Chemo June 2010
Comments
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That was the quote I have been looking for today - I knew I had seen it somewhere but couldn't find it. It says it all! Giddy Up girls!
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Donna- With my first Taxol I had muscle pain day 3,4,and 5. It wasn't fun but it wasn't constant. Physical activity and hot baths helped. Otherwise I took Aleve. I have 10 decadrons within about 18 hours of each Taxol. Actually I can sleep pretty good with the steroids because it takes away the pain I still have from my mastectomy. The second Taxol went fine yesterday. It took about 2 hours less than the first infusion. The benedryl made my legs twitch but I slept through most of the infusion which was nice. I have some pins and needles in my feet today but otherwise am OK. My biggest problem since Taxol has been that I am getting walloped by hot flashes and night sweats. Lack of sleep and emotionally draining. I am pushing fluids as I hope everyone else is and hoping for the best.
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DesignerMom
I had a similar lesion on my butt about a year ago that just wouldn't go away or respond to any kind of salve. This was before I was diagnosed with BC.
It turned out to be some kind of spider bite, which whas what my PCP said it looked like. That was clear after I got an identical bite on my thigh.
I never found the spider, and moved away from that house shortly after for other reasons. This was in an area where black widows were prevalent, but I didn't have the usual symptoms from a BW bite.
Just a thought.
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worldwatcher-I still am not sure what it was, but am happy to say it has completely healed. My brother keeps raving about living in Tucson. Black Widows!! I think I'll just stay in safe, old NewYork!
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sherry, i feel the same as you since this began, i never go in public and when i do i just wanna get home,i dont want to do anything, i know how you feel and im so sorry,i hurt inside and im sad, i need to get out of it. im upset with my ONC cause she said there is nothing she can do for me, maybe i should see a shrink!!!! HA!! whatever, i dont need a shrink i need something to balance out my emotions.... not a good day for me, i was a lil pissed!
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Thanks everyone for your caring, supportive replies. I'm happy to report I have risen out of my "funk" and seem to be back to my normal self (whatever normal is these days). Don't know what got into me. I still have fears, but as I am normally an upbeat person, I am trying to focus on the positive. I don't have any control over my body at the moment, so why waste time worrying about it. I still don't know why Chey's dr. would give her that information about a recurrence.
On another note: I finished my 7th weekly Taxol tx yesterday. I have not had any issues with my nails so far and don't expect to at this point I think. I also have not experienced any muscle or joint pain. Nausea has been pretty much controlled with the right medication combo, so I feel like it hasn't been so bad overall. I haven't had any Benedryl for tx 6 and 7, so my onc wrote on the chart to discontinue the Benedryl in the infusion. I did come home and take a Benedryl tablet just in case, but it didn't put me in a coma like the infusion one I got. I was still able to function. I like that much better.
I too, receive Decadron in my pre-meds and I've found that I sleep okay, but I usually get up once in the night to go to the bathroom and can't sleep past 6:30 a.m. I would just get up and fix myself a cup of hot tea and sit in the living room enjoying the peace and quiet. Now that I'm back at school, I have to get up at 6:30 anyway, so it works out fine. I think being back at work is going to be okay. Last week I don't think I paced myself very well and found that my nausea was worse. This week, I've been more careful and I've felt pretty good. Students start tomorrow and I'm looking forward to seeing them. Must be the mother in me.
I love you all and am so glad I found this site It has been a tremendous supportive boost, not to mention all the information and knowledge I've received.
Toodles (the old Sherry is back)
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Chey, honey, I am so sorry you are going through this terrible time, with seemingly no help at all. I am keeping you in my prayers in the hopes that you can get some much needed help, whether in the way of a support group or medication or both. Just don't abandon posting on here. We're all here for you.
BIG HUG!!!!
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i wont stop posting, i need you guys i just think im gonna have to try and get out of this hole on my own, i dont like being so sad and in tears, i dont really like my ONC she told my husband she was getting irratated with all the questions. sherry she told me that if there is a cell floating around in my body and it opened up it would be forth stage cancer that is why she said im having to do the chemo. she scared the hell out of me.. its too late for me to find another ONC i guess, no wonder im a wreck and scared, lol
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Sherry- Have you had any of the "tingling" fingers and toes?
