April 2010 starting chemo

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  • JenC
    JenC Member Posts: 382
    edited August 2010

    Jan - glad to hear that your rads seem to be going well.  I totally get the weepy thing:(  I get it from the steroids each time.  Hope your hair starts growing back full force shortly..  ((Hugs)) to you to.

  • DancerMel28
    DancerMel28 Member Posts: 122
    edited August 2010

    Hi kad22 - I was teaching Grade 5/6 but had to give up my grade after term 1 Cry (only just made it to the holidays between surgery and other appointments).  I'm hoping if everything goes to plan I should be back in some capacity in term 4 (early oct) so should see out the end of the year.  I've been back to see them a few times (but have been careful to keep the distance a bit as the teacher who took over was a graduate teacher so had to give him time to settle in and for the kids to get used to him) they keep coming up to me saying they want me back (so heartbreaking!).  I was ifnally brave enough to show them my bald head last time - they loved it! They want to see my wig next time so I think I'll go see them with a novelty wig on first - maybe bright pink?

    I'm down in Victoria so it gets pretty cold down here but only snows in the mountains. I'm pretty close to them so we get the wind chill from the snow.  I'm so ready for spring (means this year is getting closer to the end!).

  • farfaith
    farfaith Member Posts: 46
    edited August 2010

    thank you for the prayers  surgery whent well im sore stayed two days glade to be home. now heal and go for the 35  rads.

    Dancermel i too have to drive 45 min for rads glade you got yours closer let me know how it gose.

    Kad22 i had mouth sores used salt water and merical mouth wash hope they get better soon.

    Sjgo5  an Arubajan05  good luck with rads im right behind you .

    prayers to all 

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    Hi all - Made it to the fair and didn't melt - stay hydrated!! Had cheese curds, corn, potato, and cream puff - oh yeah and fudge!!

     Arubajan05 - glad you made it through your first rads good! I hear tamoxifen can really change those moods. I won't be on it because of being triple negative but my mom was on it and she swore by it!

     Had my 6th Taxol treatment today - half way done!!!!!! Pretty uneventful - thursday will be my day to lay around! ;-) Keep up those positive thoughts!

    Kelli

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Farfaith - glad your surgery went well and I am sure you are glad to get that put behind you.  

    Kad22 - glad you had a good time at the fair.  I am sure it was a nice distraction and contrats on the half way mark.  I have no 3 on Friday and then I will be 1/4 done:) cant wait.

    Bone pain has not been bad this time around, just a little achy I think due to the Claritin and the added staroids, whatever works right:)  

    Hope everyone is having a good week.

    Jen

  • lexie5
    lexie5 Member Posts: 32
    edited August 2010

    I'm done with chemo.  WOO HOO!  GIve me a smiley face!  Now I need to work off the 6 pounds I gained during chemo.  Still waiting to find out if I need rads.

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    Congrats Lexie!!! Yeah for you!!

    I have 6 more to go!! Can't wait for that smiley face!!

    JenC - gald that the bone pain has decreased!!

    DancerMel - WOW you took your wig off for them - that is couragous! Good for you! My students kept asking at the end of  last school yr. for me to take mine off but, I just couldn't do it. That must be really hard to give up the class and then go back - at least you know they love and miss you! So do you go through the whole year at school? When are your breaks? This is soo interesting!! thanks for the info!

    Hope everyone is having a good week!

  • dutchgirl6
    dutchgirl6 Member Posts: 673
    edited August 2010

    Just came home from my last chemo!!!  I want that smiley face too.  Now I just have to make it past the next couple of weeks and the SEs and then I can begin to start feeling normal again.  I also had my PICC removed, oh happy day.  Can't wait till tomorrow for my first real shower in three months, I treated myself to some nice body wash, I just might never leave the bathroom.

    I hear you, Lexie.  I have to work off the 5 pounds I gained during chemo, and then work on the 35 extra pounds I have been carrying for the past 20 years.  What can I say, that baby weight can be stubborn.

