Chemo June 2010

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  • cheyenna
    cheyenna Member Posts: 379
    edited July 2010

    i have had 2 periods in two weeks, ill have my last AC on friday.... hmmmm i dont know whats going on???

  • meliss
    meliss Member Posts: 31
    edited July 2010

    Bon, I hope you get some relief. My allergist said to take 50 mg of benadryl at a time. Unfortunately, by that time I was so far into my reaction that I needed steroids to get on top of it. But, my skin is pretty sensitive once it starts to react. If I get even the slightest touch of poison ivy, my whole body will break out. So, hopefully, you won't react so much.

  • SKD
    SKD Member Posts: 140
    edited July 2010

    Is anyone still getting their period? I got mine today and I am 3 treatments in! I thought iwas suppose to stop? (I am on FEC but changing to Taxotere on Friday). I am also young and no where near menopause so hopefully it will stay.

    Cheyenne: My weight also fluctuated but just by 5 lbs at most. I like the mornings that I wake up and it is down!  

  • kittycat
    kittycat Member Posts: 2,144
    edited July 2010

    Danielle - sorry to hear about your guy situation.  I can't imagine going through chemo AND  tissue expanders at the same time.  Ughh...  You poor thing.  I'm glad your mom will be out here for the remainder of your treatments! 

    I am going in tomorrow for round 4 of AC.  Then I'll be moving onto Taxol.  I need to make an appt with an allergist to see if I am truly allergic to Benadryl.  Chemo brain keeps forgetting to call an allergist.  I hope they can tell me yes or no.  Also, I wanted to see if I can take Claritin.  My onco's office says I can take it.  The pharmacist said no because of my supposed allergy to Benadryl.  It would be nice to take the Claritin for the bone aches from Neulasta!

    Well, here's to hoping round 4 of AC goes well for me tomorrow.  I hope everyone is fairing well on their treatments!  (((hugs)))

  • JFV
    JFV Member Posts: 795
    edited July 2010

    Hi SKD,  Got my period right after first three rounds of AC.  Almost stopped after 4th round.  But, not holding my breath.

    Good luck Bon on the rash. 

    Kittykat  Best wishes on your last visit with AC!!!!!!!!!!!!!!!!!!!

  • danielle321
    danielle321 Member Posts: 56
    edited July 2010

    SKD:  I had a period start right before each treatment, 3 in a row only 2 weeks apart.  Then last time it was just light spotting prior to the treatment.  I hope I don't get anymore while going through this because not being allowed to use tampons is grossing me out.

    Kittycat:  Thanks.  It is actually like hell with this guy because he acts like two different people and doesn't seem to give a crap about what I am going through.  I just wish he would leave me alone instead of trying to drive me nuts, I am going through enough with the BC.  If anyone has a prayer to get loser guys out of your life I would appreciate the help.  Seriously!

    Good luck with your last AC!  One step closer to the finish line.

    Bon:  Hope the rash goes away soon.

    Take care ladies.  hugs

  • PearlGirl
    PearlGirl Member Posts: 549
    edited July 2010

    Rash update:   The itch is maddening! Last night I did take two Benadryl, a total of 50mg, and spread on Hydrocortisone cream.  It took until after 2AM for the itch to subside enough for me to fall asleep. I got up at 7 and all but one blotch was gone. Now, just after 7:30, my hands are brick red and the blotches are climbing up my back! Already took another 50mg of Benadryl and will phone onc's office at 8:30 when they open because I may need a steroid to squelch this. .

    I'm so glad I wrote about this and that Meliss spoke up about her similar experience with Taxotere. I never would have put it together. I read the literature but just didn't pay attention to that part. Shows how much I absorbed, right?  Unfortunately, when faced with chemo, there are so many SEs to deal with that I think I just shut down the thinking process and went forward. And what else can you do? I keep telling myself 'Chemo is my friend. Chemo is my friend. Chemo is my friend.'

  • julia2
    julia2 Member Posts: 183
    edited July 2010

    Bon,

    Hang in there!  You are so right about the SEs, my onc told me 'if you don't feel like you, call us', I looked at him, incredulous, and said 'I'll be calling every day'.  Lets see, so far I've had water retention, inability to pee, temp of 102, nose bleeds, gum bleeding, minor mouth sores, headache, sore throat, hoarse voice, loss of appetite, strange food taste, a muscle twitch under my eye that is non-stop since chemo started, the list goes on and on!

