July 2010 Rads
Comments
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Way to go Eileen! The boosts should be easier and the finsh line is in sight!
Karen, I know it's confusing. The surgeon originally said 6 months after rads, so I'm not sure. She said only the BC side because the other side should stay on it's annual schedule...and something about not having the anxiety of checking it all the time. But like you, I'm more worried about that one. Had atypical cells from a biopsy there 2 years ago, although it was all clear in the last few months of mamos, USs and MRIs.
LoveCranes, chasing an extra kid is exhusting, even without rads. Hope the few boosts give you the healing time you need.
Have a good night all. Donna.
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Hi All,
Hope everyone had a decent day. You're a day ahead of me Eileen - I will finish on Wednesday and cannot wait!! Think the radiation is responsible for the tiredness and fog lovecranes - hang in there. I just booked a holiday for a week after I finish rads. Hope I will be awake for the trip. Good day tomorrow everyone!
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I can't tear myself away from the posts, but I've gotta go get zapped and then on to work.
My throat is tightening, but see the onc today. We also have a nutritionist on staff, so I will talk with her about soy, Vitamin D, Calcium, Vit K (I had a port related clot). I met with a bone specialist yesterday and she says Vit D deficiency is very common. So it might be worth a check if you haven't had it done lately.
I'll read more / write more later. Peace out. Marilyn
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Good Morning All:
Got the tooth fixed yesterday, much better...:)
Karen-8 more to go Congrats-the end is in sight for you.
Spendy-I hope you are feeling better this morning.
Love-I also get the pains, they just tell me NORMAL-but they drive me up a wall at times.
Bailey-Congrats, you will be done soon-then you can enjoy the rest of summer, what is left of it. They told me to hold off at least two weeks to go away, I booked a B&B up in Lake Geneva Wis then cancelled it until the 1st week of Oct. My last Rad is Sept 13, my birthday, then its my 3rd anniverary on the 15th, so I guess we will wait...:(
Ok, time to get ready for the Spa as I call Rad. LOL
Have a great day everyone
Julie
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28 down, 2 boosts to go. I'm starting to feel relieved that the end is in sight! The boosts are like a welcome relief - my skin is so thankful. The bumps and itchiness have subsided, I had a small crack underneath that is healing and the burned look is dying down little by little. I'm starting to dry out and can tell that peeling lies ahead.
Many of the fine women I have met at the center have finished a few days ahead of me, I already miss them. It was nice to be able to talk face to face about this with someone who knows (like all of us here). We hope to keep in touch with each other, I hope we do
I feel relief and a bit of melancholy - I've been so focused on this since February. It is going to feel wierd now that it's time to just "go on and live your life and good luck to you".
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Julie50 - I am on the north-west side of the city a bit west of Lakeview. I am being treated at Northwestern so I am not too far from my Rads appointments. I read your post about hot flashes from going off the HRT. I was having horrible hot flashes from the chemotherapy induced menopause and my Onc suggested acupuncture. Mine finally resolved themselves but she said Acupuncture proved to be equally effective to any medical treatment on the market for night sweats/hot flashes. Might be worth a try for some relief.
Donna - looks like you are in Chicago too! Are you a city or suburban dweller?
I feel fortunate that the hospital I am getting treated at DOES have an integrative medicine department. Although I was getting treated for some time before anyone suggested going there. I think so many "western" doctors are reluctant to suggest treatments that might seem too "new age-y"
I get my first boost tomorrow AM and I'll be finished with rads early next week. SO excited to have the end in sight!
Do any of you know how long I have to wait to get a fill again? I would love, love, love to be done with the bra stuffing and subsequent outfit analyzing that goes with it!
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Chicago1018, we are on the same schedule. I start my first boost tomorrow. i have 7 boosts to go. I am also excited to be finished.
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Hi All,
Had rad #29 this morning with 4 more to go (all just the boost). The skin on my shoulder and clavicle is very dry and starting to peel. My nipple is very brown and huge as well - don't know why either. The boob is brown/pink and a bit swollen but not itchy and not dry/peeling. The boost only concentrates on the lumpectomy scar and so far that's pinkish but not burned. The "only" burn is on my front shoulder blade - just on the inside of my bra strap. Not bad for 29 radiation treatments. I'm glad that I still don't have the blisters or the terrible side effects some of you are experiencing - my heart goes out to you! I'm really getting antzy to get this done! I can't wait for next Monday.
