Starting Chemo Feb 2010?

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  • Ado
    Ado Member Posts: 89
    edited July 2010

    Hi everyone. just back from a few days at the sea. Who'd have thought that a simple little trip could be so good. This BC really makes you see things differently and appreciate much more.

    I find alcohol  sets off my flashes but I am having one glass of fizzy wine on a weekend which is low in alcohol. Sugar also does it and apparently increases the production of Oestrogen so I am really going to cut down. It will help the weight loss as well. I have gained 14 pounds since this started and feel like an elephant. My joints are also aching now and I am very stiff.

    I am going to a reception on Thursday for a colleague who is retiring. It will be the first time I have been to anything formal since this started. I am worried about the flashes and will not wear the wig just a scarf. I haven't seen my work friends since I lost my hair and am a bit nervous. It is quite a formal do in London I just hope i can cope with it. I am determined to get back to normal but as my Onc reminded me this is a slow process. Enjoy the day everyone.

  • burley
    burley Member Posts: 631
    edited July 2010

    Good luck at the reception, Ado, and I'm sure you will look stunning in your scarf!  How nice it will be to reunite with your work friends.

    I just got my part-time job back, so I get to be reunited with my work friends for 3 days a week-yea!  I can't tell you how excited I am to just be getting out of the house.  Who knew I would actually be wanting to go to work...

    Same old side effects here-annoying mouth, watering eyes, bone/joint pain (mostly in my hips)..oh, and this rash all over my face I've had after every Taxotere treatment.  With makeup on, it looks like I have acne-and I normally have nice, clear skin.  Aaaaah!  Frustrating!  It usually takes about 5 days to go away, so I'll be counting the days...

    I hope everyone gets a great start to their week!

  • Ado
    Ado Member Posts: 89
    edited July 2010

    Burley my aches and pains are also mainly in my hips. I thought I was the only one. I am so stiff when I have been sitting for a while and look like an old lady when I get up from a chair. As for bed ,well it aches just to lie down for any length of time and when I get up without my hair minus one boob and all bent over my OH refers to me as " Gollom " I know what he means when I see myself wander past in the mirror. I do hope these joint pains go. I have been fearing hip replacements.It's all very well finishing the chemo isn't it but I fear that the effects will be felt for a long while yet. I have also noticed that my gums are receeding. I don't know if it is just age but they are very sore and sensitive. I know one woman who lost her teeth as a result of chemo so who knows what is coming next. I'm sure we don't really mind as long as the drugs do their job and keep the BC away.

  • me2u
    me2u Member Posts: 52
    edited July 2010

    didnt know that sugar increases the estrogen hormones, thanks for the info. am concern on skin products as well such as collagen and placenta or products containing female hormones.

    on the bright side, my last chemo is on next mon and am seeing my radiologist on wed. getting excited and nervous to move on to the next phase......

    cheers to all who are done with chemo and more cheers to those who are near the finishing line :)

  • grdnslve
    grdnslve Member Posts: 310
    edited July 2010

    need my sunglasses!!!!!!!!!!!  onc held my treatment today because of the increasing neuropathy & i am done!!!  getting deported tomorrow, bone density next week.  the appts will begin to be further apart-yeah!  one day i may even feel normal again!!!  can't even describe what a relief it was to not have to have treatment today.  he is giving me two weeks off, then will start either femara or avastin for 5 years.  but one little pill is sure better than what the last 6 months have been.  can't decide whether to laugh or cry--there really is light at the end of the tunnel!

    party at my house--6:00!!!!!!!!!! 

  • swiftbird
    swiftbird Member Posts: 177
    edited July 2010

    Our February chemo group is moving along, graduating, trying to get some normalcy back.  My head looks like a chia pet in the last week - my DH keeps rubbing it and we just giggle.. I had my surgery yesterday; it went really well, got a call from the hospital this afternoon -- we got clean margins and lymph node tested came back negative.  On to radiation in a few weeks.  WHEW is all I can keep saying. 2/3s of the way through... WHEW!

  • faithfulc
    faithfulc Member Posts: 284
    edited July 2010

    grndslve, you got your sunglasses!  Congratulations!

