alternatives to breast mri?

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Peaches70
Peaches70 Member Posts: 210

Does anyone know of a safe alternative to breast mri? I have just been told that I can not have them anymore due to my only having one kidney and it showing signs of stress. Apparently the contrast medium can cause a deadly no-treatment disease in people with reduced kidney function. I have been having them for the last few years due to having LCIS and extremely dense breasts. The one I had 6 months ago showed areas of enhancement, so they wanted to do a follow-up now. I was all set for the 30th, then found out that my kidney doctor says no way. What else could they do?

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    I have heard that an MRI without contrast can be done - usually for someone who is allergic to the contrast medium. It's not as good as an MRI with contrast but is probably better than no MRI. It might be a good idea for you to look into this.

    Best of luck.

    Leah

  • KellyMaryland
    KellyMaryland Member Posts: 350
    edited August 2010

    Just yesterday went in for my mammogram (doing the every six month mammo/mri for PLCIS) and the radiologist and I discussed using BSGI (Breast Specific Gamma Imaging) either as a replacement for the regular mammo or a replacement for the mri.  I think it's a rather new procedure. It does involve a specific injected dye (can't recall the name of it)- but I think it's different from the dye used in the mri exam.  She mentioned the possibility of this because it's thought to be more effective in catching cancers in dense breasts. Hope this helps.

    Kelly

  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2010

    Peaches ~ I know very little about it, but there are some natural-minded women on this board, as well as other friends of mine, who choose to rely on thermography for their screening.  I've never had one, and would never suggest it in lieu of mammograms.  However, since you can't do the MRI contrast views, perhaps thermography could be one more tool in your screening arsenel?  From what I've read, the key is to find someone who is highly skilled at reading the scans.  Just something to maybe look into. 

    Other than that, I would consider getting your MRI at a large, university teaching hospital, if at all possible.  From my personal experience, the MRI machines they have can be much larger and stronger than those used in local facilities, so I'm guessing might possibly yield a higher resolution without the contrast.  (That's just my unscientific theory!)   They've also probably come across your situation in the past with the thousands of patients they see, so just might have another solution to the challenge of getting contrast views without jeopardizing your kidneys.     Deanna 

  • Peaches70
    Peaches70 Member Posts: 210
    edited August 2010

    Thanks for the suggestions. I'll check them out with my breast surgeon. I have been going to a special hospital for the MRIs, one that does both sides at once and is supposedly the best place in the area. I was told that without the contrast, there's no benefit in MRI for BC detection. At this point, the BS is saying that "if you get cancer, it will be slow growing and we can handle it" but that the risk from the gadulinium is dialysis or worse, so we're on just mammos for now.

    Anne

  • leaf
    leaf Member Posts: 8,188
    edited August 2010

    This from the American College of Radiology...

    These guidelines and recommendations are intended to suggest appro- priate utilization of imaging modalities for screening. They are not intended to replace sound clinical judg- ment and are not to be construed as representing the standard of care...

    There are no large, peer-reviewed published studies that support the routine use of other imaging tech- niques such as thermography, sestimibi, PET, transil- lumination, electrical impedance scanning, or optical imaging for breast cancer screening. Of these alternate screening modalities, thermography is the most widely studied. It was initially included in the Breast Cancer Detection Demonstration Project but was dropped after experience during the first 4 years of the project showed a sensitivity of only 43% for the detection of breast cancer [82]. The ACR and SBI do not endorse thermography or any of these other modalities for screening for breast cancer. http://weinsteinimaging.com/userfiles/BreastCancerScreeningJACR.pdf

    And this from 2009:

    More recently, high-resolution small–field-of-view g-cameras specific to breast imaging, sometimes called breast-specific g-imaging (BSGI) or molecular breast imag- ing, have been developed (52,53). Preliminary data using breast-specific g-cameras, compared with g-camera imag- ing, for evaluating women with breast lesions before biopsy demonstrated improved resolution of breast cancer, with improved visualization of nonpalpable lesions, lesions smaller than 1 cm, and in situ carcinoma (53). Brem et al. reported that BSGI correctly identified 16 of 18 cancers (88.9%) smaller than 1 cm. The authors also found 5 of 6 in situ carcinoma smaller than 1 cm (53). Another study by the same group demonstrated higher sensitivity in detection of in situ carcinoma for BSGI versus mammography or breast MRI (52). As with PEM, larger trials with compar- isons to standard breast imaging will be needed to support more widespread use of BSGI. These trials are ongoing. http://jnm.snmjournals.org/cgi/reprint/50/4/569.pdf

  • jane25794
    jane25794 Member Posts: 3
    edited August 2010

    I have a small lump in my left breast.. I really dont know what to do... I dont if there is a mammomgram her in my place or if there is it must be too expensive Im sure I cannot afford it. Is there any way to find out if I have a breast cancer? kinda painful and itchy. Please HELP.. I need it...I hope there are good people out there who can help me. PLEASE!!!!

