July 2010 Rads
Comments
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karenlen - I had the same feeling you had! I went in and told him that it felt like my tissue expander was about to rupture under my skin and I felt as bad if not worse after surgery. I am glad to hear you have some releif. By the time I complained I was on to boosts so they said to give it a few days. Sure enough once they stopped zapping my whole breast and armpit it was 100% better.
Julie - I have had some heart papilitations here and there too. I kind of thought it was an anxiety issue. I also had some muscle twitching (like when your muscle is over used and just randomly twitches) in my breast. I felt like one of those body builders flexing.
MagPag - Is your doctor at Prentice or at the main hospital? (I am farily certain you told me this but I am having a slow moment). Today was my LAST DAY and the ladies in reception had a dancing bear that did a booggie to "I feel good". . .just wondered if I was going to be the only one meeting this bear.
I have a follow up in 2 weeks. I guess it is time for me to fill the tamoxifien and pop over to the hormonal treatments tab. On to the next thing ladies!
The techs rotated at my radiation place. One group was super friendly and the other was less so. I got to "end on a high note" with the friendlier group.
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WOW! What a difference a day makes! I feel like I have been hit by a train! I'm not sleepy but have absolutely no "get up and go" and the brain fog is even worse. Ugh! My skin took a turn for the worse over night too. When I got to my treatment this morning and was changing into my lovely, barely there gown (more about the gowns in a minute) I realized that I had a rash in the lower area of my red square. It isn't itchy but it is bumpy. The techs said it was normal (lol! I just have to laugh!). Anyone else have a rash? Mine look like little pimples. Oaky, on to the gown rant...why can't they provide something that covers better? If I were doing this in the winter I'd take my own robe or I'd freeze to death! We change and then sit in a waiting room with other patients, men and women in a similar state of undress - embarrassing! I wish I had thought of it earlier in the treatment and I probably would have gotten a summer robe to wear.
Spendygirl - those stabbing pains I said I had early in treatment but went away? Well I spoke too soon. They started again today. Just a few for a couple of hours after my treatment.
Karen - I can't remember anything either! Half the time I can't find the words I need during a conversation. My kids just laugh at me.
Julie - let us know how the accupuncture goes. I hope it works for you! I have had a few minor heart palps and I think they have just been anxiety related.
Pat and Chicago1018 - COnGRATS on being done!
Have to go lay down and rest so I can find some energy to make dinner soon! Kim
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WOW! What a difference a day makes! I feel like I have been hit by a train! I'm not sleepy but have absolutely no "get up and go" and the brain fog is even worse. Ugh! My skin took a turn for the worse over night too. When I got to my treatment this morning and was changing into my lovely, barely there gown (more about the gowns in a minute) I realized that I had a rash in the lower area of my red square. It isn't itchy but it is bumpy. The techs said it was normal (lol! I just have to laugh!). Anyone else have a rash? Mine look like little pimples. Oaky, on to the gown rant...why can't they provide something that covers better? If I were doing this in the winter I'd take my own robe or I'd freeze to death! We change and then sit in a waiting room with other patients, men and women in a similar state of undress - embarrassing! I wish I had thought of it earlier in the treatment and I probably would have gotten a summer robe to wear.
Spendygirl - those stabbing pains I said I had early in treatment but went away? Well I spoke too soon. They started again today. Just a few for a couple of hours after my treatment.
Karen - I can't remember anything either! Half the time I can't find the words I need during a conversation. My kids just laugh at me.
Julie - let us know how the accupuncture goes. I hope it works for you! I have had a few minor heart palps and I think they have just been anxiety related.
Pat and Chicago1018 - COnGRATS on being done!
Have to go lay down and rest so I can find some energy to make dinner soon! Kim
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Pat and Chicago-BIG CONGRATS, done and over with....:)
Kim-I'm with you, I feel like a truck ran over me, but then I don't sleep more then 2 hours per night the past month, I feel like a walking zombie. Just got home from the hospital (mom is still there) and I would love to just go to bed...
When I change I go into this small but cute room, then right into rad room, over and done with within 3 minutes. Today tho I asked about my heart and the way I feel and I'm getting really sick of hearing "NORMAL" well maybe to them it is but not to me. So I made an appointment with my Onco for Friday and my Family Dr.
Spendygirl-I also get them, "NORMAL"..LOL They went away but once I started Rad they came back, drive me crazy, another thing I will ask on Friday.
Karen-Don't feel bad, was in Jewel today and forgot what I needed..MILK...
Ok, ladies time to eat dinner and lay down.