  • Ado
    Ado Member Posts: 89
    edited July 2010

    It makes me so happy to hear of everyone moving on. Haven't we come a long way since February !

  • burley
    burley Member Posts: 631
    edited July 2010

    Yea grdnslave!  I know it was especially rough on you, so I'm very happy for you that you're done.  Too bad I can't come party with you!

    I wish my head looked like a chia pet...I really don't have much growth...sigh.  It's the little things I want now-some stubble, eyes to stop watering like faucets, hips to stop aching.  But all of it is definitely better than chemo!  I'm hoping a month from now I feel great!

    Got my exchange surgery date of August 24th-implants here I come!  I chose silicone for their squishiness...they feel a lot more like boobs.  I told my husband I chose silicone for him-he thanked me.  Lol.  He's a boob guy, so he'll be happy when he can tough them again.

    Well, our group has shrunk with everyone finished and off doing radiation-I hope if you pop in, you'll give us a quick update.

    Have a great day ladies!

  • SunnyCoconut
    SunnyCoconut Member Posts: 350
    edited July 2010

    Hi Everyone!

    I am also popping in to say "hi" and give an update.  I finished my chemo on 5/20 and I can now say I feel completely NORMAL!!!!  I really do!  There were times where all I wanted was to know if I would ever feel normal again.  People would tell me I would have a new normal.  What the heck is that???  A new normal?  I don't want that!  But it is official - I feel normal...  (big sigh)    I only have a little hair (1/2 to 3/4 inch) and I have ditched the wig since it is July and I live in Florida!  All my aches are gone -- I had bad aches in my hips, shins and hands.  All the numbness and tingling in my hands and feet is mostly gone. My eyebrows and eyelashes are back too (yay!)!  My exchange surgery is less than 2 weeks away (Aug 11).  (double yay - one for each foob!)  And I will be "deported" during the exchange surgery! 

    Anyway, keep trudging forward and you will get through it.  I hope everyone has a good weekend.  Gentle hugs to you all.

  • lindee629
    lindee629 Member Posts: 61
    edited July 2010

    Sunny- its good to hear from you, I wondered where you went! We had the same chemo regiment. Isn't it marvelous to be finished? I still don't have the courage to go out in public "topless" but I am seriously thinking about doing it in 2 more weeks, which will be 3 mos PFC. You' re so brave to have ditched the wig already. Good luck with your exchange surgery. Congrats Swiftbird for your good news post-surgery. Rads is nothing, way easier than chemo. Congrats grndslve, and to all the rest of you who've finished as well. It's so wonderful to see so many of us with those little sunglasses! I just like to check in every now and then and see how you all are doing. 

      It's amazing how much better I now feel after 3 months. At one time, I never thought I would feel good or "normal" again. But I breezed thru radiation, and now have my follow-up exams with my onc and surgeon coming up next month. I feel great, only still have that numbness in my fingers and feet as the only real SE. I can even use mascara on my lashes, they're long enough now!  And I still have my nails, I thought they were going to fall off but they are feeling more secure. And the Tamoxifen doesn't seem to be too bad, I've heard about horrible SE's but so far I've only had hot flashes (ugh)

    Anyway, just wanted to check in and say hi!!!   Hope you all have a wonderful weekend!

      

  • Ado
    Ado Member Posts: 89
    edited July 2010

    Sunnycoconut you really cheered me up. I've been feeling rotten today. Last chemo was on 17th June and I think I expected instant results. You've made me realise that I will get there. thanks

  • ginadmc
    ginadmc Member Posts: 263
    edited July 2010

    Hi Girls - Just checking in...I'm on Rads #23, 11 to go. It's going well, my skin is holding up and I have some fatigue but have been able to carry on with normal life. My hair is coming in, fully covered scalp but I'm still wearing my wig to work and headwraps on the weekends. Don't know at what length I'll be ready to go bare. I was distressed to make it through chemo with eyebrows/lashes, only to lose them 4-6 weeks post chemo. However, they did start to come back quickly. I found that no one really noticed my not having lashes/brows. I used brow pencil and black eyeliner so I guess that helped, at least, it made me feel better. I can't use mascara yet but it was heartening to see the lash/brow growth.

