HELP ME PLEASE... I AM BEGGING FOR HELP...

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  • ElaineM
    ElaineM Member Posts: 81
    edited August 2010

    Hi,

    I am sorry you are under the weather today. Hugs !!!!!!!!!!!! 

    Ask for help !!  Remember you are never alone. Nurses, doctors, friends, relatives, clergy people are good people to ask for help. There might be community resources to help you with things you might not have the energy to take care of like shopping or other chores.

    Maybe you can ask your doctor's nurse for suggestions. She or he might be able to suggest resources you can access to help you cope. Is there a support group available near you where you can talk to other people in the same boat.

    Even if you don't have much energy try to take a short walk outside, listen to your favorite music, read a book you have been wanting to read for awhile, read magazines  or watch a good movie on T. V. Feel free to take a nap anytime you feel like it.

    Whatever you do keep putting one foot in front of the other, even if you are doing it slowly to lack of energy. Hang in there. Take good care of yourself and treat yourself well. You deserve it !!

    These are things I learned over the years.  I was diagnosed in January, 1999.

  • ibcmets
    ibcmets Member Posts: 4,286
    edited August 2010

    Vicky,  We all feel for you.  Just count down the chemo's and knock them off your list of "need to do".  Eventually, you will only have 1more left.  My onc pushed me to do a couple more since I was doing well on them.  The worst SE I had was heartburn which Prilosec took care of & extreme fatique.  I did not like the adriamyacin and did 4 of them.  I tolerated cytoxin & taxotere well.  I have bone mets and the chemo healed my bone lesions after  8 chemos.  Good Luck to you in getting through this.

    Terri

  • jenn3
    jenn3 Member Posts: 3,316
    edited August 2010

    Vickie - I am so sorry you're having a tough time.  I'm sure you know this or I may have missed it in an earlier post, but the steroids really play havoc with your emotions.  They get you really wired before and right after chemo, then you have to come down and so many of us just crash down - tears, emotional outbreaks, sad day, etc..... Try to see if your emotions go with the flow of the steroids, if so talk to your onc about it. 

    Also, remember you are the one going through treatment and if you have to skip an event or leave early it's okay - you need to take care of you.  One of the hardest things I had to learn to do was accept help and if I wasn't up to it, skip events, games, family gatherings.  Once I learned to do that and accept that some days are better than others the emotional side of this miserable disease was much easier to deal with.

    Good luck and I hope things get better for you.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

    But don't be afraid to go to things if you do feel up to it; you can always leave early if you don't feel well (or if it is boring, you can use it as an excuse and nobody will be mad at you!). Sending a big hug your way! Ruth

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited August 2010

    Vickie, this time sucks, I won't lie....I got thru it with a load of Craig Ferguson every night and some really bad jokes....I read Bridget Jones to make myself laugh.  I reminded myself that THIS IS TEMPORARY AND IS A TREATMENT TO HEAL ME.  Say as many times as you need.

    It's not fun.  It is war.  And you are going to win.  the steroids do a huge number on emotions.  It's a little bit like being pregnant...I told myself I was going to give birth to the new me.  That helped.

    You do need to look out for you, as others won't.   Ruth is right, do what you feel up to, but put you first, for once.  This is the time to do it.

    You will be back.  You will be healed.  I'm putting you in my prayers right now.  And I did notice that chemo got a little easier as it went along and my body learned what to expect.  In my case, severe heartburn, never nausea, helped perfectly by prilosec the week ahead of chemo and 3 days after it.  I did get mighty fat, from the steroids and I would get wired the night after from them and stay up all night.  Usually came on here to chat.  Then I'd crash, sleep til noon the day after, be v tired for 24 hours, and after that, I would pretty much bounce back.  It seemed like I had a violent reaction to the first one, not so much after that. (Yes, the weight came off when the steroid left my body, took a month or two).  I got all my hair back, in fact double the amount I swear. 

    My reconstructed boob is beautiful, still a barbie boob but all in good time.  Put you first, honey.

    xoxo

    annie (((((((((((((((((((((((((((((big but gentle hugs))))))))))))))))))))))))))))))))))))))))))))

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010
    Vickey, you go girl...kick some cancer butt.Kiss
  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    Two more days til Taxol.. the anxiety is getting worse.. I have to get through my treatments with telling myself that I have one more to go instead of three more to go.. I am just afraid.... afraid that there will be another side effect that I will have to deal with.. @anniealso.. I HATE the reconstruction boob..it just sits there.. I wish I would have gained weight.. I lost 10 pounds.. and I am already small so me loosing 10 lbs just made me look like a stick..