    Farfaith, glad to hear that the surgery went well.  Heal well.

    Have a good week everyone.

  • DancerMel28
    DancerMel28 Member Posts: 122
    edited August 2010

    Hi everyone,

    Well had my rads planning today, my centre doesn't use tatoos so I currently have texta marks in various colours all over my chest! It's hilarious - looks like a 5 year old has gotten into the textas and drawn all over me while I was asleep! Laughing Oh well the high neck tops need to come out again.  I have to powder the marks every day to try and make sure they last until next week when I begin - they're a bit smudgy already so we'll see what happens I guess.

    Kad22 - We have 4 terms a year, major 6 week break which begins mid dec through to end of january (our summer), then have 2 week breaks between each term - one early april (depending on Easter), one end of june/early july, and the other end of september.  So our school year runs from Feb-Dec. Wasn't as bad as I thought it was going to be taking off my scarf - I'd been in a few times prior and hadn't had the guts and then one of my smart alec Grade 6 boys (love him to bits but he has a mouth) whinged after I'd kidded with him that he needed a haircut (think justin beiber hair!) so I whipped it off for them to have a look. They're faces were hilarious.  I must say I'm much more relaxed about the bare look now - it's just so damn cold here so always cover up with beanies and scarves when I go out otherwise I freeze!

  • shygal
    shygal Member Posts: 89
    edited August 2010

    Hi Ladies, hope you're all enjoying your summer and winter (DancerMel28).  I am now 8 weeks PFC and my hair is about 1/4 of an inch long and looks like what it did when we first shaved it back in April.  However, it's way more grey and definitely a lot darker than what I was expecting.  (I used to have blond streaks so looked more blond than brunette).  The bad news is that almost all of my remaining bottom lashes fell out last week.  I am shaving my legs and armpits on a regular basis now and my pubic hair is also growing back.  I am planning on using an organic hair dye on my hair in about another 4 weeks so I hope the colour takes....I understand that sometimes the dye won't work on the chemo'd hair.  I'm an excited to even think about colouring my hair....

    Last week I was fortunate enough to have my DH take me to Bermuda for 6 days while I'm waiting the results of my 2 new biospies tomorrow.

    Although I wore a baseball cap most of the time when I was out (with a lot people doing a double take) I did have to bring out the wig for dinners in restaurants etc.  Some people at the hotel then got to see me with both hair and no hair and really did a double take, but who cares...I'll never see them again.  Bermuda (and the break from being a cancer patient) was heavenly.

    I hope my results are in my favour tomorrow and that I'll be joining the RADS group soon.....

  • farfaith
    farfaith Member Posts: 46
    edited August 2010

    lexi an dutchgirl Laughing smilys for you glade you are done with treatments !

    im doing good be glad when the stapels and drans are gone hopefully on monday.

    prayer s with all

  • DancerMel28
    DancerMel28 Member Posts: 122
    edited August 2010
    Good Luck shygal!!  Will be thinking of you and sending positive vibes your way Smile
  • shells43
    shells43 Member Posts: 1,022
    edited August 2010

    Congrats Lexie and Dutchgirl6! I'm right behind you - have my last taxotere tomorrow then sign me up for that smiley face!Tongue out Karin, let me know how you are doing. Guess we will be laid up about the same time.

    Hugs to  everyone on treatments this week!

    Shelley

  • dutchgirl6
    dutchgirl6 Member Posts: 673
    edited August 2010

    Hey Shelley, I've been thinking about you.  Good luck tomorrow.

    I'm doing ok so far, major hot flashes from the Dexamethasone, and a bit fatigued, but not too bad.  The tough days will be on the weekend.

    Thanks for the good wishes Farfaith, I hope your're doing ok.

    Shygal, fingers crossed for good results tomorrow.  Sounds like the Bahamas was a wonderful respite from all the BC madness.  Your DH sounds like a wonderful guy.

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Shygal. - I hope all turns out well with your biopsy results.  Fingers are crossed.

  • kad22
    kad22 Member Posts: 191
    edited August 2010

    Wow look at us finish!!