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cheyenne- I am SO sorry you are having such a time. And I am equally sorry your Onc is not helping you with the emotions you are rightfully experiencing. As for her insensitive comment to your husband about being irritated with all the questions. I would tell her that you would gladly change jobs with her if she wants to take your seat in the chemo chair! Obviously, she just doesn't want someone who questions her expertise. SORRY! None of us are going to accept things without questions anymore. HOWEVER! Her suggestion for you to see a "shrink" might be good advice. I hope you don't view this as someone thinking you are crazy. Pretty much everyone I know, myself included, has seen a "shrink" at some point. Their expertise is your mental well being and they can be enormously helpful during stressful periods.It can be short term, not forever. You are not going to turn into Woody Allen, seeing a shrink forever! What did the therapist say? Will you be seeing her again? Did she evaluate your meds for anxiety/depression? I am worried that you might be on the wrong meds. I had a friend who actually ended up in the hospital because they prescribed a med for anxiety instead of depression. It actually made things worse. A Psychiatrist or Psychologist specializes in this area and can evaluate and tweek things until you get some relief. Is there anybody that you trust who you can talk to face to face? Do you belong to a church? I actually don't go regularly, but am very close with people who do and they have been so supportive. Keep coming back here and talk to us. Big hugs and big prayers headed your way.
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I had treatment yesterday. 2/4 taxol, was very anxious at first.. Had nice conversation with onc.. Explaining more in details about my treatment and my options.. He informed me that the next two were up to me if I wanted to continue or stop.. He understood all my concerns and told me that having all three completed the A/C and 2 Taxol only increases my chances of it not returning by three percent.. Since I already had 4 of A/C and two of taxol then I have increased my chances by 1 1/2 percent..we decided not to do the Neulasta shot this week and see how my body feels.. He also suggested that I could come once a week for treatment but that would extend me out 8 weeks instead of the four that is not an option..the every two weeks to be done On September 16 works for me. If I continue I will be completely done on September 16. If I return on September 2 and my blood count is not up then we will have to wait another week.. Which might not be as effective..
He stopped the Neulasta because it causes bone pain along with Taxol, so I was in double the pain.. Hopefully I won't be in much with out the Neulasta.. I am going to think ahead and start with the Tylenol and Motrin..
@Cheyenne, and Sherry, if I have not learned anything from these posts is that you are not alone.. I actually started up a discussion on my own, it is titled help me please... I was feeling so many emotions and no one that I talked to seem to understand why one minute I would be fine and the next one I would be a nervous wreck.. I too locked my self in my room on many of days.. I was off of work during my first two months of treatment and I think that was the worst for me i had nothing to do but lie in bed all day and think of all the horrible things that has happened to me over the last year.. I lost my mother in October of 09 and was diagnosed with cancer in March of 10.. I will give you one advice that has helped me on this long journey TALK..TYPE what ever you want to call it.. but talking to others that have gone through or are going through what I am seem to help me find strenght that I didn't know I had.. so many times I wanted stop and give up early in the game.. but I would log on and read and read all the encouraging words..
For those going through taxol.. I take xanax with the steriods to help me sleep the night before and the night of treatment.. The benadryl has me drowsy but it doesn't put me in the sleep good state. the xanax takes me there.
I send to you lots of hugs and encourgement that was sent to me..
Hugs and smiles.. hang in there.. one person told me that Cancer was for the weak and it was time for me to put my big girl panties on...LOLOL.. WELL I PUT THEM ON..
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Funny thing, I've been thinking about that John Wayne quote lately. It sure does describe us!
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Hello All ~ I had my first round of FEC on Monday, followed by a Neulasta injection on Wednesday and I've been really blind sided by the side effects!!! I felt 'ok' on Tuesday, and even went to a "Breast class" with other women fighting this disease on Tuesday evening. I fell HARD on Wednesday! I was so sick, even though I had been taking my Zofran prophylacticly for the nausea. I ended up taking Phenergan and sleeping for almost 2 days straight!!! I have gotten some fever blisters, and my Oncologist has medicated me for that. I feel so awful! This evening, I am halfway human again, although sleep comes pretty easily when I lie down on the couch. I am sick of Raman noodles, and saltine crackers. Water even tastes funny. HELP!!! I'm a little blue today, really wanting to feel good again. My hips and thighs are so sore today, but even taking Tylenol makes me sick to my stomach. I know I can get through this...just needed to vent!!! Oh, and to make matters worse, my ex has been being a real jerk. I owe him some money, and just plain don't have it right now, so he chose NOW to start being nasty about it. I took this week off of work, but still have PTO and EIB that cover that. Sometimes I think the only way he will 'get' how serious this is, is if I were to die!!! I will NOT die, just to spite him!!!! I know he cares for me, so why does he choose now to be so mean?
