Quitting chemo early?

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spark
spark Member Posts: 130

Hey all,

I just started dose dense AC/T. I have so far done 2 rounds and I am miserable. I don't understand why I have to do 2 more rounds of AC, then the 4 T. I have not had surgery yet. Does anyone get done early??? I really want to just quit and do surgery...I have this fantasy that my onc will say ok!

Comments

  • bkglenn50
    bkglenn50 Member Posts: 138
    edited August 2010

    Hi Spark, My diagnosis was the exact same as yours. I wanted to quit to. It was bad. My onc wouldnt let me. ! year later it came back in my liver so i am fighting again at stage 4. So no dont quit. Chemo is all we have so throw everything you have at it while you can!!! Brenda

  • bkglenn50
    bkglenn50 Member Posts: 138
    edited August 2010

    Hi Spark, My diagnosis was the exact same as yours. I wanted to quit to. It was bad. My onc wouldnt let me. ! year later it came back in my liver so i am fighting again at stage 4. So no dont quit. Chemo is all we have so throw everything you have at it while you can!!! Brenda

  • westiemom
    westiemom Member Posts: 174
    edited August 2010

    Please don't quit. I know how you feel. I wished I had chemo prior to surgery but I had treatment 3 weeks post surgery - I was still weak and sore from the surgery. I also had dose dense and after the 2nd round I was begging my husband to let me quit - he said "no way". But I stuck it out and I'm glad I did. Take care and stay strong, you can do this!! ((((Hugs)))) 

  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2010

    No, no, no, no...as Brenda said, it's all you have. If it comes back, you will, like us, be on chemo for life-imagine how that would make you feel, if you are struggling to cope now with a few treatments? Do try to persevere-you only have one chance to get this out of your system, so do everything in your power to do so. If it comes back, you will then be stage 1V, which is terminal-and as I said, involves having chemo for life.

  • onward
    onward Member Posts: 296
    edited August 2010

    Hi Spark, I have not started my chemo yet. And you did not mention which surgery you have to do after. I didnt have a choice and had a double mastectomy on July 29. I have both infiltrating ductal and lobular. They took out a 9.2cm out of my left breast and thankfully there was no cancer in my right. I never want to deal with this again. I dont know what a dense dose is but I will be having ACT for 4 months and than another 3 months of radiation. I have to agree with the other ladies, I've been on this road before with others. Throw everything you have at it now. You are the strongest you can be NOW. And know, somewhere in Illinois, I will be praying for you. Onward

  • justpayton1
    justpayton1 Member Posts: 786
    edited August 2010

    Hi Spark..

    I had the same chemo as you and I completely get it. The AC was very hard for me too. You don't want to quit at this point, you are halfway through the AC. You need to hit this as hard as you can now. When is your next treatment?

    I had also asked my onc to quit or shorten the dose..no way was he going to do that.

    Please know we are here for you

  • workmother
    workmother Member Posts: 78
    edited August 2010

    Hi Spark. I am doing the same chemo as you. I finished my fourth AC and begin Taxol tomorrow. I know how you feel. I would like to quit now too. But we can't. This is all we have to fight with. For me, the first 2 rounds of AC were the worst. And the second was actually the worst of all 4. Maybe it will be the same for you too.

    These boards are a great place to talk to people and get suggestions on how to cope. I tried everything for my side effects with a lot of good results. There are discussion groups for each month of people starting chemo. Have you read the August chemo thread? I'm in the June group and it is a big help to talk with people going through this with you. Stay strong and don't give up! : )  Donna

  • jenweg
    jenweg Member Posts: 195
    edited August 2010

    Spark, be strong, don't quit!!  I did f dose dense ac and it really did suck, but I got through it.  You need to do everything you can to fight this now!!  I am doing weekly taxol now.  I will have my fourth taxol tomorrow.  It is a breeze compared to the ac.  You can do it!!!! Stay strong and kick this cancer's a**!!!

  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2010

    Hope all these answers are making you realise just how important it is to persevere. Cancer is such a sneaky beast, that all it takes now is for one cell to escape-and sooner or later it will cause trouble. I had 12 years between primary and secondary diagnosis-and was really beginning to think that all would be well, and that I would be one of the lucky ones. Sadly, this was not to be. I did everything we could-so the fact it came back is down to pure bad luck-I'd make the same decisions all over again. At this stage in your treatment, you need to focus on the bigger picture-not how rotten it's making you feel in the short term. You'll have nothing but regrets, if you quit now, and it comes back. You could continue with treatmnet, and it will still come back (as it did with me, and at least 2 of the other posters). But at least we have the comfort of knowing we did all we could to stay safe-should you quit, and this happens to you, you'll be filled with regrets-and probably unable to cope with this emotionally, when every day becomes a fight to stay alive. I've been on chemo for nearly 3 years now, so know all too well how draining and difficult it is-but am hoping to have many more cycles of treatment-before the cancer kills me, or before I can no longer tolerate the side effects.