     I take out time for just me.. If I am to tired to make an event I stay home and in some cases I did leave early... The taxol just puts me in so much pain.. and I listened to everyone say that it was easy for them and the hair started to grow back and those that lost weight started to gain it back. and none of that has started to happen for me.. the tears are rolling... My self esteem is gone.. I think my husband is cheating why because I have lost weight, have no hair and can barely function.. still crying... next no eyebrows, eye lashes and I will be sharing clothes with my 13 year old daughter.. OMG... I CAN'T DO THIS ANYMORE....

  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    Sweet Vicky, you can do this. Don't count how many tx you have left, just say, "I have to do THIS ONE". I also had terrible pain with the taxol and ended up taking percocet. Make sure your doc gives you a prescription for a VERY STRONG painkiller.

    I also got, shall we say,  extremely annoyed by all the people who were saying how my hair would start to grow back on taxol (it didn't and any hair left fell out then, including my eyebrows and eyelashes) and it wasn't as bad as A/C (it was as bad, just in a different way) etc etc. It's awful, pure and simple, but there it is.

    What worked for me was, first, telling myself constantly that the way I felt was because of the treatment and not because of the disease. The other thing was reading humorous or escapist books. It really did take my mind somewhere else. Movies & TV would probably also help. There were times (and there are still) times when thinking is the real enemy so doing things so I wouldn't think was a real weapon.

    I had a friend who said "Taxol taxes all". it was a helpful thought for me going through it.

    When you go in that treatment room, all of us go with you. Remember we are holding your hand, rubbing your back, sitting with you, loving you. And I am sure your family is loving you, too. They don't care how you look, they just want you to be all right.

    My prayers and my love go with you.

    Leah

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010
    Vickey, hold on girl.  It is a tough ride...one of the hardest you will ever do.  Take it one day/treatment at a time.  Some are hard, some are easy.  I would break it down into 1/6 then 2/3 then 1/2 way.  then more than half way you get the point..I know it is hard, but before you know it. it will be done.  We are all thinking and with you emotionally every treatment, just like someone else said. Kiss
  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    Okay, I am really freaking out.. in the other discussion women are saying that Taxol causes permanent baldness and my finger and toe nails might fall off, is this true?

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Vickey, no, no, no....any of these things are slim to none chance.  I have not talked to anyone who had any of these things.  Most women sail through chemo with only a few of the SEs.  The benefits do out way the SEs.  Try not to think that all the bad things will happen to you.  I had only a few SEs and made it through quite easily.  Hang in there girl.  Perhaps talk to your Dr. or nurse and see about finding a support group in your area.  Perhaps talking one on one with others will help.  I two  books when i was first diagnosed and about to go through chemo.  They were called "Cancer is a word, not a Sentence" by Dr. Robert Buckman, as well as "The Chemotherapy Survival Guide", by Judith Mckay and Tamera Schacher..  They really helped.  Good luck

  • shells43
    shells43 Member Posts: 1,022
    edited August 2010

    Hi Vicky, they are talking about Taxotere, not Taxol. I'm taking taxotere right now and haven't had any of the problems you worried about. So don't freak out, know you are feeling low right now. Did you watch that video of the pug singing batman someone posted? Cracked me up!

    Take it easy on yourself, girl. You can make it. Check in with your onc if you need to, they are there to help you. Sometimes I just phone the nurses and they will talk me down a little. They are a good source of information and encouragement.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Shelley is right the nurses are super and they have seen it all.  

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

    Once I made my decisions and KNEW what I had to do, I QUIT reading anything at all about possible SE of any given treatment. I didn't even come on BCO for a long time because I found myself drawn to all the horror stories and that is not helpful AT ALL. Just come to your thread or the humor and games section. Don't read or think about anything else. What you are doing right now is trying to save your very life, so you just have to forge ahead one day at a time. Tell the medical people about any problems you have and follow their advice in dealing with them. Hang in there.Ruth

  • SunnyCoconut
    SunnyCoconut Member Posts: 350
    edited August 2010

    Vickey-    I did the same chemo as you.  I never lost a nail and yes my hair grew back.  You may get some horizontal lines on your nails or they may feel sensitive, just be gentle with them.  I kept mine painted the whole time, that way I couldn't obsess over them.  My hair is about an inch long and I bleached it!  My PS's nurse says I look like a rocker girl!  I agree with Ruthbru, there were times I couldn't read a thing about cancer or treatments or side effects.  Just keep your eye on the finish line, you will get there.

