BRAIN METS??? COULD IT BE?

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Frankie_
Frankie_ Member Posts: 422
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

Crap...Crap...Crap

I am having sudden symptoms in my left arm:

Last night I went to reach the remote control to turn the tv off and I had this strange sensation that my left arm was not attached to my body (a spacial awareness thing). I thought hmmm that's kinda wierd-maybe I am just over tired or something-but i did find the need to tell my hubby about it.

Then this morning I woke up and when I went to grab the dish detergent I felt the same thing happened and "missed" the dish soap by about 6 inches. Crap...

I am suppose to be going to my cancer center today for a herception infusion but will not be seeing my Onc as he is on hoildays. So I called the after hours department and spoke to another Onc-who I have had before (who actually) remembers me and took all my info. I aked her if this could be sign of mets -she said "yes" but it could be symptoms of other things as well. I did have a MRI (brain) in December and was -clean, but will all know that this damn disease can be aggressive. The Onc is going to try a schedule a MRI today or in the next day. I 'am really scared as I just finished chemo in March and have not even completed my herceptin. Can't believe this is happening!

Anyone else have this symptoms before?

Frankie

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Comments

  • Scooter-12
    Scooter-12 Member Posts: 33,398
    edited July 2010

    Frankie...I haven't had these symptoms, but wanted to let you know I'll be praying for a B9 results.  (((hugs)))

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  • jteach
    jteach Member Posts: 199
    edited July 2010

    Frankie,

    It could be something as simple as a pinched nerve.  I'll keep you in thought and prayer.

    (((HUGS)))  Janice

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  • GoldenEyes
    GoldenEyes Member Posts: 180
    edited August 2010

    Any word from Frankie?

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  • Frankie_
    Frankie_ Member Posts: 422
    edited August 2010

     Hi ladies,

    I saw my Rad. Onc the day of my "unusual symptoms" but I was not able to get a brain mri until tomorrow (August 4th). I don't have a very good feeling about the scan but having said that, I haven't really had any other symptoms since these incidents.

    Frankie

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  • krcll
    krcll Member Posts: 343
    edited August 2010

    Frankie- I just want to say that I am thinking of you and crossing every finger and toe I have that the brain mri comes back clear! I think you have been through enough scans up to now and you deserve a break. Even though I can't be there in person tomorrow, know that I am there in spirit. I'm so sorry you have to be scared again....

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  • amlg1
    amlg1 Member Posts: 596
    edited August 2010

    Praying everything turns out negative.Hang in there.

    (((HUGS)))

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2010

    I know only a clear brain scan will help put you at ease, but I wanted to let you know I have brain mets and never had one SE.  Others I know with more advanced brain mets had other symptoms that do not sound like what you are experiencing.  Everyone is different, but I have great hope this is something else.  Please keep us updated so I can uncross my fingers for you!!  Hugs!  lisa

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  • hrf
    hrf Member Posts: 3,225
    edited August 2010

    Frankie, so sorry about all the worry you are going through. Those symptoms could be many other things. Hoping for a clean scan.

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  • Paula1231
    Paula1231 Member Posts: 456
    edited August 2010

    Frankie,

    I am praying for you to have a clear scan.  I had a terrible backache when I was newly diagnosed and the whole time during my CT and bone scan I KNEW I had bone mets.  The scans came back negative.  Do not come to any conclusions until you get results.  Hang tough!!   

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  • Frankie_
    Frankie_ Member Posts: 422
    edited August 2010

    Hi ladies,

    Just walked out from mri. The results will sent to my Onc tomorrow I am told. Urrgh, waiting is the worst!

    Thanks to ALL of you for being here for me!

    HRF- look forward to meeting you Sunday in Niagara!

    Frankie

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  • Bugs
    Bugs Member Posts: 1,719
    edited August 2010

    Frankie...just saw this thread.  I'm thinking of you and waiting with you. Hugs!!

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  • jdootoo
    jdootoo Member Posts: 253
    edited August 2010

    Fankie,

    Thinking of you today and praying for you. You have been on my mind the past few days. You and I have such a similar diagnosis and you have allways uplifted me. Gentle, loving hugs...

    One love, Jackie

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  • CindyRN
    CindyRN Member Posts: 19
    edited August 2010

    My thoughts and prayers go out to you today! I am sending you positive energy that you recieve negative test results!

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  • littletower
    littletower Member Posts: 333
    edited August 2010

    Good thoughts and prayers!

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    Prayers for you going up!

    Leah

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  • CandDsMom
    CandDsMom Member Posts: 387
    edited August 2010

    Thinking of you as well and hoping for a clean scan!

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  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited August 2010

    Hey Frankie, hoping you are not stressing too much about your MRI.  big hugs from Alberta

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  • Halah
    Halah Member Posts: 352
    edited August 2010

    Frankie, hoping for good results for you! I'll be watching this thread for your results.