  • leaf
    leaf Member Posts: 8,188
    edited August 2010

    The most common symptom of breast cancer is a PAINLESS, non-itchy lump.  That said, breast cancer can have different symptoms. 

    If you are in the USA, 

    Where Can I Go to Get Screened?

    Most likely, you can get screened for breast cancer at a clinic, hospital, or doctor's office. If you want to be screened for breast cancer, call your doctor's office. They can help you schedule an appointment. Most health insurance companies pay for the cost of breast cancer screening tests.

    Are you worried about the cost? The National Breast and Cervical Cancer Early Detection Program (NBCCEDP) offers free or low-cost mammograms and education about breast cancer. To find out if you qualify, call your local program. http://www.cdc.gov/cancer/breast/basic_info/screening.htm

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    anne-----I was also told they don't do breast MRI without the gadolinium; the contrast is needed for the MRI to be effective at detection. They told me all the questions about the kidneys  and the mandatory pre-MRI blood test are because gadolinium can cause nephrotic syndrome. I would definitely inquire about the BSGI and the thermography.

    Anne

  • fhaye
    fhaye Member Posts: 1
    edited September 2010
    I do also agree with the contrast is needed for the MRI to be effetive and leaf had really said it all.(Turning Winds)
  • Peaches70
    Peaches70 Member Posts: 210
    edited October 2010

    Right. MRI minus the contrast is not much good. So, I checked out both thermography and BSGI. There are 2 places within a reasonable (less than 2 hours) distance that do BSGI. But my breast surgeon does not feel that it is a good option, nor does she like thermography. She was looking into CT mammography for me, but there is no center anywhere close to here. So she is suggesting having ultrasound as the backup to my next mammogram. I can't really fight this, as my insurance won't cover it unless it is prescribed, and I can't afford it on my own. Any thoughts on this.

  • Peaches70
    Peaches70 Member Posts: 210
    edited October 2010

    Thank you, leaf. I saved the article for discussion with my BS next time I see her.

  • Mantra
    Mantra Member Posts: 968
    edited October 2010

    I had a BSGI last winter to help me to make a decision whether to have a SNB. There was a shot involved in the procedure but since they didn't require a blood test in advance to check my kidney function perhaps the injection might be okay for someone with kidney problems.

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited October 2010

    Peaches, it may be an extreme option, but down the road, would you consider prophlyactic mastectomies with recon?

    I have super dense breasts too, began with IDCIS, lumpectomy, and rads in 2001, only to have it come back (or a new they say) in 2007.  Went with skin sparing mstcmy, and I have very dense boobs, so I do want to get a prophylactic on the other side.  I am sick to death of MRIs (yearly) and the attendant stress of mammos.  With prophy and skin sparing I can get to a 1% chance of bc and I did not have nodes, tho mine was invasive.

    I have heard good things re: that thermal imaging...

    My cancer was not caught by either US or Mammo, as it was too close to chest wall.  Only the MRI got it and it wasn't done with dye?  I had concerns re: it and they said they did not need it as it was a digitally enhanced MRI.  I am in a Yale teaching hospital (Norwalk Ct) and they do have some great stuff....how about a large teaching hospital such as Yale? Don't know here you are, but if in NYC area, you can talk to the people at MSK.

    Also, when I had my first cancer, we had no insurance....hospitals will work with you to set up payment plans you can afford.  It took 10 years, but we finally (at 150.00) monthly paid off the first 46,000 bills.........you do have to ask them, and come up with financial records, but they cannot refuse you.  This info will usually not be volunteered.

    good luck!!!

  • eileen1955
    eileen1955 Member Posts: 365
    edited October 2010

    My advise is similar to anniealso.    

    How was your first cancer detected?  Mine was not picked up on mammo.  It was only picked up on u/s b/c I lifted my breast and directed the BS to the specific spot where I felt the thickening. so u/s was not a useful screening device for me at all.   

    I am 55 now and was told that in ten yrs I will not be allowed to have the contrast-dye in MRI.(too risky for a 65 yr old woman with normal kidneys)  So that was part of my decision-making process to have PBM.       Of course, every story is different. And every woman is different. 

  • feh
    feh Member Posts: 63
    edited January 2011

    leaf - Please do not feed into the tripe that cancerous masses are not painful.  Far too many women find that they are.  Worse - far too many physicians still cling to that myth.  Painful - non-painful - if it is an area of concern, then a woman needs to take rational steps.

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