I got my chemo port out last Friday, so the left side is swollen and hurts now (still) and is trying to outdo the right radiated side. The surgi strips itch and I'm disclored around that. If anyone is thinking about getting their port out, I was surprised to find it was done under a local. Stupid me thought - local...not bad..just one needle prick and viola! Out comes the port. Nope, it was about 20 needle pricks to numb up the entire area...owiee! Like having a bunch of bees stinging your chest. Then I could actually hear the incision (I kept my eyes closed) and the doc saying things like, "OK, I have the vein out now, please clamp here" and "umm... the port developed a little egg shell around it, that's interesting" "OK, I'm going to have to pull hard now...you'll feel some tugging" Tugging? It was like my chest was being pulled outside my skin. During this procedure he cauterized me several times...the smell of your own skin burning! Being a silly goose, I said, "I always thought I was SMOKING HOT." And, then, I actually felt the last two needle stitches - ouch! The doc said, "Sorry, I guess I should have given you a bit more there to keep you numb, but it's all done now." So, my advice to anyone else getting this done....ask to be put out!
But, that said, it wasn't as bad as the pre-lumpectomy 4 needles in my nipple to inject the radiation and dye for the geiger counter to find my lymph nodes during the surgery. Nothing to date has outdone that doozy.
Hugs to everyone,
Pat
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Oh Pat that procedure sounds like it was awful - I'm amazed you can have a sense of humor in the middle of all that. . Hope you're recovering nicely.
Chicago - what kind of alternative treatments have you been offered as part of your integrative care.
How many of you are moving on to hormone therapy? Do you have any thoughts or advice about using supplements or natural remedies to cope with the side effects - I am finding the hot flashes that are a part of me being in peri-menopause horrid - I just can't imagine them getting any worse then they are right now.
Take care everyone. Be good to yourselves.
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Hi everyone!
I love reading everyone's posts as we start a new week! I finished 18 of 23 today and can see the end in sight! Of course, I will have 3 boosts after, but I am told that's the easy part! My best news is that my throat is actually better! I am off the liquid diet, but still on basically soft foods. After so many Ensures and milk shakes, even oatmeal is a treat! My chest is a mess of blisters, peeling, and general soreness, but I can deal with all of it, as long as the cancer stays away!
Bailey, I am moving on to hormone therapy on Sept. 12. I will meet with my oncologist that day to determine which drug it will be, although Tomoxifen seems to be the favored choice, since I was not completely through menopause when my cancer was diagnosed. I worry about the side effects, since this is my 3rd run with cancer, and Tomoxifen can raise the risk of uterine cancers. My oncologist is running genetic testing to determine whether I should have a hysterectomy before I begin. More FUN!!!
Love to all you brave women! We are all getting closer to the finish line!
Stay strong!
Linda
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Hi Chicago: I go to Lake Forest, but have my Rads in Gurnee. Today my left arm feels so sore and heavy, going to ask today if that is "NORMAL"...So glad you are almost done. I have 4 weeks left and one week of boosts...
Bailey: I will be going on Hormone therapy when I'm done, not sure which one yet tho as I had a total HYST 8 years ago. He did say not Tomox, some other drug....
Linda: Congrats, almost done, I'm sure you are so happy.....My total Hyst was really a walk in the part for me, was back to work in 4 weeks. Came home with 28 staples, even that did not hurt much, just really tried and sleep a lot...Love not having a PERIOD, but the HRT I think also brought on my BC...:( But boy do I miss it...I don't sleep whatsoever since going off...
Ok, time to start my day, enjoy ladies
Julie
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p.s. Also my shoulder hurts and I'm swollen under the arm, never ends ladies...After 40 its patch, patch, patch.
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Pat - Your experience sounds like when I had my port inserted - It was like the 3 Stooges were on call that day. What a day!!
#15 down / 20 to go - it sounds like too many, but I'll be half way through on Monday. So far so good, my skin is a little pink, but bearable.
Off to dinner with girlfriends.
Marilyn
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Hi All, happy Wednesday!
Linda, glad to hear your able to eat more, that must be a huge relief. Sorry to hear your dealing with your third bout of this. Keep fighting, you're going to be fine.
Sonia, I'll be starting Tomoxifin in Sept, have to wait till the 2nd for my appt.
