Stage 4 IBC Stop chemo

Options
ev1989
ev1989 Member Posts: 22
edited June 2014 in IBC (Inflammatory Breast Cancer)
Stage 4 IBC Stop chemo
· Share on FacebookShare on Twitter

Comments

  • ev1989
    ev1989 Member Posts: 22
    edited December 2010

    I would like to hear from any stage 4 IBC ladies that have decided to discontinue chemo and use other options to maintain a good quality of life.  Thanks

    · Share on FacebookShare on Twitter
  • cwrightrn
    cwrightrn Member Posts: 242
    edited February 2010

    I was just diagnosed Stage IV a week and a half ago and have started new chemo drugs.  I will continue until my quality of life is worse with chemo than without.  For me, my age (just turned 40) and the fact that my kids are 11, 14,15 keep me fighting.  There have been 3 IBC women who have lost their battle in the last 6 months and one of them, Amber (who started the thread about sharing our IBC stories) was only 32 or 33 years old with 5 small kids at home....and she continued to fight until the side effects were too much.  Not sure if that helps, but those are my thoughts

    Carole 

    · Share on FacebookShare on Twitter
  • ev1989
    ev1989 Member Posts: 22
    edited February 2010

    Sorry you have to face stage 4, it's not easy even knowing the kind of cancer we have. I have been stage 4 since 9/08. I was first diagnosed at age 38 and am now 41. Thank you for your reply. I hope for the best for you.                        Elizabeth

    · Share on FacebookShare on Twitter
  • Ange2010
    Ange2010 Member Posts: 1
    edited August 2010

    Elizabeth, Please tell me what treatment you are on, were you dx at stage iv?
    · Share on FacebookShare on Twitter
  • ev1989
    ev1989 Member Posts: 22
    edited August 2010

    Yes, I am stage 4. I did end up deciding to continue treatment. Since the stage 4 Dx I have been on Tamoxifen, Xeloda (chemo pills), tried Gemzar (chemo) and have now been on Taxol since 2/10.

    · Share on FacebookShare on Twitter
  • ibcmets
    ibcmets Member Posts: 4,286
    edited August 2010

    Elizabeth,  I was diagnosed stage IV ibc w/ bone mets 6/09.  I did taxotere, cytoxin & some adriamyacin and also zometa for the bone mets.  I will continue zometa and I'm  on Femara after chemo as an AI to keep my estrogen minimal.  I heard ER patients have a lot of options as far as drugs to take without going back on chemo as long as we stay stable.  I'm pretty stable so far, although it's only been just over a year since diagnosis.  I hope you continue some type of treatment that is doable for you.  Let your onc know what problems you are having so they may be able to remedy them. 

    Hugs,

    Terri

    · Share on FacebookShare on Twitter
  • ev1989
    ev1989 Member Posts: 22
    edited August 2010

    Hi Bonnie,  those were the drugs I was on. When one quit working I went to the next one. I am currently on Taxol, I've been on it since 2/10. The side effects were not as bad as I thought they would be. I've been on Aredia monthly for the bone mets in addition to the one I'm on at the time. I've been on the Aredia since 9/08. If the Taxol quits working my onc wants to try Navelbine. I had a PET scan today because the CA27.29 went up and I've had more pain on my left side where the skin mets and lymphedema are. I was stage 3B when diagnosed in 2007.

    One day at a time with the Lord's help,     Elizabeth

    · Share on FacebookShare on Twitter
  • ev1989
    ev1989 Member Posts: 22
    edited August 2010

    Yes they are similar. I didn't know they staged lymphedema, I'll have to check it out.

    · Share on FacebookShare on Twitter
  • imarobot
    imarobot Member Posts: 2
    edited August 2010

    Stay strong my brave sister! I am 23 years old. I was diagnosed 5 months ago. I was told I would be lucky if I made it past 6 months, but I put my faith in the Lord. Five months later, I'm cancer free! Don't give up. I almost did after my first chemo, but life is beautiful and worth every single treatment. Have faith...

    · Share on FacebookShare on Twitter
  • marium
    marium Member Posts: 65
    edited August 2013
    my mom   was stage 3b when she was diag wth ibc in 2009,she went through ac therapy,taxole and mastactomy and before rad her ibc reccured.nw she is starting wd ixbepilon,waiting fr pathology report she might start xeloda.i wish her n everyone out  here to win the battle.aman   anyone wd same med plz contact
    · Share on FacebookShare on Twitter
  • ev1989
    ev1989 Member Posts: 22
    edited December 2010

    What is wd ixbepilon? I have been on Xeloda.

    · Share on FacebookShare on Twitter
  • marium
    marium Member Posts: 65
    edited March 2011

    lexampra was to tough fr her,chances she could have gone to coma or can ve heart problem so it got discontinued. she was give 2 doses of gemzar which didnt work much,she started 6 tabs a day of xeloda  but got serious side effects which she could not handle,seeing her onco today.lets c.

                          love  to all

    · Share on FacebookShare on Twitter

Categories