Stage 1

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d2909
d2909 Member Posts: 1
edited June 2014 in Stage I Breast Cancer

I am 51, and had a right breast .9mm tumor, ER/PR positive, HER2 neg. I also had DCIS in both breasts. I also had a double mastectomy, 7/13.  My Onca Dx score was 23, at the low end of the intermediate range. The current plan is for four rounds of chemo starting next week, over 4 months and then tamoxifen.

All of this is overwhelming of course. I am looking for folks like me who may have had a similiar path. Also, I am very concerned about recurrence. I know this was an early detection, but I am worried about this coming back in other places. Are there folks out there that would share their story with me? Thank you.

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  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2010

    Hi,

    I was diagnosed last Dec. 21st with Stage 1 Grade1 ER/PR positive and HER2neg. as well. My tumor was .7   I also had LCIS in both breasts. I had a bilateral mastectomy as well. My story is different maybe in the fact that I had every complication surgically that could go wrong. Infections in both incisions most likely hospital aquired. One incision broke open and took months to heal. 2 different IV antibiotics via PICC line almost going 24/7 due to dosing for 6.5 weeks.  Then an uncommon side effect of one of the antibiotics for 5 weeks that caused me to not have my balance. My Oncotype Score was 12. No chemo. Tamoxifen then an AI after I go through meopause. I am going to be 54 in Oct.  No family history what so ever and found on routine mamo.  It is overwhelming and I think you will find yourself having every emotion possible and sometimes without warning. My advice to you would be to surround yourself with trusted and I mean trusted individuals that you can truly share your emotions with, without worrying about being judged. You will find that many just don't get it. I have started eating almost everything organic, little processed, low surgar getting excercise almost daily. Stay away from Soy products and limit alcohol. There are things about this disease we simply can't control.  But those other things we can really do and it will help keep us healthy and help with reoccurance as much as we can help with that. There is a wonderful article on Breastcare.org I think it is that talks about the grieving stages you go through specifically to loosing a breast. It was very helpful to me. It helped to validate that the emotions I was feeling were normal and ok. Be gentle with yourself. Good luck and know there are many here on this web site that care and truly understand what you are going through.

  • kira1234
    kira1234 Member Posts: 3,091
    edited August 2010

    Hi,

    I sure can relate to you. I had surgery 7/7, second surgery to get the margins correct, mammasite radiation, thought I was done, but then the oncotype dx came back with a 24 score. Well now I am also looking at 4 rounds of TC over 3 months. Not at all what I thought would be going on. I am 57, and by the Dr. young for breast cancer so need the chemo. I see my Dr. on the 23rd, and will find out when I begin my treatment. I'm not looking forward to it as I am a 2nd grade teacher and the year is just beginning.

    I can also relate about the fear of it going some where else. That is why I will do what ever I need to be healthy. I agree with determined with the food choices. I would also add how important exercise is, and staying within a healthy weight. This is an issue for me I have about 20 pounds I really need to lose, and exercise which I hate doing.

    Karen

  • tiff2008
    tiff2008 Member Posts: 278
    edited August 2010

    I was in the same boat as you.  My oncotype score was 17, I still chose do go thru chemo and of course radiation.  I also take Tamoxifen (2 yrs now).  One of the  main reasons why I chose the chemo is that I was only 42 yrs old (also young for bc) and I wanted to give everything that was available to prevent a reoccurance.  I exercise 5 times a week and try and eat healthy, limiting the bad stuff.  This is all we can do, no one knows whats in our future.  Have faith, be positive and live each day to the fullest.

    tiff

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