Has anyone had micro fat grafting?

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  • tedwilliams
    tedwilliams Member Posts: 178
    edited August 2010

    I am so excited to find this site.  Thanks to Alexandra-a for posting.  I had a unilateral mastectomy with TE in Dec. after completing chemo, then had radiation.  In June I had the DIEP procedure.  There were complications---hematoma and blood clots in the blood supply to the new flap.  Last Friday the flap was removed and now my chest looked like one of those dried apple faces.  My PS discussed the next options and the fat grafting with the Brava was one and he did discuss the benefit of the stem cells healing the damaged, radiated skin.  He and another surgeon just completed a clinical trial at LSU in New Orleans for this procedure.  I did have my surgery in NOLA, but not the place where the rest of the ladies did.  Today I have an appointment to have the stitches removed and have lots of questions now as a result of this forum.  I do not look forward to additional procedures, but the idea of having a breast from my own fat is doable.  

    I too was glad that Dr. Khouri's staff answered questions.  I also respect the reactions of those who felt it was not in the best interest of the forum.  This journey is filled with many choices, celebrations and downfalls...having a place to be able to voice a question, an opinion or a worry is great.... 

  • mradf
    mradf Member Posts: 398
    edited August 2010

    jseda - please clarify this statement: "But in the big picture, the cost for the Brava system is miniscule in comparison to the liposuction/injections."

    The way I understand it, the Brava device is followed by numerous autologuos fat transfers, and is an alternative to a tissue expander/implant reconstruction which is  possibly followed by one or more fat transfers as needed.   

    - OR -

    Are you just saying that the Brava device as part of the overall Brava reconstruction is miniscule compared to the fat transfer as part of that overall reconstruction? 

    I know there are so many variables, but I think it would be interesting to see how woman from the same geographic area, having the identical insurance company and coverage plan, but having all different reconstruction methods, are ultimately charged and covered.  I know we all hear about how costs and coverage change depending on where you live, but how does it compare right next door?  Maybe we can get some college student to take it on as a research project. 

    Be well,

    Maria

  • NotMyTime2Go
    NotMyTime2Go Member Posts: 34
    edited August 2010

    I've been reading this (lengthy - which is great since it's mostly positive) thread and need to jump in with my story. I had a diep procedure three weeks ago following bilateral mx, chemo and rads. The surgeon wasn't able to get to my blood vessels. I had open-heart surgery twenty years ago, followed by a car accident a few months later that damaged my sternum. So the vessels were encased in radiated scar tissue and just didn't stand a chance. The doc had warned me that might be a problem, but the backup plan was to use vessels on the sides. Turned out those were way too small. So after five hours of surgery he put the expanders back and closed me up without ever touching my belly. I admit I was furious and devastated. I cried and cried with this terrible self-pity, forgetting once again how lucky I am just to be alive. But now three-weeks removed I'm so grateful that he left me with other options rather than forge ahead with a procedure that was destined to fail, especially since I've been able to do more research and learn about fat grafting and especially the BRAVA system.

    Let me just say that when I first started research on fat grafting, I found a couple of local doctors (I live in Utah) who were doing breast augmentation using stem cells. It all sounded very exciting on their websites, but when I called their offices to ask if they do breast reconstruction, they both said they never have but would be willing to, and both were very pushy about getting me in for a consult. Through more research I learned that neither of those doctors are even plastic surgeons - one is an ob and the other a gp. The moral to that story is we need to be advocates for ourselves and make sure we don't fall prey to anyone looking for a fast buck.

    With that said though, I asked my ps about fat grafting (expecting him to scoff at me since he hadn't offered it as a treatment option) and he gave me a little history of the ups and downs, and then said he's been following Dr. Khoury and the Brava system with interest, and has been close to jumping into training for it, but has never had enough of a nudge to fly to Florida for the training. But that he's willing to if I want to be his guinea pig. I've talked to several doctors, nurses, and my lymphedema therapist who have all raved about my doctor said that he has a reputation for being absolutely ethical, cautious, and talented, and that if he is willing to try it it must be a good thing. And now I'm so relieved that I have more options than 1) no reconstruction 2) implants under radiated skin or 3) losing my stomach muscles to a TRAM flap. None of those felt right for me, so I've been just stymied on my decision.  

