Second Primary Breast Cancer?

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klmcd42
klmcd42 Member Posts: 3

Hi--  Three years ago I had BC, Mastectomy, chemo and Rad.  Today see calcification in remaining breast that "could" be CA.  I am wondering if this is a new, primary, cancer, can I have the same chemo drugs (Adriamiacin, cytoxin, taxol) and radiation?  Or is there a lifetime cap on these things?   I am considering, if this turns out not to be cancer, going ahead and having a mastectomy.   Thoughts?

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  • sjstrader820
    sjstrader820 Member Posts: 10
    edited June 2010

    I had BC 5 years ago, with chemo & radiation, lumpectomy. I have a recurrence now, and am waiting for tests to check my liver, brain and heart. My surgeon said the oncologist will decide if I will have chemo this time or not. I am having a mastectomy this time. I am also triple negative, and wish I had a mastectomy instead of the lumpectomy. It is hard to face all of this. Hope you get good news. I'll be thinking about you and hoping all is well.

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited August 2010

    Hi - I had breast cancer twice.  First on the left side in 2000 (age 35) and then six years later on the right side.  Both times I initially had lumpectomies, lymph nodes removed, chemo and rads.  Then I had the BRCA genetic test.  I found out I was positive for BRCA 1.  I then decided to have a total hysterectomy, and six months after that I had a double mastectomy with reconstruction.  I really panicked when I found out I had the gene.  I immediately wanted to know what I could do to stop the craziness and worrying.  Those were the choices I made and I am happy to say that I do not regret what I went through.  I hope you do not have a second cancer.  My two cancers were both IDC, but I was told that it was a new cancer, not mets.  I was treated with totally different chemotherapy the second time.  First time, adriamycin, cytoxan.  Second, carboplatin and .......I dont remember right now.  maybe taxotere?  Take care and be strong.     love Nancy

  • KaeB
    KaeB Member Posts: 6
    edited August 2010

    Hi, sounds like we're in the same boat. I had my initial BC in Dec 2000 (left side). Had taken AC the first time and everything seemed to be fine for the next 8 years. After a routine mammo discovered new BC in right side. Triple negative on both diagnoses. Took Carboplatin and Taxotere second time around. Now 8 months later am dealing with a mammary lymph node BC behind third rib under the right sternom. Have had 6 rounds of Carboplatin and Gemzar. Waiting now for bone scan and further tests before starting Radiation. Tumor is not going away so hopefully radiation will help. Some "suspicious" activity on spine but they don't know what it is excactly. Very frustrating to go through all this and still not know you'll be healthy.

  • sjstrader820
    sjstrader820 Member Posts: 10
    edited August 2010

    Recently saw my oncologist. He thought I should have chemo again, but wanted to confer with his associate at Magee Womens Hospital in Pittsburgh. He then called and said that they suggest no chemo but that they would closely watch me. THe Pittsburgh oncologist has patients similar to me and that's what they are doing.

  • hrf
    hrf Member Posts: 3,225
    edited August 2010

    I had a second bc. First in 2004 - IDC, TN - on the right side.  Three and half years after finishing tx - in Jan. 2009, had a new primary on the left side ... ILC, ES+/PR+

  • Katey
    Katey Member Posts: 733
    edited August 2010

     How are you klmcd?

    I had bc in 1990, IDC, right mastectomy and chemo.  Dx'd with a new primary in other breast 2009, DCIS this time.  Since initial 1990 pathology discovered spots thruout r breast I decided to have an mx of my left, rather than lumpectomy and radiation.  Other areas of this breast were clean.  I'm happy and relieved with my decision, went thru the te and implant process and am almost a year out! 