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Janny, hang in there girl!! Chemo sucks but you can get through it!!! Sorry you are feeling bad, been there!! Even sorrier that your ex is being a jerk. Just get as much rest as you can and don't let the ex get to you!!!! Good luck, stay strong.
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janny-Oh Dang! I'm so sorry for these new SE. Here is where you focus JUST on you. Do whatever you need to feel better and cope. Sleep, eat whatever tastes okay, watch stupid TV, take the phone off the hook, ANYTHING! I have NO idea why you ex would choose this time to be anything but supportive, perhaps he is scared of your being sick and he's acting out, maybe he is just a stupid jerk! Try to distance from him, screen your calls, don't answer the door if necessary. You DO NOT have to fight with him or anybody right now. Just fight this cancer and get strong again. Prayers going up for you girl!
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Hey everyone!
I was suppose to have my second last docetaxel chemo treatment today but I ended up in the hospital on Wednesday night with a fever of 102.2 F, body aches and a migrane. I was put through emergency right away and they ran a whole bunch of blood tests, EKG, chest xray etc.. turns out I just had the flu but they didn't want to do chemo when I still have a temperature. I still feel yucky (like I did have a chemo treatment). Can't wait to be done this.... So I go next Friday for treatment and sept 17th I will be al finished!!
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i went to my own DR today and she put me on Wellbutrin and took me off the Zoloft, i called my ONC office to tell them of the new med and make sure they knew since i have chemo early monday and of coarse no one called me back, im due to start taking then tomorrow...i dont know what to do, they should know. i dont like that office.
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RS711 - I have not experienced any tingling or neuropathy in my fingers and toes. Really the only SE I've experienced is extreme nausea and as bad as that's been, I guess I'm fortunate to not have any of the other SE's.
Chey - I really hate that your onc is being so poopy this far into your tx. As someone said, it's probably too late in your tx to switch. Going to your reg dr was a good idea. I'm hoping the switch in medication will give you some relief.
I had a good week at school this week. I worked four 8-hour days and I can feel I'm getting stronger and am getting great support from the teachers and office staff. Everyone has been great. I think this has helped my mental status as well. Now, tonight (Friday) I am pooped and glad for the weekend to rest more.
I've had trouble the last two days trying to find some liquid that I can tolerate drinking. I take one or two sips of something and it tastes so bad that I just can't make myself take another sip. I've tried all kinds of juices/Gatorade, water is just plain nasty, haven't had a pop to drink in over two months. Fresh oranges taste good to me right now, so I've been eating two or three of those a day but I know I need to drink more. Any suggestions?
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cheyenne-Good for you that you are trying to get some help with your emotions. As your Onc's office did not bother to return your call today, I would call their service tomorrow during daytime hours. Leave a short message that you want to okay new medications your family doctor has prescribed. Remind her you are scheduled for chemo Monday morning. I am sure your Onc will call you. I will tell you (and everyone) a tip I have found SO helpful. My Onc has her e-mail on her business card. If yours doesn't, ask her for her e-mail. I have e-mailed mine several times with questions. I find she personally gets back to me very quickly. Most doctors have Blackberries these days and are constantly checking their e-mails, just like us. I find it much more effective than leaving messages with receptionists etc... And I can even e-mail her photos of my butt spot! I'm glad you are trying to get some help. You are going to be fine. You can do this. Look how far you have come already. I am proud of you.
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sherry- You sound great! Now don't over do things. You rest up this weekend! Since you like fresh oranges, why not try fresh squeezed orange juice? I'm having the same problem. No liquids taste good. I am eating tons of juicy fruits, hoping that will do. It also helps with the constipation. I swear I eat a whole cantaloupe and huge slices of ice cold watermelon every day as well as papayas, mangos and fuji apples. It sounds like sour things taste good to you. What about lemonade? Have a restful weekend.
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tmarina - i just did a bit of "boost" research - apparently, a radiation boost is an extra dose that is targeted to the site of the tumor itself (as opposed to whole breast radiation) and is used in women who have a lumpectomy to help prevent reoccurrence in the same breast. it is very rarely used for women who have had a masectomy (because the tumor site is gone). hope this helps a bit.
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Has anyone had low red blood count and if so, is there anything that will help it? Is it okay to take iron pills or liquid? Will eating red meat help? I was a vegetarian for ten years, before getting this disease, but I'm willing to try anything that will help boost energy.
I've been able to excercise most days, but after my fourth Taxol I'm more tired. I know my RBC is low. Any suggestions for energy? I think I'm wanting so much to lead a normal life through this, or as close as possible, and maybe I just need to do more accepting of limitations.
