Tumor Size in Stage III

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peverson
peverson Member Posts: 55
edited June 2014 in Stage III Breast Cancer

I had a relatively small (1.8 sm) primary tumor but 5 involved lymph nodes (out of only 6). I'm just curious about the rest of you. Apparenlty some smallish tumors like to spread to the nodes. Boo. It's creeping me out, and I'm almost done with chemo.

 Also, a new friend is having double mastectomy before radiation. I've never heard of that before. Ladies?

Pats

DX 3/2010,Stage3A, 1.8 cm, mixed lobular/ductile, 5/6 nodes, Grade 2, ER/PR+, H2N-

Comments

  • caaclark
    caaclark Member Posts: 936
    edited July 2010

    Hi Pats-

    I had a 1.6 cm tumor that went to 6 nodes.  It also creeped me out but that was over 4 yrs ago so I have come to terms with it.

    I had a lumpectomy first, then chemo, then mastectomy and finally radiation so I don't think it is unusual to have rads last.

  • geewhiz
    geewhiz Member Posts: 1,439
    edited July 2010

    Me too...tumor right at 2 cm...but in 8 nodes!!! I had mastectomy, then chemo then rads.

  • Bugs
    Bugs Member Posts: 1,719
    edited July 2010

    8.5cm and 3+ nodes for me.  Mastectomy, chemo then rads.

  • diana50
    diana50 Member Posts: 2,134
    edited July 2010

    very small tumor (1.8) but 10 fully encased larger.2.cm+ lymph nodes....lumpectomy...TAC..rads..arimidex

    Cool

  • peverson
    peverson Member Posts: 55
    edited July 2010

    This might sound kind of crazy, but when I read about others who had small tumors with multiple nodes involved, I don't feel so alone. It's kind of scary when a doctor says, "a small tumor that mutated early because it wanted to spread." I appreciate hearing from all of you.

  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited July 2010

    Pats, I'm an ILC'er, so by definition our cancers are not necessarily massed in the same way as IDC, but mine was small enough that my (fantastic) breast surgeon could do a lumpectomy, AND I had 6 of 16 positive nodes (and she was surprised).  It's funny - you hardly ever see two stories on here that are exactly the same in terms of the dx.  Also I think rads at the end is pretty normal; whatever surgery is needed is supposed to "get it" and then rads are a way to kill any cells that no one can "see" to remove.  Thinking good thoughts for you.  Leigh

  • AgentMo
    AgentMo Member Posts: 72
    edited July 2010

    I am so glad I have found this board. Unlike most of you, I am from Germany, and hardly anybody here seems to have breast cancer stage III when diagnosed. I, however, unfortunately do, because my tumor, which was exactly 2.0cm, has spread to four lymphnodes. I am always wondering whether the combination of a rather small tumor and extended lymph node involvement means that my chances of surviving are even less than those of a large tumor and the same lymph node involvement. I am very scared of this situtation, because I am also quite young at the age of 33. Currently, I am undergoing TAC chemo every 21 days.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2010

    AgentMo, welcome to the club no one wants to join. As a new member, you are limited to 5 posts a day until you reach a total of 50 (I think) posts. You can, however, click on a member name then select to send a private message. You can do this as often as you like.

    There is a stage 3 thread you should check out. The ladies there can help you with any questions you may have. My thoughts are with you and I am sending gentle (((HUGS))))) to you.

  • jenn3
    jenn3 Member Posts: 3,316
    edited July 2010

    I had a 1.9cm tumor, 4 nodes involved (2 nodes had a 3 & 4cm tumor).  I had a bi-lat masectomy, followed by chemo and then radiation.

  • amlg1
    amlg1 Member Posts: 596
    edited July 2010

    How about this..2 cm tumor 31 positive nodes,and had a mammo 1 yr prior.I still get freeked out.

  • Joviangeldeb
    Joviangeldeb Member Posts: 213
    edited July 2010

    I had a 6.5 cm mass, and 1 of 3 nodes it metastised to.  Had mastectomy, chemo than 5 years of tamox.  Oncologist and I decided against rads. Hope it doesn't come back to bite me in my butt.

  • Sherri_V
    Sherri_V Member Posts: 159
    edited August 2010

    I started off at Stage 3 but I had chemo before surgery and my 5 cm tumor, which had not spread to lymph nodes, shrank to about 1/2 it's original size.  They recategorized me as Stage 2 once my tumor was removed.

    I just finished radiation last week and now am on Arimidex for 5 years.  Can't believe my 10 months as a cancer patient is finally over!

  • chrishat
    chrishat Member Posts: 89
    edited August 2010

    i had a 1.7 cm tumor and 5 infected nodes, one with capsillary extension. i also had a clear diagnostic mammogram, with ultrasound, 14 months before i noticed that my nipple looked weird, went in and BAM...stage 3a. it freaks me and everyone else out that i had that clear screening and nothing was detected. i had 4 rounds of AC, then we did another MRI which showed no treatment effect.....my tumor had not responded at all to the AC....HUGE bummer.....so at that point i had a bilateral mast., then did taxol, then oopherectomy, and am now finishing up radiation....5 more to go! it has been a long 8 months. still don't know why AC didn't work for me. has anyone else had that happen? who knows if taxol did anything, since at that point my tumor and nodes were out, so there isn't anything to measure.

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited August 2010

    chrishat -

    During my neoadjuvant chemo I was put on taxol first and the scans showed reduction.  Not huge but the tumor reduced and the nodes shrank.  But on the AC I regained back the size that I lost on the tumor.  The nodes didn't increase so we thought they were doing good with those.  At surgery the BS found the 14 involved nodes with the extracapsular extension.