  • sharalou
    sharalou Member Posts: 223
    edited September 2010

    Hi to All! Here is my story, in a nutshell. Had ILC 2005, left mastectomy, chemo (adramycin, cytoxin and taxotere-all together-6 rounds every 2 wks. Doing great up until July of this year, and an mri, and a 5mm highlighted area showed  up. My surgeon was sure it was nothing, but WRONG, after biopsy. Just had biopsy two weeks ago. Scheduled for a mastectomy on the right this Friday. I AM PRAYING TO G-D, it did not go to the nodes. The feel is it not a reaccurence. How do they kow that? What should I be thinking???? Any advice?  Would love to hear from you. You can email me at Shariwest@aol.com

  • Katey
    Katey Member Posts: 733
    edited September 2010

    Hi Sharalou, I'm so sorry that you have to go thru this again.  It is maddening.  I was told that IDC usually returns to another part of the body, not the breast, therefore in the breast it would be a new primary rather than recurrance.  It's hard to comprehend at first, but I found a bs that I have total confidence in, hope you like and trust yours.  I understand how you feel about the nodes, I had a positive 20 years ago and did not want a pos node this time. But if it were - we deal with what we are given.  My thoughts are with you this week, I know it is an extremely difficult one.

  • harper7777
    harper7777 Member Posts: 10
    edited November 2010

    I'm right there with you. I had idc, 10mm in june of 2006, radiation, no chemo. Just found 8 mm in opposite breast. Waiting to find out more info b4 making a decision of what to do. I thought the tamoxifen was supposed to prevent this. I guess I should have done chemo. I hate living in the gray area, I like everything black and white.

  • racemom
    racemom Member Posts: 27
    edited November 2010

    I had very beginning IDC in left breast 13 years ago - showed up as microcalcifications.  Had lumpectomy, rads and tamoxifen.  I was just diagnosed last month with ILC in right breast, large area - waiting for masectomy on 12/8.  2 completely different kinds - go figure.  Oncoptype score is low - dr says no chemo.  Praying my nodes will be ok after surgery.  I felt the firm area in my breast for the last couple of months, but didn't think it could be cancer because i was feeling for a "frozen pea" type of lump - which is not how ILC feels.  This stuff is so crazy.

  • Gin52
    Gin52 Member Posts: 377
    edited November 2010

    hey ladies, I had my 1st cancer in 2001 on right side - lumpectomy and rads, er+/pr+, H3r2-.  In 2009 mammo found new cancer in same breast. This time it was er-/pr-, her2+.  Opted for bilateral mas and immedicate recomstruction at the breast center in New orleans.  Just had stage 2 of reconstruction on 11/5. Been a long journey, but think things are settling down.  I just did not want to take a chance on getting it a third time. so hence the bilat. 

  • harper7777
    harper7777 Member Posts: 10
    edited November 2010

    Hey Gin52, just wondering since we live close, what doctors are you using? My surgeon is Dr. Beaird and my PC is Dr. Medling.

  • Gin52
    Gin52 Member Posts: 377
    edited November 2010

    Hi!  I actually had DIEP reconstruction in New Orleans, but I have seen Dr Medling on a consult and on a follow up for the NOLA docs.  And Dr. Akins did my biopsies here.....You in the Boro?

  • harper7777
    harper7777 Member Posts: 10
    edited November 2010

    that's where my doctors are. I live in Eagleville. I'm having surgery Dec.3rd

  • Gin52
    Gin52 Member Posts: 377
    edited November 2010

    ok, please feel free to pm me if I can help or answer any questions.  Us TN gals need to stick together! :-)

  • Gin52
    Gin52 Member Posts: 377
    edited December 2010

    harper7777   just wondering how you are doing after surgery?  Post when you feel up to it so we can know how you are doing! 

  • harper7777
    harper7777 Member Posts: 10
    edited February 2011

    Hey Gin52. sorry it's taken so long to post. Dbl. MX went okay. Had 300ml put in my tissue expanders during surgery. Had to reopen me the next day bc they thought I had a hemotoba, but I didn't. Had horrible neck and shoulder blade pain. Later found out it was the saline in the TE pressing on a nerve. Had to have 2 pints of blood.

    So far, I've had one round of chemo and go for the second one this Thursday. S/E were nauseau, tired, and awful diahhrea. Got dehydrated and had to have IV fluids with more amend the week after chemo, then I felt like a new person. My hair is just starting to fall out, can't make up my mind when or if to shave it.