    I do wish insurance would pay for those expanders. But maybe something will happen soon since I can't get this done for a few more months. The one big question I still have for those of you who have done this is about internal tissue expanders. Did any of you have those in when you chose to go with the BRAVA? And did they remove them before you started? What was your chest like when you weren't wearing the BRAVA? Just floppy skin? I'm REALLY anxious to get rid of those (Oh you should have seen me when I woke up from anesthesia and learned they'd been put back. Poor nurse.) But I'm a little nervous about what I'll be left with before the procedure.

    Also, I've read that anywhere from 2 to 5 procedures are necessary. Is there some rule like if you only want a B cup you'll only need 2 procedures, or is it more complicated than that? (Before the cancer I had one A cup and one B cup, so two B cups sound great to me! =) )

    Oh, see and I thought I was done with questions, but one more. Do you have to wear the BRAVA the entire time between sessions, or just for a couple weeks after one and before the other? 

    Thanks so much for all your input. I watched a video about this procedure yesterday and sent it to my sister - she forwarded it on to a couple of friends with BS, and one called her immediately in tears. "This is such good news," she said. "Such good news."  

    I can't seem to paste the link here (is that against the rules?)  It was on wsvn.com - Feb. 22, 2010 you could probably do a search for it if interested.

    Thanks all!

  • MBJ
    MBJ Member Posts: 4,352
    edited August 2010

    Very Important:  voting started today on Timtam's site to move forward with the new one or stay with the old.  Please vote as they need at least 50 interested to proceed with the picture forum and the poll ends the 28th!

  • hrf
    hrf Member Posts: 3,225
    edited August 2010

    How do I access Timtam's site?

  • mormor1
    mormor1 Member Posts: 136
    edited August 2010

    Dear NotMyTime2Go,

    Sorry to hear of the disappointment you went through...but maybe you will be glad in the long run.  The answers aren't always easy to take, but if you just take it a step at a time, it works well.  Don't think I have heard of anyone who has been disappointed in the results...or wish they hadn't done it. 

     I didn't have e expanders in, but definitely have heard of women who have had them removed.  Some seem to get the first fat grafting right away.  I think it is improving all the time in attempts to decrease umber of graftings etc.. I had a unilateral mastecomy, so I think part of needing 4 graftings was for symmetry.  I do think size is a factor two.  I was about your size before the mast.  It is very fun to be a "C" cup now.  I think I would have settled for a "B", but like I said it was partially symmetry.  Really pleased with how matching it is!  I do think your skin will expand easier also from having had the expanders...that might help shorten things. I had a stubborn scar.

     If anyone is going through fat grafting for breast reconstruction and would like to communicate by email, feel free to tell Cindy at Dr. Khouri's office and she can put you in touch with me.  I walked this road not knowing anyone else who had done it.  Glad if I can help light the way!!

     Blessings to each of you whatever your path,

    wisconsin randi

    p.s.  excited for new docs willing to go this route.  I think it does attract those who care about what the women goes through.  It is more labor intensive for them, but so much nicer for the woman in terms of pain and results  (just takes patience!!).  Did have to wear the Brava between sessions....it actually was nine months of wearing it for me!!   Good lasting things can come out of nine months though  (haha)

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited August 2010

    NotMyTime, I can't find the video you mentioned on wsvn.com... please do post a direct link if you can! (A news story link isn't against the rules!)

  • mormor1
    mormor1 Member Posts: 136
    edited August 2010

    Oh yes, meant to give you a site with lots of videos about this....lots of other info too.

    well, having some trouble pasting it also...but just go to miamibreastcenter.com and that will get you to the home page.  On the news page, there are lots of videos.