Hugs to all and have a good nite
Julie
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Hi all - honestly, I can't wait to get home every night and read your posts. I hope we'll continue here after we're done! I had that "hit by truck" feeling today. Getting through the day at work sometimes is really difficult. Seems like so many side effects for many of us as we get closer to being done. Congrats to all of you who are done! It's time for healing now.
The "electrical" pains have stopped for now, thank God. My underarm/axilla area is really sore now, hurts to lift my arm. By the way, someone gave me Aloe leaves, how wonderful they are, especially keeping them in the frig. As some of you have mentioned about the docs/nurses telling us whatever we're experiencing is "normal", I wonder what would be abnormal? There is nothing about my breast that looks close to normal, I'm sure you all are the same. Maybe the "expoding boob" would do it!!
Going to lay down (again). Healing wishes to everyone. Thank you all for being there.
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Good afternoon everyone,
I can't believe tomorrow is finally my last day. I want to let you who are earlier into the journey know that many of the symptoms you all are describing are ones I have had at some point along the way. Julie - heart palpitations (I am also iron deficient and that is also a side effect of iron deficiencies. I have been sleeping better since the tiredness descended Julie - so sorry you are having such poor sleep.
Kim - I have the little pimples all over the area being radiated too - they started in week two/three - they called them skin dermatitis and gave me betaderm for them. They haven't got worse but they also haven't got better. I imagine that will improve after radiation ends.
I have also been getting more and more of those electrical currents and burning. The tiredness was really bad the last 8 sessions for me. I met a little girl today who is 4 getting radiation. She has to be put to sleep before each of her sessions - her family looks exhausted and said it has been very difficult. What a nightmare. Made me feel like a whiner. I am imagining that for many of the rad techs - my journey does seem pretty normal compared to hers.
For those of you who have to take tamoxifen - which thread are you going to join? I think I am going to stick around for awhile and see how taking the dreaded "T" goes and want to join a thread but there seems to be a couple going at the same time.
I am sending healing thoughts your way - hang in there everyone.
Sonia
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Sonia - WooHoo! Last day for you tomorrow! You have made it! You are exactly one week ahead of me and I will be looking for updates as to how you are feeling in the coming weeks as you recover. Are you doing anything to celebrate?
Wow, having to put your child to sleep each time they get rad treatments - that is tough!
I too would like to know what "T" thread you all are going to join (or we could start our own for September since many of us will start late August, early September). It has been such a comfort to read each of your posts each day and be able to share stories. I feel like I know each of you a little bit and would like to continue getting to know you better. Anyway, I'll join whatever "T" thread most of you will be joining. AND, I'll continue to check in here - like Spendygirl said, it would be nice to continue here after we are done. The BCO is so big I think it is easy to lose people. lol! This would be a good place for us to touch base.
Have a good evening! Kim
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Pat and all who are finishing - Congratulations!!!
Julie, I had heart palpitations about half way through but they passed. I let the rad onc know and he didn't seem concerned. Definitely let them know.
I finished my 30 treatments last Wednesday and my skin is recovering fast - its fading quickly. What seems to be lingering for me is the tiredness. The fatigue didn't start until that last week and does come and go, but I wish it would GO. I know it is not normal for me and I'm trying to convince myself that it is not all in my head - but is my body recovering from the treatment.
Bailey, I feel that ghost of worry too!
Karenlen - thanks for the laugh
- and sorry you have been suffering. -
Sonia: A big Congrats, you are DONE and over with the part of the journey. Time to enjoy life again as we knew it before BC took over....Thank you for your post about the effects I'm feeling, sometimes I think I'm nuts as everyday its something new and always told "NORMAL" which is fine but explain it to me (the dr's). Will find out more on Friday.
I think starting a chat room is a great idea when we all start the "PILL" I will not be going on the "T" pill its something different but does the same thing as I had a total hyst when I was 43, going to be 51 soon.
Kick, thanks for letting me know that you also got the heart palps, I hate them.
My breast is getting so big, wish the other one was as big...LOL I still have 3 1/2 weeks left of this. Last week are the boosts.
Ok, time to get ready for the spa as I call Rad.
Have a great day ladies and a big Congrats to all of you who are done and over with Rad.
Julie
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I wish I could sleep! I don't know what is wrong with me (although I suspect anxiety - I posted in the "depression and anxiety" forum) but I have trouble falling asleep, toss and turn when I do sleep and then this morning woke up at 4:30 with horrible heart burn and finally got up at 5:30 and this is after not falling asleep until after 11:30. No wonder I feel terrible! Julie - I really feel for you having to deal with your sleeplessness for 4 months. It's only been 2 weeks for me and I am going crazy! I normally sleep 9 hours a night - I really need my sleep to function! I feel like I am getting into a viscious cycle - I can't sleep so I worry about not being able to sleep which then causes me have more trouble sleeping! LOL - I'm a basket case!