    I hope you are doing well.

  • Gin52
    Gin52 Member Posts: 377
    edited February 2011

    Doing good here...glad to finally hear from you!  As hard as it is....drink PLENTY of fluids.  They had to interrupt my chemo and put me in the hospital for 7 days for renal failure (thank goodness it resolved without going on dialysis!).  I just didn't realize how dehydrated i was getting because everything I took for nausea and stuff made me sleepy, so I just didn't realize how bad it was.  Anyway, all is well that ends well...just be careful.  I lost my hair after the second round.  Just wasnt worth trying to mess with it! lol  Stay in touch and glad you made it thru the surgery!

  • AllanLamarre
    AllanLamarre Member Posts: 1
    edited February 2012

    I read this article in reader digest a long time ago about a woman who fought cancer thrice !

    I must say you all are very very strong !

  • Gin52
    Gin52 Member Posts: 377
    edited February 2011
    AllanLamarre, thanks so much!  But, I really dont look at myself as being particularly strong.  It is a strength born out of necessity...  When you think about it, what is my alternative to being strong? Being gone? ummm....think i will pass on that choice! Wink
  • dillymonster
    dillymonster Member Posts: 24
    edited September 2011

    dillymonster wrote:

    I just finished chemo 4wks ago. I had a baseline mammo and an MRI to check for margins before starting radiation. An area on concern was found. An ultrasound and biopsy was ordered. They were not able to see it with U/S. An MRI guided biopsy was ordered. I received the results today, it was DCIS. How can that be?????? I had 6 rounds of TAC. My original lump diagnosed in apr was IDC with 3 positive lymph nodes. I had a lumpectomy (2.5cm) with axillary dissection. I also developed lymphedema 2 months into my chemo treatment. I have been struggling with controlling the lymphedema, and now this. The recommendation from my radiation oncologist for this new finding is a lumpectomy, and after the result of path if invasive mastectomy. She also said to delay mastectomy if it's what I choose till I complete radiation. I have an appt with my onco. Next week to discuss options. I am scared since I had lymph node involvement is there another stray atypical cells that they have not caught???? I don't know what to do. I have a little boy and a husband that are very scared, so is this mommy :(

  • Katey
    Katey Member Posts: 733
    edited October 2011

    Dilly, I'm sorry that you have to deal with this.  I hope you can if you are not already, get to a major cancer hospital for an opinion.  I'm sorry to bring this up but with another lumpectomy in same breast, what will your breast look like.  Another question to ask is after radiation, if by chance you do need an mx, what type of reconstruction would be available for you. I hope you can find some good answers soon.

  • dillymonster
    dillymonster Member Posts: 24
    edited October 2011

    Thanks Katey. My lumpectomy is scheduled for 10/18. My onco felt that we wait for the path results before we make more drastic decisions. If all is clear, I will recover for3-4 weeks then start radiation.

  • Katey
    Katey Member Posts: 733
    edited October 2011

    Ok Dillymonster, sounds like a plan is in place.  One day you will have to explain your name, I like it!  Meanwhile, I hope you can take some hikes around beautiful Asheville, deep breathe and relax a bit. 

  • dillymonster
    dillymonster Member Posts: 24
    edited October 2011

    Katey it's a nickname for my little boy. I had my lumpectomy and received the results 2 days ago. They found 2 area DCIS ans IDC. I have 2 option MBX or watch it closely with MRI and biopsies if areas of concern are found. He said if I can handle waiting for MRI's and biopsies, then I can opt out of the bi at MBX. I have surgery set up for bi at MBX and reconstruction on 11/22. I will meet with the PS next week and discuss reconstruction. The only reason I am having a hard time with this decision is that I still need to have radiation for 6 wks after the recovery of 6 wks. And then in the spring go back to surgery for nipple placement. Please refer me to any articles that may support that MBX lessens your chance of recurrence. Thanks

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