    Shygal - good luck and so happy that you had a great vacay!!

    Oh boy is it hot here in Wisconsin!

    Just checking in! Have a great day!

  • dutchgirl6
    dutchgirl6 Member Posts: 673
    edited August 2010

    Shygal, Bermuda? Bahamas?  Sorry about the mix-up, blame it on Chemobrain.  Actually, I will be heading to Bermuda in October, once rads are over with.  One of my sisters lives there and we will be having a sister's visit, can't wait.  We haven't all been together for more than 4 years!  I kind of feel sorry for my BIL, though.  Five of us women in a two bedroom apartment for five days.  Should be interesting.

    Stay cool ladies.

  • shells43
    shells43 Member Posts: 1,022
    edited August 2010

    Dutchgirl6 - Hi K

    Bermuda? My kids were both born there when DH was stationed there. Beautiful place, would love to go back some time. However, British Airways discontinued their direct flight from Tampa about 5 years ago. We need to take the kids back to see their birthplace. Someday. Have a great time! Wonder if they still have the pink busses?

    I'm having a hot flash right now. I'm getting them about every 2-3 hours, ugh. Do you think it is from the steroids? Maybe they will go away then. I though it was from chemopause and hadn't really thought about it being from a specific drug.

    I'm feeling sleepy now, will take a nap. My low days will probably be Tues-Wed. Take care on the weekend, get lots of rest.

    Shelley

  • dutchgirl6
    dutchgirl6 Member Posts: 673
    edited August 2010

    Shelley, hope you had a good nap. I assume that this means you are back from chemo?  I do think that the hot flashes are from the steroids, since they had pretty much decreased till this week when I started up with the Dex again.

    I will let you know about the pink busses.  Do your kids have Bermuda citizenship?  

  • toughmom38
    toughmom38 Member Posts: 79
    edited August 2010

    I am 3 weeks PFC and had Herceptin #7 today.  Feeling pretty good, lots of energy compared to the last 4 months.  Hair started growing back all over about a week ago and seems to be really coming in.  Hair on legs and underarms slowly returning, but no nose hairs.  Who knew that nose hairs did so much?  I'm hoping they will cut down on the constant drippy nose if they ever come back...

    Hot flashes seem to be occuring less frequently, but still wake up every night at 3:30 and throw off the covers.  I just want to sleep through the night without waking up, is that too much to ask?

    Hope everyone has a great weekend!  Try to stay cool...it's 99 degrees here right now and supposed to be 100 degrees tomorrow.  I'm ready for snow...

    Jennifer

  • shells43
    shells43 Member Posts: 1,022
    edited August 2010

    Karin,

    Yes they have dual citizenship US/Bermuda. Cool eh? Bee-wees we call them (that's what the locals call them anyway). We were stationed on St. David's island, which is now a NATO base. The US Navy left in some time around 2000. There is a really good tavern on St. George's Island you should try if you get a chance and it is stil there, called the White Horse Tavern. They have great fish and chips and is right on the water. There are lots of things to do in St. Georges, the square is nice and there is an art gallery and plenty of shopping. The ship used to film Deliverance used to be there as well.

     Yes, I'm back from my treatment, took a little nap. Don't feel too bad yet, it takes a few days. I'm sleepy because i haven't been sleeping well with all the hot flashes. DH just served me dinner so time to go.

    Take care!

  • LauraM
    LauraM Member Posts: 251
    edited August 2010

    DancerMel - Thanks for the article - If you don't mind I am going to share it on the May Chemo group too.  Did you have your surgery to fix your stomach scar or some other scar?  I will have to have one to fix my stomach scar after all the issues with "infections" too.   I am glad yours went well.

    I just finished my last Taxol today so I am in need of a smiley face too!  Still waiting on my Rad's decision will hopefully know in the next 10 days.

    Congrats to all of you who have finished!

