anyone have lung mets

I have lung mets--have not been able to tolerate xeloda and tykerb--had 1 treatment of navelbine and counts dropped so that I could not have the next treatment.  Looking into radiation.

Hi, Michelle!

I have lung mets too.  I had taxotere/carbo and avastin for 6 months 3 weeks on and one off.  I was in remission for a few months and taking tamoxifen.  I haven't been re-diagnosed yet (a spot showed on a ct scan, for some reason, doesn't show on a pet scan), but it seems likely that the tamoxifen is not working and another nodule has reared its ugly head.  I go back this friday to test my tumor markers again to see if they've risin again.  I'm also having an ooph to help control the estrogen.  Once I have that surgery, I'm hoping that an AI will help control the ugly beast!

I don't think it's automatic chemo for life, but every person and every doctor is different.  Once you get those nodules tamed, maybe your onc will prescribe an AI to keep you stable.  Hope this helps.  If you have any other questions, I'd be happy to try to help!

Best of luck!!!

Holly

have pleural effusion. started my chemo taxotere after removing fluid. still wondering what's next, let's all keep on praying coz it's God that could really heal us.

Earlier this week, my mom was just diagnosed with a recurrence of the BC she had over 2 decades ago in her early 40's. 

She had no symptoms except for fatigue, shortness of breath, and a dry cough.

The PET scan has shown "mets" (is that what they're called?) in her bones, lung, and liver.

The mets are diffused all over one lung, in 5 bones including spine, hip, collarbone (mets are measuring in centimeters in her bones, pretty big, with both osteoclasts and osteoblasts), but I think it's just a small lesion on her liver.

 I don't know what to do or think. They took biopsies today to see what kind've cancer cells they are (and to confirm that it's a recurrence of the BC and not another kind of cancer). They also drained the fluid around her lung to make her more comfortable.

1) How could she have such widespread mets with no pain, just respiratory difficulties? Does this mean she won't have any pain in the future (blessed)?

2) what is her prognosis gonna be like? People keep telling me "you can't tell" but I am wondering if they're just saying that because it's a bad prognosis and they don't want to tell me. Is it like a year? 2 years? 6 months to a decade (this is what someone told me)? Does she have any chance at a cure? 

I have lots more questions, and the only answer I can get is "we don't know" and "you can't tell with cancer." Is this what it's like for everyone? 

 I'm freaking out. I love my mommy. I never thought the BC would come back - I was a child when she first had it (got a radical mastectomy) - it seemed "cured." I can't believe this.