Well, I think I am going to go for a walk and then it is off to the "spa", as Julie calls it. Julie, you have such great names for the things we have to do!
Have a good day! Kim
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Kim - I got on prevacid for the reflux and it helped immensely. They also let me keep my ativan for when I can't sleep. I am with you. . .if I don't get osme rest I am worthless! Heres to getting some rest!
I am all about keeping the love alive on a new message board. It feels nice to converse with people you "know".
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Pat, congratulations! I hope you can now move on and not think about cancer ALL THE TIME!!
Karen, so great that you are feeling better!
I have 2 more boosts to go, tomorrow and Friday, then I am done! Can't wait. I am most anxious for my throat to return to normal! In addition to the liquid diet, this week I have almost no voice! Doc says it should start feeling better over the weekend.
I hope everyone is having a good week. We are getting there!
Peace.
Linda
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Linda: Conrats, almost done...:) I hope your voice returns soons and you get to start eating again...
Kim I also take prevacid, I have had heartburn most of my life, and you can get it OTC. SLEEP what is it, my god girls, I cried on the drive to the "spa" I'm so tired...I never knew one could be this tired. I am seeing the Dr. on Friday and going for Accup tomorow for the hot flashes. I want my HRT BACK I really do, I can't live my life like this. I snap at Jim (my husband) who is such a great person.
Oh well, someday I will sleep again...:) Could be worse much worse.
Ok ladies time to go and see mom at the hosital then home sweet home.
Hugs to all
J
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I'm done!!!! Sitting here nude from the waist up hoping to dry out all the gross sores on my chest. Just got home with my three months supply of tamoxifen - provided without cost thanks to the taxpayers of British Columbia - that's a relief. Going to start tonight. I am wishing you all no acid-reflux, itch-less, no sore anything, symptom minimal days as you continue through your radiation. l am not sure what I would do without my fan all night and the help of ativan or the lovely blue sleeping pills my doctor gave me to deal with the nights I can't fall asleep even though I am so bone tired it's ridiculous.Healing thoughts to you all!!!
Sonia
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Hi all,
Finished treatment # 27 today - one more regular, then on to the boosts! I've been posting on the August Tamoxifen thread (I actually started in July), but would love to keep in touch with you all, so may follow you wherever you go.
Kim - I've had the pimply rash for several weeks - it gets better on the weekends, then back during the week. They told me (you guess it!) "It's normal".
Julie and Spendygirl - yea, I'd like them to define what qualifies as "abnormal". I suspect it would have to be something truly awful.
Bailey - congratulations on being finished!
It is very sad to think of a 4-year-old going through this - that's awful.Linda - you're almost there! I hope your throat goes back to normal quickly.
Julie -sorry the poor sleep and hotflashes are still tormenting you. Have you ever been prescribed Neurontin (Gabapentin)? I was taking it before starting Tamoxifen and my oncologist said it should help with hotflashes. It's an all around good drug - has lots of uses and almost no side effects (reduces anxiety, helps with pain, helps stabilize mood, helps with hotflashes, etc.)
We're all heading toward the finish line - hooray for us!
Karen
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Sonia: BIG CONGRATS....Get some sleep...:)
Karen: This is awful I'm sitting here just burning up, this is not NORMAL, someone has to do something to help me, I'm going crazy...Between this and not sleeping I'm about to put my patch (HRT) back on I really am.... Neurontin I was on that for my lyme pain. At this point I will take anything..My hot flashes were not this bad until I started Rad, and I still have 3.5 weeks left.
A 4 year old my god that is awful, I pray for that little girl.
Ok, going to sit in my COLD tub of water before I take my sleeping pill...LOL
Nite all
J
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Holy Cow! I am sooo itchy now! Sonia, did that salt water solution you were told to use help any? THey told me not to use hydrocortisone cream due to the possible metals in it. They did tell me I could take Benedryl so I will do that tonight. Hopefully that will help with the sleeping a bit too.
Julie - I cried all the way to the "spa" today too! Fortunately I got there a little early and had some time to sit in the car and pull myself together. I hope the accupucture works for you. Please let us know how it goes. Karen mentioned Gabapentin and I have read about it being helpful on other threads so keep that in mind if the accupuncture doesn't help. Some people also find antidepressants can help as well.