Pat, All I can say is ouch and that you're very brave. Totally agree with the tracer injections pre-surgery. I wonder why they don't wait until you're out?
Chicago, I'm at NMH too. I live in the far west burbs, but work in the loop. PM me if you would ever want to meet for coffee.
Has anyone had any luck getting dressings to stick to blisters in the armpit. Peeling is the worst there and the dressing only stays put for a while before it gets all skrunched up.
Congrats to you all who are getting close to finishing rads. Best, Donna.
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Hi Everyone!
I've had a friend visiting since Sunday so I haven't had a lot of time to check in but I have been thinking of you all and have told my friend about our little rads group.
Today, for the first time, my skin feels burned. My energy levels still seem pretty normal so I am glad for that.
Congrats to those of you finished or close to it.
Linda - glad to hear your throat is feeling better!
Chicago1018 - that is awesome that your treatment center has an intergrative meds dept. I would also be interested in hearing what they have suggested.
Sonia - I will be starting Tamoxifen after rads. I see my onc the day after my last rad tx. I dread having to take Tamoxifen more than anything I have had to do so far. I can't believe I am going to have to take a pill everyday for the next 5 years and I just dread the SE's. Maybe we should start a thread in the hormone section. I would love to stay in touch with you all!
I'm having a bad night tonight - can't sleep and had a very depresssed feeling come over me suddenly while I was trying to fall asleep. I still have moments (tonight being one of them) when I can't believe I have BC and that my life will never be the same. I keep waiting to wake up from this nightmare. I just can't stop the tears.
Hugs to you all, Kim
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I just read your post KIm - I am sending you a gigantic hug. I know I am in and out of those exact feelings that you are having tonight - I try to remind myself that I don't have cancer anymore and nor do you - it is gone, cut out and has been radiated to death. You DO NOT HAVE BREAST CANCER ANYMORE. Don't own it - it is in a petrie dish or under glass slides in someones lab - but not in your body and won't be ever again. This is a very tough life circumstance - but right now all of us are stepping up and doing everything we have to to get well. All the people in our lives are watching us and one day when someone you love and/or one of your kids need an example of how to deal with a very tough life circumstance - they are going to go into the filing cabinet in their minds and in it is going to be a file that you put in there on how to overcome difficult life circumstances with strength, courage and grace. You are not alone - it's ok to feel sad - this is really hard.
I think we should totally start a thread or join one to go through this process together. I realize I process way too much when I write and probably am already driving people crazy with all my thoughts but this tamoxifen thing is making me feel nutty and I haven't even started yet. I have been trying to convince myself that I can handle the next five years of tamoxifen and I will handle the SE's just like I have managed the "idea" of radiation being aimed at my body 21 times while everyone else waits outside the room in their safe zone. I am presently directing my anger, frustration and sadness toward all Doctor's who say things like "you need to relax" (about tamoxifen) and who ask to see the underside of my breast when my breast isn't being radiated for the second time in two weeks (my radiation oncologist is away and the doc covering is so patronizing he makes me want to spit). UGGGGGG I actually think I scared him today when I refused to allow him to look at my breast and requested a referral to a medical oncologist because I was unhappy with the fact I have only seen my radiation oncologist once and said that I needed to speak to someone who could answer my questions given he couldn't and that I needed to have a relationship with the people who were going to be included on my support team.. I must say - I am actually enjoying my anger today.
Hang in there "women in arms" we will overcome. (god I'm long winded!)
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Kim: I hope you are feeling better and got some sleep. I for one know what its like not to sleep its been 3 months since I have slept...A bigHUG to you. And let the tears flow, its good to get it out...
I know having BC has changed our lifes, but try hard when this is done and over with to lead a normal life, don't let BC win. God never gives us more then we can handle (ok my sister always tells me this)....:)
I fully understand everyones worries about the "pill from hell" as I call it, like the rest of you, I don't want to go on it either and will have to weigh the benfits of going on it. Since I"m allergic to 99.9% of abx's on the market I have to see my allergist b-4 they will even put me on it to play the "Wait and see game", then more night sweats, etc....
So my husband and I are researching these drugs, I have read so much good and bad about it, and if the % is small then I will not take it. I have no idea what to do like the rest of you, I want quaility of life back (since going off my HRT) I have none, I don't sleep, up all night HOT, bad mood, cry at the drop of a hat etc.