    So I was categorized as no response to the AC/T chemo.  Yep.  It's a bummer.  But rads are done.  On carboplatin and will move on to Aromasin after that.

  • LibraryJenn
    LibraryJenn Member Posts: 101
    edited August 2010

    chrishat - I also had no response to AC.  The oncologist said that he knew the tumor was really aggressive (partially due to my age - I'm 28.)  I just started my first of 4 taxotere, and am hopeful for it to do it's job.  My tumor is 8x8, so it's easy to measure without an MRI.  I'll go for a mastectomy (possibly get both the left and right off, depending on what the geneticist has to say) and then start rads.  I guess all we can do is be positive that treatment will work.  I'll also get Herceptin for a year (started yesterday.)  I am soo ready to not be a cancer patient anymore! 

  • chrishat
    chrishat Member Posts: 89
    edited August 2010

    good luck libaryjenn! it's good that you can measure the chemo response so you know if it's working. i wish i would have had my surgery before my chemo, but i really had no idea that there was a possibility that i wouldn't respond. i guess the neoadjuvant chemo is prescribed to increase the chances of a 'favorable surgical outcome', and i get that, esp with women who are having lumpectomies....but i was really clear from the getgo that i wanted a bilateral mast. the literature shows no measurable difference in survival between neo-and adjuvant chemo, but it seems to me that those stats look at ALL women across the board, and not individuals. i suppose i'm angry/disappointed with my (ex) oncologist.....wish i had known there was even a remote possibility i was wasting my time with AC ...i probably would have said, i'm having a bilateral for sure anyway, let's get the cancer out FIRST.....and hadn't spent those 2.5 months giving my cancer a chance to spread. anyway, water under the bridge......i just finished radiation this week, feel great, on arimidex. best, best of luck to you. did you do the brca testing?

  • AgentMo
    AgentMo Member Posts: 72
    edited August 2010

    @chrihat: Me, too, I would have love to have neoadjuvant chemo in retrospect, just to see whether it works. However, I think in both our cases the doctors did not count on finding the many positive nodes they have found. I guess that is more of an explanation as to why neoadjuvant therapy hasn't been offered to you. I really don't think it has anything to do with you knowing that you want a mastectomy anyway.

  • joan888
    joan888 Member Posts: 810
    edited August 2010

    I had only a 1.4cm with 4 positive nodes.  Of course, nothing showed up on a mammogram or ultrasound.  It took an MRI.  Ended up choosing a bi-lateral mastectomy with reconstruction.  Now I am down to my last chemo treatment in couple weeks.  Yeah!  But wait, there's more!  Radiation to follow.  I cross my fingers and pray that all goes well.  You ladies are always an inspiration. 

  • hymil
    hymil Member Posts: 826
    edited November 2010
    Sherri_V, I'm interested to hear that they re-staged you. Does that mean your survival is now better than they thought? I re-read ny final path report and there is evidence that a node they though was enlarged but clear, must in fact have previously had tumour cells before the neoadjuvant tamoxifen, well how else did pools of mucin get into an axillary lymph node, huh? No tumour cells found at the time of surgery, so they are calling it OK, but i do find it a bit worrying that at some stage i must have been a higher stage than i thought, and may have made my decisions based on optimistic but possibly inaccurate information
  • littletower
    littletower Member Posts: 333
    edited November 2010

    I wish they had done neoadjuvant on me, although they had no idea about the level of node involvement. Also, I had a mammo with ultrasound 6 months before being diagnosed IIIc. How much does that suck!

  • diana50
    diana50 Member Posts: 2,134
    edited November 2010

    what pushed me up into stage III was the number of postivie lymph nodes. tumor 1.8 but 10 fully encased with cancer lymph nodes. surgeon told me would have been more lymph nodes if he had taken more.  i think the chemo made the difference  for me and i will always believe that the clinical trial i was in in 2002 made a difference.

  • gardenbird
    gardenbird Member Posts: 31
    edited November 2010

    Hi,

    I had a 2.5cm tumour and 22 nodes involved, with a clear mammogram 6 months previously

  • RealtorJackie
    RealtorJackie Member Posts: 91
    edited November 2010

      I had a 2 cm. tumor, and 15/23 nodes positive.  My mammograms were clear for 10 years prior, the last one was 11 months before I found a "thickening" in my breast.

  • kim40
    kim40 Member Posts: 904
    edited November 2010

    I had a 5cm tumor and 14 positive nodes.  Suck doesn't even describe how I feel about that!

  • yellowfarmhouse
    yellowfarmhouse Member Posts: 279
    edited November 2010

    Had two tumors.. one about 2cm the other maybe 1.5 and one node 1 cm.  Had four positive nodes.  Had bilateral mastectomy , chemo, rads, etc.. almost 6 yrs out.

    best wishes,

    Wendy

  • Leslie1962
    Leslie1962 Member Posts: 233
    edited November 2010

    I had a 3.5 cm tumor and 13/18 positive nodes that pushed me to a IIIC. Prior to the thickening, which I found two weeks after a clean annual GYN appointment, I had clear mammograms. No family history. MRI and US barely saw the area of concern and I was told to come back in six months. Even got a letter from the hospital stating I did not have cancer - go figure. I demanded to have a biopsy which then showed the cancer. Very disappointed that I did everything I was supposed to do and docs were not more aggressive when it came to my dense breast tissue. I feel if I had known about dense tissue a few years ago I would have been more aggressive with my doctor to push for additional testing. Now here I am, stage IIIC.

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