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  • anetnut
    anetnut Member Posts: 49
    edited August 2010

    Will be praying for a good report Frankie. Hang in there.

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  • debbie6122
    debbie6122 Member Posts: 5,161
    edited August 2010

    Frankie- Im also praying for good results- (((((((((((hugs))))))))))))

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  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited August 2010

    Frankie,

    I'm praying for you too!  My DH has had brain cancer for over seven years, and he's never had symptoms like that.  Neither did his brother who had the same thing.  Hopefully, it is a pinched nerve or something.  I'm so sorry you are having to go through this.  We're here for you!.

    Love

    Bobbie

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2010

    Frankie - I just saw this. So sorry you are going through more worry. Hoping for good news.

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  • candie1971
    candie1971 Member Posts: 4,820
    edited August 2010

    Frankie, prayers are with you for all clear results!!

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  • Summer38
    Summer38 Member Posts: 253
    edited August 2010

    Frankie - My fingers are crossed! Hoping you receive good news today!

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  • perky
    perky Member Posts: 241
    edited August 2010

    I hope that isn't the case. I don't really know your whole situation but wanted to offer up another possible explanation. Maybe you have a pinched nerve under your left arm. I had a lipoma in my left armpit that would occasionally pinch a nerve and my arm would act funny, have a strange sharp pain and in general make me kind of nuts. Now that I have 720cc TEs in, it's happening again since that sucker is practically in my armpit.  I don't know if you have implants of not, maybe you have something pressing against a nerve?

    I really admire the way you didn't hesitate to get answers. I may have hidden under my covers for a week or so first.  My fingers are crossed that it's not "In your head".

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  • clariceak
    clariceak Member Posts: 752
    edited August 2010

    Wishing you a clear scan and good news!  You've certainly had enough stress lately. It's time for a break.

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  • Frankie_
    Frankie_ Member Posts: 422
    edited August 2010

    Hi ladies,

    Firstly, I want to start off by saying you guys ROCK!!! We often are "rocks" for one another when we go through uncertainty, confusion and fear to name only a few when it comes to this damn disease are'nt we? So thank you ALL from the bottom of my heart.

    Since starting this journey nearly one year ago, I have struggled through many emotions as each of you have in your own personal journey. Throughout this process, I have have had (hope) and still do but I have also been realistic where this journey may lead. Having said that, I 'am sad to say that my worst thought has come true and I learned 24 hours ago that I do indeed have a brain tumor (how sucky is that). None of us want's to hear that word but I'am proactive and I will push forward. Having been diagnosed with bc my world changed and so did I. It now has taken another path and I must continue with this journey throughout the good and the bad. At this time, I know that I have a solitary (single) 2.2 cm mass in my right Parietal Lobe and with some swelling. My breif symptoms (lasting 24 hours) coincide with the location of the tumor in my brain. So NO headaches, nausea, dizziness, etc. I have had a crash course intro to brain mets and I have learned that depending on the location of the tumor -it will present a variety of symptoms and/or no symptoms. I had an initial brain mri in December prior to chemo at intial staging and it was perfectly (clean). I had to push for this because in Canada (and perhaps other Countries) it is NOT the Standard Care of Practice. It is not as common for bc to spread to the brain as with other organs. Naturally, I was concern to learn that I progressed so quickly due to the fact that I had finished chemo in March and was still doing my herceptin treatments. My Onc reminded me that the chemo does'nt pass the blood brain barrier and that any scan is only "good the day it is done" -until someone presents with symptoms or until the next scan it done.  My Onc has prescribed Pms-Dexamethasone to reduce or prevent further swelling. Many of you may have been prescribed this steriod while on chemo. I have been up since 3:30 a.m. wired with energy. My Onc has referred me to a Neuron Surgeon and he hopes that I can be seen this coming week. My Onc is recommending that I have brain surgery followed by whole brain radiation treatment. I won't know more details until I meet with the surgeon. I will seek info from others who have brain mets on the Stage IV forum.

    P.S. New lap top (no mouse attached) learning to use fingers to manipulate -could not highlight for spell check Tongue out lol

    Frankie

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  • jdootoo
    jdootoo Member Posts: 253
    edited August 2010

    Frankie, I have been thinking about you constantly for the past couple of days. I am sorry to hear the news and I know you will fight this with everything that you have. Sending giant ((((((hugs)))))) and love your way.

    One love, Jackie

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited August 2010

    Frankie,

    You are not alone in this battle. Focus on feeling the strength and healing white light of thousands of sisters at your sides. We are all right there beside you.    

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  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2010

    (((((Frankie))))))))) Gentle hugs coming your way along with prayers for you on this journey.

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