Latte, thanks for the information on the "boost" radiation. I wonder how often that is done.
Jenny99, you know every woman here would like to line up and explain a few things to your ex. Know you have the support of many.
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DesignerMom - you never cease to amaze me. I don't believe I have ever heard of anyone emailing photos of their buttocks to their physicians. That is a first and it would have to be you! I will try eating more juicy fruits and hope they taste good. Citrus and sour things do have a better taste than sweet things or water right now. I like lemonade, but find I can't drink a lot of it.
Chey - you ARE going to make it. At the beginning of my chemo, every week when time to go for tx I would tell my husband I couldn't do it - that I wasn't going to make it to the end. And now I only have two more tx's. (I think and hope) Those days where I didn't think I could do it another time seem so far away. As my onc told me, don't look so far ahead in the future. Just do it one day at a time. We'll all be here for you and will give the biggest cheer when you reach the finish!
Rest and a little laundry are the only things on my agenda for this weekend - mostly rest!
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Sherry - I haven't had problems with drinking during chemo, but I remember when I was pregnant and couldn't keep water down - I used to squeeze a lot of lemon juice into water and then i could drink it fine. Maybe this will help you?
mitymuffin - i am also anaemic (from the chemo) - i asked my onc if i should take iron pills, and she said it won't help because it is not an iron defeciency, it is caused by chemo and will go away when the chemo stops. my naturopath told me that green leafy veges will help boost rbc (apparently parsley is especially good for this).
cheyenna - it's really good you went to your regular dr for help. i went to see my regular dr, and told him i felt like my onc was treating the cancer, but not treating"ME" as a whole. and he said, well that's what I'm here for - which was just what i needed to hear :-)
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mitymuffin-->my hemoglobin has been low the entire time I've been on chemo. My onc did a ferritin test and that came back ok, so I don't need iron pills (like Latte said). I've heard people say they felt better after eating a big steak! Also I think spinach is really good for iron?
Sherry-->I like to drink orange juice, Country Time Pink Lemonade, and Kool-aid! Plain water tastes nasty to me too while going through chemo. The lemon in water idea is good too!
Janny and SKD--> hope you are both feeling better!!
Latte--> thanks for the info on boosts. I haven't taken the time to look anything up yet on it. I think I may have had them last year, but the rad. onc. didn't really explain them to me. But I do remember something about radiating a smaller area my last few txs.
Chey--> I'm so glad you went to your regular doc! Smart girl! Hope the new meds help. It usually takes a few weeks for them to really kick in, so give them some time. Didn't you say you have a little boy? How old is he? How are he and your hubby holding up? I think you mentioned a sister too--is she still able to help you out? I hope you can get out and do something fun this weekend! I've been feeling really good lately, so have been getting a lot of stuff done and having lunches with friends!
Hope everyone is enjoying the weekend!!
Tina
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Had second Taxol (dose dense) on Thursday and the fatigue hit today. But here is some good news - they told me that I won't have to take steroids or Benadryl for the final two treatments, which is great. For those of you with that funny taste on your tongue - I find that adding Vitamin Water to my water makes it taste better. Have a good weekend. Toni
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Chey- I started chemo on Wellbutrin. So, my guess is you'll be OK. Glad you talked to your GP. We will make it through!
janny99 What is wrong with that man? You certainly don't need his nonsense right now.
Good to hear from everyone. Taxol is making me very tired and a little nausea these last two days. Dry mouth makes eating a little tough. Been drinking lots of boost and forcing myself to eat and drink. I remember feeling very similar after my second AC.
SKD feel better. I'm sure that was a scare.
Toni you and I can be couch potatoes together
mitymuffin-good luck with the RBC
Everyone has such good advice today. Nice and cool here today me and the dog will be napping.
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thank you all for you being there for me, im so scared and want to be normal again and live my life, you all have been so good to me, i pray this new drug works, i need to be happy again, i dont want to cry anymore.
Tmarina, yes sis is coming up again, the family is doing good im just feel so bad that im not there at their games and things, i need to get back to me T.
JFV, were you allowed to take at Ativan with it? im not sure and no one is calling me back.
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Latte and TMarina, thank you for the information on anemia. I thought there might be a reason they hadn't mentioned taking iron. I just so much want my old energy back.
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CHEY I was allowed to take ativan and xanax while on wellbutrin. In fact the infusion nurse teased me because I take a half a pill before infusion and she said that was an awful small dose. Obviously I don't drive my self to or from chemo but I am not loopy or ill from the combo.
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