    Does anyone who finished Taxol have any residual joint pain? I've noticed some knee pain that I never had before and also my hands seem stiff in the morning. Aside the from the hair loss, that is the only reminder I have left over from chemo.

    Good to hear from you, Lindee! I use you as my guide since you finished a month before me. I'm happy to know you're doing so well.

    I hope everyone has a good weekend!    Gina

  • retrievermom
    retrievermom Member Posts: 522
    edited July 2010

    Hi All!  I was just checking in, too.  My hair is growing pretty fast.  I stopped wearing my wig long ago.  It was easier to go out bare, and I take very little time in the shower.  I feel much stronger now, but not back to my old self yet.  My nails started peeling, but I didn't lose them.  Had a skin check with the rad onc yesterday, and everything looks fine.

    Gina:  I have bad pain in my hands when I wake up; very stiff.

    Glad to hear your surgery went well, swiftbird.

  • swiftbird
    swiftbird Member Posts: 177
    edited July 2010

    ginadmc, i am a few weeks behind you, starting rads soon.  my hair too is starting to grow but still wear wigs out "in public" but at home I go topless. I feel goofy too because it took me until almost the end of chemo to go wigless in front of my husband; he never blinked an eye, but it was a mental hurdle I had to get over.  Now he rubs my head and we giggle at the stubble. Pardon the pun, but the head job this cancer does on us sucks too! My eyebrows and lashes fell out after my last treatment too and it bothered me the most. People say they don't even notice, but I do. More indignity - glad to hear it comes back quickly. 

    I am nearly 2 months post-chemo.  I was putting lotion on my feet and ankles today and for the first time in months, they were not swollen.  YAY!  It's the little things these days...  

  • burley
    burley Member Posts: 631
    edited July 2010

    I'm so glad to hear the eyelashes grow back in quickly!  I can't wait...but for some reason, my eyebrows are getting more sparse.  Weird.  Luckily my wig has long, wispy bangs so it hides the fact that I have barely any eyebrows.  I too wear lots of eyeliner to hide the fact that I don't have eyelashes.

    Nails are still hanging in there-but I'm only two weeks out from the last treatment, so I guess anything could happen.  I have a follow up with the Onc on Wednesday-he was supposed to order a PET scan, so I'll have to remind him.  I want the "all clear" so I can call the surgeon to have this dang port taken out.

    I hope everyone has a great weekend!

  • burley
    burley Member Posts: 631
    edited July 2010

    Oh, I meant to ask...does anyone else have really weird lines on their fingernails?  I've got very pronounced horizontal stripes on all of them, and some vertical lines on a couple.  Freaking me out-I seriously hope I don't lose them!

  • lbreedl
    lbreedl Member Posts: 59
    edited July 2010

    Hello everyone! Im so impressed with everyone's progress and especially our attitudes. When life gives us lemons...

    I finished my last chemo 6/28. Thank God! I was so thankful to be done. I have had some issues with swelling legs/feet and heart flutters. I am going Monday for what seems like a million tests before my lumpectomy on Tuesday. I guess which surgery to have was the hardest thing for me since my Dr.s told me I was good with either surgery even with grade 3 and her2 + ! Let's hope they knew what they were talking about. Then its on to radiation. After rads its a reduction & lift on right side so I will match :/ I'm so ready to be completely done with all this as I'm sure we all are.  

    Take care all. Laura

  • riley702
    riley702 Member Posts: 1,600
    edited August 2010

    burley, I have the weird ripples on my big toe nails and thumb nails. It's growing in normal below that now, so I think once the rippled part grows out, they'll be back to normal. I also have a dark red/purple color at the base of many of my nails. It's growing back in its normal color below that, too. So it looks like it's temporary, but it's frustrating that nails grow so slowly!

