Skin Mets Question to IBCers

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in IBC (Inflammatory Breast Cancer)

I finished 12 cycles of Taxol April 15th.  I am on Tamoxifen and Zoladex the quarterly shot.  These last 2 meds are suppose to suppress my ER/PR hormones so they can't feed my cancer.

My next ONC vist is August 9th....I needed an 8 week break from doctor visits once the chemo was over.

I have noticed that I now have about 3 more of those little acne like skin mets  on my breast.  I didn't have a mastectomy because I am already Stage 4 with bone mets.

I was wondering if any of you ladies believe IF I am finding more skin mets, than it is more than likely this cancer is spreading again even on the Tomaxifen and Zoladex shot? 

Now what?  Has anyone experienced this themselves? 

Let me know... MzJoy

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  • ev1989
    ev1989 Member Posts: 22
    edited July 2010

    Hi, I am a 3+ year IBC survivor. Mine too went to the bone and I do have skin mets. The only way to tell if you have skin mets is to do a little skin biopsy there. It is worth it to know for sure. I get Aredia monthly for the bone mets and am on weekly Taxol for the skin mets. I wish there was more info on stage 4 IBC and treatment for skin mets, they really have a lack of info out there on the subject. I've had the Tamoxifen but what is the Zoladex shot?                Love in Jesus,      Elizabeth

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  • ev1989
    ev1989 Member Posts: 22
    edited July 2010

    The bone mets started in my spine and went to my right hip. It was discovered early because they did a PET scan when the CA 27.29 started going up when I was in remission. So far it is only in the bone and not any soft tissue from what they can tell. I've been on the Aredia since 9/08. I have some side effects the days right after after it is given mostly flu like syptoms (sore throat, achy, stuffy, tired etc), but after that, it really takes down the pain, it is worth taking for me, my onc feels that it is protecting my spine from deteriorating. I know there is a risk of jaw necrosis but my spine is more important. I gave my onc the Miltex forms but he doesn't think it is a good idea and the direction for getting it are not clear, still I would like to try it. The skin mets are on both sides now and my left shoulder area.      Love in Jesus,       Elizabeth

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  • cwrightrn
    cwrightrn Member Posts: 242
    edited July 2010

    Just a note re: miltex-- it comes from Germany and takes awhile to get.  My Dr researched it with another IBC'er with skin mets but the patient passed before my Dr could get it.

    Hang in there!  Keep fighting! 

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  • anetnut
    anetnut Member Posts: 49
    edited July 2010

    I have looked at some pics of skin mets out there, but can't find some that look really like mine. I am concerned that these places under my arms are more than ingrown hairs from shaving. They popped up one week after my first chemo treatment and now I'm worried it is showing up elsewhere. I will have another chemo treatment on Friday with an exam, but was just wondering if anyone can point me to some more photos of skin mets. It was a bit itchy one time this morning, and there is a couple of small knots which are sore under each arm.

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