  • Mary1223
    Mary1223 Member Posts: 31
    edited August 2010

    Geez, I wish they had this 4 years ago.  Undecided

  • kimme
    kimme Member Posts: 11
    edited August 2010

    Just thought I would post another update of my ongoing Brava experience.  Short recap, one month ago I had my tissue expander removed & my 1st fat grafting by Dr. Khouri.  I just ordered & received the Brava unit.  I will take it to Dr. Khouri next week & he will instruct me on how to use it.  A few of you were commenting on the pricing....I got two "domes".  It was suggested to me to order a wide/medium and a wide/large.  I was told that I would probably "outgrow" the medium one and need to move on to the large.  Mine are right side only and the initial cost for one dome was $670.  I paid an additional $70 (total $740) for the second dome.  I was told this was more economical that ordering a separate 2nd set, b/c it's more costly that way.  I also paid for 2 day shipping ($70).  Now, for the domes.  OMG they are huge!!  Like Dolly Parton huge!!  There is no way I could where this thing in public.  Absolutely has to be worn at night.  It came w/tubing, a smartbox, creams, cleansers, etc., a bra that has a place for the smartbox, & an instructional dvd.  Hopefully, this will be the only out-of-pocket expense.  I believe I will start wearing the device next week & do so for 4-6 wks., then have my second fat grafting.

    Gosh, I hope this works:)  It seems so "other worldly."   

  • flygirl239
    flygirl239 Member Posts: 10
    edited August 2010

    I would love to be able to add my vote to the tally. I think a picture bank is really, really important.

    How do I vote?

  • Sarnie123
    Sarnie123 Member Posts: 15
    edited August 2010

    I am really pleased you have asked about micro fat grafting as I've just been offered it by my consultant so I have the same questions as you, although, mine is just to fill where I had a lumpectomy. xSanx

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited September 2010

    May I ask a very dumb and shallow question?

    Those of you who have completed this... does the fact that the reconstructed breast is mostly fat, rather than ducts AND a lot of breast tissue AND fat, make the breast... saggier than usual?

    I'm sorry for such a shallow question... but I've always been, well, "perky," and it just occurred to me that a micro-fat-grafted breast might be a bit squishier/saggier than an original breast.

    I'm going to go hide my face in shame now for asking this.

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited September 2010

    Julia, I don't know the answer but I did want to tell you to get behind me in the "vain and shallow" line. I honestly care so much about how my breasts are going to look that I think about it constantly. And mine aren't perky anymore, either, but I've come to love them dearly. I wish I didn't have to have anything at all done to them. 

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited September 2010
    LOL... thanks for the "vain and shallow" empathy, Kitchenwitch! Wink
  • happy29
    happy29 Member Posts: 296
    edited September 2010

    Not sure my answer qualifies because I had flap reconstruction and then fat grafting(fat injections) but I can tell you- my breasts are perkier now than before- and they were not saggy before(no breast feeding for me)

    some fat was injected into the muscle and that ,I believe ,helped with keeping them firm and perky :)

  • mormor1
    mormor1 Member Posts: 136
    edited September 2010

    CrunchyPoodleMama,

    Good for you to be so brave to ask your heart felt question!  No shame. It is a good question and these things do matter to us as women.   I didn't used to think I was vain, but I find myself looking in the mirror all the time now (in delight!).  I am so perky now and my belly is so flat and my thighs curvy but slim.  Dr. Khouri moved the nipple on the unreconstructed side up some during one of the procedures (I guess there were a few stitches there but no pain and it doesn't show), lowered the fold and plumped it up a bit, so that perked up my natural breast and it matches the new one well though does still have a little sag...I'm old though!.  I suppose gravity will take its toll eventually, but 1 3/4 yrs. out things are looking good., no signs of sagging on the reconstructed breast at all  If you want to see actual pictures  I am on the web site in the photo gallery,  the first one shown.  miamitbreastcenter.com  Results from this option are so good....no scars, it is a natural feeling and looking breast and you have sensation, no need to have replacements every ten years or fear they might "pop".  Was so happy swimming lately to be so restored and improved!

    The reconstructed breast is soft, but actually seems a bit firmer than my natural (old) breast....hope this helped answer your question.  Not sure how young you are...I am almost 60, so this bought me time from the inevitable.

    sorry, don't really know how to get the diagnosis info etc. to follow...it's in one of my responses...

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited September 2010

    wisconsinrandi,

    Your photos are spectacular! Maybe you answered this question before, but I wondered whether you now have to have mammograms on the reconstructed side and/or MRIs. If so, have there been any problems with cysts or calcifications, which I understand can happen with fat grafting?  Also, your reconstructed nipple looks beautiful. Did Dr. Khouri do them?

    Congratulations on a beautiful reconstruction (and body sculpting!). 