  • psavast
    psavast Member Posts: 14
    edited August 2010

    Dear Vicki,

    I am sitting here in tears with and for you. None of what we are going through is something that we like or deserve...however...we are in it. It does not have to define us or our lives. We go through the treatment to save our lives. No one ever said it would be easy. I am certain you have discovered by many here it is certainly worth it.I had a bilateral mastectomy November 20th. I had finished my 4 sessions of chemo on March 1st.  I dreaded each treatment however I knew each one brought me closer to the last one. I named the treatments "The Solution" and numbered them on the bathroom mirror on a note pad, after each one I would boldy cross one out. We all have our coping mechanisms and even though I have finished the chemo, and then 30 radiation treatments, I am still having to look ahead to October for my reconstruction surgery. Life will never be the same and I still have days I allow myself to cry. I thank God for my family, friends and medical professionals that have helped me though this. Allow yourself fear, sadness, even anger. There is so much good to be learned on this site.

    God bless you and all of us here.

    Pat

  • jenn3
    jenn3 Member Posts: 3,316
    edited August 2010

    Vicky - It gets better.........please don't feel like something is wrong because some women did better on Taxol than you did.  Taxol pain is terrible.  While it is different than AC, it can also be worse for some.  I felt better on so many levels with Taxol, but at the same time suffered with so much pain - I couldn't stand to be touched, I had bone pain, muscle pain, nerve pain........It was awful.  But.......I got through it and you will to.  Like one of the post said earlier instead of saying I have 2 more to go.........think or say I have just finished two.  Reversing the train of thought does help.

    ((((HUGS)))))

  • psavast
    psavast Member Posts: 14
    edited August 2010

    I had Taxotere and Cytoxin..........didn't loose one nail....did not have discoloration of my nails....my hair is (only) 2 inches long.so far...so...my suggestion is....be informed...don't be afraid. Some people have more side effects than others...most do not experience all of them. Your hair will grow back....sorry to say...probably not soon enough from my experience...BUT...it does return.(((((hugs)))))

  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    just want to THANK ALL OF YOU who has responded and reached out to me.. I posted a comment on one of the other forums (as suggested by many of you here) where women started chemo the same time I did and they are not nice.. I asked a question about the baldness there because that is where I read it and the girl chewed my head off. So I just want to say thank you, I have not met any of you directly nor do I know you personally but the strenght, and support that you have given me here is priceless.. Thank you for your time and words of wisdom and encouragement.. This site is the only place that I can speak freely, be afraid, be scared and any other emotion that I may feel.. So Thank you..

  • navygirl
    navygirl Member Posts: 886
    edited August 2010

    Vicky...rock on girl! What ever you have to do -whether it's telling yourself one more for the next 3 treatments, or crying just because...you do what you need to do! Ruth gives good advice, don't be afraid to back out -or use it as an excuse if it's boring ;P

    Don't freak about the other se's...there is a whole range of things, good and bad, people have to say. Your experience will most likely be yours and not a carbon copy of someone else's.

    Absolutely, don't be shy about asking for pain meds...I used to take darvocet for a bad ankle, there were many times when I was on Taxol that I needed it for that -and guess what? My ONC had no problem with it and refilled my prescriptions for me without hesitation. Whatever gets us through hell, is what we need.

    I'm so proud of you, a hero isn't someone who knows no fear -it's someone who KNOWS IT and faces it anyway. That's what you do every day you get up and face the world. That's what you do every time you show up for your infusion. It's not easy, it sucks all around, but -you're doing it! Hang in there darlin' - you are getting closer to the finish line each day.

