Ugly arms after chemo

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pamcycle
pamcycle Member Posts: 39

I just had my 2nd round of chemo, AC.  The chemo nurse felt I should have a port not because my veins are difficult to start an IV (can only use the right arm).  She said I have nice arms and the chemo is going to make my arm look like and drug addicts arm.  I am a registered nurse but never worked oncology or dealt with chemo drugs.  Please tell me you experiences.  I will receive two more doses of AC then Taxol every week for 12 weeks.  It is always something with this dam BC.

Thanks you so much.

Comments

  • msmpatty
    msmpatty Member Posts: 818
    edited August 2010

    Pamcycle,

    After three tries to get to a vein at my first AC, the nurse suggested I get a port.  I did the same regimen you are doing and with so many TXs it seemed to make sense.   So I got a port.

    The port was great as far as the TXs are concerned.   Just one stick in the port and I was good to go.  There are downsides, however.  The port requires surgery to impant and although I had no problems with it, my surgeon had seen many complications and isn't a fan of ports.   There was some discomfort after surgery  and you are left with a bump on your chest.   Taking it out is an office procedure and painless (after numbing) but it does leave a pretty significant scar.  Mine is slowly fading now.

    Another option is something called a picc-line.   This is inserted into a vein in your arm, threaded to where they want it and left in place.  The advantage is that it can be done by a RN and doesn't require surgery or leave a scar.  The disadvantage is that have you tube sticking out of your arm for months and have to avoid getting it wet, etc.

    With the port I had one less thing to dread about the infusions and overall I'm really glad I had it!   The picc-line would also accomplish this.

    Patty

  • Titan
    Titan Member Posts: 2,956
    edited August 2010

    I have 8 treatments...one year ago..had the IV each time...I have one little spot on the side of my hand..that's it...

    I really don't mean to have an attitude..and  I apologize to nurses out there...but I think that the nurses should be able to handle the IV for you..unless of course, the veins are virtually impossible to work with.

  • starling
    starling Member Posts: 76
    edited August 2010

    Pamcyle,

    I am scheduled for my first chemo on 8/25. I have almost the same path as you and I am having the exact same regimen as you. I was pretty much told I had to have a port. They told me the AC is very toxic and can damage the skin if they miss the vein. Since I have seen pros and cons on this site re the port, I figured it wasn't a big deal. We'll see. I get the port on 8/24. Bless you all. 

  • kmartin
    kmartin Member Posts: 78
    edited August 2010

    I had a port:

    Pros: made chemo very easy with just one arm to use. Chemo is very toxic to the surrounding skin, so if it does infuse into the skin it is a big problem.

    Cons: I developed a blood clot in my arm, twice. Could not draw blood out of it...they just couldn't get it to work right. Also, the scar is still visible after 2 years, but is gradually fading.

    I recommend that you always weigh the pros and cons of all medical decisions.

    Kathy

  • Luah
    Luah Member Posts: 1,541
    edited August 2010

    AC is toxic, but with good veins and an excellent nurse, it can be done.  That said, you are having 16 infusions altogether, as I did, and that is a lot for anybody's veins to take.  I had a PICC line, which seems to be more commonly used in Canada. Less invasive, but needs to be flushed weekly and stay dry.

  • jenn3
    jenn3 Member Posts: 3,316
    edited August 2010

    I had a port so I don't have the experience of having had chemo in the veins.  However, when the port was presented to me,  the port vs veins conversation,  ugly arms was not part of the conversation.  The only thing that came up was that the veins may get harder to find as time goes on.  I'm sorry that nurse said something so unprofessional.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    I didn't have a port for chemo. The doc who does the IV's at the facility I went to had no truoble finding veins.

    BUT

    My veins are now almost destroyed. I'm now Stage IV and having monthly Aredia infusions. For my last infusion it took SEVEN TRIES to get a vein. That's not 7 tries by an incompetent person. That's 2 tries by the nurse (and I know her and she's usually VERY good at getting a vein) then 2 tries by my pcp, who suggested calling the pediatrician since she's used to getting little baby veins. She also tried twice, couldn't get it, put Emla cream on the back of my hand (I hadn't wanted it there since it's so much more painful for me, hence the Emla) and, finally, after the Emla took effect she was able to get a vein on the back of my hand. The nurse said my veins are very brittle as a result of the chemo.

    Seeing my onc in a few weeks and discussing a port.

    Leah

  • wifenmom
    wifenmom Member Posts: 3
    edited August 2010

    I did the AC dose-dense X4 and 12 Taxols, all without a port.  I had great veins going into this, and I still do.  My one vein near the elbow is a little nercrosed now, but it doesn't look any different from the one in my other arm.  For what it's worth, I was really happy to avoid the two extra surgeries (placement and removal) involved with ports.  Good luck whatever you decide.

  • artlab
    artlab Member Posts: 2
    edited August 2010
    My arms were already "ugly" (ok, fat!Smile )....but seriously, I LOVED having my port.  The actually implanted it the day I started chemo.
  • HollyHopes
    HollyHopes Member Posts: 497
    edited August 2010

    i opted for a PICC line and it lasted for all 4 A/C infusions and 2 of the 4 Taxol infusions.  i accidentally pulled it out while folding laundry ( lifting my arms up high to 'fluff' the bedsheets..dumb, i know!!).  had the final 2 infusions with IV but i am a very 'hard stick' (little, deep and moving veins). 

  • Luah
    Luah Member Posts: 1,541
    edited August 2010
    Hollyhopes: That actually sounds like your PICC wasn't taped down properly.  I moved my arms very freely with my PICC line (and skied every weekend).  It did come out a ways, and I had to get it replaced, when on one dressing change, the home care nurse untaped it and I rushed off, reaching to grab the phone because my onc was calling. (that was dumb!) 

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