  • JenC
    JenC Member Posts: 382
    edited August 2010

    LauraM - congratulations on finishing Taxol.  Must be somewhat of a relief and you sure deserve the smiley face.  I have a bit to go but am getting there.  Rad apt. at the end of this month so hopefully they will tell me if I need it or not.  I am one of thoser people who has to know ahead of time to "prepare" myself.   

     It is great to see so many people finishing treatment.  All of you are what makes me keep going on this rollercoaster of hell:) 

     Keep on smiling everyone we all have so much to be thankful for..

  • marcy4
    marcy4 Member Posts: 162
    edited August 2010

    Great to hear about all of the vacations.  It is great for us to take the time to get away and do some celebrating.  My husband and I are going to Toronto in a couple of weeks to spend a few nights at a hotel and take in a show.  It is only a couple of hours from home, but I am really looking forward to it.  We are trying to get in a little holdiay before the grind of back to school starts. We are both teachers.

    My hot flashes are much worse with the Dex as well.  I am always burning up for about 3 days afterwards. Best of luck to everyone beginning with Rads and congratulations to all of you who are finished Chemo.  I am following slowly behind... 6 weeks to go, but who's counting, right?

    Have a good night everyone.

  • DancerMel28
    DancerMel28 Member Posts: 122
    edited August 2010

    Hi LauraM, I found the article on another forum so share away I say - But I think I did post it on the May one too (could be mistaken as I'm still suffering from chemo brain!).  I had my surgery 2 weeks ago - the scar from the lumpectomy was the one they had to fix due to the gaping hole that I had as a result of the infection and the ''beautiful" purple gash it left.  So far so good - just a straight line now and I hope in time I'll barely notice it!!!! Amazing really what these infections can do - hopefully your surgery goes well when you have it (I found it much easier than the initial surgery that's for sur, but I guess it depedns on what you have to have done).

  • shygal
    shygal Member Posts: 89
    edited August 2010

    Yippee....both of my biopsies were benign...I am so relieved not to have another surgery and even possibly more chemo....whew....now I can focus on getting into the radiation queue again and hope to start that late this month after we get my planning session done next week.

    Thanks for everyone's positive thoughts....it obviously worked.

    One other thing, yesterday at the hospital there was a notice about a controlled study for Hot flashes as a result of chemo for pre-menopausal women.  I called today and I'm going to try to be added to the study.....anything to help sleep through the night....I'll let you know how it goes and what they give me.....

    Cheers with a glass of wine (or 2) tonight and have a great weekend everyone - hoping for cooler weather in the days ahead.

  • JenC
    JenC Member Posts: 382
    edited August 2010

    Shygal - congratulations on the negitive biopsies.  That is GREAT news.  Time to celebrate:)

  • LauraM
    LauraM Member Posts: 251
    edited August 2010

    Shygal - Congrats on the negative biopsies.. glad to see some good news come your way!

  • saralmom
    saralmom Member Posts: 329
    edited August 2010

    Shygal - so glad for you!  So, so so glad!!!

  • caltex_catlady
    caltex_catlady Member Posts: 136
    edited August 2010

    shygal: Congrats on the good results!

    Everybody who is done with chemo: I think I've caught people as they've said they're done, but if I missed you, let me know so that I can give you a smiley face up top. Laughing

    My regular onc had told me I wouldn't be needing rads, so I was thinking I was done (three weeks ago). She set me up, though, to consult with a radiation onc, which I did today. At first I was disheartened that I might not be done after all, but I feel better after talking to him. Since my tumor was < 2 cm and I only had 2 nodes show positive, I'm in the gray area where research doesn't definitely say that rads will have a great benefit. But the doc gave me some reasons why he would recommend it. I would probably need just 25 zaps. I'm most likely going to do it, but I'll give myself the weekend to think about it. I'm set up for next week to have an "educational" appointment with a nurse followed by the set-up getting my little tattoos.Then they'll take about a week to work up my plan. I'm not sure when my actual treatments would start, but it could be sometime this month. I guess I'll need to go check out the August rads forum.

    I hope everybody has a good weekend.

    Karen

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