If you have just been diagnosed....

Hi All:

To the guy who hit me on the side of the head Friday with a baseball bat...I hope you are having a wonderful weekend!

I was diagnosed on Friday with breast cancer but I don't know the exact stage yet. I do know my biopsy report states:

12 o'clock (left breast) lobular carcinoma in situ and invasive mammary lobular carcinoma classic type. Paraffin block submitted for ER/PR/Ki-67/HER2-NEU analysis.

1-2 o'clock (left breast) lobular carcinoma in situ and scattered foci of invasive mammary lobular carcinoma, classic type.

Both specimens show focal lubular carcinoma in situ and 1 shows focus of mammary lobular carcinoma of classic type. There are compressed cords and single strands of fairly bland but milignant epithelial cells extending through a desmoplastic stroma. some of these cells associated with small intracytoplasmic mucin droplets. Distinct lymphatic space invasion is not evident.

2nd specimen shows multiple core biopsies of breast tissue. areas of lobular carcinoma in situ and scattered foci of invasive mammary lobular carcinoma of classic type. lymphatic space invasion not identified.

Hormone assay:

estrogen 100% (3+positive)

progrstrone 90% (3+positive)

clone 1E2

% of cells positive 90% (3+ positive)

Ki-67 cell proliferation marker is 10%

HER2NEU - reports to follow

Ok, now that i've bored you with the stats can someone make heads or tails of this?

I look forward to talking to y'all

Thanks
Jan

Thank you Hope!  I'm glad you are doing well.

I can't wait to get this 'out of me'.  I am beginning to believe although Cancer is real that alot of this disease is psycological too.  I can now say the words Cancer, oncologist and mastectomy without my eyes welling up in tears.  I can't wait to get moving with this and yes, I plan on a 2nd opinion before I make my final decision. Since ILC is bilateral I have alot to think about and discuss with my wonderful husband.  He's been so supportive. 

Hi Mary here again.  Thank You for all the words of encouragement.  I kept myself busy today painting and cleaning.  My husband, Dan, has been reading up on BC and I think this was a little to much info for him to take in.  I found him crying in the bedroom.  He is such a tender hearted man. it makes me feel very sad and guilty to have my family so upset.  Can't wait to get this over with on Wed. I hope you all have a quiet eveing and God bless you all.  Special thanks Chrissy!

Hi everyone:
My mother was recently diagnosed of Stage 3, IDC, Grade 3 with multiple axillary lymph nodes involved. Her reports suggest ER/PR negative and HER-2-neu 1+ staining (negative). I do not understand the part of the report about HER2. Does it mean that it is only slightly positive so it can be considered negative and only work with chemo, or will HER2 positive drugs work for her. Also, her doctors are performing another test to reconfirm her HER2 status.
Any information regarding this and possible treatment suggestion would be highly appreciated.

Regards,
Spradhan

Yes, waiting for my Path results on the tumor size, I already met with the Cancer Society and WeSpark, got beautiful free wigs and looking for scarves, Got a hold of locks of love to donate my long brown hair, Just preparing myself for chemo, like my doc mention, it could be possible, ALL I say to myself, its only temporary Hope, like being pregnant!  haha  And yes, my husband has been my rock!  It told me if Lance, can do it, that I could too!   Livestrong.com

God Bless,

Hope    <><

Hullo,

I was diagnosed with a <1cm IDC two weeks ago, and had my first real meltdown today. My lumpectomy is happening next week, and I'm far more fearful of the sentinel node path report than I am of the surgery.

My situation is complicated by a benign brain tumor, which was fried by CyberKnife 3 years ago, but has left me with some brain damage, as well as emotional volatility. I figured that a brain tumor was going to be the worst thing that could happen to me, but obviously, I was mistaken. Anyone else out there with a meningioma???

paamboli

Debbie,

Thanks for your prayers. I'm just feeling overwhelmed, and am so very frightened.

paamboli

paamboli ~ How're you doing today?  I can't imagine dealing with a bc dx after treatment for a brain tumor!  That has got to be an extremely rare situation, and I'm so sorry it's happened to you.  I don't think I've read of another situation exactly like yours, but there are at least 2 or 3 women on BCO whose husbands have brain tumors, which also seems totally unfair.  Other than newly dx'd women, I don't think a lot of people check this thread, so if you want to repost your question as a new thread, I would be surprised if you didn't get some related comments and support from others who have actually had some type of previous cancer.  It sounds like the kind of situation that you would really have to be in to truly grasp!   (((Hugs))) and prayers for a smooth surgery and clear nodes.

