If you have just been diagnosed....

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  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited July 2010

    Couple more questions. If anyone knows what these mean, please let me know. I have tried to look them up online but so far haven't really found much.

    Follicular lymphoid hyperplasia (this was under the sections concerning the lymph nodes)

    Lymphovascular Invasion by tumor  (this was under the section on the breast)

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2010

    Deb follicular lymphoid hyperplasia means the lymph nodes are producing lots of lymphocytes (which help prevent viruses and cancer from getting into the blood stream). Lymphovascular invasion by tumor means the tumor had blood vessels supplying it. Someone please correct me if I am wrong but a dear friend had both of these in her pathology and this is how it was explained to her.

    Still though, Deb, I would wait to see your onc. He/she will go over every line in the path report and will offer you statistics, based on your pathology, age, etc on your reoccurance risk percentages. Including if you do different types of chemo, no chemo, rads, hormone drugs, etc.

    For the weekend, try to accept that there is nothing to be done until you have more information from the doctor, Try to take a deep breath and do something for you.

    Big gentle (((HUGS))))) for you!

  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited July 2010

    BarbaraA   Thanks so much for the information. So it sounds to me like the follicular lymphoid hyperplasia is a good thing. I don't know if the Lymphovascular invasion by tumor is a good thing or not, will just have to wait and ask the oncologist.  I know I will really have to wait for the onc. to explain it all to me, its just hard not to have all these things running through your mind. (I know you know what I mean).

    I am going to start a list of questions for the oncologist so I don't forget to ask anything in the moment. I do appreciate you trying to explain this to me somewhat and I will try to take that deep breath and relax.....<sigh>.  Thanks for the big gentle hugs. We can never get too many.

    (((((HUGS))))) back to you. Deb

  • Hope777
    Hope777 Member Posts: 25
    edited July 2010

    Hi R,

    I too am 44 with 3 boys, and I have DCIS Stage 2, I took the Genetic test Friday, to see If I do indeed have the BRCA1 or 2, or if my cancer was by chance. its a 3K test if your ins does not cover it, lucky for me my husband works at Kaiser . Anyways that what Christina Applegate did, she was positive and took both off, So I was told that I would have to do the same plus my ovaries if it did was positive. lucky me! :)  But, thank god for implants!!!! I know about the chemo, I wil discuss with Doc, maybe for a lite dose, I visited Youtube.com and people telling there storys on chemo.  interesting.  Take Care and prayers for you sistas   LIVESTRONG!

  • tryn2staycalm
    tryn2staycalm Member Posts: 763
    edited July 2010

    Hi Gals -  Yes Deb it is hard waiting for answers.  I have my pathology here too and its like trying to read a different language.  I'm sorry but I'm not much help with that stuff.  I will learn more Friday with my onco appointment too.  Been at the trailer/boating and find that is relaxing and it sure helps to relax right now.  Cooking a big meal today and daughter should be here from down south soon - keeping busy - that helps too.  Hang in there sistas.

    Cathy

  • starling
    starling Member Posts: 76
    edited August 2010

    Thanks everyone for all your support. Tomorrow I have lumpectomy, still don't know HER2 status (although probably will be negative) and still waiting for BRAC1/2 results. Praying for clean nodes, but grateful for everything anyway. Good friends, loving family and you sisters. God bless us all!

  • tryn2staycalm
    tryn2staycalm Member Posts: 763
    edited August 2010

    Barbbasile - Your first step in getting well tomorrow - good luck.

    Cathy

  • VickyThomas
    VickyThomas Member Posts: 54
    edited August 2010

    I am 36 years old and was diagnosed in March..five months after lost my mother..I had a mammogram and ultrasound and the cancer was not detected.. It was found during a breast reduction that I had done on March 2,2010... It had not spread to the lymph nodes, however I was advised by my doctors to have a masectomy of my left breast and now I am undergoing chemo.. I have four treatments left and I am finding it very hard to complete them.. I just want my life back.. so much of me has changed physically..to where I now refer to my self as a monster.. I have a wonderful support group, wonderful husband.. but somehow I can't get pass the what I use to look like.. are these feelings normal?

  • Undead
    Undead Member Posts: 8
    edited August 2010

    For all of you who have just been diagnosed and do not want to go the invasive route, there is another option - please read my profile.

  • iodine
    iodine Member Posts: 4,289
    edited August 2010

    To the oldbies:

    Don't you find it interesting that a person who has only posted 4 times  says the same thing at each post?  I have discovered over the years that when someone is trying to sell you something, they drop in and then drop out of our boards.  I wonder if  "Undead" (huh?) is trying to sell us something?

