for Vitamin D and thought you would find the results interesting.

    I began with a level of 22ng/ml.  It went up to 32ng/ml after three rounds of 50,000 IU of D2.  The doctor switched me to D3 and I was at 54ng/ml after 6 months on 4800 IU of D3 daily.  I decided to reduce my intake to 3800 IU and check to see if I held steady.  I had been gardening a lot and though the sun would make up the difference.  The result I received today showed my level had dropped to 45.  Needless to say, I am going back to 4800 IU per day.

    Everyone has a different response to Vitamin D supplementation so be sure to get regular testing until your levels stabilize.  Don't forget your calcium and magnesium.

  • juli0212
    juli0212 Member Posts: 1,415
    edited August 2010

    notself:  Yes, that was interesting, thank you for posting your results.  I finished my 50,000ius a couple weeks ago, and my endocrinologist wants me tested Sept. 8th, with NO TAKING any vitamin d between then and testing.  I believe, as you show, that my levels will not increase that much either on the D2.  I will talk to my endocrinologist about the dosage of D3, and find that what you are taking seems very reasonable.  My oncologist wants my D level to be up to around 70, that's a LONG way to go.  I cannot take calcium (hyperparathyroidism) nor magnesium (laxative effect)...but that is good advice for people who can take those supplements.  Thanks again and all my best to you.  (Diagnostic mammogram tomorrow -- very fun with partial mastectomy/scar and new power port--whoo-hooo!!!  and bone density as well, fingers crossed always!  I never think the worst, only the best, then deal with whatever *pops* up)

    ~juli

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Best wishes for a clear mammo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    I love the discussions on the Vit D issues. It is just so critical. I went to ER feeling like I could not stand up and they gave me the spchell on "it's your anxiety" and trundled me off with a handful of Ativan. I had to push my PCP for blood tests and am now on third round of Vit D 50,000 units a week"; I remain anemic and now have a bleeding stomach ulcer; my throid is still shot and on fourth round of med changes (synthroid) to try to fix it; and on b-12 shots every two weeks. Great to be thought of as a lunatic and brushed off at the ER with ativan. It is so hard to advocate for oneself when si ill, but it much be done!! Love to all and praying for good test results for all and good news for all (((Hugs))) SV

  • juli0212
    juli0212 Member Posts: 1,415
    edited August 2010

    Thank you, notself:  Mammo was CLEAR~!  One hurdle down.  Now we'lll see what the bone density shows (has been fine yearly so far with parathyroidectomy and hyperparathyroidism still and the vitamin d testing in a few weeks). 

    StillVerticle:  Gosh, that's awful.  I empathize as I have daily migraines and have been to the ER many times (driven myself mostly--vomiting all the way, lol).  YESSSSSSS we MUSSSSST advocate for ourselves.  When one is ill, we still have to do it.  No one else knows us like WE do.

    I hope your synthroid and b-12 shots help you, plus the vitamin d issues...ugh!   *hugs*   ~juli

    Hope everyone enjoys the weekend...summer is a-coming-to-a-close (SHUSH juli!)    :O

  • coonie
    coonie Member Posts: 7,618
    edited August 2010
    I had my onc visit today and he's re-checking my vitamin D level. He told me (for now) to just take 50,000 once per month.....not to take 2,000 extra per day. Hmmmm and I've been doing that, plus my calcium + D. Anyway......I told him about my excessive thirst feelings so he wants to check thyroid and B12 too. Could either of those cause cotton mouth/thirstiness?? Here I was, popping vitamin D's thinking I was doing the right thing, and now I'm told to quit. I'm so confusedUndecided
  • coonie
    coonie Member Posts: 7,618
    edited August 2010

    Jo, I'm just confused. At first it was 50,000 once per week and still 2,000 per day. My level was 25. Today he said to quit the daily and just do 50,000 once per month until he got back with me on what my level is now. I have NO IDEA. I've wondered if this could be the cause of the stomach problems too. But I'm seriously thinking it's Arimidex causing stomach problems. Whewwwww I'm getting more and more confused. I just told him I don't want to add anymore pills to my daily batch:)

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Jo,

    It is my understanding that Vitamin D metabolizes very quickly.  Although I was getting D, I stopped gardening when the weather was in the 100's.  I haven't gotten back to it because the temp is still in the high 90's and my low thyroid and low potassium was really kicking my *ss.

    My doctor put me on prescription strength potassium and I am feeling better already.

    Ladies,

    If you get diarrhea from magnesium, then you do not need it.  Some of us do and some don't.  It is the same with calcium and Vitamin D.  I get no calcium from food because I am sensitive to dairy.  I take supplements for this reason.  There is no easy blood test for calcium because if you blood levels get low your body takes it from your bones.

    I think the key word is "supplement", something extra added to make up the difference  or add what is missing. 

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Acid Reflux caused by Arimidex?  I didn't know.  Lordy, I have been having it off and on for a year.  The only thing that helps, other than antacids, is eating an apple before I go to bed.  Why that helps, I haven't a clue.

  • gerty80918
    gerty80918 Member Posts: 5
    edited August 2010

    HI:  JUST TALKED TO MY NUTRITIONIST AND SHE SAID THE IT SHOULD SAY D3.  GUESS SHE WOULD KNOW.  HOPE THAT HELPS...KAREN

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Holy sh*t, what isn't a SE of Arimidex?  I hope these SE's end when we stop taking this stuff.  By the way there is a new article on Arimidex saying the following:

    "ASCO has recommended an aromatase inhibitor for these patients since 2004, but provided no guidance on the optimal duration until now.

    The update, published online in the Journal of Clinical Oncology, recommends no more than five years' duration for aromatase inhibitors." http://www.breastcancer.org/treatment/hormonal/new_research/20100715b.jsp

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2010

    Hi Notself, just reading here and you said you can't get extra calcium as you are dairy intolerant.  Did you know that all the leafy and dark green vegetables are very high in calcium? Just thought I'd let you know.

    Love n hugs. chrissyb

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    Thank you for the information, chrissyb.  I do eat a good amount of greens every day.  I didn't realize they had so much calcium.  Good news. 

    I was diagnosed about 10 years ago as having osteopenia.  That is when I got serious about taking supplements.  My current bone density studies show I am within normal range. So, for me supplements are necessary in addition to my normal diet.  Of course, there are many components to the building and maintaining of bone health and calcium is just one of those things.

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2010

    You give me hope.  Thank you.

  • coonie
    coonie Member Posts: 7,618
    edited August 2010

    Jo!!!!!!!!!!!!!!! Thank you SO much for your posts. It seems like I've had most of the SE's from Arimidex, but it makes me feel better to know that some of them go away once you're done. I'm on it until May 2013, but I'm just trying to take one day at a time. I've thought of quitting, but my doctor just says try to stick with it. Soooooo, I'm sticking-------for now at leastWink When I feel like complaining, I just try to remember the REASON for taking it. And as I've heard you say, it's better than cancer. I'm anxious to see what my vitamin D level is now. I guess I'll find out next week. He's also checking my thyroids.....seems like everything else has been checked, so might as well check those too........LOL.

    Hugs to all of you!

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