  • kimme
    kimme Member Posts: 11
    edited September 2010

    I wonder to about some of the same things....will my breast be more saggy?  Will I have to worry more about cysts/calcifications appearing on MRI's?  I wonder if the appearance of the breast has anything to do w/if you have any chest muscle left or not?  I had a modified radical mast., and this sounds stupid, but I'm not sure if I have any chest muscle.  As I understand it, "everything" was taken all the way up to my collarbone.

    I think I just find it hard to believe that I will look anything like the pics on Dr. Khouri's site....gauging from where I am now:(  I see him next Tuesday & start that contraption, lol (the Brava)....that's going to be interesting. 

  • mormor1
    mormor1 Member Posts: 136
    edited September 2010

    Thank you, Erica.  I feel so blessed.  It's not the most important thing in life, but it is a sweet silver lining to this breast cancer journey.  I have had a normal mammogram done on both sides and a clear MRI in April.  No calcifications or problems reading them.  I believe this was also the outcome from studies on this.

    Since you brought it up,  the nipple is an interesting story.  Dr. Khouri inspired this unique process of a very realistic silicone nipple prosthesis (no surgery, good results which fits his approach).  My husband (who is an inventor type) has developed it further with Dr. Khouri's encouragement.  We have shown it to international experts, through Dr. Khouri, who seem impressed. If anyone is interested in hearing more about it, they can contact us at natural-impressions@usa.net.  

  • alexandra-aaa
    alexandra-aaa Member Posts: 50
    edited September 2010

    Wisconsinrandi,

    I've been looking at your breasts since December! Nice to meet you, lol!

    Actually I'm happy to have a name behind the body to be able to tell you how beautiful you look (can't even remember how many people I've linked to your pic - my sister-in-law who had one breast removed and reconstructed with an implant several years ago, and a close friend who had a double mastectomy last Oct, just two months before I found out about all of this are just two of them).

    While my lumpectomy was not for cancer (the doctor supposedly suspected it, though I'm not so sure I believe that), and did not leave as severe damage as one of the ladies on Dr. Khouri's site (being completely flat-chested prior to this also made it not look as drastic), I would be happy to share pics as well.

    I have the whole process "journaled" with pics and weekly updates on my forum. I'd be happy to share them, but I'm never sure if it's OK to post a link to it here (it is in my profile though). I started it because it's been so difficult to find other women, reconstruction OR augmentation that have gone, or are going through it.

    I think Dr. Khouri should put more pics up (I wonder if not many ladies are OK with having their pics posted) as implant doctors do. It's easy to look at just a handful and think that those are the few who look good, instead of seeing how many great results there are.

    I did just notice that he updated two of the augmentation bef/aft's with 5 year follow ups. I've been asked on other forums if over time, if any of the absorbed fat did so unevenly. Those ladies actually look better AND larger 5 years later than they did 6 months later.

  • mormor1
    mormor1 Member Posts: 136
    edited September 2010

    Alexandra aaa-

    LOL!  Isn't funny how we lose self consciousness about these things??  For me, it is a willingness to share something I think is great with others.

    Read some of your background.  So glad for your good results too.  Are you finished now?  I haven't quite figured out how to do PM on this site yet....if you could PM me, I would love to know how to get on the forum with others who have done or are doing fat grafting with the Brava Thank you for organizing that!!   It was a bit hard doing something nobody knew anything about, yet there is something about Dr. Khouri's excitement each step of the way (and support from Brava coach) that kept us going.

     Thanks!!

  • alexandra-aaa
    alexandra-aaa Member Posts: 50
    edited September 2010

    Hi Wisconsinrandi,

    Yes, I've been "BRAVA-free" since August 6 - wow, as I typed that I realized it's almost a month, so I gues what's here is here to stay. That is, unless/until I lose the 5-7 lbs I put on in the first 6 weeks post-op when I couldn't weight train. Not a good time to gain. I would guess that the newly transferred fat might not be established enough to expand/fill up/grow as one gains weight that soon after. But by the time you get around to losing, do those cells shrink more?

    Well, only one way to find out - get my butt in gear I guess!

    (If you click on my name, somewhere at the top of the page it should say "Homepage URL" - I put the forum link there.)

    I just clicked on your name and saw "Send member a Private Message" on the upper right hand area of the page. 