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited August 2010

    Ioine- yes, i thought so too, i reported this person as they are not allowed to solicet (sp)

  • Rose6
    Rose6 Member Posts: 36
    edited August 2010

    Hello sistas, well  came thru the lumpectomy with flying colors. I dont even reemember being in the surgery room, and thern I woke up in recovery! WOW that was my worst fear not waking up. By BF and two GF were there with me and one stayed overnight, still sleeping. I have a lot of discomfort and soreness, but was surprised to see how much I could do on my own. My son and his wife brought a card, flowers and a meal last night , sweet.

       They did not find any lymph node involement, whic I am so ever grateful for. Well on to the next steop in a few weeks. Thank you for being there, you are all very wonderful

  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2010

    Lynda ~ So glad your surgery is behind you and that everything went so well!  Sending you healing vibes today!

    undead ~ Is the laser treatment you're referring to possibly experimental, at least for breast cancer?  Was it performed by conventional medical doctors?  Obviously, you're excited about your results, but just as obviously we're not anxious to talk about something that's not proven with newly dx'd women who are already overwhelmed with information at this point.  However, I'll give you the benefit of the doubt if you want to tell us more.  It sounds vaguely like something I've recently read about for other types of cancer -- maybe prostate?     Deanna

  • tryn2staycalm
    tryn2staycalm Member Posts: 763
    edited August 2010

    Rose6 - Glad your doing well and surgery is behind you.  No node involement is great news.  Hope you continue doing well.

    Cathy

  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited August 2010

    I have been trying to get myself up to posting this all day, but I am just so overwhelmed right now I'm having trouble functioning.

    I had my first oncologist visit yesterday and he said he wanted me to have a re-excision. My husband is very upset and can't understand why they didn't just get enough the first time. I am not thrilled either but I feel like my surgeon did his best and thought he had gotten enough and didn't know the onc was going to require more.

    Anyway, long story short I will be going back to surgery on Tuesday the 10th and they will take a bit more tissue and also place the port for chemo. Then they will give me 2-3 weeks healing time after which I will have chemo once every 3 weeks for 18 weeks (total of 6 rounds of chemo). Then I will get 2 weeks off after the last chemo before I start radiation therapy for 6 weeks. After the radiation is done I will be on hormone therapy for 5 years.

    I am so sick and tired of this whole thing as I am sure all of you are and just want to get this behind me and get my life back.

    Rose6    Glad your surgery went well, I hope you continue to make quick progress on your road to recovery.

    tryn2staycalm    Thinking about you all the time and praying for a good visit with your onc on Friday.

    Deb

  • msphil
    msphil Member Posts: 1,536
    edited August 2010

    hello, I too had reconstruction right after mastectomy was done, God Bless You,  I also had ductal carcinoma, and have been cancer free, after chemo, rads,tamoxifen(5yrs), stage 2, it will be 17 yrs cancer FREE, this December, keep HOPE.msphil

  • tryn2staycalm
    tryn2staycalm Member Posts: 763
    edited August 2010

    Deb/keepingthefaith:

    I'd like to give you a pep talk about now but sometimes all you can say is Cancer SUCKS!  Although I must admit that I am glad that you have decided to let the surgeon go back in and get a clear margin.  I'm NOT glad that you need this don't get me wrong, just glad that it should give you good margins and a better chance of a long term survival rate.  I'm counting on you! Hang in there!

    Cathy

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2010

    Deb, I, too had to have a re-excision. My DH was more upset than I was but we did it 10 days after the original surgery. The path showed: NOT ONE CANCER CELL! So he got it all the first time. The second surgery made the breast a bit more tender but I still didn't need any pain med.

    You can do it!

  • kira1234
    kira1234 Member Posts: 3,091
    edited August 2010

    Deb,

    I had the re-excision just 2 weeks ago. I also had the balloon placed for the radiation. The only problem I had was from the balloon contraption. It is 2 weeks out, and the re-excision feels fine.

    Karen

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2010

    Hi all--Had my meeting with radiation doc this AM--everything is kind of in holding pattern until tomorrow AM with surgeon. This doc provided lots of information and he seems to think that they removed all "Level 1" lymph nodes so perhaps no more surgery--however, perhaps Pathology mislabelled all nodes as sentinel. I was ordered bone scan and US as the radiation doc wants it for his files--the Oncologist didn't want them but Radiation doc does. Next step confirm with surgeon and then hopefully moving onto the treatment or else will be delayed for up to one month.

  • DebbieLynn
    DebbieLynn Member Posts: 23
    edited August 2010

    I was diagnosed on July 23 2010. On July 20th I had an excisinal biopsy . IDC , I'm having a lumpectomy an sentinal node biopsy done this coming Thursday. That is when we will know what stage , grade, etc... . this has been such a long four months and it is just getting started. I have so many emotions in one day . I don't even reconize myself right now,  Thank you for a place where I can express myself freely. Debbie

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2010

    Oh Debbie, the beginning is the worst!! The waiting and worrying. Gentle ((HUGS)) to you. Take deep breaths and know that once the lumpectomy is complete, you will have a plan and once you have a plan, everything will fall into place. Please let us know how your are doing after your surgery and come back anytime for more hugs!