Bailey: Sometimes we need to enjoy the anger we have, let it out...:) There are times I go outside and scream walk back into the house and feel so much better.
I often wonder how much one can take, I've lost my sister, had to put mom into long term care (she is in the hospital at the moment) sinus infection and bad tooth, oh lets not forget my burning boob....Ok that is my pity party for today...:)
Ok, time to get ready for the spa, then off to work, wish I could stay home and just relax today, but I figure if I have to drive 16 miles one way for Rad, why not keep on going...LOL
Have a great day everyone, keep the faith that soon we will all be done with this.
Many hugs to all
J
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First, I hope everyone has a better day today. I understand the ups ad downs. I'm starting tamoxifen in September as well. I was told by the doctor that if you were on Birth Control pills or HRT in your life with no problems you will probably have no problems with tamoxifen (I'm talking about the scary side effects). I read the side effects of birth control pills and they are very similar to the side effects of tamoxifen. I am post menopausal with osteopenia so I'm going to be taking Tamoxifen instead of the ones that are for post menopausal women (I don't remember their names). I believe you need to make sure you have enough potassium and magnisium (spelling??) in your diet. Some people get leg cramps and that helped them, so I was going to start taking them before the tamoxifen (after rads) - trying to prevent stuff ahead of time. We'll see. Hopefully it will be ok.
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Eileen:
I think I start also in September....I'm going on some other pill, can't remember the name, he said the SF are easier, plus I had a total Hyst 7 years ago.
Thanks for the tips about the potassium and magnisium. I was on Birth control pills many moons ago and just stopped my HRT in May when I found out I had BC (no problems with either) was on HRT (Vivelle Dot, patch) for 7 years, LOVE IT and MISS IT....I hate these hot flashes and night sweats, I would KILL for a good nights sleep. Someday...LOL
Keep the faith we have no SF...:)
Hugs
J
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Start the first of 6 boosts today then I'm done!Last boost is next Thursday the 19th.I am so ready to be able to sit at home on my days off if thats what I want to do.We are getting there girls!
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Hi Kim & All, hope the new day brings some sun and smiles to you. I feel really guilty, just slept 12 hours while you were having a bad night....so tired.
Hang in there gals, at least by the time we start the T the weather will be cooler and we'll be back using deodorant. Not looking forward to it, but it has a great track record that I think outweighs the SE. We have to give it a try.
Interesting to hear the correlation to how your body reacted to the pill. That makes it sound doable. I've hear about the potassium and magnesium. Ellen, do you know how much. One string said you can get the magnesium through Epsom salt soaks? not sure.
Way to go Sonia, you deserve the proper level of care and shouldn't have to get angry to get it. Nice job advocating for yourself.
Have a good day everyone. Donna.
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HI, I'm also going to be finished with my boosts on the 19th.
I don't know how much potassium and mag. I thought I would talk to my doctor to see how much I should take. I have been menopausal for a very long time (early meno, 21 years old). I haven't had a flash for years. We'll see if that happens to me. you never know. You're right, winter will be a blessing if that happens.
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I take two Epsom Salt baths a day due to me having lyme and yes I think what you said is true. Will ask my family Dr. when I see him.
As much as I hate chicago winters, I can't wait just to be COOL again..My body is so hot all the time, I take my Temp thinking I have one, normal...LOL
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Hi all!
Kim - sorry to hear about your rough night - I have those same kind of thougths sometimes. I'm hoping it all gets a little easier as time goes on.
Julie - nothing wrong with having a pity party every now and then - you've been through a LOT.
Waltersren - congrats on being on the boosts! You're almost finished
I am down to 10 treatments (5 full, 5 boosts). I did the set up today for the boosts. I cannot wait for this to be over with. I agree with those of you who said the cool weather would be a nice change. I think the heat has really worsened the side effects (I'm already on Tamoxifen and I seem to be less heat tolerant on it).
Hope everyone has a nice evening,
Karen
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eileenr56 - congrats on getting close to the finish line. I am only having 5 boosts (I think so I am done Monday or Tuesday) Picture me doing my happy dance!
Linda - I am so glad you can eat a little! My throat started improving the minute they stopped radiating my clavicle area so I am sure it was related.
bailey1958 - At the hospital I am at they have something called the "360 program" where they give 5 free integrative treatments to cancer patients. For me they suggested acupuncture for hot flashes and yoga for anxiety but they also offer things like counseling, massage, "energy healing" and other holistic medicine as part of the program.