    What you said about Dr. Khouri's enthusiasm is absolutely right. It's partly because his enthusiasm is contageous, and partly your own for being a part of something that is not only so cutting edge, but brilliant, and not being a mastectomy patient can only guess how huge a gift this is to women who are. My friend has been through hell and back since October - so much so that after mentioning this to her once, I can't bring myself to talk about it in more detail with her yet. I need to let her heal more, both physically and emotionally. 

    I'm definitely looking forward to talking more with you - here and there. I'm also going to post a link to this forum on mine. There's a million forums for a million diseases all over the web, but this might just be "IT" for breast cancer!

  • alexandra-aaa
    alexandra-aaa Member Posts: 50
    edited September 2010

    CrunchyPoodleMama,

    I signed in to respond to your post and got distracted when I saw that Wisconsinrandi's pics were those on Dr. Khouri's site. "Mild" AD/HD to say the least - sorry!

    I did want to share with you, that because I was so flat-chested before any of my surgeries, I might be a good gauge of the question you're asking. (None of the tumors I had showed on mammos, but they were nearly impossible to do on me since I was flat. So I always had to have ultrasounds. When I asked what the different color "bands" on the screen were, the tech explained that I had about 1/10" of breast tissue, no fat, and 3/4" of pectoral muscle (I weight train).)

    So ANY breast that I have now is nearly ALL fat. They don't sag at all, yet they are very, very soft. But not too soft - I still hate bras, so have been wearing cami's with shelf bras, which are relatively snug, yet they don't push them flat. I have a lot of bra pics posted, but that was partly because I wanted to share my progress from start to finish but wasn't comfortable posting nude pics. And also partly because I was playing "dress-up" a bit since wearing "grown-up bras" was something I never got to experience (so WHO'S vain?? LOL!).

    I'm actually surprised that they don't sag, because during the BRAVA pre-expansion period, they swelled to a 34D/DD, and I've settled now to about a 34B. And this is 50 year old skin! They have a nice slope and look rather pretty. I asked Dr. Khouri not to put a lot of fat up high (cleavage area) - I think that would have made me self-concious. But if he had, I'm sure they would look even perkier!

    And wow, if anyone deserves to enjoy any vanity, it's ladies who have been through what you each have!

  • mormor1
    mormor1 Member Posts: 136
    edited September 2010

    Alexandra no longer aaa,

    Wow!   Saw your pictures!  You look volumptous!  You could be a model.  I am so excited for you after so many years of being aaa.  You talk about what we have been through, but you have been through years of frustration.  That isn't nothing. What a lovely outcome!  Looking forward to interacting more on the forum you set up.  Took me a little while to navigate login...but got it now.

  • alexandra-aaa
    alexandra-aaa Member Posts: 50
    edited September 2010

    Aww, thanks (unfortunately my lower half has become, um, volumptuous as well since my surgery - I must be one of the "special" ones who GAINS weight after lipo!). Truth is, my exercise greatly decreased post-op and I put on about 7 lbs. And I gained it right after surgery, so I don't think it had a chance to cause the newly transferred fat cells to grow - so they grew on the half that does it best, lol! Having a heck of a time getting rid of it.

    Thanks for joining - even though you're on the other side of this, I would love for you to post your story in the patient story section. It's so helpful to hear each other's experiences with this. We seem like such a tiny exclusive club right now!

  • dustylady
    dustylady Member Posts: 37
    edited September 2010

    Kimme...

     I tried to e-mail you, but must not have gone through.  I just started the BRAVA process...have been wearing them about 12 hrs day for close to three weeks....was blown away by the size of the domes too!.  But I found that I can manage ok with them...medium/wide right now.  I'm a bilateral...am having my first surgery 9/17 with Dr. Khouri.  Am getting very excited as I see my breast area expanding and am trying to imagine how it will look once my first graft has been done.  When is your after BRAVA wear surgery scheduled?

    Thought there was no way I could wear these in public, but I have actually found a few outfits that stretch enough to make it doable.  I had to find something to wear because I understand that I will have to wear these 24/7 for a couple of days before surgery and I have to go out a couple of times after I get down there...need to pre-register, etc.  

  • sushanna1
    sushanna1 Member Posts: 764
    edited September 2010

    I just reported the post above.  

  • hrf
    hrf Member Posts: 3,225
    edited September 2010
  • pamcycle
    pamcycle Member Posts: 39
    edited September 2010

    How do you get to the photo section of this web site?

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