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2010

    Hi Debbie--It is true, the waiting and not knowing is the worst part--once that is done and the pathology is back--you feel more in control and for some odd reason (or at least for me), I didn't feel as worried--even though I am facing chemo/radiation--strange. I am only about 3 weeks ahead of you-haven't started chemo yet but probably will in next couple of weeks or so. Good luck, Rachel

  • Rose6
    Rose6 Member Posts: 36
    edited August 2010

    Thank you Deanna and Cathy for your ever kind words and support. The last few days my friend hasnt let me do a thing but eat rest and rest somemore, she went home today and I miss her already! My BF and I went to the park for a little bit, that was nice to get out in the sun.

       Deb I am so sorry you have to have more surgery. My prayers and hugs are with you.

    Debbie Lynn I just had the same exact surgery as you will have soon, and even though I am hurting prettybad, I am so relieved that it is over. My appt with the follow up is tomoro and then when I heal I can go to radiation. The waiting game is always the hardest. and most stress ful.

        The people in my life tho at this point are bringing food, cleaning , running errands, I mean what an act of love ....hang in there everyone there is a light coming soon , maybe you are there already!:)

  • DebbieLynn
    DebbieLynn Member Posts: 23
    edited August 2010

     Thank you all for the comfort. I am greatful for this site . Whatever tomorrow brings I will be there with open arms and open eyes.

  • mesr56
    mesr56 Member Posts: 9
    edited August 2010

    Hi Mary here.  I am 54.  Have recently been scared with mammogram and ultrasound with a report of birad 5.  Will be having a core biopsy this next Wed.  I am pretty sure this is the real thing.  I come from a long long line of breast cancer in my mother's side  of the family.  SHe was one of seven sisters who were all diagnosed  with breast cancer. Only one sister  has gotten away from this disease.  Of those six aunts,  all of my first cousins (their daughters have been diagnosed with breast cancer in their late 50's and early 60's.  All have bilateral without reconstruction. I guess I will be the first in my family with this diagnosis. I am a nurse and maybe know a lttle too much as I have been having trouble sleeping and concentrating. Some days I think I am having a bad dream and want to wake up and then I realize I am awake.  How do you all cope with this waiting?  I am trying yo put on a brace face for my husband and family but this isn't really how I feel.

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2010

    Hi Mary sorry that you need to join us but very glad you did. The hardest part of the BC journey IS the waiting because your mind wants to go places it has no right to go.  I know that being a nurse gives you a whole lot more info on the other side of this disease but don't allow that info to distort your peace of mind.  We all know that everyone deals with and reacts to things differently, some do it hard and others do it easy, this is something you would have seen in your work.  For you, don't project and don't ask yourself 'what if?' as no-one knows what the future holds for any of us.  Try to live in the 'now'.......like right now......and deal with whatever right now brings.....five minutes time there will be something else for you to deal with and it might just be a fit of crying or a fit of laughter.  Well might you ask what have you got to laugh about......well, you may see or read or hear something that takes your mind away from BC and tickles that part of you that underneath the heavy cloak of finding out about your diagnosis is still you.  Keep your mind occupied with other things that you like to do,  go for a swim, play a game of tennis, go shopping or just browsing, do some gardening, do some craft......etc, and most of all come to this site and share you worries.  Here we understand completely where your mind is at as we all have been there before you. There is always someone to talk with here and you will almost always find someone who is feeling or has felt exactly what you are feeling.  I wish you well in your jouney, it may be rough or it may be smoothe but through it all we are here for you.   May the light of joy lift your spirit and grant you a state of peace and acceptance.  Love n hugs.  chrissyb

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited August 2010

    Hi Mary,  Chrissy gave you good advice so i will just send you hugs and hope every thing turns out for the best for you, there still is that hope... but if it does turn out to be BC you have come to the right place for support, hugs, and advice- we are all here for you ((((((((hugs)))))))))

  • DebbieLynn
    DebbieLynn Member Posts: 23
    edited August 2010

    Tomorrow is my pre-testing before surgery. Thursday can't seem to get here soon enough.

    Hi Mary , sending you Hope, Love and Hugs.

  • CherylQ
    CherylQ Member Posts: 117
    edited August 2010

    Right there with you.  I have the same family history and this week was diagnosed with stage 3 invasive fast growing ductal ca.  Did not get caught on the last mammo and appears to be inflammatory breast cancer.  I am a nurse and know the facts, but still am scared.  Like many of you, I am trying to be brave for my children and husband.  Today, I was up early and had a meltdown, felt great!!!  I will get thru the next few months and I will be a survivor.   

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