    Julia 

  • TMarina
    TMarina Member Posts: 692
    edited July 2010

    Bon-->Hope you get some relief soon!

    Kittycat-->yay for the last AC!!  I hope you get all your allergy q's answered! I was told I'll get a "big" dose of benedryl before the Taxol.  Not looking forward to that as it'll knock me right out!

    Danielle-->I'll say a prayer for you! Smile  The last thing you need right now is to be in a lousy relationship!  Good luck!

    I'll be babysitting my grandson for about 4 hours this morning--hope I have enough energy!  I know I'll be napping as soon as he leaves!  But he's such a sweetie, how could I refuse?  My dd knows I won't be able to babysit for the next few days, I'll be too out of it.

    Have a good day everyone!

    Tina

  • Jenmarie9
    Jenmarie9 Member Posts: 43
    edited July 2010

    Bon-what do you mean no tampons? I have have two TCH treatments so far and I am still getting my period. No one told me anything about tampons??

    Hope everyone has a SE-free day!

    Jen

  • jenweg
    jenweg Member Posts: 195
    edited July 2010

    Well today is my first of twelve weekly taxol treatments.  Wish me luck!! I am a bit nervous!!  I will keep everyone informed of se's.

  • grneyd5600
    grneyd5600 Member Posts: 420
    edited July 2010

    Jen - good luck on the first Taxol treatment! 

    Kittycat - good luck on that last AC TX.  I am doing ok so far today after mine yesterday.  Leaving here shortly to get that last Nuelasta shot. Yippee!!!

    Bon - I hope you find some relief from that rash.  I stuggled with the fly bite but it was at least something that responded to benadryl.  Well, I guess it did bendryl knock me loopy so I could at least get to sleep.  Of course that means I will probably sleep through my entire 12 weeks of Taxol treatments, LOL

    Hang in there my friends.  Hope you all have a positive day! 

  • RS711
    RS711 Member Posts: 105
    edited July 2010

    Hey thought I would share an excerpt from an article I read:

    7 Ways to Slash Cancer Risk

    1. Be physically active for at least 30 minutes a day.

    2. Lower your weight to the lower end of the body-mass index for your height. Even more important, banish belly fat, which acts like a ‘hormone pump' releasing estrogen into the bloodstream as well as raising levels of other hormones.

    3. Avoid sugary drinks and high-calorie foods. For blood sugar balance.

    4. Eat more fruits and vegetables.

    5. Eat less red meat and little or no processed meat. Red meat contains heme iron and other substances that damage the colon lining, making way for tumor growth. Processed meat is even worse. When meat is preserved by smoking, curing or salting, or by the addition of preservatives, cancer-causing substances (carcinogens) are formed that damage cells in the body, leading to cancer. While studies show we can eat up to 18 ounces a week of red meat without raising cancer risk, research shows that cancer risk starts to increase with any portion of processed meat.

    6. Limit alcohol to two drinks a day for men, one for women-but none is best of all. Scientists are still researching how alcohol causes cancer. One theory is that alcohol can directly damage DNA, increasing our risk of cancer. Research shows that alcohol is particularly harmful when combined with smoking.

    7. Limit salt intake. Salt and salt-preserved foods are linked to stomach and other digestive cancers; limit salt to 2400 milligrams to be safe.

  • TMarina
    TMarina Member Posts: 692
    edited July 2010

    Rs711-->If you don't mind, I'm going to post this on my blog.  I've been looking for something like this that has lots of info in one article, without going into too much detail.  I've been wanting to post more "health" related stuff, without boring people, and I think this is perfect!

    Tina

    ps if anyone likes reading blogs...my address is on my profile page.

  • PearlGirl
    PearlGirl Member Posts: 549
    edited July 2010

    Jenmarie9...It wasn't me who said anything about tampons. I haven't needed them for quite a while and wasn't part of that thread here.  Sorry. 

    And RS711...I'm doomed!

  • TMarina
    TMarina Member Posts: 692
    edited July 2010

    Bon-->  I know how you feel!  And I've had colon cancer! 

    For me, I've decided to increase my fruits and veggies, try to eat less red meat (not easy!), serve one meatless meal a week, and TRY to eat less processed foods (eg. make a rice dish from scratch, instead of a packaged rice side dish).  Of course, while going through tx, I eat whatever I can taste!  Oh, and last year I bought a Wii fit--helps me move a little, esp. when its too hot for a walk. 