  • grdnslve
    grdnslve Member Posts: 310
    edited August 2010

    sunny & lindee--so wonderful to hear your experiences, as it is encouraging to have some idea of when things are going to improve.  seems like the better i feel, the more aware i am of the joint pain.  the neuropathy seems to be getting worse-hope that turns around soon. 

    kim--ditto on the wierd lines on the nails.  you can tell by my nails when the chemo started.  my one thumbnail was so bad it split at that mark & i have been wearing a bandaid to keep it from completely coming off.  only other option was superglue!  my nails were wonderfully long, but as that mark has progressed further down with growth, i have had to file them way down to keep them from breaking off.  sniff

    got deported on friday--they did it in the surgeons office!!  i had his nurse call me, as i was sort of freaking out about it.  am i the only one who has 'hit the wall' in the acceptance & dealing with it department??  i mean, had to go to the hospital & have surgery to get this thing in, and they were taking it out in his office(?!?!)  well, she called me back, said not to worry, it was no big deal, no, they don't put you out, all i would feel was some tugging, etc.  i asked her who was going to hold me down & she just laughed & said she would if need be.  and have to say she was right. it was no big deal.  the worst was when he shot me up with the lidocaine like they do just before accessing it before chemo.  it is a sensitive area to those little pricks!!!!  but once it was numb, i can honestly say i couldn't feel the actual proceedure when he removed it.  i did feel some tugging when he was stitching me up & we were chatting the whole time.  he did ask me if i wanted to keep it (eeeewwwe!)  but i know some people do.  not my idea of a pendant, but whatever blows your hair back.

    wow--from some of your comments i realize how lucky some of you were regarding the eyelashes & eybrows, and how much more that must be irritating to lose them so far into treatment.  mine were gone by week 4 on the ac.  and with all the tearing, it is impossible to keep eyeliner on.  one of the side effects i hate the most - losing eyelashes & eyebrows!!!!!   not that i liked any of the pain, but at least it would have been nice to look good while i was suffering!!!

    hang in there to those still in treatment/radiation.  there really is light at the end of the tunnel!

  • burley
    burley Member Posts: 631
    edited August 2010

    Laura!  So glad your surgery is finally in the works.  I know that must have been a really hard decision to make, but I'm sure you made the right one for your situation.  Good luck on Tuesday!  I hope you won't have to stay in the hospital long. 

    As far as my fingernails go, I'm trying to decide whether or not to put my acrylics back on.  I'm still afraid they might fall off, with these weird lines and such.  I'm going to ask my Onc when I see him on Wednesday.  I liked the acrylics so much, and I think they would make me feel better while I'm still bald and lacking eyelashes, etc.  I tell you, I definitely need a pedicure!  I've avoided them for the entire chemo because of germs, but I figure I'm due now!

  • me2u
    me2u Member Posts: 52
    edited August 2010

    hello all, checking in to announce i am over with chemo :) hurray! its such a relief. my brows are getting thinner, fine hair over my head (not sure to shave again or leave it) and am looking forward to have my normal taste buds back.

    had my ultrasound n mammogram last thurs. there's new findings however nothing to raise any alarms and am meeting my radiologist this thurs.

    this forum has given me much info, support, sharing n encouragment, thank you everyone! To those who are still going through chemos, hang in there, it will be over just round the corner! God bless all.

  • retrievermom
    retrievermom Member Posts: 522
    edited August 2010

    Burley:  I kept my acrylics all thru tx.  As my nail growth progressed, the real nails started to peel, but the acrylic tops (short) kept them strong.  My tech was worried about the peeling and careful.  She's never had a client get a fungus.  Keeping my nails helped me feel good, and I felt I'd get more germs at work than at the salon.

  • mofend
    mofend Member Posts: 140
    edited August 2010

    Hello, everyone - it's so great to see all the smiley faces and to hear of everyone's progress.  Just back from three weeks vacation so I've been off the board.  I, too, have been experiencing aches and pains like many of you - especially in the hands, knees and feet upon waking.  Hoping that this passes.  Start radiation today for six and a half weeks.  Got my strange, fluttering heart issue checked out yesterday - looks like Herceptin is doing a number on me, but I'm on some new meds and will be able to resume herceptin in three weeks - what I've seen is that the herceptin is too valuable of a tool not to continue so I'm grateful that I'll be able to receive my treatment through February.  Of course, it looks like I'm in the less than one percent of people on herceptin who have this type of issue - I just like to keep my docs up to speed!  As always, I love reading all of your input and relish in the fact of knowing that I'm not alone in all this. 