So speaking of sleeping....A couple of you mentioned Ativan which reminded me that my family doc gave me a script for Lorazepam (which I think is the same thing as Ativan) when I was first dx's back in April. I filled the script but never needed to take it. So, I'm thinking now might be the time to take it but I can't remember if it is okay to just take on an as needed basis. So if I need it to help me sleep for a few nights, can I then just stop and then take it again if I have issues again later on? I hate taking meds of any kind (another reason 5 years of "T" is going to be a challenge) so I tend to be very conservative about them and also don't know much about them.
Off to bed and hopefully some sleep. Wishing you all a good nights sleep!
Kim
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Oh yeah - one more thing. A few threads down is a thread called "radiation recall". I have never heard of that in all of my reading and researching but found it interesting and thought it was good info. I think it is only an issue for those that had chemo. Thought I would point it out to you all in case you didn't see it.
Good night! Kim
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Hi All, been away due to a lost Internet connection. I've missed you all and enjoyed catching up on your posts. Glad to hear that you're all 'Normal'
Admittedly had to jot a few notes before writing because I can't remember past one or two posts Congrats Sonia, Pat & Chicago on being finished with this phase! I wish you all speedy healing. Chicago, I didn't get the dancing bear, but then again I practically ran out of there on my last day
.Kim, I have the bumpy rash too. I used a mix of hydrocortizone and lamasil (the cream for athletes foot). Weird but it really took the itch and redness down quickly.
I'm sorry you, Spendy, Karen, Kickon and so many are getting hit with the fatigue. Know that this will pass soon. I'm 2 weeks post rads tomorrow and just yesterday and today have started to feel human again. Keep eating the protein to keep up your strength.
Linda, hang on, you're almost done and your throat will get better soon.
Julie, I hope you can get some rest. Not sure how you're functioning with so little sleep. I really feel for you and admire you for pushing through all of this. Is there someone who can drive you to the spa and back? Grab any chance to get a cat nap in.
Take care, and have a wonderful and restful night everyone! Donna.
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Oh Kim and Julie - I really feel for you. Kim - your lorazepam is Ativan - take it tonight - try it out - seriously even if you take it a few times over the next couple weeks or so you will be fine - addiction can happen but not if you are taking it very irregularly and very short term. The sleeping pill I take - I cut in half and when I take it the following couple of days after i also sleep really well. My sister who is a sleeping pill expert (30 years of insomnia) agrees that this also happens for some reason - ask your doctor for one of the new ones that doesn't leave you drowsy in the morning. When I take a half I swear I sleep 6 or 7 hours uninterrupted which is very unusual for me even in the best times. There is a possibility of rebound insomnia when you start using them regularly and once you stop you can have difficulty sleeping - but again as long as it is just short term and irregular I have a sense you'll escape being an addict. I realize I must sound like a pill pusher - I am actually very anti pill but I feel like this is a really difficult time and if there is a time to do it - certainly cancer/radiation qualifies -especially given how uncomfortable our bodies are right now.
Sonia
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I'm so jealous for those of you who are already finished. But seriously, happy for you. I'm still doing my boost in between the regulars, so I'm still not done. I'm having 8 boosts and continuing on with the full breast... I lost one week during the setup for the boost, but it was a nice little break, but really I want to be finished. But hopefully there will still be someone on this board to talk to
that is still going through it.I love reading everyone's posts and would love to respond to each and everyone one of you...but I just can't seem to remember. It's frustrating but hearing and seeing what others are going through, I guess I shouldn't really complain. Even with the kids going through rads, heartbreaking. At the rads place I go to, they're pretty quick and not too many people waiting...on most days. Once I walk into the doors, I go straight to the chaning room, change and sit in one of the 2 chairs by the rads room. Then I go in, get lit up, change back and leave. There's been only a few people that I see on a daily basis, but now there's only one guy that I see every day.
Thanks for the heads up on the SE's after rads is done. You ladies are a great group and hope that we can be on the same trend for the 'pill from hell'. It's funny, but my hubby talked to a customer of his whose wife had breast cancer a couple of years ago...his customer warned my hubby about the "pill". I've warned him about some of the Possible SE's, he didn't take it seriously...but now that his customer warned him...he's scared.
Wishing everyone fast healing, congrats to those that finished or will be done, and hopefully no SE's from rads or for the pill.
Patty
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Hi everyone,
I've just got three more rads to go, then 8 boosts. I can't wait to be done! I just began to become pink, mostly the square areas above/below and under the armpit some. I'm only using corn starch on the treatment area 5-6x/day (doctor's orders) and the couple of times I had tiny pimply bumps, they disappeared right away. Still have a sore throat on the treatment side (only) but the end is in sight. Had my first wave of fatigue, luckily a long nap helped relieve it, but towards the end of my chemo there was a point where long naps didn't really help. I knew that would pass, too, and it did, and it will with this. Lucky for me, I'll be finishing right before Labor Day so have a long weekend to recuperate and celebrate.