  • danielle321
    danielle321 Member Posts: 56
    edited July 2010

    Jenmarie9:   My ONC specifically told me no tampons and I even checked with my chemo nurse to make sure.  She said they harbor bacteria and you can get a terrible infection while on chemo.  I even read it in some literature they gave me.  I know, nothing like making a bad situation worse.

    Jenweg:  Good luck with the Taxol.  I'm nervous about my 1st Taxol next Friday. 

  • Jenmarie9
    Jenmarie9 Member Posts: 43
    edited July 2010

    Sorry, Bon! Chemo brain ;)

    Danielle, Thanks. It totally makes sense. I'm surprised no one told me that. I learn so much more from these boards than anyhere else.

  • gingersfavorite1
    gingersfavorite1 Member Posts: 273
    edited July 2010

    Danielle,  thanks for that info.   I'd not heard it but good to know if dear ol' aunt flo decides to show up again.

  • cheyenna
    cheyenna Member Posts: 379
    edited July 2010

    jenwig, good luck today

    i get my blood work today i hope all goes well so i can do mt last AC FridaySmile

  • julia2
    julia2 Member Posts: 183
    edited July 2010

    Does anyone else feel like they're running out of foods they can eat?  No tofu, which I love and used to eat a lot.  No meat unless thoroughly cooked (I like rare to medium rare steak), limited uncooked fruit and vegetables due to bacteria (ok, I used to eat salad for lunch every day and fruit for breakfast).  I like fish, but only wild caught, which gets expensive, and you have to limit somewhat due to mercury levels!  I'm not crazy about eggs, and when I do have them I want them European style (ie. undercooked, another no-no).  Onc wants me on a low fat diet, which seems like a good idea, but there goes cheese.  I am beginning to think I will live on beans and rice and plain yogurt!  I watched my husband down a half dozen Penne Cove oysters and rare tuna saturday night, it was torture!

    Julia 

  • PearlGirl
    PearlGirl Member Posts: 549
    edited July 2010

    On my way to see the onc. He really doens't believe that the allergic reaction is to the Taxotere. The literature says so but because these oncs don't see all the SE's they say it can't be so. UGH!!! I really hate doubting him but I'm not sure about this guy. Having to get through Brunhilda, the nurse, to get to him, is a real pain in the butt. 

    I'm cranky now...don't mess with a woman on chemo with hives!

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited July 2010

    danielle- As it sounds like you have no interest in pursuing a relationship with this guy (can't blame you, sounds awful), I say "no more Ms. Nice guy".  I would just tell him that it is not working out, you have to focus ALL your energy on your medical treatment, please do NOT call or contact you.  End of story.  One thing I have learned about getting cancer, this is a time to try to focus on our own needs, not on others.  Initially, I was always trying to make the news easier for others to bear.Imagine!  As time rolls on, I have become somewhat matter of fact, even blunt.  Deal with it....I am!  You need to get this guy out of your life and surround yourself with supportive people only.

    Bon- Oh you poor thing.  There is nothing worse than itching (well, maybe nausea). Ages ago, when I was in nursing, I got measles at the age of 21.  I have never been so miserable.  When the Benadryl and other stuff didn't work I ran out in the yard and ran around and around the house in frustration.  My mom just sat on the porch and watched me go round and round!  I do remember oatmeal baths being soothing, worth a google.

    Hooray for all of you wrapping up part of your treatment.  I am celebrating with you.

    RS711-  Thanks for posting the list of Dos and Don'ts. I know Dr. Oz had alot of tips too, can probably get more from his website.  I know drinking 2 cups green tea a day can reduce BC by 50% according to a study in Japan.  He says everything in the cabbage family as well as seaweed is very cancer-fighting.  

    As so many of our doctors are focused solely on the medical side, and, in my opinion, neglect the huge area of nutrition and quality of life, I am starting to research on my own.  A lot of the May chemo girls were talking about a great cookbook, which focuses on nutrition during and after cancer.  I just ordered The Cancer Fighting Kitchen, There are 2 cookbooks by Rebecca Katz: One Bite at a Time and The Cancer Fighting Kitchen. Both deal pretty exclusively with nutritionally sound recipes for patients undergoing cancer treatment and dealing with nausea and bad taste in the mouth, etc.They say the recipes are great, I'll let you know.  The way look at it is we are all trying to optimize our chances, it just makes sense to make our bodies stronger to fight cancer cells and other things too.

