- - - any tripls here?

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Carly68
Carly68 Member Posts: 130
edited June 2014 in Who or What Inspires You?
- - - any tripls here?
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  • Carly68
    Carly68 Member Posts: 130
    edited February 2008

    Hello

    I was justing reading all the wonderfull stories and was wondering if any were what they call triple negatives invasive ductal..

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  • CookieOkie
    CookieOkie Member Posts: 74
    edited February 2008

    Carly:

    Hello:

    Yep, that's me. triple negative, invasive ductal, the rest is below. Pretty scary. I love hearing from Sadie though, she gives all of us hope. I started chemo, had one session. Not bad at all. Took 2 hours only because they let it go in slow in case of a reaction. Was done last Tues and felt just fine, except, I did not continue to take my nausea medication and on Thurs felt a little under the weather, then on Fri did get sick. Took my nausea medication and a pain pill because my scalp hurt so much. I slept a lot on Sat. and feel great now. So, next week I'll know to continue taking my anti-nausea medication longer than one or 2 days.

    I have read so many awful things about triple negative, but I know there has to be some good info out there too. I did read a couple of things that gave me hope. I guess the most important thing is to be very aggressive in your treatment the first time around.

    Cookie

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2008

    I was triple negative. I was diagnosed Sept 2005. I had a 2cm tumor which I found myself in July 2005. On first exam, surgeon said it appeared benign from the shape. I did a mammo and the mammo results stated that it appeared benign but suggested doing an ultrasound. During the ultrasound (which was at the end of Aug 2005) the doctor asked me when I could see my surgeon as the tumor was highly suspicious. I saw the surgeon right after that and a few days later I had an excisional biopsy (my choice).

    I was triple neg with no node involvement.

    I had a lumpectomy and snb.

    I then did 3 out of 4 AC (got deathly ill on the AC) and then 12 Taxol treatments.

    I then did 33 radiation treatments.

    So far..NED. :-)

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  • lemonpie
    lemonpie Member Posts: 183
    edited February 2008

    I was diagnosed March 2007.... Triple Neg, 8.5cm tumor size , positive nodes, some skin & vascular involvement, took 6 rounds of TAC (finished 8/2/07) followed by unilateral masect.(8/31/07), then 6 weeks of radiation.  So far I'm doing great but I have my first 3 month check up in March and I'm really freaked about that. 

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  • sharebear
    sharebear Member Posts: 332
    edited February 2008

    I've been triple neg twice. The first time 13 years ago when I was 32 and again at age 44. I'm now 45. I had  lumpectomy, radiation, 5FU the first time. The second time it was in the other breast so I decided on a bi-lateral mast., tram. flap recon, A/C. weekly taxotere. I've been done now since mid September of 07 and trying to get my body back in shape but feeling pretty good.

    Lots of weirdly curly hair. Went blonde. I am dealing with a pituitary gland tumor, but we're not sure what that is yet.

    It all gets better. I'm going to Hawaii in 37 days and I can't wait! Although I do wish I could lose about 10 lbs of those darn steroids for the bathing suit!

    Sharon

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  • wvgirl
    wvgirl Member Posts: 196
    edited February 2008

    I found my lump in Oct 07. I had mamo Marh 07 it did not show up. I had lost about 25 pounds. i found my lump in Oct 07. It DID NOT show on mamo but did on ultrasound (do to dense breast I was told)

    I was dx 11/07 triple neg IDC 3 cm stage 2 and triple neg as well. I had a biob of 1 node it was positive.

    I signed to do a clinical trial Neoadjuvant Therapy NSABP B-40

    I was placed in the standard group. Which means I will receive the standard treatment. Taxotere x 4 every 21 days then A/C X 4 every 21 days. Surgery then Rads (amount of rads will depended on how many come back Positive)

    I too am worried about being triple neg. I have read that after 3 yrs your chances are better and after 5 they are even better. When do you start to count after dx or after treatment is complete ?

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  • Laura-Vic
    Laura-Vic Member Posts: 72
    edited February 2008

    Another triple negative here ... I found my own lump in August 2007, had mamo and ultra sound and biopsy same month. Then, bilateral mastectomy in September 2007 - my choice.



    Had invasive, 4.1 cm tumour, grade 3, stage 3b, 1 positive node and yes - triple negative.



    Started chemo - FECD in November of 2007 and will have my last injection on February 28, 2008. I am then scheduled for 30 treatments of radiation to follow. Am doing okay but admit I will be glad to have some hair, any hair back ... have been bald since mid-November and I'm getting ready for hair over the summer - maybe.



    I'm happy to hear that some of you are still doing well ... I was / am still kinda freaked that there is nothing available post radiation. I kinda feel like I will be falling into the black hole ... Just keeping my fingers crossed that I will be around long enough to collect a pension.



    Hopefully there will be treatments coming with all the research - or - we'll find out that we're just really special and can beat this !!! Well ... sorry, we ARE special - that's a given !!!!





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  • TiffanyF4
    TiffanyF4 Member Posts: 171
    edited August 2010

    Yup me too! Sept 2009 found the lump myself 5.25cm grade 3 zero nodes stage 2b. Bi-lateral mastectomy next month started 4 rounds of Taxatere & Cytoxin then 40 rad treatments. I am anxious about hitting that 3 yr mark and then the 5 year is almost a get out of jail free of sorts.  Good luck to everyone!

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  • Jwatrlily
    Jwatrlily Member Posts: 211
    edited August 2010
    Just had my partial mastectomy Aug. 9th.  I'm a triple negative too.  I never did feel my tumor nor did my Dr. or surgeon.  It was small, 0.1 cm. x 1.1 cm  It was found via Ultrasound after the mammo showed a "thickening" at 12 o'clock in the left breast.  I have my post-op with my surgeon on the 24th with a referral then to the Oncologist as my surgeon told me since I am triple negative, I'll have to have chemo and radiation both.  Prayers we all live long lives with no recurrence and hit those golden years of better prognosis.  This group is kind of old since recent posts but thought I'd jump in.

    Juanita 

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  • Braveheart
    Braveheart Member Posts: 66
    edited April 2011

    I'm 34 and also triple negative. Found the lump myself and on Jan 17, 2011 my doctor confirmed my fears. I had mastectomy and now going through chemo. DD 4x AC and 4xTaxol. AC was tough but taxol is tough on my bones. You're all in my prayers.

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