Rachel ~  Good luck with chemo.  Have you checked the list at the top of the chemo board for suggestions of little things that can help you get through it more comfortably -- things like Biotine mouthwash, etc.?    Deanna

 Hello again everyone, DebbieLynn here, tomorrow is my sentinal node biopsy and lumpectomy, I have to be at the hospital at 6:30 am .Sentinal node biopsy at 8:30 am and lumpectomy at 12:30 pm. Has anyone here had it done this way ? Why would they separate them ? I don't understand this. I was ok with this all until now. This is such an inconvienence, and now I'm scared.  

my mom was recently diagnosed with stage II b breast cancer. she had the lympectomy and 3/9 lymph nodes removed. she had an appt today to discuss her chemo. she will be having 4 treatments every 3 weeks. She lives in ct and I live in chicago. I was wondering if anyone knew if the chemo treatments are worse in the beginning or worse at the end. It kills me that i can't go home for the entirety of this process but wanted to make sure i chose when to go home wisely. I know everyone is different so it might be hard to say but any input would be greatly appreciated. thank you in anvance and god bless. sincerly molly

Hi Chrissy,  Well I got thru the core biopsy and am awaiting the final results.  They should be back in 48-72 hours.  I have been on the Web researching different stages and treatment options.  Not really a lot offered here in my home town.  I think everyone gets the same .  Dr. told me the plastic surgeon only comes once a month to the hospital here, so I am already questioning having surgery done here or go somewhere where I have more options.  Hope you are having a suuny day. I am trying to keep my mind and hands busy cleaning closets.  Thank You for your replies.  Mary

Mary ~ Remember, 80% of biopsies turn out to be benign.  So there is still hope that you will be one of those!  Where do you live that you only have local access to a plastic surgeon once a month?  Hopefully, you won't need a PS, but if it comes to that, I think you will want to find a medical team, including a PS, who do breast reconstruction on a daily basis.  Usually, they can offer you so many more options than a more general plastic surgeon.  Ditto for the "everyone gets the same" comment about treatment, which has become so targeted in recent years that doctors who don't keep up with this would be a concern for me.  But it doesn't mean you can't get treatment locally.  Sometimes a consultation at a larger, university facility can yield information that you can take back to your local doctors.  But let's just hope and pray that won't be necessary.

Molly, I think any time you can plan to see your Mom would be very appreciated.  As Chrissy said, the effects of chemo can be cumulative, so that many women tend to have more fatigue the further they get into their treatment.  But I think each step has its own challenges -- the first one can be terrifying, then losing your hair is very traumatic (although wig shopping can be fun), then there's a point where it seems like you still have so many weeks to go you'll never get through it, then towards the end you can be too exhausted to do much of anything.  You might ask her if she would like you there for support when she starts, or if she'd rather wait and have you come in a few weeks.  Either way, I know it will mean a lot to her to have you there.        Deanna

Hi Mary, glad to hear your biop went well and that you are now just doing the waiting thing.  Hopefully answers won't be too long in coming. As I don't live in the USA I'm sorry I can't help you with locations for treatment but I am always available for anything else.

Love n hugs. chrissyb

Sueinva- Sorry you had to join us, but welcome you have come to the right place for support and advice/ Every one is different on when they get there results back for me it took 10 days, some ladies say 5 days so it depends, i know the waiting is the hard part it truely sucks, try to keep your self busy and try to breathe and relax if you can, maybe ask for some xanex (valiium) it really will calm the nerves, We are here for you please let us know how you are ((((((((((hugs)))))))

Debbielynn- congrats on the neg nodes, glad your surgery went well, and glad deanna was right that they should do it at the same time, sending big hugs to you

Rose, sorry you are sitll having some pain and weakness, are you taking anything to help with the discomfort? Glad you have support there to help you, some ladies go back to work during chemo, i couldnt but a lot do, hope you are one of them

warm hugs

Debbie

Hi there!  Well I got the news on Friday morning.  The nurse called to say " The results are in,BUT I can't tell you!  You have to make an appointment with the Dr. on Monday! So I set up the appt. and got angry at everyone.  Why should I have to wait to hear the bad news and wonder all weekend!  So I went to the HIM dept. at the hospital and requested a copy of the path report for myself.  "It" is invasive ductal carcinoma less the 1 cm with surrounding  tissue testing positive for estrogen and progesterone sensitivity.  It said grade 1.  So from what i have read it is slow growing and small but has the potential to go elsewhere . Solnow I sit here thinking of having a bilateral done with radiation in my future.  I sure don't want to have to go through surgery any more than I have too.  Will see this Dr. on Monday but am definitely seeking 2nd opinion .