Gotta keep focussed on the finish line!
Tomorrow is 6 months from my surgery, or as I mark it, 6 months cancer free. I think I'm only starting to process all I've been through. It's been such a marathon - surgery, decisions, chemo plus Penguin Cold Caps (I kept my hair through chemo), then arguing with my insurance company (who initially denied my totally standard radiation treatment!), then rads...now the end in sight and *now* all of a sudden I'm feeling overwhelmed!
I've used my time off from work for good things - power naps, exercising, catching up with friends, taking up new hobbies -- and I keep telling myself that I've kicked cancer's a**, and also done many of the things I've been meaning to do. A new life.
Congrats to everyone here! I haven't posted much here but I've been reading, and I know many of us will meet again on the tamoxifen thread.
Best,
Susan
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Tomorrows my last treatment.I made some cookies tonight to take to my team.I am so glad to be finished.It will be so nice not having to drive the 2 hour round trip every day.Tonight I pulled off one of my marker stickers and pulled a perfect circle of skin with it.Thats feeling a little sore right now.I don't think they will have any problem seeing where it was to do my last treatment!Good luck to all of you that still have some treatments left.I hope we can all move on to our normal lives without having to think about cancer every day.Probably easier said then done!
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I finished today. now I wonder how the next couple weeks will be for the skin - hopefully it won't have to much of a reaction. I'm looking forward to not worrying about my skin in the future. I'm very happy to be finished. It will be nice to take a shower sticker free. I still a have stickers that mark the circle where the boost was, we'll see if they come off in the shower.
I brought chocolate covered strawberries from edible arrangements to the staff.
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Congrats to all that are finsished and done with this part of the BC journey.
eileen, yummie on the strawberries, I know they are good. They will really enjoy the treat.
Question, did anyone have a cough from Rad? I started getting this cough last week, when I asked today, well guess what "NOT FROM RAD, I was told"...hummmmm
Got 6 hours sleep last night, I feel like a new woman today..:)
Have a great day everyone
J
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Congrats Eileen! The strawberries are a great idea and I'm sure very much appreciated. Now do something nice for you!! Donna.
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Oops me again,
Waltersren whoo hoo for you too! Hope your circle/skin heals quickly! Donna.
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So glad you're done Eileen and waltersren. Start the healing process for yourselves. How are the rest of you? - hope things are going smoothly. I have a sense given I've had a sore throat all the way through that by extension a cough could come from that - no?? Glad you got some sleep Julie. It was so nice to stay home this morning with no where to go, just back and forth to the coffee maker. Super itchy skin today - even more than yesterday.
Thanks for joining us Susan, I have joined the August thread for Tamoxifen. Took my first last night - I think it was ok - maybe slight lightheadedness.
Sonia
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Hi everybody! It's so exciting that so many of you are done, I smile as I read each post. Had my last full rad today (yippeee), now 7 boosts. I had a terrible day yesterday, just so much pain. Saw the doc and I have desquamation of the skin under the breast - no wonder it hurts, it's just kind of open and raw. They gave me Silvadene and an OTC soaking agent that is wonderful. Still soooo itchy.
I've been taking Tamoxifen since July 1, but I want to go wherever you all decide to go. I really feel like we're our own special little group and I hope we can stay together!
I have a question for all - has anyone taken pictures of your breast(s)/chest? I had my DH take pictures today. I don"t ever want to forget what I went through. Just curious if anyone else has thought about it?
I'm not sleeping at all, up every hour. I surely welcome all suggestions. Nite all, healing, itch free wishes.
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Sonia: Glad you got to stay home and have a date with the coffee pot...:) Time to sit around and just relax.
Spendy-SLEEP what is that...:( Last night I finally sleep but today still very tried and my boob is starting to burn and turn red, will ask about this tomorrow-I'm sure I will be told "NORMAL" after I"m done with Rad, I never want to hear the word "NORMAL" again...:) Plus want to know about this cough really bugging me.
I did go for accuponture (however you spell it ) today for hot flahses, and smoking (Yes I sitll smoke ONE a day) I know very bad but I just can't seem to give up that one...I did hear going for sleeping also works, will let you know.
Yup I did take a photo, my sister wanted to see what it looked like, plus I will put it into my BC file.
Not sure the name of the PILL I will go on, will ask tomorrow when I see my Onco. I know its not the "T" pill...hummmmmmmm..
Ok, time to eat my burger Jim just made, take my sleeping pill and wait for my new found friend to show up (Hot flashes)...LOL
Have a wonderful night everyone
J
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