I actually am "saving" my 5 visits so I can try the acupuncture for hot flashes when I go on Tamoxifen. I was having horrible hot flashes from the chemotherapy induced menopause. They finally improved but I am expecting them to come back with a vengeance on the Tamoxifen. I am scheduled to start that as soon as I am done with rads, I think.
We should definitely find/start a hormone therapy thread. . .we have such an active group of women.
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There is a "Starting Tamoxifen August 2010 thread" if anyone is interested.
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i feel old and itchy.
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Hi Everyone!
Thanks for the support! It is soooo helpful. I felt pretty bad today - both tired from lack of sleep and depressed. Had a tough time keeping the tears at bay. I feel a bit better this evening. I have had about 2 weeks of sleep difficulties but last night was the worst. I hope tonight is better. I'm not sure why I am having such a difficult time. If it continues I may have to see the doctor for some help. No doubt much of my depression/inability to cope is due to being tired. Julie - I feel for you and your lack of sleep. That is one of the things I worry about with the "pill from hell" (love that name!). I just don't function well emotionally without good sleep.
Sonia - I loved your post. I will keep telling myself that I DON"T HAVE BC ANYMORE! I also applaud you for letting the doc know of your frustration! Way to go!!! Also - you aren't old!!! Unfortunately I can relate to the itchy! LOL!
Julie - it is okay to have a pity party and I think this is a good place to have it - we understand. You have been through A LOT of life changing things all at once.
Eileen and Waltersren - you are in the home stretch! Congrats! I already have off and on leg cramp issues and take magnesium but I am going to have to be more diligent with it. I think it is a good idea to start before you take the "pill from hell".
Donna - you can get magnesium with epsom salt baths. Not sure how much/how often. I have also read about an epsom salt cream that does the same thing. Thanks for pointing out that we will start taking Tamoxifen in the fall so at least we won't be dealing with the full heat of summer to go with our hot flashes and night sweats.
Karen - After tomorrow I have 8 tx left we'll finish the same week. Mine are full treatments though - no boosts for me.
Chicago1018 - I have heard good things about accupuncture helping hot flashes - nice that you have that option. I am going to try to find an accupuncturist around here. I just think it is great that you have the integrative med. option (I know I keep saying that but I sooooo wish more places offered that).
Wish we could all meet for coffee somewhere. I'd love to have a local support group with you ladies.
Many hugs! Kim
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Hi ladies,
Well I had my first boost today and it felt ok.. For me it felt funny, like my incision was getting hotter and hotter. But at least it's giving my boob a chance to rest. I just can't wait till this is over. After the boost, my rad onc said that I'll be resuming the rest of the 3 weeks of full breast rads. I was hoping that she would just say that I would be done soon...no luck.
Kim - it would be great to get together if we were all closer.
You ladies are great and it's nice to read everyone's posts and be able to just 'talk' to someone going through the same thing. I hope your sleepless nights become a thing of the past. I still have my moments and I am considering joining a support group at the cancer center. There are days when I'm ok but others when it just get's me so mad or depressed. Sonia - Since my follow up with my dr is in Oct, I think I'm starting the hormone therapy then. I am really debating it since I dread the SE's. Maybe it's in my head but from what I'm reading and hearing from others, I dread the hot flashes and mood swings. I'm already having the mood swings and hope it doesn't get worse. I tell my kids that if I have to take the pill, I hope that they will understand why I may get mad at little things or if I start sweating like I'm in a downpour. Hopefully it won't happen..so now they ask me when am I going to be on the 'mad/sweat pill?'
I wish everyone the best and for those finishing...congrats...I wish I was there with you
, but know that I will be there eventually...Have a nice evening ladies. ((((hugs)))) Patty -
Well I started peeling tonight.Right under my breast.I don't know if it was blisters that popped or just started peeling off.I'm glad I'm finished with the whole breast rads because the last few days I've been getting more sore and now the peeling.Just 5 more and I'm finished.I'm so relieved to be almost there but like someone else had said it will be strange not doing anything related to bc for awhile.It has consumed my life for 4 months and I know much longer for some of you.What do we do when its over.Go on with life is what!!!! I'm so ready for that!
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