    BTW - the Harry Connick concert is at the end of October to support breastcancer.org - in Philly.  If anyone is interested in coming to town for it, let me know and I'll arrange details.  Take care all - Mo

  • burley
    burley Member Posts: 631
    edited August 2010

    Great to hear from you, Mo!  Glad you got away for three weeks without cancer talk.  Also glad to hear they got your heart issues worked out.

    Holy cow, I don't know what the temp is here in AZ today, but I was sweating to death on my 10 minute drive home from work!  I came home and ripped my wig off in the kitchen, then stood under the ceiling fan.  Ugh.  It makes the hot flashes terrible!  My kids are eating popsicles as we speak.

  • riley702
    riley702 Member Posts: 1,600
    edited August 2010
    I just found out last week that my total cholesterol is 240 and my triglycerides are over 300! So now I'm on Niaspan, which causes flushing for about an hour and a half after I take it. And we're in the middle of a heat wave like no other. So even inside in the air conditioning, I'm turning bright red and feeling hot and itchy. And after this first week of 'getting used to it', the dose will double! It's always something, isn't it? Tongue out
  • Leah58
    Leah58 Member Posts: 159
    edited August 2010

    Congratulations to all of my February sisters finishing treatment or almost done!!  Yeah!!   I am now 3 months post chemo and I have a head of 1/2 - 1 inch silvery gray hair.  I am planning to "rock" my silver hair for a while.  Who knows what our hair will look like in 6 months?

    My eyelashes and brows came and went but seem to be back and holding steady for now.  I think that I am feeling "normal" too except for fatigue and super hot, hot flashes.  When I have a flash I whip out my pretty vintage Japanese fan and fan away.   I am taking Arimidex and that enhances the hot flushes.  Stress and fatigue make them worse.  I do hate hot flashes!!!

    I too have been off the grid for a while but you have all been in my prayers.  I am so pleased that everyone is hanging in there.  You are all such a great support team.  Take care, Team February!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2010

    Burley - I have those weird stripes on my fingernails too. My husband just noticed them and pointed them out to me yesterday. My nails, otherwise, are fine and intact. A little weak, but nothing major.

    Has anyone had issues with shoulder pain? My shoulder (mastectomy side) is KILLING me. I'm in physical therapy for frozen shoulder. I had some cording pain in my arm, too. 

  • swiftbird
    swiftbird Member Posts: 177
    edited August 2010

    Hi ladies,

     Been awhile for me too.  Am 9 weeks PFC. Chiapet hair starting to come in. My DH and I just rub my head and giggle.  It's fun and really helped elevate my mood, because my eyebrows and lashes fell out, and my nails are barely hanging on (ugh). But tummy and energy coming back.  Light at end of the tunnel.  

    Had surgery last week. Lumpectomy. I was up and at 'em the next day. My surgeon ROCKS.

    Up next: radiation.  Probably see some of you on August or September Radiation thread now... Now obsessing and scare of lymphedema. I had one node removed, but still kinda freaked out. Maybe because chemo is over and I am so accustomed to treatment/SE-induced drama? Am I looking for new boogeyman?

    Hot here. Caliente! I did same as burley - walked in and peeled off my wig today *ahhhhhh...* 

  • writer
    writer Member Posts: 208
    edited August 2010

    Hey all, nice to see you're moving on, if still baldish and achy. I'm 10 weeks post final chemo, in week 5 of radiation. I never did lose all my brows and lashes, but I lost more in recent weeks-- hopefully that's stopping. My hair is growing pretty fast-- I'm about a week or two from looking like a Marine recruit. Other than an unpleasant and very itchy chest rash, radiation hasn't been a big deal. My biggest issue now is muscle/joint pain and stiffness. I'm pretty active, and I am prone to the usual middle-aged aches and pains, so I don't know if this is just buried stress or residual chemo issues or just life, but man, I'm hobbling like a little old lady. Sciatica, hip pain, stiff neck, ankle hurts.... I can't seem to shake any of this stuff, despite my great chiropractor, stretching, pilates, etc. Hopefully it's just residual chemo stuff and will go away.

    I'm so grateful for all of you. My landlady was diagnosed several weeks ago and was rushed into chemo (neoadjuvant). She is not computer savvy or an online gal, so I've been doing my best to pass along what I've learned both here and through experience. It makes me wonder how anyone gets through this without the support and wisdom of such a community!

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