  • spark
    spark Member Posts: 130
    edited August 2010

    i feel like a shell of myself. i feel quiet. and beaten down. how can chemo possibly be a good thing? what if i choose the whole shebang, the bi lat mastectomy route, then will they shorten the chemo??

    i do appreciate the perspective you guys are offering... 4 months seem nothing compared to years... i don't understand how that can happen?

  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2010

    The chemo won't be shortened-so please try to accept that it's a necessary evil. Those of us with recurrences need treatment permanently-some, who are hormone receptive (ie, er+, pr+), can sometimes use hormonal therapy. Those who are HER2 can use herceptin. But as you are triple negative, you don't have any of these options-all that you can do is use chemo. Hopefully you will never end up in the same situation as we are-but if you don't complete your treatment now, then the danger of a recurrence will be high. It's only a few months of your life-try to go with the flow, take a day at a time, and listen to what your body needs. You very well may end up exhausted, so will need to rest more-but it will pass-as will all the other symptoms.

  • justpayton1
    justpayton1 Member Posts: 786
    edited August 2010

    Hi again Spark,

    I felt completely beaten down w/ AC. I remember standing in the shower and just crying. It really takes a toll on you both physically and mentally but you have to keep moving forward thru this. I did dose dense..left radical mx and 33 rads. I was considered borderline for the radiation bc I had only 2 positive nodes. I was wore out by the start of rads and questioned whether or not it was really nessesary. My rad onc said to me..At the end of the day you want to know that you hit this as hard as you could. I am so grateful I took his advice. I ended up w/ mets 5 months out of treatment. It sucks but at least I know I did everything I could to prevent this from happening.

    My thoughts are with you..and I wish you the best and the strengh and courage you need to continue forward.

  • Chicago1018
    Chicago1018 Member Posts: 147
    edited August 2010

    Hi Spark--

    I finsihed the same chemo regimin you are on in March, had a mastectomy in May, and I had my last dose of radiation today.

    I can lend you some encouraging words by saying that I totally turned a corner when I switched from the AC to the taxol.  I found the taxol to be way easier and started feeling more like myself while I was on it.  The one I thing I felt so good doing is feeling that lump in my breast get smaller iwth each week of chemo going by. 

    Hang in there.  And make sure to talk to your onc about side effects.  They are more than willing to make you feel as good as possible during this process.

  • spark
    spark Member Posts: 130
    edited August 2010

    alot of you are saying AC is worse then T... really? that would make me feel better...

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited August 2010

    Let me put it this way Spark.  I did the short course of the Chilly Hilly on Day 7 of Taxol, Round 3 of 6. There is no way I could have done that while doing AC.

    So I really did have that much more energy.  True, it was the short course and I walked a lot of the hills, but I got my hide around the 22 miles of the cycling route.

  • spark
    spark Member Posts: 130
    edited September 2010

    ok, i have done 3 AC now. am still miserable. feel like such a whiner. i have to trick myself into thinking i am not going back, ever. i can't even say the word chemo. i heard taxol is scary and people have all these allergic reactions, etc. and i have an infection in my nose. i didnt even know that was possible! it is PAINFUL.

  • kittycat
    kittycat Member Posts: 2,144
    edited September 2010

    Spark - I did 4 dose dense AC and it was difficult.  I made it through & glad it's over. My onco ended up putting me on the weekly Taxol (12 times, smaller dose each time).  It has made my quality of life much easier!  also, when they first give you Taxol, they give it to you slowly to see how you will react.  I get steroids to take in pill form the night before and the morning of chemo and they put it in my premeds with some other stuff.  Some people get Benadryl, too.  I am allergic to Benadryl, so I don't get it.  Taxol is easier for most of us than AC. 

    Good luck and don't quit!!!!! :)

  • EllenGrand
    EllenGrand Member Posts: 5
    edited September 2010
    Sorry you are in tough shape, but you will get through it.  Just take everything only one day at a time.  I had chemo before lumpectomy surgery and radiation -- I'm well over 2/12 years post treatment.  Stay strong.

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