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited July 2010
    Bon-Oh you have me howling again!  Give Brunhilda he____!  As allergic reactions can be worse with each additional dose (even fatal), you are absolutely right to look into this. I'll give you a hint.  When speaking to your Onc, say "I sure don't want to go into anaphylactic shock, are you sure?"  Trust me, that will scare the poop out of him enough to take it seriously.  The LEAST that HAS to happen, if he wants to continue with Taxotere, is every precaution needs to be in place when you get your next infusion.  That includes, VERY slow drip, constant monitoring, crash cart and oxygen nearby.  I hope this doesn't scare you, but allergic reactions to meds can really be very serious.  Hope you get some relief soon. 
  • angelwoman1
    angelwoman1 Member Posts: 27
    edited July 2010

    Ok, we have been down for a week. Have had 4 treatments and we are half way done! Taxol on the next 4. they tell me not as bad as the AC...?

  • janny99
    janny99 Member Posts: 119
    edited July 2010

    Danielle ~ I saw the "true colors" of my male friend when I was first diagnosed...he was NOT THERE for me, told me I was being selfish about all of this (helloooo, I have breast cancer??!!??!!) and that everybody has 'stuff' going on, not just me.  I decided that I did not want to deal with with the stress of HIM while I am going through all of this.  I told him I was letting him off the hook easy, and that he should just go away...  He STILL tries to keep communicating with me, and I just wish he would go away!  I think that he feels that once all of this is done, we can go back to the way we were (which wasn't all that great anyway).  He gets to miss the fun stuff, the testing, the surgeries, the chemo, the hair loss, the radiation, all the emotional ups and downs of ALL of this.  Men are not worth the stress...take care of yourself!!!  This is your time to get through this so you can be healthy again.

    All of that being said....I truly feel that it was his loss to be such a jerk about this whole thing.  I feel that had we gone through this together, that maybe we both would have grown.  I know that I am forever changed by the BC experience, and maybe had he been a part of this, we may have grown a stronger bond as a couple.  I realize now how precious life is, I don't sweat the small stuff, and I appreciate every wonderful thing that God has given me.  It is his loss...I am not always strong, but I am stronger than I was.  He, on the other hand, will never change.

  • RS711
    RS711 Member Posts: 105
    edited July 2010

    Danielle and Janny- If the guy can't "step up to the plate", then at least now you know that he ain't worth it... better to know sooner than later. You can do better, and you will.

  • JFV
    JFV Member Posts: 795
    edited July 2010

    To those of you who are having a tough time with unsupportive men.  God bless you and hang in there.  I keep coming up with fake Tshirt logos and I have one for you ( hope it gives you a giggle).

    Dude!  I have breast cancer.  Put on your big boy panties and deal with it! 

    My minister came by for a visit today and was talking to me and my son and I made some passing remark on how I am more difficult to live with.  The minister said "You have a right to be difficult!  You're sick!"  I sort of needed to hear this man say those words to me and my son.  We women don' t have to be unselfish martyrs for the men in our lives.  There is no excuse for men who are afraid of the demands an ill woman makes on their lives. 

    Anyway ladies, I just want to say, those difficult boyfriends are gonna' miss out, because they are missing being with you!

  • danielle321
    danielle321 Member Posts: 56
    edited July 2010

    Thanks Janny and RS711 - The problem is that he won't go away.  One minute he's calling me and calling me every name in the book for being selfish and then 5 minutes later he loves me and will never stop trying to be with me.  It's kind of psycho and it's driving me nuts.  At 42 you think I should be able to tell a man to go away that I don't want to be with him and he should listen.  Nope, he's here to torment me forever apparently.  I've tried it the nice way and the very ugly way and he still swears he loves me.  The BC is just something he can get attention by telling everyone in the world about.  Janny, what your man said sounds like the exact thing I hear from this one all of the time.  Poor him, I went and got breast cancer and spoiled his fun.  Oh well, I'll keep praying and trying to make my point.  At least the craziness has calmed down some after 2 years of this, I was kind of hoping the chemo would get rid of the cancer and him.  Maybe Taxol will work. Undecided  Enough about that, I have to live the nightmare every day.  Thanks for all of the support, it helps me stick to my guns. 

  • danielle321
    danielle321 Member Posts: 56
    edited July 2010

    JVF:  I'll take 7 of those T-shirts, 1 for each day of the week! LOL

    Thanks for the laugh.

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