    (((Vicky))) hang in there... 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010

     Here's a great quote for us all:

    "Courage is being scared to death but saddling up anyway". John Wayne

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Vickey, I found that drinking lots of water through chemo helped.  I think it helps to flush the crap out...my onc said that there are drugs out there for every SE, you just have to ask.  No need to be in pain.  I had Taxotere and the first was killer and the second not far off, but my last was the easiest.  They all are a little different.  drink lots of water, get tons of fiber and take good care of yourself.  Talk to us, we will hold your hand and walk you through.  We are right beside you.  Good luck tomorrow.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    Vickey, I found that drinking lots of water through chemo helped.  I think it helps to flush the crap out...my onc said that there are drugs out there for every SE, you just have to ask.  No need to be in pain.  I had Taxotere and the first was killer and the second not far off, but my last was the easiest.  They all are a little different.  drink lots of water, get tons of fiber and take good care of yourself.  Talk to us, we will hold your hand and walk you through.  We are right beside you.  Good luck tomorrow.  After tomorrow you will be 1/3 done...if I am correct.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited August 2010

    Vicky...I'm so sorry u have to go thru this. And how u r doing it with 6 kids is an accomplishment in itself.  I took AC dose dense X6. I want to let u know that I lost all my nails and hair...but they all grew back!!! So if this happens to you..please dont freak out. You will get thru this and you will be proud of yourself for completing it. Hugs, Mazy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    Hi Vicky - Your suffering is tugging at my heart.  I was not prepared for the pain I experienced but I learned my lesson well by telling my Onc I needed meds to counter any SE that popped up.  I took Xanax which was very helpful when I was so scared I didn't know where to turn, I take an anti-depressant too, I had several levels of pain meds if I needed (most I still have - it was just knowing they were there if I absolutely had to have some relief), I had 2 kinds of nausea meds (I feared that more than the pain but with these meds, I never did get sick), and I take Ambien at bed time - a good night's sleep will give you more strength both physically and emotionally to deal with all the yuk.  I more or less surrendered to the fact that I was trading a few weeks of a 'flu-like' illness for the rest of my life.  Drink lots of water - it flushes your body and makes you feel you are doing something good for yourself.  Force yourself to relax - deep breathing is really helpful for this - inhale through your nose to a slow count of 10, hold for a count of 10, slowly exhale through your mouth to a count of 10 - try it, you'll be amazed.  

    Basically, I believe in doing whatever helps to get you through this time period.  Although time seems to just crawl, it will pass and soon it will be tomorrow, and then it will be the next tomorrow, and before you know it, you will look back and say 'Whew, glad that is over' and your life will slowly, but steadily, return to a more normal existence.  Life, however, won't be the same - it will be better.

    Stay strong - talk to your Dr and get help for the SE.    

  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010
    Vickey how are you doing?  Hope it went better yesterday.Smile
  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    I had treatment yesterday. 2/4 taxol, was very anxious at first.. Had nice conversation with onc.. Explaining more in details about my treatment and my options.. He informed me that the next two were up to me if I wanted to continue or stop.. He understood all my concerns and told me that having all three completed the A/C and Taxol only increases my chances of it not returning by three percent.. Since I already had 4 of A/C and two of taxol then I have increased my chances by 1 1/2 percent..we decided not to do the Neulasta shot this week and see how my body feels.. He also suggested that I could come once a week for treatment but that would extend me out 8 weeks instead of the four.. If I continue I will be completely done on September 16. If I return on September 2 and my blood count is not up then we will have to wait another week.. Which might not be as effective..

    He stopped the Neulasta because it causes bone pain along with Taxol, so I was in double the pain.. Hopefully I won't be in much with out the Neulasta.. I am going to think ahead and start with the Tylenol and Motrin..

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2010
    September 16th is right around the corner!!!!! Smile
  • micheleboots
    micheleboots Member Posts: 1,993
    edited August 2010

    My first three chemos were FEC then I had taxatere for three.  I only had neupogen with the last three because of the cost.  My onc said she would try the first without and see how it went. I never got sick, not even once.  I was super good about germs and walked around with lysol wipes and hand sanatizers..I did have it for the last three, because my onc insisted.  I had a lot of bone pain.  I am convinced that it was the T plus the shots that did it.  My second treatment of T I also took cleraton as some women claim it helped with the bone pain...not sure if it did indeed help, but I was not in as much pain..hope you are doing well.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited August 2010

    Vicki,

    horrified that you received that kind of response on another forum!!

       I had a really tough time too, and railed at the inhumanity of it all.  I'm not one to mince words...so again, you come on back anytime....your feelings are normal and make sense.

    Wishing you Well, Warrior Woman,

    Traci

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